article_snippet: Those diagnosed with the condition rarely live beyond the age of two, many dying as a result of respiratory infection or brain fever.
article_snippet: Those who are first diagnosed at ages two to 14 will become severely incapacitated, and generally die by the age of two to seven.
article_snippet: There is no treatment for this disease however if diagnosed early then there are potentially life-saving options available to those children.
highlights_snippet: The condition, which affects one in every 100,000 people, causes patients to gradually regress and lose the ability to walk, talk, see and hear .
  