1. Short title This Act may be cited as the Genetic Information Privacy Act of 2019 . 2. Treatment of personally identifiable information by genetic testing services (a) Consent required (1) Express consent for disclosure (A) In general A genetic testing service may not disclose personally identifiable information of a customer to a third party unless the service obtains the express consent of the customer. (B) Relationship to informed consent requirement In the case of the disclosure of genetic information for medical research, paragraph (2) applies instead of subparagraph (A). (2) Informed consent for use or disclosure of genetic information for medical research A genetic testing service may not use genetic information of a customer for medical research, or disclose such information to a third party for medical research, unless the service— (A) obtains the informed consent of the customer in accordance with section 46.116 of title 45, Code of Federal Regulations, as in effect on the date of the enactment of this Act