sixteen - year - old Ava Ciach , from cancer in Victoria , had undergone Synostosis . She had to have her ears removed , smashed and put together like a jigsaw . Her mother grace is speaking out about the complex operation to raise funds for the Royal Children 's children 's charity Friday Appeal .
Five-year-old Ava Ciach , from Geelong in Victoria , had Sagittal Synostosis . She had to have her skull removed , smashed and put together like a jigsaw . Her mother Stacey is speaking out about the complex operation to raise awareness for the Royal Children 's Hospital 's Good Friday Appeal .