Writer Emily Rapp 's son was diagnosed with Tay-Sachs disease at 9 months old . The family has since moved to a new home in the United States, but they still live in their hometown of St. Louis. : I would tell the me who was living that that when he died I would be relieved . Rapp delighted in moments of joy with her son and learned profound lessons .
Writer Emily Rapp 's son was diagnosed with Tay-Sachs disease at 9 months old . The family has since moved to a new home in the United States, but they still live in their hometown of St. Louis. Rapp delighted in moments of joy with her son and learned profound lessons .