I have a son 54 years of age diagnosed with ALS...since there is no real diagnosis for this disease and it has been 3 years.........the doctors say he is doing very well compared to most..his arms are paralyzed, but rest of his body is sound and good....makes us wonder if it could be something else...any thoughts on this would be so very appreciated..but I know this is a difficult one
Sorry to hear about your son condition. ALS is progressive loss of anterior horn cells. The involvement of bilateral arms without other limb involvement occurs in man in barrel syn Chat Doctor.  Other possibilities may be cervical cord lesion probably spring or some rare limb girdle muscular dystrophy or bilateral brachial adenopathy. But if some neurologist had evaluated and made such diagnosis then other possibilities are rarity.  You should be in touch with neurologist and physiotherapist for your son. May God bless your son.