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"   Description The Tuberous Sclerosis Association (TSA) was formed in 1977 by a group of parents, affected individuals and doctors interested in promoting greater understanding of the condition and providing mutual support for affected families.  TSA has expanded and developed its services, both to the individuals and families it supports and to doctors and other professionals interested in broadening their knowledge of this disorder.    Activities  The TSA provides accurate and up-to-date information about tuberous sclerosis. It can put families or individuals in touch with one another and offer advice on a range of issues associated with tuberous sclerosis, as well as recommending additional sources of help.  The TSA has appointed Specialist Advisers to support families and individuals with tuberous sclerosis. Tuberous sclerosis clinics have been established to facilitate access to good care. They have been established in Leeds, Bath, Cambridge, London, Northern Ireland and Scotland.  Benevolent fund to help in cases where there is a special need for equipment or help which is not fully catered for by other services and allowances.  Parent/carer training days provide families with the opportunity of hearing the experts talk about the many and varied aspects of TS. The TSA holds an Annual Conference each November to which members and friends are invited.  Annual Family Weekend where families can relax together and share their experiences of TS.    Materials  The TSA produces a large selection of literature, including an introductory leaflet for TS sufferers and their families, an illustrated medical brochure for doctors, and leaflets specially written for teachers and nurses.  TS Scan newsletter includes updates on research, treatment and management of TS and also welcomes contributions from TS sufferers themselves, their families and professionals. The TSA has produced the following videos:   &amp;#039;Caring for those affected&amp;#039; illustrates the effects of TS throughout childhood and into adulthood. Doctors and parents discuss caring for people with TS who have learning disabilities and life-long care needs.  &amp;#039;Living with the Condition&amp;#039; addresses the needs of those who do not have a learning disability but nevertheless may have other problems associated with TS. People with the disorder talk about the effects of the condition on their lives.  &amp;#039;Our Mission&amp;#039; is a promotional video, which illustrates the work of the TSA.    Contact details Address Toad Hall White Rose Lane Woking Surrey  GU22 7LB  Email via website Website Home page  Last updated 18.02.2013 "^^<http://www.w3.org/2001/XMLSchema#string>
<http://www.netdoctor.co.uk/support-groups/brain-and-nervous-system/a391/tuberous-sclerosis-association/>