1. Short title This Act may be cited as the The Newborn Screening Saves Lives Reauthorization Act of 2019 . 2. Amendments (a) Improved newborn and child screening for heritable disorders Section 1109(a)(3) of the Public Health Service Act ( 42 U.S.C. 300b–8(a)(3) ) is amended— (1) by striking develop and deliver educational programs (at appropriate literacy levels) and inserting develop, deliver, and assess the impact of educational programs (with varying levels of information and at appropriate literacy levels) ; and (2) by striking and specialty services and inserting specialty services, research-related pilot studies, and long-term care . (b) Extension of advisory committee on heritable disorders in newborns and children Section 1111(g) of the Public Health Service Act ( 42 U.S.C. 300b–10(g) ) is amended by striking 2019 each place it appears and inserting 2024 . (c) Technical amendments Title XI of the Public Health Service Act ( 42 U.S.C. 300b–1 et seq.) is amended— (1) in the section heading of section 1110, by striking Followup and inserting Follow-Up ; (2) in sections 1109, 1110, and 1111, by striking followup each place such term appears and inserting follow-up ; and (3) in paragraphs (1) and (2) of section 1110(b), by inserting (including long-term follow-up) before , or specialty . (d) Clearinghouse of newborn screening information Subsection (c) of section 1112 of the Public Health Service Act ( 42 U.S.C. 300b–11 ) is amended to read as follows: (c) Nonduplication In carrying out activities under this section, the Secretary shall ensure that such activities minimize duplication and complement other existing Federal newborn screening-related information-sharing activities. . (e) Laboratory quality and surveillance Section 1113 of the Public Health Service Act ( 42 U.S.C. 300b–12 ) is amended— (1) in subsection (a)— (A) in paragraph (1)— (i) by striking performance evaluation services and inserting development of new screening tests ; and (ii) by striking ; and and inserting a semicolon