article_snippet: Alexis Carey, from Boise, has Dravet Syndrome, an incurable genetic disease that causes severe and multiple seizures, which often leave parents guessing if the terror of watching Alexis Carey, from Boise child seize up will pass or turn fatal.
article_snippet: Family support: Alexis Carey (left), a 10-year-old girl with a rare form of epilepsy, sat with Clare Carey) and five-year-old sister Alanis Carey (right) last Friday in Boise, Idaho .
article_snippet: first received attention when a Colorado family fought and won for access for a Colorado family daughter who also had Dravet Syndrome.
article_snippet: With no known cure for Dravet Syndrome, children are often prescribed a cocktail of medications to counter the seizures.
article_snippet: Like any parent, you never give up hope that you can get complete seizure control,' Mrs Carey said. '
article_snippet: Children die from Dravet by any one of the seizures.
article_snippet: Alexis could have a seizure that may not stop, we never really know.'
article_snippet: The 10-year-old girl began having seizures when The 10-year-old girl was only two months old .
article_snippet: Alexis began having seizures when Alexis was two months old.
article_snippet: But even in 2003, Alexis says a lack of awareness of the disease led to many doctors not automatically suspecting it could be a rare, genetic disorder.
article_snippet: It wasn't until Alexis lost all speech and potty control when Alexis was two that doctors determined Alexis had Dravet Syndrome, Mrs Carey said.
article_snippet: Since then, Alexis parents have put Alexis on a variety of diets and medications to help reduce the seizures, but the disease is tricky to manage.
article_snippet: Dravet Syndrome often causes a variety of different kinds of seizures but medications typically target one particular type.
article_snippet: Alexis seizures usually occur at night, which means one of Alexis parents regularly sleep with Alexis and monitor Alexis sleep patterns.
highlights_snippet: Alexis Carey, from Boise, Idaho, has Dravet Syndrome, an incurable genetic disease that causes severe and multiple seizures .
  