to tell him how to live, i want to show him. these are the toughest years because you still don't know much about yourself yet, and adding a motor that runs 24/7 is like fuel to the fire. these are my first thoughts about an illness i never really knew much about, even though i have had it for 37 years. i never let it win, and i never used it as an excuse. if we let him be himself, my son will do the same. 