Title: Needed to hear that someone else has experienced this
Product review: My now 5 year old daughter was born with a rare syndrome and is severely handicapped. The doctors describe her as being in a persistive vegetative state along with physical problems of being trached, Gtube fed, and seizures. I kept thinking that there have to be people who are in situations close to ours, but never hear of them. I stumbled onto this book in our church library and am amazed how this book mirrors our experiences. There may not be many who can personally relate but for the few of us out there, these words are invaluable.
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