
ehlers-danlos society

ehlers-danloss society hii eka aantarrashtriy naa-napha sanstha aahe jee rugna samarthan, vaidnyanik sanshodhan, samarthan aanee ehlers-danloss syndrome (eae. dii. ess.) aanee hypermobility spectrum disorder (etch. ess. dii.) sathee jagrukta vadhavanyasathi samarpit aahe. eae. dii. ess. aanee etch. ess. dii. sathee jagrukta vadhavanyachya prayatnat societyne jagbharat anek karyakram aayojit kele aahet. yaa karyakramanmadhye baltimorechya antargat bandaratil eka sabha aanee bharatatil eka parishad yancha samavesh aahe. society eae. dii. ess. aanee etch. ess. dii. vareel sanshodhanasathi samarpit parisanvadanche aayojan dekhil karate. 2016 chya parisanvadamule ehlers-danlos upprakaranche punarvargikaran jhaale.
logo.
ehlers-danloss society zebra logo haah aushadhanmadhye aikalya jaananya samanya abhivyaktivarun tayar keela gela aahe, "jevha tumhi tumchya mage khuranchya dhaddhadyancha aavaj aikal, tevha zebra disanyachi apeksha karoo nakaa."dusya shabdant, vaidyakeey vyavsayikanna samanyatah asamanya kinwa durmil nidananaivaji adhik samanya aajarankade laksh denyas shikavale jaate. eae. dii. ess. aanee etch. ess. dii. samudayasathi, tyanni zebra swikarla kaaran "kadhikadhi jevha tumhi khuranchya dhaddhadyancha aavaj aikata, tevha too kharokharach zebra asato."ehlers-danloss societyche uddisht" asha velechya dishene aahe jevha vaidyakeey vyavsayik ekhadyala ehlers-danloss syndrome kinwa hypermobility spectrum disorder asalelya vyaktila tabadtob olakhato."
itihas.
ehlers-danloss national foundationchi (aii. dii. aine. eff.) sthapana moolatah nancy rogowski yanni 1985 madhye kelee hotee. 2013 madhye tyanni baltimoremadhye sanshodhan kendra ughadanyasathi nidhi ubharanyasathi paise daan kele.
1 meey 2016 roji, adnf hii jaagtik sanstha, ehlers-danlos society bunley.
jaagtik rugna nondani.
ehlers-danloss societychi eae. dii. ess. aanee etch. ess. dii. jaagtik nondani aanee bhandar hypermobile eae. dii. sathee januk shodh saksham karate aanee sambandhit lakshane aanee itar paristhitinchya varanvaratebaddal sanshodhan sulabh karate. jaagtik staravar eae. dii. ess. aanee etch. ess. dii. saha rahana lokanchya anubhavancha nakasha tayar karane aanee eae. dii. ess. kinwa etch. ess. dii. chey naveen prakar shodhane asey teey disate. 
netrutva.
ehlers-danlos societyche adhyaksh aanee mukhya karyakari adhikari laara bloom aahet.