I can not find a Dr who is experienced in a large retroperitoneal lymphocele (or possibly a lymphangioma or psuedo cyst) measuring 25cm by 10cm by 5cm which is insinuated around the aorta and vasulature as well as into to the pelvis and rectum. I have been to the University Medical Center in Tucson, Az, Banner MD Anderson Cancer Center in Glendale, Az and the Mayo Clinic in Phoenix, Az. I have done a lot of my own research on line and it is very rare. Can you help me?
HI. AS YOU RIGHTLY SAY-this is a very rare case-so how can one get an experienced surgeon ? I hope this has been well investigated with MRI / CT and may a study like lymphangiogram or so. I would advise visiting a senior Cardio-thoracic Surgeon, who with some innovating ideas like shunting or putting in a venous bypass graft or so can help you.... All the best. Please let us know more so that we can help and guide you more. I'd this causing you any symptoms ? Was there any causative reason like an accident, trauma or so. I hope you have been well investigated to rule out cancer/ any obstructing pathology in the thorax or neck area.