article_snippet.sent: Those with an incurable genetic disease can live a full life but may develop tumours in organs such as the brain and heart and suffer from epilepsy and learning or behavioural difficulties.
article_snippet.sent: his grandson says the family try to be optimistic about his grandson grandson’s prognosis, adding: ‘
article_snippet.sent: It’s incurable, but the family remain hopeful that the family will find something to manage it for his grandson.