Eliza suffers from rare genetic condition called Sanfilippo Syndrome . Her family put themselves under quarantine for the past nine months . The disease is caused by a mutation in an enzyme that helps to break down fats and sugars into smaller molecules, which can be used as energy or stored away safely. On the rare occasion they interact with people they wear masks and gloves . The family has raised $ 2.2 million for a drugs trial with a GoFundMe page .
Eliza suffers from rare genetic condition called Sanfilippo Syndrome . Her family put themselves under quarantine for the past nine months . The family get their groceries delivered and stay inside 24/7 . On the rare occasion they interact with people they wear masks and gloves . The family has raised $ 2.2 million for a drugs trial with a GoFundMe page .