The mother of two, who lost her son Robert to the disease at the age of just four on Christmas Eve in 2000, said: ‘It makes me angry that a topless model is allowed to have a boob job on the NHS for cosmetic reasons or someone can have a tummy tuck, but a poorly child has to suffer.’ Jake (pictured as a child with his older brother, James, who has Asperger syndrome) has lost most of his movement as a result of his illness and it causes him extreme pain .
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