When Jessica Sarubbi was born , doctors did n't know if she 'd live through the birth . Doctors determined she had Ablepharon Macrostomia Syndrome , an extremely rare genetic disorder characterized by various physical abnormalities that could affect the head and facial area , the skin , and fingers , according to the National Organization for Rare Disorders . Jessica was born with Ablepharon Macrostomia Syndrome , a rare genetic disorder . She became a top visually impaired skier and made it to the 2010 Winter Paralympics in Vancouver . A Harvard undergrad , she 's focused on raising awareness of people with disabilities .
When Jessica Sarubbi was born , doctors did n't know if she 'd live through the birth . Jessica was born with Ablepharon Macrostomia Syndrome , a rare genetic disorder . She became a top visually impaired skier and made it to the 2010 Winter Paralympics in Vancouver . A Harvard undergrad , she 's focused on raising awareness of people with disabilities .