I have been diagnosed with Pulmonary langerhans Histiocytosis X. 63 y/o white male and have been told my only hope for the future is a lung transplant.  My PFT shows 26% lung capacity and my carbon dioxide/oxygen exchange last year was 51%, this year 41%.  My doctor expects a continuing degradation and under pressure admitted that I have probably 4 years left.  Should I obtain a second opinion?  What are my chances of obtaining a lung transplant?  Should I even bother to pursue this option?
Hello, Yes, you should definitely think about lung transplant. In fact, it is the only option of treatment for end-stage Langerhans cell histiocytosis. It is a chronic progressive lung disease. No treatment is available to halt the progression of the disease. Lung transplant is the only hope. So better to consult a transplant surgeon and discuss it. Hope I have answered your query. Let me know if I can assist you further.