article_snippet.sent: But Mui Thomas suffers from a rare genetic condition that leaves the skin on Mui Thomas face and body red raw and open to infection.
article_snippet.sent: Mui Thomas was born with Harlequin ichthyosis, which means Mui Thomas skin is extremely thick, dry and flaky -- resembling fish scales.
article_snippet.sent: Together They gradually learned how to manage Mui Thomas skin condition.
article_snippet.sent: Each day Mui Thomas bathes twice, ideally for two hours each time, and everywhere Mui Thomas goes Mui Thomas carries a backpack with three or four tubs of cream that Mui Thomas must apply throughout the day to stop Mui Thomas skin from drying out.
article_snippet.sent: Mui Thomas's thought to be the fourth oldest person alive with harlequin ichthyosis.
article_snippet.sent: Mui Thomas began to deny Mui Thomas appearance, stopped bathing, taking Mui Thomas medication and applying the cream.
highlights_snippet.sent: Mui Thomas has a rare genetic condition that leaves Mui Thomas skin raw and open to infection .
  