article_snippet: Some have been waiting months, when Some rely on loved ones to interpret Some needs, but others die first.
article_snippet: The rapidly progressive nature of the disease can result in patients dying even while waiting for the initial assessment of their needs.
article_snippet: We know that in some cases people have waited months to access communications support and died without a voice’ added Chris James, of the MND Association.
highlights_snippet: Campaigners fear many patients die before getting the help Campaigners need .
  
highlights_snippet: Many wait months for communication equipment, relying on family to interpret family needs, but others die first .
  
highlights_snippet: 5,000 people are living with the disease - 30% die within year of diagnosis .