; and (2) by promoting data sharing linkages between State newborn screening programs and State-based birth defects and developmental disabilities surveillance programs to help families connect with services to assist in evaluating long-term outcomes. . 6. Hunter Kelly research program Section 1116 of the Public Health Service Act ( 42 U.S.C. 300b–15 ) is amended— (1) in subsection (a)(1)— (A) by striking may and inserting shall ; and (B) in subparagraph (D)— (i) by inserting , or with a high probability of being recommended by, after recommended by ; and (ii) by striking that screenings are ready for nationwide implementation and inserting that reliable newborn screening technologies are evaluated and ready for use ; and (2) in subsection (b) to read as follows: (b) Funding In carrying out the research program under this section, the Secretary and the Director— (1) shall ensure that entities receiving funding through the program will provide assurances, as practicable, that such entities will work in consultation with the appropriate State departments of health; and (2) may accept, use, and dispose of donations and bequests from private for-profit and non-profit entities, in accordance with Federal law. . 7. Authorization of appropriations for newborn screening programs and activities Section 1117 of the Public Health Service Act ( 42 U.S.C. 300b–16 ) is amended— (1) in paragraph (1)— (A) by striking $11,900,000 and inserting $31,000,000 ; (B) by striking 2015 and inserting 2020 ; and (C) by striking 2019 and inserting 2024 ; and (2) in paragraph (2)— (A) by striking $8,000,000 and inserting $29,650,000 ; (B) by striking 2015 and inserting 2020 ; and (C) by striking 2019 and inserting 2024 . 8. Institutional review boards; ethics guidance program Section 12 of the Newborn Screening Saves Lives Reauthorization Act of 2014 ( 42 U.S.C. 289 note) is amended to read as follows: 12. Institutional review boards