Weigh Scale

Do you hear it?

Relief sounds like

a girl’s slip

a bird’s wing

your eye lashes fluttering

against your blushing cheek

Do you hear it?

Suffering sounds like

cloth pulled by stick across dirt floor

chalk pressed violent into board

fingers opening blouses raggedly

your chest bone protrudes

more than the year before

Do you hear it?



When the rush comes

questions like: Why are you doing drugs? Are you an

unhappy child?

Do you realize how inappropriate it is?


Those questions seem irrelevant

for, that which you have searched

seemingly before awareness, birth, first flickering

is surrounding you and the fucking magic of it

is holding sorrow so far away

you can’t recall the last time you felt its fingers

closing around your throat in possession.

Yes sorrow

misery, self-hatred, dysfunctional thinking, dysthymia

depression, malaise, disorder, horror, they

have long sat at your scarred table

munching on your best intentions

not to throw yourself from a bridge

just because every day is so painful.

Parents show the whites of their eyes

like distrusting horses being inspected

for cavities and you are the hole

they observe without looking

wondering how they birthed

someone so strange, unexpectedly unwell

did we not take enough pregnancy vitamins?


seemed quite right?

Blessed, tainted blood

that’s not it

anymore than sexual abuse or

quiet pinch of undiagnosed learning disorder

when there are cheery-faced celebrities proclaiming

their cured malaise, even as they grew up

in fire

therefore, it is not

the firing, how deeply you set, how many cracks

it is more the knife of life

cutting you open

silence surrounding before

you knew you were alone

a haunting long before words like

‘intrenched’ and ‘affliction’ were commonly nailed

like scarlet blooms on thirsty cacti.

Sorrow, you were flowing in my blood stream

like an unbidden life, wishing to suck mine out

marrow and all.

There’s only apologies

for not being able to be what you want me to be


not to cut myself to ribbons

and as self-hate dances with a wish to

pull hard on the string attached to light bulb

and just blink out ….

music and its phantasmagoric wonder

infiltrates darkness with a tender mercy

potent keys of a piano played on an empty stage

seem to possess a furtherment.

You, who sup at the high seat for well-adjusted

cannot really fathom, aside in dusty theory

the every day battle with spirits resembling

skewed reflection and how when joy arrives

soft and cloudy, she is split savagely

by the very strength of your inner tenency

to plunge headlong, when you want to do

the opposite.

Fate lifted me out of the car gently


and maybe thinking back, I was


in that turkish delight moment

softened at the edges by

little blue pills.

If I die in ten years from some malady

will you point your frozen heart at me

and say; “Her bloody drug use killed her”

without recalling

without it

I’d already be nourishing trees

with my life blood.

Will you state: “She was weak because she

couldn’t cope without them”

forgetting, we do what it takes

to stand upright, pulled from the inside

skins flayed on electric lines of penance.

For our generation, for some of us

those who didn’t yet know how to

put words to how we felt

the holes in our fabric

those diminishments

only worsening with perpetual self-reproach


How the hell could we be so ungrateful?

Do they say that to people with cancer?

Only the smokers I think, we are banished

to the smokers ward if we suffer from

depression, they put us down as incurable

and slightly pathetic and faces turn away

like cliffs beckon our swift feet forward).

I danced beneath strobe lights, proud of reaching

19 and not having taken anything stronger

than weed, my iron will a contrast to

my crumbling will to live, sometimes

it fascinates me. He whispered in my studded

ear; “I know you disapprove of hard drugs but …

and like a violin played accutely until

you find yourself crying on the other side

of intensity, I saw the futility of holding back

how ‘good behavior’ didn’t work with the model

of suffering experienced daily, another way of

saying it was

fuck it

the pill was bitter like


and returned me someone

I had not met in many years

happiness flooded my bloodstream

I didn’t care it was artificially induced

all moods are, all behavior dictated by

the flow and ebb of chemicals surging

in our amygdala.

Why do some of us fall so far?

When others seem oblivious of

sorrow like it’s a thing to bring out

at funerals and nothing more? Can we really


ugly admonishment forever, like kicking

someone all the harder once they are down?

The self-loathing and condemnation

invariably accompanying perpetual sadness

lifted like a shroud and music entered

my blood stream with an invoking joy.

Many years later I read about ‘self medication

and thought as a professional

trying to help people who felt

like I did / alone / worthless

how trite labels and ‘understanding‘ in general


I’d write you a book of my foray with drugs

if it didn’t cause you to condemn me

then again

you already have

so why not?

Don’t throw stones

at glass



you’re bulletproof.


In Bloom













The Right To Die




















I cannot, you see

person holding black and green bird
Photo by Kristina Paukshtite

What if she’s me? The woman screaming without reprieve?



fallen, or hurt, somehow

this fear I inhabit is years in coming

your fragility creeps up on us like a wettened shroud

once so strong, you’d take me in your bronze arms and

press me to you where the sound of your powerful

heart beat assured me nothing would erase or remove

your certainty

then the sick hiss and whisker of machines

a tube down your throat, a glazed look, no recognition

slack hand filled with needles, empty eyes void of life

I felt you moving away even as you stayed

gone and still there

a stranger in your face, your expressions glazed

even the taste of your lips changed

as if blistering over from sudden Winter storm.

As time ticks down, we look up

to salvation, prayer and hope when

maybe nobody listens

I stand over you as you sleep

your little bluebird chest rising in dream

I want to

climb on the bed and laugh as once we did

curling around each other in chased game

oh so much joy in one shared heart

when i was your girl and you were my

evening rose

now the dust has settled and we still

scattered pictures, cannot see clearly

all around are shadows and shorn warnings

easy to lose ourselves in fears glory

like gathering a bird who has fallen from glass

stunned and dying pressed in our hands

death on us now, like unsought reflection

glinting, glinting, glinting.

I miss you, the you I knew

better than I know myself

who would turn in her sleep and

touch me without waking

such was our eternal fuse

one into the other, no boundaries

and time is a fickle fellow

taking you and keeping you sickened

welded to pills and paper casts of closed theatres

we stand apart, at times nearly severed

I would sacrifice all to make you well

but i have given everything i know

it is clear we go in different directions

one is the end and you drift like

wind on frigid water

while i continue to swim upstream

i cannot, you see

let go

your bright feathers dull

and still i look up

when birds fly into glass

Goodbye for now












RIP Natalie Scarberry you are loved.


Candice Louisa Daquin

The deepest cut


It doesn’t take much to knock a bruised fruit to the floor


try as I might, I AM that bruised fruit


once took for granted, the feeling of wellness

it doesn’t help when someone you loved abandons you

in the middle of your darkest hour

things like that aren’t supposed to happen

people who swear allegiance and loyalty aren’t meant to

be the ones leaving your side

such is the hour and fickle fan of illnesses devour

at least I know I’d never treat someone, that poorly

despite this and because of it, healing is slower

though I suspect anything less than fire would be

I didn’t know these things beforehand

the un-annointed do not possess future perspective

to see how illness strips your childish faith, cleaves you

bare and gasping



maybe preparing the groundwork for your deepest cut

they say you get used to it in time

I never have


now, I am a changed person





with just enough venom until I am on my knees

I am sure some would say, this is therefore; psychosomatic

that it what they tell all women of hysterical turn


until doctors produced the proof, you still wondered

it became apparent to me, just like with sexual assault

being believed is paramount to recovery

alongside having faith in ourselves

I did not do a good job of the latter

finding myself more alone than when I started

and I thought I started pretty alone

I know I am a survivor and I was not destroyed

yet it feels like I was

when I look inside myself and find

so little left, a house without windows

it was only because of you, I kept trying


when you let go

I fell to a place I did not know existed

I wanted to ask; Couldn’t you have just waited

long enough to see me through the worst?

but you wait for nothing except your own need


which is the biggest test I ever had and I failed it

I failed it again and again

walking through the lullaby of desiring to die for so many reasons

not least, the never-ending dance with sickness and pain

but somehow I did not die, I turned instead to stone


I don’t tell them; I am not through it



on high-speed like all my parts are made of jello


surely you know by now there is no more fruit left

not even the rotten kind


it is only me remaining now; leafless, without sturdy branches

I cannot rely upon myself, I cannot rely upon promises

no longer a young, untouched tree with green shoots


as much as by those I knew and trusted




my appetite spirited away by the scourge and never returned

I would die of hunger and not know it

were it not for some strange determination

I don’t know where that comes from

but as I stand, it must be a place within me




nor am I able to disguise my scars

if I were asked what recommended me; I could not answer

I would probably open my mouth and howl

because you can reinvent yourself, a million times it seems

I am just one incarnation, coming apart at badly mended edges



in imperfect, bruised skin


It is in horror, we see truth



is a color I cannot describe

a place I don’t fit into anymore.


Even if I am restored

things will be changed for good

for most of us there are times

that shape our marrow

could be in the form of torment

maybe sorrow, sometimes joy

often the hardest times leave deepest imprint

perhaps it shouldn’t be that way


to leave permanent mark or maybe, challenge speaks louder than mirth

it is easy to accept a good day like a hot bath

than deal with a bad and hollow foe


on the tip-toe of endurance

and what if we do not want to endure?

too bad, shit happens, legs break, minds crack

we’re going to end up there at some point

better waterproof our leaking sides best we can

the ocean isn’t a forgiving mistress.


When I fell, my mouth filled with salt

even then I didn’t know how far torment, reached down

it was a well, beneath the sea

a second drowning

for those who long to be free above ground

shackles of the merciless kind

only then I wondered at the strength of others

enduring from such an early age whilst I


thinking I knew real pain from a momentary hurt

I knew so little

just a moment ago and a life time apart.


I am a twin of my previous self

we stand on different sides of the same coin


sometimes I look over at her and feel such envy

anger for my lack of appreciation when I, was her

but you cannot lead a horse to water

you cannot teach a child what she must learn

getting stung on the principle, she discovers through pain

it wasn’t in my thoughts that I should be


I don’t know if I will be permitted

but should I ever, walk again without curse


once you’ve seen yourself and begged for mercy

everything alters and everything stays the same


I learned what we think of as hardship

is often just everyday life

what we believe is suffering

can be comfort compared to other lives

when we don’t think we can change

then we aren’t given a chance, we know we should have

it is in diminishment we find elucidation

it is in horror we see truth.


Let me back inside my life again


for she now knows, just how deep anguish can go

it is in the tangle of the briar

and the wormwood of old trees

whispering advice never heeded

by the youth who believe themselves free.



is a color I cannot describe

a place I don’t fit into anymore






is a selfish emotion

and a raw cry

made from the belly of the beast and all those terrors unseen

something honest and hardly admitted

kept behind fan and sleight of hand

it is something you hide for fear of being told;

do you only think of yourself? Are you aware others have it worse?

why can’t you just GET A GRIP!

You know all this just as you know

you can’t take one more minute

one second longer

staring at now familiar nightmare

feeling it turning you inside out and back again

(as if jaws were attached to your innards, pulling like a lover would)

anguish is an exhaustion

hunchbacked and ready to tear its own eyes

where if you could you would

run away from yourself never to return

where if you could you would


where if you could you would

scream and never quit

until either your heart refused to beat or

something changed permanently

O the salve of darkness, shrouding such horror

how you have begged for change, change, change

please make it BE ANYTHING BUT THIS

and much as you did, nothing ever would

ease up and chill out, letting the prisoners out in the sunny yard

NOT THIS TIME or so if felt when again and again

you returned to


who is not definitely no


but the enemy you know better than you ever wished

dangling by garter

over an old dunking pond

the shape of witches still burned

screaming in treeline

Six Months

Illness is the defining point. It tells us if we have been going the wrong or right direction, it forces us to our knees, we find out the truth whether we want to or not.

I’d been blessed with good health. I didn’t even know it. I thought those who were tan and never got the flu were healthy, surely not me, I often felt a little rough. But I didn’t know what ‘rough’ could feel like, I mistook a morning allergy or sleep deprivation or a headache or stomach-ache as suffering. I had no idea.

I could write a book about this. But for now I want to write the most important salient things. Namely, what you learn, where you go and crucially, what you should AVOID.

You should avoid thinking the internet is some kind of medical reference library. The majority of information online is actually negative, it can scare you senseless. It can misdirect you, it can make you give up.

If you Google Gastroparesis you would come to find out it was an incurable, little-understood disease that would cause chronic life-long suffering for all who were diagnosed with it. You would not find out that in many ways, it is an umbrella term, just as many things before it were, that it is completely contradictory pointing to gross error in definition and that there are so many reason(s) for it and presentations, no one size fits all.

I often wonder who decides to write; Chronic incurable disease. Don’t they know what that does to people?

It’s pretty scary when you Google a disease and find so little on it, and what you do, is negative and bad-news. When you are sick you need hope more than anything else. You desperately search for it but all you find are horror stories of suffering.

That’s why I am writing this. In hope that if ONE person who has been told by their doctor they have Gastroparesis and has found the horror-story world of Google, they may see this and have their hope restored.

You may think … what’s the point of having hope if you might end up with a chronic incurable disease? Exactly for that reason. And because there are many things UN said about most diseases and many experiences NOT documented that should be. They say there are no cures for most things but so often there are ways to cure the body that go beyond what is ‘said’ and well documented.

Gastroparesis loosely means a motility disorder of the stomach (it doesn’t move right) which can cause a paralysis of functioning which are known as Gastroparesis attacks that often lead sufferers to the ER. When you experience Gastroparesis it often is 24/7 with cycles of ‘really bad’ and ‘bearable’ symptoms.

What the internet will not tell you and what the poorly trained doctors in most ER’s will not tell you and what the money-hungry Gastroenterologists will not tell you is if you get diagnosed with Gastroparesis, it doesn’t even mean you have it, and if you do have it, it doesn’t mean you will always have it. Yet if you Google Gastroparesis, most sites from the Mayo to the Cleveland Clinic will tell you it is incurable and may even lead to you having a feeding tube.

The first time I read that, I searched and searched the internet and found NO story of someone overcoming Gastroparesis. In that moment I lost hope and everything became SO much worse.

I was lucky, in that my family doctor thought to do an Epstein Barr Virus test on me, it came back VERY positive, suggestive that it was a virus that caused the symptoms of Gastroparesis. If you add ‘viral Gastroparesis’ to your search term, you may find some mention of virally-induced Gastroparesis going away in 1/2 years time.

I found out that it’s what you pair your search words with that brings up the right articles, and by searching in more detail I found tons of examples of Gastroparesis symptoms going away after a virus and the period of time needed for the body to heal from the nerve damage (much like Shingles). The average time being 1/2 years, some longer, some shorter.

Nobody told me this. Everyone told me Gastroparesis is a Chronic life-long disease that you will always have, and there aren’t even any good treatments for it and if it gets really bad you will need a feeding-tube and you may even have a pacemaker in your stomach implanted. Not once was I told there was any hope. If my family doctor hadn’t thought outside of the box due to having a similar case a couple of years ago, I may well have found the highest bridge in my city.

It got me thinking … we need to be more responsible about information and most positive. I’m all for realism, and anyone who knows me knows I’m not always glass-half-full but when you experience the negativity of the medical system and the incompetency (and the sheer cost) and you get only bad news, you quickly realize that something is very, very wrong.

If you are reading this and you have been told you have Gastroparesis or you suspect you might, bear in mind, for every negative story there are stories of cures and remission and complete resolution of symptoms. It depends upon why you got Gastroparesis and how you body copes and how you cope. There are things you can do.

First and foremost, you’re going to feel like never eating again, you may become anorexic unwillingly, because who wants to eat when they are sick all of the time? Nevertheless, keep eating, eat like your life depends upon it, don’t quit, eat through gritted teeth, eat when it makes you cry, because your body needs its strength and this will get you further away from the risk of having to be fed via a tube.

I felt a moment where I could have given in and quit eating, because truthfully I HATE food with a passion right now, but I hated the idea of a feeding tube even more, so now I eat even though I am NEVER hungry, NEVER have an appetite and hate food. I eat enough although it is very, very hard and some days I throw up what I eat and I have to wait and begin all over again. It has been a total nightmare, a complete living hell, and many times I have wept with fury that I ever have to eat again, but I remind myself of those who have NO food and I remind myself of my goal (to get well) and I eat.

Second to eating, when you have the lowest points where you may have to go to the ER to be rehydrated, because you cannot keep anything down, don’t forget that THIS WILL GET BETTER. Keep telling yourself you are strong, you are healthy, you are a warrior, this may lick you but it will not beat you. Remember during a really bad period where you are sick EVERY SINGLE MINUTE that you will recover, you will feel differently. Hold tightly onto that.

I have been BLESSED with friends who have helped me through this. My friend Mark is now my brother, he has been more than I could ever, ever have wished for and I love him dearly. It still astounds me that anyone like him could exist. He has selflessly given and given and given, even as he himself suffers. He is the perfect rare example of a truly selfless soul and has renewed my faith in humanity tenfold. I may not have had much family support but that has been made-up by the support I have had from my friends and it is true, in sickness you find out who your true friends are and often there are more than you realize.

Let me take a moment to thank anyone reading this who has been one of those people, I have thanked you personally but please know, your mercy literally has saved me from the brink.

So if you are going through this yourself and you have anyone – reach out to them. If you do not have anyone, contact me and I will help you. We must be willing and able to help those who go through these things because they cannot do it alone and should not have to. I will write more on this as I go through this – I am going to recover. I am going to get well. I will document what I learn to help others. We need to pay it forward.

Finally (for now) take the experience and grow from it. For me, I have experienced crippling anxiety with the Gastroparesis symptoms, the doctor(s) told me this is due to the nerves being damaged and how the mind-gut connection is so close, what feels like mental anxiety is actually physical anxiety and you cannot tell the difference. It feels like a huge panic attack. There’s not much that works against that, except taking some type of anti-anxiety medication in the short-term or long-term if it helps. I used to think taking pills was a last resort and yet, it’s sometimes necessary, to get through really hard times.

I have learned that if you had any anxiety beforehand (which I did) it will be exacerbated by Gastroparesis symptoms and you may also experience other issues connected to the reason you got the symptoms in the first place. In my case, Epstein Barr often causes very bad fatigue. By understanding what is going on, taking sublingual Vitamin B6 and B12, you can keep your immunity up, and keep your hope alive. After all, even if it’s a year from hell or two, it’s not your entire life.

That is what I am trying to hold onto. I may wake up heaving every day right now, but I’m hopeful that won’t be the case in a years time. I panic and worry that it will go and then return, but what I have to do as my friend told me, is take it day by day and not imagine worst-case scenarios. I can honestly say the advice and support of others is how you get through the worst of days. I may be too sick right now to work and I may be broke but I am more grateful than I have been in years, for the kindness of those who have extended their hands and said ‘let me help you’. Those words are a miracle.

My friend Mark says what helped him the most with his illness was to pay it forward, and focus not on himself but on others. I hear him and I am attempting to do the same. Currently it’s day-by-day, some weeks are unbearable still and I pray to die, whilst other days I can almost remember how I was before I got sick. What I do know is, if you get sick, with anything, don’t rely upon the internet as your go-to, and don’t isolate yourself. In my case it was my family doctor, not the fancy high-paid Gastroenterologists, who found out what had caused my sudden and violent symptoms. I have learned so much from this experience and continue to.

If you’re reading this and you feel hopeless, know that you are not alone and there is hope.