Hi My name is Jane I have TCP Purpura, Multi Giant Cell Hemangiomas in all the verts in spine and neck, Liver (4  all 16 cm) in my legs and R & L Axillias, Pancreas,  Around my Gall Bladder, Stomach, reproductive organs and now in my right lung, and head. Many are Symptomatic and I am on Fentynyl and other drugs to try and combat nerve pain and other symptoms......
Hi and welcome to Chat Doctor. Thank you for your query. I am sorry about your disease, but you should be encouraged to create it by all possible methods. Haemangiomas which are symptomatic, larger than 10 cm and which are risky to bleed should be surgical removed especially those in liver and lungs. Also, splenectomy should be performed if possible for improvement of thrombocytes levels. Wish you good health.