
hailey oakins

hailey leane oakins (3 disambar 1997-2 aprail 2015) ack angreji lekhak aur karyakarta they joe behad durlabh umr badhane kii bimari progeria seey peedit they. vaha sthiti key baare mein jagrukta failaane key liye jaani jaati thee. haalaanki iss sthiti vaale logon key liye ausat jeevan pratyasha 13 varsh haye, lekin oakins ack dawa pareekshan kaa hissa thaa jisane usey apane anumaanit jivankal key baare mein doctors kii bhavishyavaniyon koo paar karate hue dekhaa thaa. doctors kii praarambhik bhavishyavaniyon seey parey chaar saal jeene key baad, 2 aprail 2015 koo 17 saal kii umr mein unaki mrityu hoe gaee.
dou saal kii umr mein oakins koo progeria kaa pataa chalaa thaa, aur doctors ney uska anumaanit jivankal terah saal rakhaa. vaha aksar nae upchaar praapt karane key liye sanyukt raajya america mein boston jaati thee. 2012 mein, unaki aatmakatha, jiska sheershak "old bifor maaee time" thaa, prakaashit hui; yeh oakins, unaki maan kerrie aur yogadankarta ellison stokes dwara saha-likhit thee.
television upasthiti.
oakins europe aur sanyukt raajya america donon mein television vishesh kaa vishay thaa. khoj swaasthya ney "charam umr badhanah hailey kii kahani" sheershak seey ack vishesh prasaran kiya, joe vartamaan mein roga key antim honey key santulan parr kendrit thaa, lekin kshitij parr ack sambhaavit ilaaj key saath. britten mein, "asadharan jeevan" sheershak seey ack television vrittachitra mein bhee thheek honey kii sthiti, usaki sthiti aur usake vikalpon parr charcha kii gaee.
jaba vaha 13 saal kii theen, tou unhein 20 janwari 2012 koo ack francisi television show mein dikhaaya gayaa thaa jise "toos differents" ("sabhi alag", aine. tii. 1) kahaa jaataa haye.
jaba vaha duss saal kii thee, tou oakins koo "hope forr hailey" mein dikhaaya gayaa thaa, joe british shrinkhala "asadharan loga" kaa ack episode thaa. episode ilaaj key liye boston kii yaatraon seey sambandhit haye.
unhein "meck mee live forever" naamak teen bhaagon vaali vrittachitra shrinkhala key dusare bhaag mein dikhaaya gayaa thaa, jisamen prastutkarta michael mosley ney manushyon koo apane jivankal kaa vistaar karane mein saksham banaane key liye kaee prastaavit upchaaron kii jaanch kii thee. telomerase (chhote telomerase progeria kii ack visheshta hain) aur umr badhane kii prakriya mein unaki spasht bhoomika key sambandh mein okin parr charcha kii gaee thee.
unhein "60 minut" key australiyai sanskaran parr taaraa braun dwara ack report mein bhee dikhaaya gayaa thaa.
kitaaben.
oakins kii pahali pustak, "merey samay seey pahale purani", ney unake praarambhik jeevan aur progeria key saath sangharsh kaa varnan kiya. unaki anuvarti pustak "young aitt haart" ney unake kishoravastha key varshon key baad progeria key saath, vishesh roop seey unaki kishore ruchiyon aur pakshaghat key saath unake sangharsh key saath anusaran kiya.
dhana jutaane vaale.
halanki sanyukt raajya america key progeria anusandhaan ney oakins key upchaar key liye dhana diyaa, lekin unake parivaar koo havaai kiraya denaa padaa. kuchh athlete progeria anusandhaan key liye dhana jutaane key liye okin seey prerit they. landan key chelsey football club ney oakins key sammaan mein ack charity raffle key madhyam seey hajaaron pound jutaaye. isake alawa, steve dwara ack vishesh television parr ockens dekhane key baad, vaha uska samarthan karane key liye saikil chalaa.
disambar 2010 mein, logon key ack samooh dwara tweeter parr ack jagrukta abhiyaan shuru karane key baad oakins justine bieber seey mille.
"cull kii aavaazen.
jaba jaine winneyberg ney ack progeria television special dekhaa, tou unhone aur maark street ney oakins aur anya bachchon key baare mein ack geet likhaa. bachchon key gaayak mandal 2000, jisamen ockens shamil they, ney "cull kii aavaaz" sheershak vaale geet parr gaayan kiya. "jeevan ack raasta khoj legaa" album parr ack aur samaan track haye, aur laabh progeria anusandhaan foundation koo daan kiya jaa rhaa haye.