As the clinical research infrastructure accommodates pragmatic studies and incorporates patient-centered outcomes in therapeutics development, patients are increasingly asked to report on adverse events and end points and donate health data to trials. New England Journal of Medicine researchers have used a Harvard article to push the adoption of personal healthcare records, allowing individual patients to have ultimate control over the information about themselves that is available to the healthcare system, arguing the time is ripe for a “patient-controlled health-record infrastructure” in order to enable a “patient-driven health information economy". The authors of the report, Dr. Isaac Kohane and Dr. Kenneth Mandl both lay the blame for the current state of the New England Journal of Medicine market at the feet of providers, saying they have hampered efforts to bring about interoperability and data liquidity.
New England Journal of Medicine researchers have used a Harvard article to push the adoption of personal healthcare records, allowing individual patients to have ultimate control over the information about themselves that is available to the healthcare system, arguing the time is ripe for a “patient-controlled health-record infrastructure” in order to enable a “patient-driven health information economy". The authors of the report, Dr. Isaac Kohane and Dr. Kenneth Mandl both lay the blame for the current state of the New England Journal of Medicine market at the feet of providers, saying they have hampered efforts to bring about interoperability and data liquidity.