Title: State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
Headings: State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
State Legislation, Regulations, and Hospital Guidelines for Newborn Screening for Critical Congenital Heart Defects — United States, 2011–2014
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Summary

Content: The survey requested the status of CCHD mandates and requirements for data collection. If data collection was required at the state level, additional information was requested on the type of data collected. All 50 states and the District of Columbia participated. The survey findings indicated that 43 states have legislation, regulations, or hospital guidelines in place supporting CCHD newborn screening; 35 states have legislation, and 13 have regulations related to CCHD screening ( Table ). Among the 43, three states (Indiana, Maryland, and New Jersey) enacted legislation before the Secretary's approval of adding CCHD to the RUSP in 2011 ( Table ). State adoption of CCHD screening peaked in 2013 with 25 states adopting screening ( Figure 1 ). The manner in which these 43 states developed universal screening varied substantially ( Figure 2 ), and for some was a multistage process ( Table ). For example, California passed legislation requiring that CCHD screening be offered to parents of newborns. In 2013, Pennsylvania issued a regulation requiring reporting of results and diagnoses of screened newborns.