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document
Improving patient involvement in chronic disease management : the views of patients , GPs and specialists on a guidebook for ulcerative colitis . Patient information , shared care and decision-making are recognised as beneficial to chronic disease management . As part of an RCT , opinions of ulcerative colitis patients and their doctors were sought on a guidebook designed to support self-care and mediate doctor/patient interaction during consultations . Semi-structured interviews were conducted with 6 specialists and 16 GPs . Patients ' views were obtained from written responses to a postal questionnaire ( 136 replies ) . Inclusion of lay knowledge and clarification of treatment decision processes increased patients ' perception of involvement in disease management through increased identification and awareness of others ' self-management experiences . Doctors focused on the importance of improving patients ' compliance and use of services . However , the guidebook was seldom used as it had been intended during consultations . Patients felt constrained by time limits and consultants did not actively encourage guidebook use . Based on the findings , we suggest an approach utilising the guidebook to improve patient participation in disease management .
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Intervention_Educational
patient involvement
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Intervention_Educational
support self-care
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Intervention_Educational
mediate doctor/patient interaction
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Intervention_Educational
Semi-structured interviews
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Intervention_Educational
postal questionnaire
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Outcome_Other
utilising the guidebook
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Outcome_Mental
patient participation
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Participant_Condition
ulcerative colitis patients and their doctors