Jill Wood 's 4-year - old son Jack has a rare and fatal disease . Her family has formed a foundation to seek a cure and raise funds . Most children succumb to organ failure or upper respiratory infections . Radio personality Jonny Lee Miller is running an ultra - marathon to support the foundation .
Jill Wood 's 4-year - old son Jack has a rare and fatal disease . Her family has formed a foundation to seek a cure and raise funds . Radio personality Jonny Lee Miller is running an ultra - marathon to support the foundation .