article_snippet.sent: Now, as temperatures in the UK are set to soar, Lorraine Valentine is desperate for a drug that can help Lorraine Valentine.
article_snippet.sent: Miss Valentine, pictured (left to right) with daughter Chloe, 18, Ben, 12, Josh, 10 and Elisha, 14, is now fundraising for other sufferers of the disease .
article_snippet.sent: Now, Miss Valentine is running the London Marathon for British Porphyria Association to help raise funds for other sufferers of the disease.
article_snippet.sent: Miss Valentine is hoping an experimental drug called Scenesse will bring hope for Miss Valentine and other sufferers.
article_snippet.sent: I'll battle for this,' Miss Valentine said. '