article_snippet: The disorder, which means The youngster body cannot produce red blood cells, is so rare her body affects only around 125 people in the country.
article_snippet: In about a half of cases patients also suffer associated congenital abnormalities.
article_snippet: Some affected children are short for Some affected children age and may have delayed puberty.
highlights_snippet: The condition is so rare
highlights_snippet: The condition affects only around 125 people in the country .
  