article_snippet.sent: But Hayley, from Bexhill, East Sussex, defied the odds to live four more years and even published an autobiography about living with the disease around the world.
article_snippet.sent: Hayley and Hayley family had fundraised for Hayley medical treatment and to raise public understanding of the condition.
article_snippet.sent: But it was also a moving insight into how a child copes with a disease which resulted in Hayley having the body of a 105-year-old.
article_snippet.sent: But Hayley defied the odds to live four more years .
article_snippet.sent: Despite pioneering drug treatment in the US that gave Hayley a new lease of life, Hayley was unable to conquer the disease . '
article_snippet.sent: However, despite pioneering drug treatment in the US that gave Hayley a new lease of life, Hayley was unable to conquer the disease.
article_snippet.sent: In recent weeks Hayley health had deteriorated and Hayley contracted pneumonia.
article_snippet.sent: After being discharged yesterday Hayley died at home last night.
article_snippet.sent: Hayley's parents have previously described the heartache Hayley condition had caused.
article_snippet.sent: Hayley even published an autobiography about living with the disease, called Old Before My Time .
article_snippet.sent: Determined to make the most of the time Hayley had, the family embarked on giving Hayley amazing memories.
article_snippet.sent: Members of the local community raised thousands of pounds to pay for Hayley to go to Disneyland in California.
article_snippet.sent: Despite Hayley terrible prognosis, the teenager remained upbeat. 
highlights_snippet.sent: Hayley defied odds to live 4 years longer than expected and died yesterday .