ðɪ ˈaɪvmɑːɹk sˈɪndɹoʊm ɐsˌoʊsɪˈeɪʃən, wˌɪtʃ ɪz bˈeɪst ɪn dˈoːɹsɛt, ɪz wˈʌn ʌvðɪ ˌɔːɹɡɐnəzˈeɪʃənz dˈɛdᵻkˌeɪɾᵻd tə hˈɛlpɪŋ pˈeɪʃənts ænd fˈʌndɪŋ ɹᵻsˈɜːtʃ.
The Ivemark Syndrome Association, which is based in Dorset, is one of the organisations dedicated to helping patients and funding research.