; or (B) potential for meaningful research and treatment; (2) shall provide for the collection and storage of information on the incidence and prevalence of such rare diseases and conditions in the United States; (3) to the extent practicable, shall provide for the collection and storage of other available information on such rare diseases and conditions, including information related to persons living with such a rare disease or condition who choose to participate in surveillance activities, and including information on— (A) demographics, such as age, race, ethnicity, sex, geographic location, family history, and other information, as appropriate; (B) risk factors that may be associated with the rare disease or condition, such as genetic and environmental risk factors and other information, as appropriate; and (C) diagnosis and progression markers; (4) to the extent practicable, shall provide for the collection and storage of information relevant to analysis on such rare diseases and conditions, such as information concerning— (A) the natural history of the diseases and conditions; (B) the prevention of the disease or condition, including secondary diseases and conditions; (C) the detection, management, and treatment approaches for the diseases and conditions; and (D) the development of outcomes measures; and (5) may address issues identified during the consultation process under subsection (d). (d) Consultation In carrying out this section, the Secretary shall consult with individuals with appropriate expertise, which may include— (1) epidemiologists with experience in disease surveillance; (2) representatives of national voluntary health associations that— (A) focus on rare diseases or conditions; and (B) have demonstrated experience in research, care, or patient services; (3) health information technology experts or other information management specialists; (4) clinicians with expertise in rare diseases or conditions