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Title: Pretty darn depressing.
Review: I have a child who also has this disorder. Loving Rachel was important for me to read because there are no other books written which address Optic Nerve Hypoplasia or Septo Optic Dysplasia, but I want everyone to know who considers reading this that Loving Rachel is not a guide for you or your child and that no two people are affected in exactly the same way by this disorder. I could relate with some of the things Ms. Bernstein wrote about but mainly I walked away from this book feeling sad for this family and for Rachel.
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