years 2018 through 2022. . 3. Research and surveillance activities relating to cardiomyopathy (a) CDC research and surveillance Part P of title III of the Public Health Service Act ( 42 U.S.C. 280g et seq.), as amended by section 2, is further amended by adding at the end the following new section: 399V–8. Research and surveillance activities relating to cardiomyopathy (a) Reports on CDC national cardiomyopathy surveillance research activities (1) Initial report Not later than January 1, 2020, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall submit to Congress an initial report on findings and data generated from surveillance and research activities conducted by the Centers for Disease Control and Prevention to improve the understanding of the prevalence and epidemiology of cardiomyopathy across the lifespan, from birth to adulthood, with particular interest in the following: (A) The health care costs, utilization, and natural history of individuals with cardiomyopathy, in both the pediatric and adult population. (B) The number of adults and children affected by cardiomyopathy, as well as age-specific mortality. (2) Final report Not later than January 1, 2025, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall submit to Congress a final report on the content described in paragraph (1). (3) Public access Subject to paragraph (4), the reports submitted under this subsection shall be made available to the public. (4) Patient privacy The Secretary shall ensure that this subsection is carried out in a manner that complies with the requirements applicable to a covered entity under the regulations promulgated pursuant to section 264(c) of the Health Insurance Portability and Accountability Act of 1996. (b) Improving risk assessments for individuals with cardiomyopathy (1) In general The Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall develop and make publicly available a