Title: State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
Headings: State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
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Summary

Content: Among the 43, three states (Indiana, Maryland, and New Jersey) enacted legislation before the Secretary's approval of adding CCHD to the RUSP in 2011 ( Table ). State adoption of CCHD screening peaked in 2013 with 25 states adopting screening ( Figure 1 ). The manner in which these 43 states developed universal screening varied substantially ( Figure 2 ), and for some was a multistage process ( Table ). For example, California passed legislation requiring that CCHD screening be offered to parents of newborns. In 2013, Pennsylvania issued a regulation requiring reporting of results and diagnoses of screened newborns. However, the regulation did not mandate screening. In 2014, Pennsylvania enacted a law requiring screening. In 2012, Tennessee initially passed legislation that required the state's genetic advisory committee to develop a program for addition of CCHD to its screening panel. In 2013, Tennessee added CCHD to its panel via regulation. In 2012, Virginia's governor issued an executive order establishing a work group to develop a CCHD screening implementation plan, and legislation for mandatory screening was passed in 2014.