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Testing three different cancer genetics registry recruitment methods with Hispanic cancer patients and their family members previously registered in local cancer registries in Texas . OBJECTIVE To increase accrual among Hispanics to the Cancer Genetics Network national cancer genetics registry . METHODS Drawing from South Texas cancer registries , 444 Hispanic men and women were randomly assigned to one of three experimental conditions : standard direct-mailed procedures ( X1 ) , X1 plus culturally tailored materials ( X2 ) , and X2 plus interpersonal phone contact ( X3 ) . Participants were also surveyed about the effectiveness of the education materials and the phone contact . A refusal survey was provided for those who declined to join the study . RESULTS A total of 154 individuals joined the Cancer Genetics Network . The X3 condition yielded the greatest accrual ( 43.2 % ) compared to X1 ( 30.9 % ) and X2 ( 29.9 % ; p < 0.05 ) . Tailored materials appeared to have no effect but were highly regarded . The main reasons for not participating were a lack of interest and time requirements . CONCLUSION Interpersonal communication can have a powerful effect on recruitment . However , more research is needed to determine the cost-efficacy of more labor-intensive approaches to registry accrual .
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Intervention_Educational
standard direct-mailed procedures ( X1 ) , X1 plus culturally tailored materials ( X2 )
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Intervention_Educational
X2 plus interpersonal phone contact ( X3 )
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Intervention_Educational
Interpersonal communication
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Outcome_Other
X3 condition yielded the greatest accrual
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Outcome_Mental
lack of interest and time requirements
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Participant_Condition
cancer
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Participant_Condition
cancer
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Participant_Condition
Cancer
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Participant_Condition
cancer
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Participant_Condition
cancer
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Participant_Sample-size
444
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Participant_Sex
men
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Participant_Sex
women
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Participant_Sample-size
154
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Participant_Condition
Cancer