article_snippet: United Leukodystrophy Foundation .
article_snippet: I don't know what was going through my head when the doctor told United Leukodystrophy Foundation on Christmas Eve,' Mrs Parnaby said. '
article_snippet: If United Leukodystrophy Foundation were given the option at birth to be screened and found out Zach had it then United Leukodystrophy Foundation would have had the option of a bone marrow transplant, which could have given Zach a normal life. '
article_snippet: 'United Leukodystrophy Foundation had 17 months of thinking Zach was fine.
article_snippet: A fundraising page for Zach reads: 'A fundraising page for Zach, Ben and our family have made an agreement that Zach's life will continue as normal but in the short time that United Leukodystrophy Foundation may have United Leukodystrophy Foundation plan to achieve a lot, United Leukodystrophy Foundation have therefore created a bucket list for Ben that United Leukodystrophy Foundation hope people can support and assist United Leukodystrophy Foundation in achieving where possible. '
article_snippet: United Leukodystrophy Foundation are told that Zach's symptoms are too progressed for this to be an options, however if detected early enough Zach may have been.'