Ricki S Carroll Angela L Duker Andrea J Schelhaas Mary Ellen Little Elissa G Miller Michael B Bober
10.1089/pmr.2020.0016
Palliat Med Rep
2020 May 14;1(1):32-39.
lethal condition pediatric palliative care perinatal palliative care prognosis rare disease skeletal dysplasia thanatophoric dysplasia
CC BY
https://pubmed.ncbi.nlm.nih.gov/34223453/
Case Reports
PMC8241327
34223453
Should We Stop Calling Thanatophoric Dysplasia a Lethal Condition? A Case Report of a Long-Term Survivor
2020