text:  They reached out to the scientists to see if Powell could get into the clinical trial. But while she was physically a good candidate, the required monthly trips to receive the medication was a huge financial hurdle. At this time, my mom is out of work. She's been out of work for about a year. She was my main provider, and we had a home that was going underwater. We're in the process of losing our home and our livelihood of what we know. My mom's a single parent, so it was really, really hard.