1. Short title; table of contents (a) Short title This Act may be cited as the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 . (b) Table of contents The table of contents of this Act is as follows: Sec. 1. Short title; table of contents. Sec. 2. Sickle cell disease research. Sec. 3. Sickle cell disease surveillance. Sec. 4. Sickle cell disease prevention and treatment. Sec. 5. Collaboration with community-based entities. 2. Sickle cell disease research Part P of title III of the Public Health Service Act is amended by inserting after section 399V–6 ( 42 U.S.C. 280g–17 ) the following: 399V–7. National Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Program (a) Research The Secretary may conduct or support research to expand the understanding of the cause of, and to find a cure for, sickle cell disease. . 3. Sickle cell disease surveillance Section 399V–7 of the Public Health Service Act, as added by section 2, is amended by adding at the end the following: (b) Surveillance (1) Grants The Secretary may, for each fiscal year for which appropriations are available to carry out this subsection, make grants to not more than 20 States— (A) to conduct surveillance and maintain data on the prevalence and distribution of sickle cell disease and its associated health outcomes, complications, and treatments; (B) to conduct public health initiatives with respect to sickle cell disease, including— (i) increasing efforts to improve access to, and receipt of, high-quality sickle cell disease-related health care, including the use of treatments approved under section 505 of the Federal Food, Drug, and Cosmetic Act or licensed under section 351 of this Act; (ii) working with partners to improve health outcomes of people with sickle cell disease over the lifespan by promoting guidelines for sickle cell disease screening, prevention, and treatment, including management of sickle cell disease complications