article_snippet.sent: RJ Jackson is one of just 70 people in the world who suffers Netherton's syndrome.
article_snippet.sent: Netherton's syndrome is a rare congenital skin disease - a more extreme form of ichthyosis.
article_snippet.sent: Netherton's Syndrome Research Group had been set up by a couple in the UK whose child,Jack Oldacres has the condition. '
article_snippet.sent: I found out Netherton's was a rare strain of the skin condition ichthyosis, affecting one in 200,000 births in the UK.
highlights_snippet.sent: RJ Jackson is one of around 70 sufferers of Netherton's syndrome .
  