Jan 12 @ 6:08pm his dad call me crying that King’nazir gone. I jumped up out the nail chair no shoes and did 100 hazards flashing to his house to find the ambulance pulling out. I can see them as I trail them closely trying to bring king’nazir back. As we arrive in the hospital car parked right beside the ambulance we rush into the ER room. King’nazir locked eyes with me and gave me a smile before going into full blown seizure that left him completely brain damaged. As we transferred ambulances once he was stable to drive two to Louisville all I can do was pray. His eyes & smile replayed in my mind. My baby boy, my forever baby transitioned to my forever angel right before my eyes & his smile was conformation that he was ok with leaving, that once he saw me we felt safe to leave me in this world to focus on his legacy and help dismantle the disparities that children of rare diseases are neglected and being of color your even more neglected. King’nazir stayed on a ventilator until removed by February 27 where he thrived for over for over 24hrs passing away February 28th @ 7:14pm…. Tomorrow will be hard but like you King’nazir I will push through with a smile….👼🏾🙏🏾🙌🏾 CHILDHOOD ALS IS REAL @iamalsorg @alsassociation @RareDiseases @rarediseaseday @US_FDA @FDA_Drug_Info @brainmatters10 @SenMcConnell @GovAndyBeshear