IV 115th CONGRESS 1st Session H. CON. RES. 58 IN THE HOUSE OF REPRESENTATIVES May 19, 2017 Mr. Marino (for himself and Mr. McGovern ) submitted the following concurrent resolution; which was referred to the Committee on Energy and Commerce CONCURRENT RESOLUTION Expressing support for a month to be known as Cystic Fibrosis Awareness Month, and for other purposes.

Whereas cystic fibrosis, commonly referred to as CF , is a genetic disease affecting more than 30,000 children and adults in the United States and nearly 75,000 children and adults worldwide; Whereas a defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs, and these secretions produce life-threatening lung infections and obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food; Whereas there are approximately 900 new cases of CF each year in the United States; Whereas infant blood screening to detect genetic defects is the most reliable and least costly method to identify individuals likely to have one of 1,800 different CF mu­ta­tions; Whereas early diagnosis of CF permits early treatment and enhances quality of life, longevity, and treatment; Whereas CF impacts families as well as patients because of the intense daily disease management protocols patients must endure; Whereas there are more than 120 world-class treatment centers with highly trained and dedicated providers in the United States that specialize in delivering high-quality, coordinated care for CF patients and their families; Whereas the number of adults with CF has steadily grown and the median age of survival for a person with CF is now nearly 40 years of age in the United States; Whereas innovative precision medicines and treatments have greatly improved and extended the lives of CF patients; and Whereas May would be an appropriate month to establish as Cystic Fibrosis Awareness Month : Now, therefore, be it