Ella daughters Jodie Barden 's , 8 and Chloe , 1 , have Cockayne Syndrome . This rare genetic disorder means they are unlikely to live to be teenagers . Mrs Barden , 28 , has faced heartbreak of planning her daughter 's funerals . Family is now trying to make the most of the remaining time they have .
Jodie Barden 's daughters Ella , 8 and Chloe , 1 , have Cockayne Syndrome . This rare genetic disorder means they are unlikely to live to be teenagers . Mrs Barden , 28 , has faced heartbreak of planning her daughter 's funerals . Family is now trying to make the most of the remaining time they have .