Title: State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
Headings: State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
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Summary

Content: In 2013, Massachusetts issued guidelines that recommended hospitals screen newborns and passed mandatory screening legislation in 2014. In 2014, Wisconsin enacted a law that allows the state department of health to add conditions to its state panel via regulation. Soon after enactment, regulations were issued adding CCHD to its panel. Seven states and the District of Columbia support CCHD newborn screening as the standard of care with no mandate in place. Two states and the District of Columbia report that all hospitals are screening for CCHD ( Table ). By December 2014, among the 50 states and the District of Columbia, data collection within each newborn screening program varied from no data collection to collection of all screening results for every newborn. Of the states that have implemented, or are planning to implement CCHD screening, 24 reported current data collection, 14 reported planning future data collection, and 13 reported no plans for data collection ( Table ). The types of data collection vary from aggregate data collection only, collection of pass/fail results on all newborns, oxygen saturation results on all newborns, oxygen saturation results on failed newborns only, or a combination of these ( Table ). Discussion
The increasing number of states mandating newborn screening for CCHD will likely increase the number of newborns screened, allowing for early identification and the potential for the prevention of morbidity and mortality. Most newborn screening conditions are tested through a heel stick test, with bloodspot analysis at public health or contracted laboratories.