A schoolgirl who suffers from a rare condition which means she could die at any time has written a heart-breaking bucket list . Harlee-Jae Procter , from Bacup , Lancashire , told her mother Sasha she wants to ride an elephant , ice-skate with her favourite Frozen character and be a zoo keeper . The four-year-old has spent much of her short life in hospital due to a rare condition which means that part of a chromosome has been lost or deleted . Brave : Harlee-Jae Procter , who has a condition which means she could die at any moment , has come up with a bucket list of things she would love to do . As a result the tot has been diagnosed with biliary atresia which causes inflammation of the bile ducts , polycystic kidneys and nephrocalcinosis , a build up of calcium in the kidneys which can lead to fatal renal failure . 'Harlee-Jae is such a character and people who meet her do n't think there is anything wrong with her , ' said the mother-of-two . 'After we were told that she could have renal failure at any time , we decided to come up with a list of things she wants to do . 'And I think she realised she could take advantage of it a bit - so there are things on her list that are possible and some things that will never happen . 'It 's really scary thinking that the worst could happen to her at any minute so we just want to make as many memories as we can . But I do n't let her conditions define her or how she is treated . ' And the youngster - who still wears age 12-months clothes because her growth has been stunted - has already started to tick items off . Pilot Procter : Harlee-Jae Procter ( left ) and sister Codiee-Lee ( right ) has already started to tick things off her bucket list like being a pilot . List : Harlee-Jae Procter ( right ) who has a serious healt condition , pictured with sister Codiee-Lee . The pair spent a day as police officers as part of the four-year-old 's bucket list . She has already flown in an airplane cockpit , met Elmo , and spent the day as a police officer at Rossendale police station where they organised for her to go on a police car ride , a tour of the police station , and take part in fingerprinting and handcuffing . Sasha said : 'She came up with the bucket list after we were taken to PortAventura in Spain in August by the Make a Wish Foundation to meet Elmo from Sesame Street . 'She had a great time and even got to go in the cockpit of the plane on the flight over . 'Her list is full of things - some are achievable but some will never happen . She wants to ride an elephant , ice skate with Elsa from Frozen , be a zoo keeper and meet Danny Ings . Poorly : Harlee-Jae Procter was diagnosed with biliary atresia at just four-weeks-old after she was born severely jaundiced . Little fighter : Baby Harlee-Jae Procter in hospital . She has extremely rare diagnosis of microdeletion 17 q12 syndrome which means that genetic information has been lost or deleted . 'It 's about making memories . I do n't want to just sit here crying and let her condition define our lives . ' The brave youngster was diagnosed with biliary atresia at just four-weeks-old after she was born severely jaundice . She was transferred to Leeds General Infirmary for a Kasai procedure which drains bile from the liver to the gut . The operation improved her liver function but Harlee will still need a liver transplant before she reaches adulthood . Frozen : One of Harlee-Jae Procter 's wishes is to ice-skate with her favourite Disney character Princess Elsa . Fun loving : Harlee-Jae Procter , four , does n't let her potentially fatal condition stop her from doing what she wants . She has come up with a bucket list of things she would like to do . The reception pupil was then diagnosed with polycystic kidneys at six-months , followed by an extremely rare diagnosis of microdeletion 17 q12 syndrome which means that genetic information has been lost or deleted . And more recently Harlee-Jae was found to have nephrocalcinosis which has to be monitored at monthly hospital visits , and could prove fatal . The brave girl has to take 15 different types of medication every day - and her condition has also made it difficult to potty train leaving her embarrassed at school . Sasha , who is also mother to six-year-old Codiee-Lee , said : 'All of this has been going on since she was born and Harlee deals with it really well . 'She does n't think there is anything wrong with her and thinks I am lying when I tell her - she tells people the scar from her op is from falling off her bike . '
'Riding an elephant ' and 'ice-skating with Frozen from Elsa ' on tragic list . She has rare condition where part of a chromosome is lost or deleted . Condition causes calcium build up which can lead to kidney failure .