article_snippet.sent: The Brugger family (from left to right: Tomas, Naomi, Liam and Chris) attended a Senate inquiry on Monday in Canberra .
article_snippet.sent: 9 News also reports that Naomi told a Senate inquiry on Monday of the family's initial distress when trying to raise the sum for each dose of the new drug treatment. '
article_snippet.sent: It's been hard going, I've been away from the boys,' Naomi told the inquiry hearing in Canberra.
article_snippet.sent: Naomi told the hearing about the death of two other patients in December because A Penrith Panthers jersey signed by all the team could not get affordable access to the drugs.
article_snippet.sent: The most concerning issue was the time The most concerning issue took for drug treatments to get approved for subsidies from the government regulator.