eaa777cd_CER_Inventory___CER_Inventory__Category
[Agency] NIH [Project Title] DEVELOPING A COMMUNITY-BASED ASD RESEARCH REGISTRY [Institution] CHILDREN»S HOSPITAL OF PHILADELPHIA [Amount] $500,000 [Summary] Developing a Community-Based ASD Research Registry The difficulty of enrolling large samples in research studies is perhaps the most significant barrier to better understanding the causes and treatment of Autism Spectrum Disorder, or ASD. We propose a new approach to quickly and efficiently create an ASD research registry that in- cludes at least 7500 individuals with ASD within the state of Pennsylvania interested in partici- pating in research. We will establish that members of the registry are as diverse as the broader population from which they are drawn, test a cost-effective way of verifying their diagnosis, and demonstrate how to build effective partnerships between universities and local and state agen- cies to advance research. [Completion/ Closing Date] 09/02/2010 [Link] link [Category] 
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