Hi doctor,My wife had been diagnosed with cavernomas since she was 15 due a to a gene defect. She had six seizures last week and was admitted to a ward. She was discharged later, only being told she had new cavernomas and the old ones had grown. She never saw a neurologist during her time there. However, today I have been informed she has one cavernoma in her right temporal region which has grown and there is one new one in her pons. I am very concerned about this as we have been offered no advice or anything about the dangers of this and only told we can ask questions when we get an outpatient's appointment which will probably be in a month's time. We are both very scared and concerned about for the prognosis. Can anyone help and give us some advice about cavernomas in the pons and the severity of this, it would be greatly appreciated.
Hello. Regarding the cavernoma in her pons, it may lead to a low risk of bleeding. It does not cause seizures. The treatment with embolization could be a possible treatment option, but with a high risk because this is a life-threatening region of the brain. Regarding the temporal cavernoma, it is related to seizures. It can also lead to hemorrhage in this region. It can be treated with open surgery or endovascular embolization. Brain angiography is necessary to examine the anatomical features of the cavernoma before discussing treatment options. I recommend consulting with a neurosurgeon about these issues.  Monitor blood pressure values and coagulation tests. Take brain MRI with Gadolinium enhancement every year Best wishes. For more information consult a neurologist online -->