; (2) to the extent practicable, shall provide for the collection and storage of other available information on rare diseases and conditions, including information related to persons living with a rare disease or condition who choose to participate, such as— (A) demographics, such as age, race, ethnicity, sex, geographic location, family history, and other information, as appropriate; (B) risk factors that may be associated with a rare disease or condition, such as genetic and environmental risk factors and other information, as appropriate; and (C) diagnosis and progression markers; (3) to the extent practicable, shall provide for the collection and storage of information relevant to analysis on rare diseases and conditions, such as information concerning— (A) the natural history of the diseases and conditions; (B) the prevention of the diseases and conditions; (C) the detection, management, and treatment approaches for the diseases and conditions; and (D) the development of outcomes measures; (4) may address issues identified during the consultation process under subsection (d); and (5) initially may address a limited number of rare diseases or conditions. (d) Consultation In carrying out this section, the Secretary shall consult with individuals with appropriate expertise, which may include— (1) epidemiologists with experience in disease surveillance or registries; (2) representatives of national voluntary health associations that— (A) focus on rare diseases or conditions; and (B) have demonstrated experience in research, care, or patient services; (3) health information technology experts or other information management specialists; (4) clinicians with expertise in rare diseases or conditions; (5) research scientists with expertise in rare diseases or conditions, or experience conducting translational research or utilizing surveillance systems for scientific research purposes