Five-year-old Ava Ciach , from Geelong in Victoria , had Sagittal Synostosis . The condition is a rare form of cancer that affects the bones and cartilage surrounding the spinal cord. Her mother Stacey is speaking out about the complex operation to raise awareness for the Royal Children 's Hospital 's Good Friday Appeal .
Five-year-old Ava Ciach , from Geelong in Victoria , had Sagittal Synostosis . She had to have her skull removed , smashed and put together like a jigsaw . Her mother Stacey is speaking out about the complex operation to raise awareness for the Royal Children 's Hospital 's Good Friday Appeal .