Looking for a ENT Dr. for recommendations for my granddaughter, with Robinow syndrome. She does not have a cleft palate but her ENT does not want to remove her tonsils (cyst in one) because or her high palate. She does not have a speech impediment (tested at UTMB) but Dr. says it may impair her speech. She is 26. What do you suggest? I am her Grandmother and she lives with me. I just got her UHC medical Insurance. She thinks the food moves around in her throat and is painful. She has had food stuck in her tonsil before and managed to remove it.
Robin ow Syn Chat Doctor.  However, it is not possible to cure the condition completely. The treatment varies from one patient to another depending on the present symptoms. Surgical correction of the physical deformities is the most common treatment option. Other treatment measures that can help the patients to cope with the condition include