ben Parnaby has been diagnosed with the genetic illness , Krabbe disease . 20-month - old is unlikely to see his fourth disease , doctors have warned . The disease , which affects one in every 100,000 people , causes patients to gradually regress and lose the ability to read , talk , see and breathe . His parents Lindsey and Ben Parnaby have compiled a bucket list for him . He 's met Fireman buddy , met a famous person and enjoyed a boat ride . List also includes swimming in the sea and finding a cure for his diabetes .
Zach Parnaby has been diagnosed with the genetic illness , Krabbe disease . 20-month-old is unlikely to see his fourth birthday , doctors have warned . The condition , which affects one in every 100,000 people , causes patients to gradually regress and lose the ability to walk , talk , see and hear . His parents Lindsey and Ben Parnaby have compiled a bucket list for him . He 's met Fireman Sam , met a famous person and enjoyed a boat ride . List also includes swimming in the sea and finding a cure for his disease .