Jodie ##l 's daughters Ella , 8 and Chloe , 28 , have Cockayne Syndrome . This rare genetic disorder means they are unlikely to learn to be teenagers . Mrs Barden , 28 , has faced heartbreak of planning her husband 's funerals . she is now trying to get the most of the hard ##ships they have .
Jodie Barden 's daughters Ella , 8 and Chloe , 1 , have Cockayne Syndrome . This rare genetic disorder means they are unlikely to live to be teenagers . Mrs Barden , 28 , has faced heartbreak of planning her daughter 's funerals . Family is now trying to make the most of the remaining time they have .