a mother has described how she heard a doctor asking her husband about switching off her life support as she lay in a medically induced coma after collapsing from a rare condition jenny bone, who was feared to have catastrophic brain damage after going into cardiac arrest, lay listening to the life or death conversation but was paralysed and unable to intervene she recalls her husband john ruling out ending her life – despite a previous conversation when she said she wanted to die if incapacitated permanently the 40 year old later recovered and now says she is relieved he went against her wishes near death: jenny bone, 40, pictured, was in a coma in hospital but heard doctors discuss ending her life only for her husband to refuse to switch off her life support machine  much loved: mrs bone, pictured with her son david and husband john, had said she would want her life support switched off, but mr bone refused to give up on her  ‘i was aware of conversations around me,’ she said ‘the most frequent one was being turned in the bed a familiar “ready, steady, turn” would come from the nurses ‘the most alarming was between a doctor and my husband enquiring as to my wishes surrounding being kept alive on a ventilator and that they were unsure whether my mental ability had been impaired due to lack of oxygen while they were attempting to restart my heart starting again: a year on from her near death experience mrs bone is back at work and also took part in a charity run, pictured  ‘there was an agreement that i should continue to be kept on the ventilator to give a chance for an mri scan to be done to see if i had any brain function ‘i was not even responding to a basic reflex test, which is why the doctor thought i was not going to have a chance of recovery i am very pleased my husband gave me that extra time’ mrs bone, a government building surveyor, felt pins and needles in her legs on march 14 last year but still went to work she was alone in a tower block in central london when she collapsed as the pain moved up her legs she managed to catch a train home to leighton buzzard, bedfordshire, and went to her gp who immediately sent her to luton and dunstable hospital with a letter saying she might have guillain barre syndrome the condition involves the immune system attacking the peripheral nervous system – the network of nerves outside the central nervous system – leaving the brain unable to control muscles she and her husband claim the letter was handed over but not acted upon and she was initially told she had a chest complaint hours later she stopped breathing and went into cardiac arrest she was given a tracheotomy to help her breathe and was placed in a light medically induced coma she was on a respirator in an intensive care unit when a doctor raised the subject of ending her life a few days later mr bone, 58, who is also a surveyor, explained: ‘he said they didn’t know how long she was deprived of oxygen and there could be a range of deficits and it could be time to turn the machine off i said it was far too early ‘he said, “we have got to be realistic about what might happen,” but again i said it was too early’ new life: mrs bone, pictured left and right during her recovery, had been minutes from death before she was diagnosed with rare autoimmune disease of the nervous system guillain barre syndrome  while in intensive care mrs bone was finally diagnosed with guillain barre syndrome doctors realised she had a chance of surviving if kept in the coma to allow her body to repair itself she was given intravenous immunoglobulin and had a plasma exchange shortly after returning home she began taking her five year old son, david, to school with the aid of a walking frame now, one year on, she is back at work and has completed a 5km charity run, negotiating the course while leaning on a walking stick the couple have made a formal complaint to the hospital about the gp’s letter being ignored a hospital spokesman said: ‘we are glad that mrs bone is recovering from her illness however, we are sorry she did not have a positive patient experience we are investigating the concerns raised’ renowned neurosurgeon munchi choksey said: ‘sometimes the sedation wears off a bit, so she might have been hearing some of the conversations around her ‘but some of the drugs like opiates [she may have been prescribed] can in some cases induce hallucinations so it could be she was in a dream like state and imagined what was happening’
jenny bone john guillain barre syndrome
jenny bone has recovered after husband john refused to end her life . mrs bone fell in to a coma after falling ill with guillain barre syndrome . nerve condition meant she appeared unconsciousness and brain dead . heard doctors ask her husband for permission to switch off life support . she said: 'he  went against my wishes, but i am very pleased he did that'. guillain barre syndrome is where immune system attacks nervous system . has something similar happened to you or a relative? contact us via news@dailymailcouk 