Since their son , Aiden , was born prematurely with a rare condition that baffled doctors , Karl Smith and Vikki Jackowiak have battled tirelessly to help him . Aiden , now four , was born with a growth on his face , back and leg and has brain damage that means he ca n't walk and talk . He had test after test to find out what was causing his problems and as a result , he was recently diagnosed with Clove Syndrome . Scroll down for video . Karl Smith and Vikki Jackowiak appeared on This Morning with their son , Aiden , who has Clove Syndrome . The condition was only discovered in 2011 and just 150 people have been diagnosed with it so far . Aiden 's mother , Vikki , 40 , from Alnwick , Northumberland , said the diagnosis was both a blessing and a curse - as it has dashed her hopes of one day finding a cure for her son . 'Once we got the diagnosis we looked it up on the internet and saw there was no cure which was disheartening . I always hoped diagnosis would lead to cure , an operation he could have , ' she said on today 's This Morning . Clove stands for Congenital , Lipomatous , Overgrowth , Vascular Malformations , Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis . Aiden 's condition causes facial deformity due to the accumulation of fatty masses . Symptoms include skin , limb , torso and spinal abnormalities such as like fatty masses or scoliosis ( spinal deformity ) . There can also be vascular ( blood vessel ) abnormalities such as a birthmark . Aiden 's father explained how it does n't always affect people in the same way and Aiden is a particularly bad case . He said : 'There 's no two children the same with Cloves . He 's higher end of spectrum , he ca n't walk and talk like some others with it can . ' The parents admitted that the diagnosis has brought them some comfort as they have been able to meet other families going through the same thing they are . The little boy has a great relationship with his older brother , Daniel , pictured right . Vikki and Karl had to see numerous doctors before Aiden was finally diagnosed . Karl , 35 , said : 'It 's an emotional journey , even though you have your family , meeting others is nice to have that rapport and discuss how you 're feeling and how they are going through the same emotions as we are . ' The couple , who also have a son , Daniel , 13 , will share what life is like for the family in a Channel 5 documentary that airs tomorrow evening called Aidan : The Rarest Boy in the World . Vikki admitted there is always a new issue to deal with as so much is unknown about Cloves but now they have a diagnosis , they can try and give Aiden the best life they can and manage his symptoms . The family share their story in a Channel 5 documentary this week . The parents are striving to give Aiden the best life they can . For example , he 's had operations to remove excess fat from his face and neck and could have back surgery in the future . He could also become a test subject for a study being carried out at Cambridge University for a drug trial that could reduce some of the lumps he has and slow down the swelling . In the meantime , the parents said Aiden has started at school four mornings a week - which he loves . 'He has come on leaps and bounds , ' Vikki said . She added that he has a great relationship with his older brother who is understanding about how much attention his sibling receives . She said : 'Aiden takes a lot of our time and we 're often at hospitals . It 's tough on Daniel but we have to make the best of it . ' Aidan : The Rarest Boy in the World is on Channel 5 Tuesday at 9pm .
Aiden , was born prematurely with a rare condition that baffled doctors . Now four , he has been diagnosed with Clove Syndrome . Only 150 people diagnosed with it so far after it was discovered in 40 . Mother Vikki said they are glad they now know Aiden 's condition . But was disheartened to learn there is no cure .