Kári Stefánsson founded DeCode Genetics in 1996 in the midst of concerns about privacy related to a large centralized healthcare database and the commercial use of health information and genetics.
Although the company was bankrupt in 2009, it resumed its data collection in 2014 after it was purchased by Amgen, by sending out another 100,000 envelopes to add to the 120,000 samples already taken [REF].