article_snippet: You don’t get any practice at this, you’re just in this.
article_snippet: However, as Mrs Isaac was very young when Mrs Isaac was diagnosed, it progresses much more slowly than usual.
article_snippet: Mrs Isaac said: ‘People don’t understand at all.
article_snippet: a disease people just don’t know about.
article_snippet: Mrs Isaac said: ‘It’s incredibly hard.
article_snippet: Speaking about the tracheostomy she added: