I was diagnosed with pseudotumor cerebri in April. My eye dr actually found it with my optic nerve being swollen. Topemax was helping the first couple of months but my headaches kept getting worse so they kept upping my dose. I m taking 100 mg twice a day. I m still having headaches. My neck has also been so stiff like I sleep on it wrong every single day. Today I had a lumbar puncture to see if that would relieve my headaches and he told me my pressure wasn t high. My level was an 8. I feel like a crazy person. My neck feels better though. What do you think? I just don t know why I m still having such bad headaches if the fluid isn t bad.
You mentioned your CSF Pressure be 8. I want to know the units of pressure here. Few report in cmH2O, few report in mmHg, few report in Paid I consider it be mm Hg, 8 is mildly high pressure. Was the pressure 8 at time of diagnosis? Or later? Keeping diagnosis of pseudotumor cerebra be correct, there are other medicines available to reduce ICP- Acetazolamide, Prednisolone is also effective. If CSF pressure still remain his, VP shunt also can be considered. If vision in impaired because of pseudotumor cerebra, fenestration surgery of optic nerve is effective to save vision