; privacy protections (1) Voluntary participation Participation in the patient registry described in subsection (b)(1) shall be voluntary, and a person creating, assisting in the creation of, or maintaining the registry shall not include in the registry information about an individual unless the individual consents to the inclusion of such information. (2) Privacy protections Information about an individual that is included in the registry shall be subject to all applicable privacy protections under Federal and State law. (d) Report Not later than 1 year after the establishment of the patient registry under subsection (b)(2), and annually thereafter, the Secretary shall submit a report that includes data, findings, and information with respect to the status of the patient registry (including progress, barriers, and issues) to Congress and the President. 3. Research and coordination of activities concerning the long-term health effects of Long COVID and related conditions (a) In general The Secretary of Health and Human Services (referred to in this section as the Secretary ) shall, as appropriate— (1) coordinate activities among relevant Federal departments and agencies with respect to addressing the long-term health effects of Long COVID and related conditions, which may include conditions that arise as a result of such infection; (2) continue to conduct or support basic, clinical, epidemiological, behavioral, and translational research and public health surveillance related to the pathogenesis, prevention, diagnosis, and treatment of the long-term health effects of Long COVID and related conditions, which may include conditions and any effects on development, cognition, and neural structure and function that arise as a result of such infection