Brief as I can be; I have been sick for the greater part of my life starting with my first hospitalization at 19 months, that was in 1968. They diagnosed at the time double pneumonia, pleurisy and noted a torn tricuspid in the right atrium. Throughout most of my teens I came down with what appeared to be flu like symptoms as well as diarrhea. Usually within a few hours to a day I was running again.  In my late teens and early twenties I was hospitalized so many times with microbacterial pneumonias, again a dose of antibiotics and fluids, running again. Then in my 30s I started having real bad cramps in my lower stomach as well as enlarged lymphnodes in my groin area. Stools have been dark and fluid with mucous present. Wipples disease has been considered and I do believe thats on the right track. However athe biopsies were done in my small intestine with some damage to the villi, (unknown) as well as a flattened duodenum but what showed up was h-pylori that they couldnt eradicate on 4 occasions. I have had lots of episodes of bile being brought up, nausea and of course continued fatty like stools. I wake up with dislocated knees and recently my left leg was somewhat out of socket on the outer hip/leg. My optic nerves have noted atrophy/degeneration noted and I have a spot under the right eye that has stayed with me for about a year now. Its red and flakes with white dead skin daily. My nose and cheeks often show hyper-pigmentation or seemingly fast skin growth(?) Going for the morning ritual for the last three years is excruciating to the point of crying, remember its mostly liquid coming out although a rare hard stool is the worse, almost to the point of passing out. I am treated at present with ms-contin long release, 1000mg twice daily and 10 mils per mg, 3-5 mils every 4 to 6 hours as needed of the liquid morphine. The ytried to used gabapentine but that didnt og over too well and Lyrica doesnt touch it. The liquid morphine lets me do the morning thing with very little pain and formed stools, most of the time no blood and little mucous. in 2008 I contracted MRSA which prevented the treatment for Whipples. All I know is I am exhaustedc within an hour or two of being awake but I deal with it and try to live and work normally as possible but some days are a write off. I am not depressed just bothered with it all. My doctors are giving up, that bugs me but I understand. I also receive lidocane therapy which does help but because they can pin the diagnosis they now wont treat me for Whipples because they cant confirm it. I have even offered to pay for my treatment privately if I had too, it just seems no one wants to take the time. Does anyone know where I can go to get fulfilled help, its just my life! Thank you
WITH YOUR SYMPTOMS AND COMPLAINS CLINICALLY IT IS QUITE POSSIBLE THAT YOU DO HAVE RIPPLES DISEASESINCE NO BIOPSY AND CONFIRMATION OD DIAGNOSIS HAS BEEN DONE IT CANNOT BE SAID THAT YOU HAVE IT FOR CERTAIN.STILL SINCE ITS AN INFECTION AND IF IT IS PRESENT TRIAL OF A COURSE OF ANTIBIOTIC SHOULD NOT HARM MUCH CAN TRY TAB DOXYCYCLINE 150 MG ONCE A DAY AND TAB HY Chat Doctor. THESE MEDICATION CAN CAUSE SOME GASTRIC IRRITATION SO TAKE THEM AFTER MEALS NOT ON EMPTY STOMACH IN ANY CASALS TAKE TAB SANITIZING 150 MG TWICE A DAYTON EASE YOU BOWEL MOVEMENT WOES TRY USING BULK LAXATIVES LIKE ISABEL PULL TO BASIC LY INCREASE THE BULK OF STOOL AND KEEP IT SOFT DO LET ME KNOW IF IT HELPS