text:
" Brand: Cussons / Type: Hand Wash / Suitable for: Hand "
We have this lovely ,fragrant hand wash in our guest bathroom and I am always confident that whoever they are they will enjoy using this soap. Cussons Imperial Leather has always been a little bit of a superior product, most people know of their hand soap with the trade mark red label in the centre and the distinctive shape , they have in my opinion carried on the tradition of high quality in their range of hand wash liquid soaps.
A little background.
This is interesting! in1768 a Russian nobleman called Count Orlof commisioned a brand of perfume from Bayleys of Bond Street in London. The perfume was called "Eau de Cologne Imperiale Russe". In 1921 Bayleys were acquired by Cussons and Sons but it was not until1938 that Alex Cussons used the origional perfume and created Cussons Imperial Leather soap and other toiletries. It was a very popular soap during the war when soap was, of course, rationed as it lasted a long time. So smells good and lasts what could be better.
The packaging.
The creamy handwash comes in a nicely curved shaped ,opaque bottle which is well designed to be very easy to hold with wet or slippery hands On the front is the Cussons Imperial Leather logo and some cute little flowers and a bee as this product contains honey as well as vanilla milk "in Good Hands" and "family kind " as well as the description vanilla milk and honey handwash also appear on the front. On the back is a description of it´s properties saying that this product will feed your hands with a yummy nutritious blend of vanilla milk and honey and that you will become addicted to it! Cussons go a bit overboard extolling their product and the back is full of information including that it is ,skin friendly ph ,dermatologically tested ,mild enough for all the family and 100% soap free. Its a very busy back label and also list the ingredients amongst which I can spot vanilla. On the top of the bottle is a clean and efficient pump which gives a sensilble amount of product to wash your hands well.
The product.
One squirt of the pump and you get a good amount of peachy, pearly handwash ,the scent of vanilla is noticeable but not enough for the guys to say thats a really girlie perfume. It feels soft and smooth and rich on the hands and lathers up well when the water is added. One squirt is enough unless you are very dirty!
It cleans my hands well and leves a nice faint scent . they claim that the vanilla milk protects and conditions and that the honey naturally hydrates and heals and nourishes and my hands always feel better for a wash with this. The bottle contains 300ml, and how long it lasts depends on whether you do get addicted to it,I reccomend you give it a try!
All in all another nice product from Cussons, widely available in Supermarkets price around 1.50p
I like to buy a good quality hand wash to use at home as I have quite sensitive hands that get dry very quickly so I don't like buying the cheaper value soaps which make your hands even drier - plus they look horrid and very cheap.
Imperial Leather is one of my favourite brands of hand wash and their In good hands soap is one of the best of theirs in my opinion.
It's a comforting hand wash with vanilla milk and honey. The vanilla milk protects and conditions your skin and the honey is hydrating, nourishing and healing so these two mixtures put together are very soothing and good for your skin.
The colour of the soap is a creamy pale orange colour and it looks and feels like a thick creamy wash. It smells of vanilla and as soon as you put it on your hands and rub it in you can feel that it's very soft and will moisturise your hands well. It lathers up well in your hands and it leaves your hands feeling soft and smelling lovely after using it.
These soaps only cost £1 usually so even though that's more than a supermarket's value range of hand wash, this one looks and feels so much nicer. You can tell straight away that it's an excellent quality soap and it's one that I'm proud to have on show in my house when guests come over.
In our house we need to use a decent hand wash that has some sort of moisturising ingredient in it as both Alex and I get dry hands really easily. I usually use Imperial Leather's Softly Softly hand wash in the bathroom, which I love, but I often look out for new and different ones to try just for a change. So when I saw this one, In good hands, also from Imperial Leather, it looked like it would be another great one to try.
It comes in the usual liquid hand wash style container with a pump top which is very easy to open with a quick twist. The Imperial Leather hand wash bottles have a curved body making them look a bit different and this one has a few small pictures of yellow flowers and a buzzing bee on the front.
In good hands is a comforting liquid hand wash with vanilla milk and honey. The vanilla milk is for protecting and comforting the skin and the honey is naturally hydrating, nourishing and healing which means that it is a perfect hand wash for those who want to protect and nourish their skin. It has a pale orangey vanilla colour, looks very good quality and has a subtle scent of sweet vanilla. It lathers up very easily and quickly in your hands making a creamy lather. It feels really smooth and silky on my hands and feels like it's moisturising them brilliantly - they always feel very soft and smooth after I've used it and as if they have a silky sheen left on them.
This hand wash is 100% soap free, dermatologically tested and is mild enough for the whole family to use. It's also a neutral colour so it matches perfectly with any room in the house.
Imperial Leather hand washes usually cost £1 each but can often be found in various offers - such as a 4 for £3 offer in Asda at the moment. Although more expensive than value supermarket liquid soaps, these ones are so much better quality, plus they look a lot nicer on the sink when guests come round!
The only problem I have with this hand wash is that now I can never decide whether to use this one or the Softly Soflty one as they're both so scrumptious!


text:
There's more than one way to cook a goat, and Josh Gerwin probably knows them all.
Gerwin, formerly of Casa Vieja in Corrales, recently made the jump from food-truck proprietor [food, July 4, 2012: "Truckin'"] to Cerrillos Road restaurateur. (Truck fans, don't worry: it's parked right outside the restaurant and, Gerwin says, will make reappearances for special events.)
Despite its location in the unassuming strip mall next to Jackalope, the new Dr. Field Goods Kitchen manages to be both airy and homey, with potted herbs adorning the tables and an open-concept layout that allows you to watch as Gerwin works his, um, magic.
"The other night, people were watching me butcher the goat," he says, grinning.
When he gets a goat, he'll post the news on Facebook. His fans know to head to the restaurant as quickly as possible: "The first person to order it," he says, gets one of the limited delicacies—six ribeyes and two tenderloins.
With the remainder, Gerwin cooks up homemade Italian sausage—the same recipe he uses for pork, he says, but "much leaner"—and seasoned barbacoa; he renders goat fat to make aioli.
He urges me to try all three.
The sausage comes dotted on a thin-crust pizza topped with homemade mozzarella, which SFR's unofficial pizza connoisseur dubbed "really good."
The sandwich (which my extremely discerning man-friend later dubs the Best Sandwich Ever) embodies Gerwin's philosophy of sourcing locally as much as possible, and getting back to the original "field goods" ingredients.
"I'm getting the whole animal, and I'm using the whole animal—and it's all in that sandwich," he says.
Ninety percent of the menu is gluten-free (he thickens soups with rice, not flour), Gerwin says, and he steers clear of extra oils when cooking.
"I do pretty healthy food; it's all homemade and fresh," he says. "But there's still fried food and cheese."
Indeed, the menu ranges from a light but filling quinoa salad ($5) to a sumptuous Philly cheesesteak ($12).
Cold pints of beer pair nicely with either, but the restaurant also offers fresh, made-to-order ginger ale and lemonade ($1.75) or French press coffee ($2.50-$4.50).
In keeping with the theme, classic rock ballads play softly in the background as Gerwin and his team slice mozzarella and feed pizzas into the wood-fired oven in the center of the room. As I'm getting up to leave—having managed to consume half a beer and less than half of the goat sandwich, I'm completely stuffed—Gerwin stops me to make one last point: "I just want to have fun."
Dr. Field Goods Kitchen
2860 Cerrillos Road, Ste. A-1, 471-0043
Lunch and dinner Monday-Saturday

subset: commoncrawl


text:
Note: This item is more than four years old. Please take the publication date into consideration for any date references.
Print – Plain Text – Permalink
News Release
Media Contact: TPWD News, email@example.com, 512-389-8030
May 1, 2013
Report Shows Hunting Remains Safe Outdoor Activity
AUSTIN, Texas — Hunting accidents and fatalities in Texas continued their long-term decline in 2012, still below three accidents per 100,000 hunters in recent years.
Last year, there were 25 reported hunting related accidents, five of which were fatalities. Although any fatality is tragic, Texas accident numbers are small compared to the number of hunters with 1,155,542 hunting licenses issued in 2012.
The National Shooting Sports Foundation, the trade association for the firearms industry, has compiled data on accident rates among 28 recreational pursuits that shows hunting ranks third in safety behind only camping and billiards.
"The statistics show hunting is safe and getting safer in Texas," said Robert Ramirez, hunter education program manager for the Texas Parks and Wildlife Department. "And we do believe that is directly related to hunter education."
The state's worst year on record for hunting accidents was 1968, when 105 accidents were reported, including 37 fatalities. That equates to about 12 accidents per 100,000 hunters.
Prior to mandatory hunter education requirements in the fall of 1988, Texas reported 7.5 hunting accidents per 100,000 hunting licenses issued. Since then, Texas has averaged 2.95 accidents per 100,000 licenses issued.
"We're still on a trend that is taking us downward," Ramirez said. "Whether we bump it up next year or not, the 10-year trend is what I look at, and it's coming down. Mandatory hunter education is really having an impact."
The class is mandatory for every hunter, including foreign and out-of-state hunters, born after September 1, 1971. The minimum age of certification is 9 years. In 2012, volunteer hunter education instructors certified more than 45,000 hunters across the state.
Ramirez said even hunters who are not required to take the education course are more aware of basic safety principles than before.
"It's things like the '10 Commandments of Shooting Safety,' the very basic safety principles that are promoted a whole lot more now than 30 or even 20 years ago," he said. "Highlighting the accidents is an education in and of itself."
The five hunting fatalities of 2012 included two incidents involving careless handling of a firearm near a vehicle, and three where the shooters did not follow basic rules of firearms safety.
According to Ramirez, these accidents were preventable if the hunters had only followed some very basic safety principles like those taught in the hunter education courses.
"You know you're not going to stop accidents altogether," he said. "But you're going to help people build knowledge and skills to avoid accidents."
The full report for 2012 is available on the TPWD web site http://tpwd.texas.gov/publications/learning/hunter_education/ .
Publication — Permission is granted to publish, in whole or in part, any news releases on this page.
Print — A print-friendly version of the news release shows only the release with font sizes set to the browser default.
Plain Text — Plain text versions of TPWD news releases are provided for copying and pasting into editing software.
To copy text into an editing software:
- Click a Plain Text link to display the plain text page in your browser.
- Select all.
- Copy.
- Paste in a document in your editing program.
Permalink — This is a direct link to the news release, omitting the navigation context from the URI.
English/Spanish — News releases posted in both English and Spanish have one of these links.
If you have any suggestions for improving these pages, send an e-mail to firstname.lastname@example.com and mention Plain Text Pages.
(5.4.16 i)


text:
We are in Charlottesville VA
There is a common belief that many magic tricks are "done with mirrors". Well, this one really IS done with a mirror!
Show your spectator a little flat domino shape, with six magnetic dots. Let him make a domino, putting some of the dots on one side and some on the other.
When he's finished, tell him you've made a prediction about what design he was going to make. Your prediction can be seen in the mirror- well, of course it's right!
Just when he thinks it's all a joke, show him your REAL prediction- a picture of the EXACT two number domino he designed!
This wonderful trick is EXTREMELY easy to do- in fact, you don't need to do anything but the talking! It works itself!
And that's all you need!


text:
Los Altos resident Kay Payne, art history lecturer in charge of the Community Speakers' Program for San Francisco's Fine Arts Museums, presented a retrospective of famed photographer Ansel Adams' work for members of the Rotary Club of Los Altos Dec. 12.
"I knew my destiny when I first visited Yosemite," said Adams, who became the unofficial champion of America's national parks.
According to Payne, in 1916, the 14-year-old Adams received his first Kodak Brownie Box Camera. From his perch atop a crumbling tree stump in Yosemite, he unexpectedly tumbled while snapping a shot of the forest upside down – a new way of looking at nature. Every year thereafter, he returned to Yosemite, eventually composing a visual diary of its wilderness.
With his early 1921 "Lodgepole Pines" shot, Adams felt "a photo should look like a watercolor," Payne said. Later he sought clarity, so he used a standard K2 yellow filter on Half Dome, gleaming in the sun and partly obscured in shadow. In his 1927 "Monolith," he progressed to a red filter and reduced the exposure by a factor of 14 to enhance the tonal values, thus intensifying its emotional impact.
Adams traveled 1,200 miles through New Mexico in 1927, taking black-and-white photos. Payne said he urged his students to keep accurate records of their photographs and evaluate their compositions with large cardboard frames before wasting film. At that time, his photos sold for approximately $10, the equivalent of $160 today, Payne noted. Today his prints sell for thousands of dollars.
The father of Peter Starr, Stanford University's famed but fallen mountain climber, asked Adams to photograph the majesty and danger of the High Sierra's Minarets, Payne said. Adams produced a series of half-tone photographs using continuous tones from white to black to emphasize his emotional response to the wilderness. The photographer gradually developed a "zone system," she added, to control the tonal range of his prints: technical excellence with a strong emotional interpretation. He sought a predictable result typified by radiant light. His Cadillac's license plate touted "Zone 5," according to Payne.
Although Adams produced approximately 3,000 color images, he felt that working in color was "like playing an untuned piano," Payne said, for he preferred the abstract element of working in black and white. Some of his finest works, such as "El Capitan," were shot on Polaroid Land cameras of the 1940s.
From the 1920s until his death in 1984, Adams was respected as a fervent champion of the national parks, Payne said, adding that he preferred calling them "reserves" rather than "parks," for he felt that everyone should touch "the living rock." He would walk for days without seeing people, cooking over a campfire and recording his impressions of untouched nature.
Mount Ansel Adams near the southeast entry to Yosemite National Park awaited its name until 1985, the first anniversary of Adams' death.
Marlene Cowan is a member of the Rotary Club of Los Altos.


text:
Karen Thompson Walker
Photo: © �?© Ramin Talaie
About the Author
Karen Thompson Walker is the author of The Age of Miracles, which was a New York Times bestseller. She was born and raised in San Diego and is a graduate of UCLA and the Columbia MFA program. A former editor at Simon & Schuster, she wrote The Age of Miracles in the mornings before work–sometimes while riding the subway. She currently lives in Iowa with her husband.


text:
Hadn't seen this posted yet. It seems like the Pacers get more than expected coverage from Grantland.
Saw it on Indy Cornrows.After the game, Frank Vogel suggested David West could have set an actual screen for Hill, but he never came close to doing so, and it doesnt appear West had any intention of setting a real screen. He instead ran hard up toward Hill as if he were going to screen Metta World Peace, only to suddenly veer off toward the top of the 3-point arc and away from Hill.
Monty Williams ran this play with West and Chris Paul all the time in New Orleans, especially in clutch situations. It was a straight-up decoy then; Williams instructed West merely to fake a screen for Paul before darting away toward the center of the court, as he did last night. The idea, Williams has told me, is to trick the point guards defender (World Peace) into thinking a screen is coming to Hills right. In anticipation of that pick, a defender will often open up his stance slightly, better angling himself to chase the point guard over the pick, as World Peace does here:


text:
Sign Up
Most women are familiar with skin care and beauty products that help prevent wrinkles, fine lines, cellulite and more. However, many might be less in tune with why certain creams and serums work to keep such imperfections at bay. Learning how skin works may help ladies better understand how products work, and even ways to keep their skin healthy through more organic outlets.
Dr. Aaron Tabor recently listed a few surprising facts about skin and outlined why it's so important people take precautions to protect the body's largest organ.
Botanicals are best According to Tabor, botanicals, or nutrients found in plants, can greatly improve the look of skin thanks to its therapeutic properties. However, not all beauty products that claim to contain botanicals are created equally.
"Botanicals that contain beta-carotene can actually improve skin quality," Tabor told the Huffington Post. "Keep in mind that products that contain botanicals should have a color or hue to them, as botanicals have a natural color. If the product you're using claims to have botanicals in it and it is white in color, you should ditch it. The only way skincare products can be white in color is through chemicals."
WebMD reports you can also get beta-carotene from the foods you eat. Carrots, sweet potatoes, spinach, kale and fruits like cantaloupe and apricots are all tasty ways to boost this nutrient.
Face massages hold value Getting a massage is one of the greatest feelings around - helping to ease stress and boost calming triggers in the brain. The same benefits can be felt through face massages, the expert reports. In fact, such massages work to stimulate cells in the skin, which releases collagen and helps maintain elasticity. Losing collagen can result in a sunken in look over time, so finding ways to prevent this is key.
To work the collagen and muscles in your face, trying giving yourself, or having your guy massage your complexion with Bliss products like Bliss Youth As We Know It Moisturize Cream. The cream works to exfoliate, oxygenate and improve cellular production to help you looking as young as you feel.
Let your face breathe If your nightly routine consists of taking off your makeup, brushing your teeth and applying a night cream like the Elemis Tri-Enzyme Resurfacing Night Cream, you might need to switch it up to boost the health of your skin.
Tabor reports closed pores are less absorbent, so washing your face at night and then instantly applying cream can be useless. Instead, try wetting a face cloth and laying it on your face for a few minutes to open the pores. After the allotted time, apply the cream, since it will be able to sink in deeper now.
Recommended Products
Related posts


text:
Hi everyone,
Just looking for a bit of advice, I'm looking to get away for some good waves, sun and good times in May and June. I have a couple of places in mind, Costa Rica or Brazil.
Anyone know much about them in these months? I know there will be good waves in both places, but advice on weather and cost of living and other things to do other than surfing?
Or maybe you could suggest something else?


text:
Hailing from the old worker's district Punavuori, in Helsinki, Finland, is a quality, hard-edged clothing label called Makia. This modern and distinctive streetwear brand reflects the Finnish tradition of simple and straightforward design. In 2001, a group of friends realized the high street fashion market was missing a brand with easily approachable, timeless, and inexpensive clothing. Makia believes clothing should look good and last, year after year. Functionality is key in these no-nonsense, minimalistic styles. No need to think too hard—just grab anything from this no-frills Finnish label and you can rest assured your style is smart and built to last.
No products match your selections. Try clearing your filters.


text:
Get an overview of this hotelAparthotel with free breakfast, near Boise State University
Popular property highlights
Located in the heart of Boise, this aparthotel is within a 15-minute walk of Boise Depot and Boise State University. Taco Bell Arena and Idaho State Capitol Building are also within 1 mi (2 km).
Property Features
This smoke-free aparthotel features an indoor pool, a 24-hour fitness center, and a snack bar/deli. Free continental breakfast is provided, as well as free WiFi in public areas, free self parking, and a free airport shuttle. Other amenities include a spa tub, coffee/tea in a common area, and a business center.
Room Amenities
All 121 apartments feature kitchens with refrigerators, stovetops, microwaves, and dishwashers. Free WiFi and free wired Internet are standard, as are TVs with cable channels.
Guest Highlights
- Good location
- Breakfast
- Helpful staff
- Clean guestrooms
TownePlace Suites Boise Downtown
Property Amenities
Property Amenities
In addition to an indoor pool, TownePlace Suites Boise Downtown provides a spa tub and a 24-hour fitness center. The aparthotel offers a snack bar/deli. Guests can enjoy a complimentary breakfast. Public areas are equipped with complimentary wired and wireless Internet access.
Business-related amenities consist of a business center and a meeting room. Event facilities measure 900 square feet (81 square meters). This business-friendly aparthotel also offers barbecue grills, coffee/tea in a common area, and complimentary newspapers in the lobby. A roundtrip airport shuttle is complimentary to guests (available on request). Complimentary self parking is available on site.
TownePlace Suites Boise Downtown is a smoke-free property.
- 24-hour fitness facilities
- Conference space size (feet) - 900
- Conference space size (meters) - 81
- One meeting room
- Total number of rooms - 121
- Number of buildings/towers - 1
- 24-hour front desk
- Free airport transportation
- Barbecue grill(s)
- Business center
- Coffee/tea in common areas
- Free breakfast
- Dry cleaning/laundry service
- Free newspapers in lobby
- Elevator/lift
- Express check-out
- Free WiFi
- Laundry facilities
- Number of floors - 4
- Safe-deposit box at front desk
- Snack bar/deli
- Free self parking
- Smoke-free property
- Spa tub
- Indoor pool
- Free wired Internet
Family Friendly Amenities
- Family Hotel
- Indoor pool
- Free Wi-Fi
- Kitchen
- Snack bar/deli
- Laundry facilities
- Full-sized refrigerator/freezer
- Microwave
- Cribs/infant beds (complimentary)
Available in all rooms: Free WiFi , Free wired Internet
Available in some public areas: Free WiFi , Free wired Internet
Free self parking
Room Amenities
- Free cribs/infant beds
- Premium TV channels
- Premium bedding
- Air conditioning
- Phone
- Free local calls
- Coffee/tea maker
- Kitchen
- Microwave
- Daily housekeeping
- Free toiletries
- Hair dryer
- Iron/ironing board
- Desk
- Cable TV service
- Television
- Cookware, dishware, and utensils
- Free WiFi
- Free wired Internet
- Dishwasher
- Full-sized refrigerator/freezer
- Stovetop
- Rollaway/extra beds (free)
Where to Eat
Guests are offered a complimentary continental breakfast.
Nearby Things to Do
An indoor pool and a spa tub are on site. Other recreational amenities include a 24-hour fitness center.
The recreational activities listed below are available either on site or nearby; fees may apply.
- Golfing nearby
- Water skiing nearby
- Bicycle rentals on site
If you have requests for specific accessibility needs, please note them at check-out when you book your room.
- Accessible bathroom
- Roll-in shower
- In-room accessibility
Property Policies
Check-in time ends at midnight
Check-in time starts at 4 PM
Special check-in instructions:
Check-out time is noon
Payment types
Children and extra beds
- Children are welcome.
- Kids stay free! Children 17 years old and younger stay free when using existing bedding.
- Free rollaway/extra beds!
- Free cribs (infant beds)!
- Pets allowed for an extra charge of USD 50.00 per accommodation, per stay
You need to know
Extra-person charges may apply and vary depending on property policy.
Optional extras
- Pet fee: USD 50.00 per accommodation, per stay
Property Name
- TownePlace Suites Boise Downtown
- TownePlace Suites Hotel Boise Downtown
- TownePlace Suites Boise Downtown Aparthotel
We should mention
Children 17 years old and younger stay free when occupying the parent or guardian's room, using existing bedding.


text:
Recommended Products
Guests who bought this also bought
Fun with Magnets™
Item is available.
Item # 5250
Magnets have always intrigued people because of the invisible force field around them. Kids and adults wonder, "how do they work?" Well, with Fun with Magnets, you can learn about magnets, how they work, and how to make things with them. The kit is full of simple, yet eye-opening, experiments and magnetic fun!
Ages 4 & Up
Contents: Magnet Wand, Horseshoe Magnet, Bar Magnet, 2 Ring Magnets, 3 Magnetic Balls, Compass, 8 Nuts, 5 Washers, Wire, Metal Rod, 3 Crepe Rubber Shapes, 8 2-Sided Activity Cards
WARNING: CHOKING HAZARD - Toy contains small balls and small parts. Not for children under 3 yrs.


text:
Study of Inherited Neurological Disorders
- Full Text View
- Tabular View
- No Study Results Posted
- Disclaimer
- How to Read a Study Record
This study is designed to learn more about the natural history of inherited neurological disorders and the role of heredity in their development. It will examine the genetics, symptoms, disease progression, treatment, and psychological and behavioral impact of diseases in the following categories: hereditary peripheral neuropathies; hereditary myopathies; muscular dystrophies; hereditary motor neuron disorders; mitochondrial myopathies; ataxias; hereditary neurocognitive disorders; inherited neurological disorders without known diagnosis; and others. Many of these diseases, which affect the brain, spinal cord, muscles, and nerves, are rare and poorly understood.
Children and adults of all ages with various inherited neurological disorders may be eligible for this study. Participants will undergo a detailed medical and family history, and a family tree will be drawn. They will also have a physical and neurological examination that may include blood test and urine tests, an EEG (brain wave recordings), psychological tests, and speech and language and rehabilitation evaluations. A blood sample or skin biopsy may be taken for genetic testing. Depending on the individual patient s symptoms, imaging tests such as X-rays, CT or MRI scans and muscle and nerve testing may also be done.
Information from this study may provide a better understanding of the genetic underpinnings of these disorders, contributing to improved diagnosis, treatment, and genetic counseling, and perhaps leading to additional studies in these areas.
|Ataxia Motor Neuron Disease Muscular Disease Muscular Dystrophy Peripheral Nervous System Disease
|Study Type:
|Official Title:
|Clinical and Molecular Manifestations of Inherited Neurological Disorders
|Estimated Enrollment:
|Study Start Date:
|February 4, 2000
The Neurogenetics Branch (NGB) within the National Institute of Neurological Disorders and Stroke (NINDS) is conducting a study to evaluate and provide genetic diagnosis to participants with various diagnosed and undiagnosed neurological conditions.
The primary objective of this protocol is to provide a resource of patients for enrollment into new research protocols throughout the NGB and other NIH laboratories. Evaluating and diagnosing participants will allow the NGB specialists to maintain their expertise and gain additional knowledge of the course of various neurological disorders. The information obtained will allow for the evaluation and diagnosis of the studied neurological diseases. This understanding may lead to ideas for future protocols. In some cases, blood or other biologic samples (including urine, saliva, or a cheek swab) will be obtained for future laboratory studies.
The number of participants to be enrolled will be set to 2,000 patients with neurological diseases and their unaffected relatives.
This is an observational diagnostic study of multiple neurological diseases and their progression and pathophysiology.
No formal outcomes will be measured; however the clinical assessments of enrolled participants can be used to characterize the disease manifestations. In addition, DNA samples obtained may be used to identify and verify causative mutations as well as identify novel genes, which may help establish pathogenic mechanisms and genotype-phenotype correlations.
|Ages Eligible for Study:
|2 Years and older (Child, Adult, Senior)
|Sexes Eligible for Study:
|Accepts Healthy Volunteers:
- Participants include those with inherited neurological conditions based on the training and research needs of the Neurogenetics Branch program. There is no logical limit; however the total number of participants that can be enrolled in the protocol will be restricted. No more than 2,000 participants with either diagnosed or undiagnosed neurological conditions and their unaffected relatives will be enrolled in this evaluation and diagnostic protocol.
Participants will be eligible if they:
- Have either a known or suspected, inherited neurological disease, OR are an unaffected relative (first-, second-, third, or higher degree relative) of a participant with a genetic neurological disease.
- Have the ability to understand and sign an informed consent or have a parent/legal guardian to do so if they are minor children or a legal guardian to provide consent for adults without consent capacity.
- Aged 2 years and above.
Participants will not be eligible if they:
- Are unwilling or unable to be followed as clinically indicated.
- Have a systemic disease that compromises the ability to provide adequate neurologic examination or diagnosis.
Participants will be eligible if they:
- Have either a known or suspected, inherited neurological disease, OR are an unaffected relative (first-, second-, third, or higher degree relative) of a participant with a genetic neurological disease.
- Have the ability to understand and sign an informed consent or have a parent/legal guardian to do so if they are minor children or a legal guardian to provide consent for adults without consent capacity.
- Aged 2 years and above.
- Participants will not be eligible if they:
- Are unwilling or unable to be followed as clinically indicated.
- Have a systemic disease that compromises the ability to provide adequate neurologic examination or diagnosis.
Please refer to this study by its ClinicalTrials.gov identifier: NCT00004568
|Contact: Alice B Schindler
|(301) 496-8969
|Contact: Kenneth H Fischbeck, M.D.
|(301) 435-9318
|United States, Maryland
|National Institutes of Health Clinical Center, 9000 Rockville Pike
|Bethesda, Maryland, United States, 20892
|Contact: For more information at the NIH Clinical Center contact Patient Recruitment and Public Liaison Office (PRPL) 800-411-1222 ext TTY8664111010 email@example.com
|Department of Neurology of the Teaching Hospital (CHU) of Point G
|Bamako, Mali
|Principal Investigator:
|Kenneth H Fischbeck, M.D.
|National Institute of Neurological Disorders and Stroke (NINDS)
Additional Information:
|Responsible Party:
|National Institute of Neurological Disorders and Stroke (NINDS)
|ClinicalTrials.gov Identifier:
|NCT00004568 History of Changes
|Other Study ID Numbers:
|Study First Received:
|February 11, 2000
|Last Updated:
|June 30, 2017
Keywords provided by National Institutes of Health Clinical Center (CC) ( National Institute of Neurological Disorders and Stroke (NINDS) ):
Peripheral Neuropathies
Muscular Dystrophy
Motor Neuron Disease
Spinocerebellar Degeneration
Neurological Disorders
Additional relevant MeSH terms:
Muscular Dystrophies
Nervous System Diseases
Motor Neuron Disease
Peripheral Nervous System Diseases
Muscular Diseases
Muscular Disorders, Atrophic
Musculoskeletal Diseases
Neuromuscular Diseases
Genetic Diseases, Inborn
Neurodegenerative Diseases
ClinicalTrials.gov processed this record on September 25, 2017


text:
Congratulations! You leveled up, but you aren't logged in so we can't save your points.
Exterior painting, Portland,Cascade Painting
Categories other
Tags commercial, contractors, drywall, exterior, fire-and-water-damage, house, http-cascadepandr-com, interior, oregon, painters, painting, portland, pressure-washing
Flag This Item
VideoBash is your first and final stop for free funny videos, games and pictures guaranteed to brighten up your day. The funniest jokes and the most unbelievable pranks caught on tape have been collected in one spot for your viewing pleasure. This is entertainment at its best and no one does it better than VideoBash. These funny clips crackle with humor and they will definitely have you laughing till your sides hurt. Quality is our number one priority and the free funny vids here are the best of the best. There are no mediocre videos here. All the videos, jokes, pranks on VideoBash are the cream of the crop and you'll be hooked from the get go. The best part is you don't have to keep all this good stuff to yourself, you can share all the free entertainment videos with your friends.


text:
Directions • The trailhead is near Cedar City, in the spectacular Cedar Breaks National Monument that's open from late May to mid-October. To get there from Salt Lake City, take Interstate 15 south to the State Road 143/Parowan exit. Turn left on Main Street in Parowan and left on 200 South, then take a right on 143. Follow it about 15 miles to the Visitor's Center, where you pay a $4-per-adult entry fee. Children 15 and under are free.
The Alpine Pond trail is a loop that's accessible from two points, the Chessmen Ridge Overlook and the Winter Ranger Station. This version of the hike starts at the Chessman Ridge, a spectacular view in its own right. From there, the trail splits into an upper and lower route. We started with the upper route, which winds in and out of subalpine meadows covered with tall purple Shootingstar wildflowers, among others. It also offers new views of the breathtaking red-rock amphitheater through the trees and leads to the spring-fed Alpine Pond and back up to the start. • Trail data
Find GPS coordinates and more at: http://alltrails.com/tracks/track-jul-21-1037-am


text:
The Climate Action Reserve has developed a draft nitrogen management protocol for awarding carbon credits to farms that improve their nitrogen use efficiency through practices such as cover crops, reduced application, and others.
Manure application, by itself, does not qualify as a practice that reduces nitrous oxide emissions.
Source: Climate Action Reserve (via the Livestock & Poultry Environmental Learning Center)


text:
Zero Limits Ferrari Golf Shoes
Regular Price: $275.00
Special Price: $139.00
SF Lux Limited Ferrari Golf Shoes
Regular Price: $600.00
Special Price: $299.00
IGNITE Spikeless Sport Golf Shoes
An innovative, sporty mesh upper combines with premium leather for a super modern silhouette designed to step up your fashion game on and off the golf course.
IGNITE Spikeless Sport DISC Camo - Golf Shoes
One of PUMA Golf's most iconic shoes gets a high-tech upgrade with PUMA's proprietary DISC technology.
IGNITE Spikeless Sport DISC - Golf Shoes
One of PUMA Golf's most iconic shoes gets a high-tech upgrade with PUMA's proprietary DISC technology.
PUMA Grip Sport Golf Shoes
Inspired by PUMA's running heritage, the Grip Sport boasts an extra roomy fit, super breathable performance mesh upper and sporty midsole that will keep you cool and comfortable all day long.
IGNITE Drive Golf Shoes
The IGNITE Drive brings our proprietary IGNITE cushioning technology to golfers at any level for a classic Puma golf silhouette with a sporty twist.
IGNITE Drive Sport Golf Shoes
TITANTOUR IGNITE Golf Shoes
Take your game to the next level. The next generation of golf performance is here with our latest tour shoe.
TITANTOUR IGNITE DISC - Golf Shoes - Special Edition
The Limited Edition, two-tone color TITANTOUR IGNITE DISC Golf Shoe, equipped with PUMA's innovative DISC technology.
TITANTOUR IGNITE Premium DISC - Golf Shoes
TITANTOUR IGNITE DISC - Golf Shoes
Shopping Options
- Price
- $0.00 - $99.99 (1)
- $100.00 - $199.99 (11)
- $200.00 and above (3)
- Color
- Gender
- Men's (15)


text: Main Content Article I § 25 friendly link Printer Friendly STATE CONSTITUTION (EXCERPT)CONSTITUTION OF MICHIGAN OF 1963§ 25 Marriage. Sec. 25. To secure and preserve the benefits of marriage for our society and for future generations of children, the union of one man and one woman in marriage shall be the only agreement recognized as a marriage or similar union for any purpose. History: Add. Init., approved Nov. 2, 2004, Eff. Dec. 18, 2004 © 2015 Legislative Council, State of Michigan


text:
This has led to engineers and designers, we're told, being forced to enlarge the rumps of what would otherwise be svelte and sleek GT coupes. It's a fate that has apparently befallen the curvy coupes of many brands, from Audi and BMW to Jaguar and Mercedes.
I must confess that I thought that this was all so much tosh. Until I opened the boot of our long-term Infiniti the other day to discover a sticker diagram showing me exactly how I might be able to squeeze a pair of Golf bags into the boot of Yokohama's finest.
The funny thing is, though, the very fact that Infiniti fears you need to be shown a diagram to get two golf bags in highlights another, perhaps more important, point - the shallow boot floor and oddly shaped aperture actually make the G37's luggage compartment moderately impractical. And that's despite the ample backside.


text:
Note: This item is more than four years old. Please take the publication date into consideration for any date references.
Print – Plain Text – Permalink
News Release
Media Contact: TPWD News, email@example.com, 512-389-8030
March 12, 2013
Smartphone App Now Available for Texas Freshwater Fisheries Center
ATHENS—More than 50 percent of Americans depend on mobile devices to communicate, navigate and recreate, and the Texas Freshwater Fisheries Center now has an app for that.
The app includes all the information visitors need to preview what's available at TFFC or to guide them around the facility during their visit. Photos and videos combine with proximity-triggered location information to lead visitors through a tour and even give a look at behind-the-scenes operations of the hatchery.
The app also includes a section devoted to other attractions and businesses in the Athens area, and local businesses can arrange to advertise on the app. The mapping function will guide visitors from TFFC to the place of business. Businesses wishing to learn more should contact Larry Hodge at (903) 670-2255 or firstname.lastname@example.com.
The free app is available for both Apple and Android devices and can be downloaded from the respective app stores by searching for "Texas Freshwater Fisheries Center."
On the Net:
- Link to TFFC app in Apple's App Store: https://itunes.apple.com/us/app/texas-freshwater-fisheries/id596026678?ls=1&mt=8
- Link to TFFC app in Google Play: https://play.google.com/store/apps/details?id=com.barz.tourguide.tffc&feature
Publication — Permission is granted to publish, in whole or in part, any news releases on this page.
Print — A print-friendly version of the news release shows only the release with font sizes set to the browser default.
Plain Text — Plain text versions of TPWD news releases are provided for copying and pasting into editing software.
To copy text into an editing software:
- Click a Plain Text link to display the plain text page in your browser.
- Select all.
- Copy.
- Paste in a document in your editing program.
Permalink — This is a direct link to the news release, omitting the navigation context from the URI.
English/Spanish — News releases posted in both English and Spanish have one of these links.
If you have any suggestions for improving these pages, send an e-mail to firstname.lastname@example.com and mention Plain Text Pages.
(5.4.16 i)


text:
Ether Development: Building Narrative around our Game Mechanics.
Pete and I have now been designing and building Ether for about 2 months now whilst also attempting to set up a game design studio and getting our names out there as independent game developers. Its been hard work and we don't expect it to get any easier going forward yet the progress that we have made have given us absolute faith in our project and the work that we are doing. Creativity is high and being an independent studio has allowed us to really push our ideas into interesting areas of design. As you can see from the title of this post one of these areas is our narrative and game mechanic designs and how they work together within the game.
What we really want to achieve with Ether is a game where what you play really matters and ties in with the narrative, without detracting from the actual game play or breaking the game up into narrative bits and game bits. We wanted to integrate those into a seamless world, where the narrative is integrated into the game play.
Our approach to this was quite simple at first. Lets work out some really cool and solid game play elements, make sure it works with basic design, then take time out to really contemplate whether a strong and compelling narrative could be intertwined into the mechanics. We thought this would be the best possible way to create excellent game play with a good engrossing story…we were wrong.
We found that this resulted in a really nice game play mechanic that played very well, yet the narrative ended up constraining the game play, pulling it into boxes that we really didn't want to be in. With this in mind we took the best parts of our initial designs and game play and went back to the drawing board. We didn't have that excitement for that project that we so needed, so we started designing in a slightly different way.
We looked at our ideas as an opportunity to think of narrative elements as we were designing Ether. So when we thought of our awesomely cool game mechanics and a rough setting we thought, what could this be in the game? Why would it be relevant? What would it contribute too? This allowed us to come up with ideas that all linked together in a chain that actually meant something, they were all related to each other through our ideas like a narrative train of thought. We then would look at our environments and look at what we would need in them to compliment the mechanics and then ask the same questions to determine if they would work with each other or if they wouldn't. We also thought about how the narrative would be brought to the player in game, it needed to be fluent and never detract from game play yet also keep the player engaged and intrigued.
This on going process pulled us from one idea to another till we started to form a coherent and deep world for Ether. It was then that I looked at all the elements and started to piece them together into a fully functioning narrative. The narrative now breaks up into two parts that are forever entwined in the game, the first part being about the character you are playing as, what they are doing, what they are going to achieve and how they are going to achieve it. The second part of the narrative is a story that overlays this one directly in game, that gives reason why you are doing this, what you are going to achieve and how you are going to achieve it. It gives you reason to play and hopefully will keep you playing through to the end.
I have always felt that games are more like books than films. In films you watch a story happen to someone else, they are on an adventure, the events are happening to them. In books, even if it is a character-based novel, you project yourself onto the character through imagination, the events happen to you. You are on an adventure; the companions are your friends. The same applies to videogames, you are in control and your actions will determine the story and this is why narrative when used (for we strongly believe that not all games need narratives) needs to be integrated into everything the player does, sees, feels and hears.
Some games manage this and some games don't, what we want to achieve is a game that does this that is fun, intriguing, compelling and mesmerising right to the end. We now have a game demo that is designed with a strong game mechanic, a wonderfully interesting world and hopefully a really good story that you will enjoy.
Next time I will hopefully be able to talk to you a little bit more about where we are up to with Ether on a physical level, until then if anyone has any thoughts on our journey whilst developing this game or if anybody wants to find out more about Ether and what we aim for the project please feel free to contact us via the contact tab at the top of the page.


text:
WHAT: Traverie.com imports travel photos posted by your Facebook friends and organizes them by city and country. You can keep track of where they have been and where you hope to go.
HITS: The "Dream" mode is the most inspirational. Traverie rolls out a location across your screen with a collage of travel photos taken by your Facebook friends. You can add the individual location to your bucket list or note specific slides. I loved that you can add your own notes to a single photo in your bucket list. Even better, you can click on that picture and send a Facebook message to your friend. You also can easily toggle between friends' photos.
MISSES: Think twice about who you have Facebook friended. The site allows access to all your photos, including those that you may have forgotten (bikini photos snapped in Mexico or bachelor party in Las Vegas). Traverie motivated me to drop acquaintances and old colleagues more than it did to book a trip.
— Jen Leo, Los Angeles Times


text:
|Home » All News » » Population Projections
|Monday 25 Sep 2017
Capital Center, Block 12-A, G-8 Markaz, Islamabad
Tel: 051-9262790-93, Fax: 051-9262754
This website was created with assistance from the United States Agency for International Development (USAID). The contents of this website are the sole responsibility of National Institute of Population Studies (NIPS) and do not necessarily reflect the views of USAID or the United States Government.
|Website Developed By : MicroMerger IT Solutions


text:
Sketch away
Monday blogpost,
A little late, granted, but still.
Lets get some sketches away:
This is the beginning sketch of Electro, an old Spiderman Villain, as an old man. The thougt is to paint multiple Spiderman Villains in older form.
Next up is a speedpainting. Just playing with ideas here:
And finally, the completed Arbaal the Undefeated painting. This has been featured as a wip in several blogposts and now it is complete. This is me re-imagining this old Warhammer Fantasy Battle character.
As you can see, he rides a demon, a so called Flesh Hound. He also holds an axe and a shield.
Since the character seem to have left the game a couple of editions ago, I felt I had some leniency to reinvent him somewhat:
I made the collar of Khorne sit behind the neck-guard of the Hound, it's the brass-thing with skulls and horns on it. The hound has more colour then Arbaal himself, this comes from the factt that I see demons and beings from the warp as having more colour then in "the real world" of Wfb/Wh40k.
My illustration shows Arbaal as he sacks Praag. Hope you enjoy.
Until Next time!


text:
You are not permitted to download, save or email this image. Visit image gallery to purchase the image.
Canterbury have emerged triumphant from the battle of the bottom-placed sides in the HRV Cup, successfully defending 185 against Central Districts in Nelson today.
With both sides languishing at the foot of the ladder after managing only one victory in their first five games, a win was almost essential for the cellar-dwellers to remain in the playoff picture.
And it was the visitors - who actually had a shorter travelling distance than the hosts to Saxton Oval - who secured the successful result, but only just.
After 20-year-old Canterbury captain Tom Latham won the toss and opted to bat, the Wizards' top order failed to get away to a flyer. A brace of scalps for both Martin Kain and Adam Milne reduced Canterbury to 73-5 in the 11th over, but that was the last wicket they lost.
Andrew Ellis and Brendon Diamanti instead blunted the bowling attack and set about building a match-winning partnership of 112 for the sixth wicket. Both men managed their maiden half centuries in Twenty20 cricket, with Ellis ending unbeaten on 55 from 34 balls and Diamanti smacking five sixes in a 33-ball 69.
In reply, CD began their search for the runs in style with Mathew Sinclair and Ben Smith getting away to a fast start, before a run out scuppered the Stags' chase.
With the score on 68 from just 6.4 overs Ronnie Hira managed a direct hit to catch Smith short of his ground, sending the opener packing for 39 from 21 balls and shifting the momentum in the match.
Sinclair fell soon after for 38, before Will Young and Kieran Noema-Barnett threatened to pull their side close. But, once the big-hitting Noema-Barnett fell in the 18th over, the total proved too much for Young and Carl Cachopa and CD fell five runs short.


text:
The Global Implementation Initiative will hold its 2013 Global Implementation Conference in Washington DC from August 19-21, 2013 at the Washington Hilton. The Conference, located just minutes away from our Guest House on foot, will provide the latest insights into the field of implementation science, and offer a variety of networking and educational opportunities for those in the field.
Planning to the attend the 2013 Global Implementation Conference and looking for a place to staying in DC? Consider our conveniently located Dupont Circle Bed and Breakfast, located just steps from the convention center, and about an 8-10 minute walk from the Dupont Circle Red Line Metro. We offer complimentary breakfast and WiFi for our guests in our lovely DC accommodations, and strive to provide your 'home away from home' during your stay. For easy walking directions from our DC lodging to the Washington Hilton, see the map below.
View Directions to Washington Hilton Hotel in a larger map
Jennifer, Innkeeper
American Guest House in Washington DC


text:
Michael Waltrip Racing acknowledged Monday that its crewmen overstepped the organization's expectations of professionalism when it attacked Jeff Gordon and fought with Gordon's team during Sunday's race at Phoenix International Raceway.
Gordon intentionally wrecked MRW driver Clint Bowyer after the two made contact on the track, igniting a garage-area brawl.
MWR officials pledged in a statement that it is committed to not letting such incidents happen again.
The statement was not an apology for the incident, which could lead to penalties for Gordon, Bowyer and some of the crewmen.
After Gordon drove his car to the garage, he was accosted by several crewmen from Bowyer's team. Pushing and shoving ensued—Gordon was pulled out of the scrum as it started and escorted to his hauler—and at least two crewmen were on the ground during the melee.
As of Monday afternoon, NASCAR had not announced penalties for either team.
Bowyer, whose car was damaged so badly he couldn't continue, saw his slim championship hopes disappear because of the wreck.
"The goal of Michael Waltrip Racing is to be a championship-level organization, both on and off the track," the MWR statement said. "The on-track incident which occurred during Sunday's NASCAR Sprint Cup race at Phoenix International Raceway was extremely disappointing and brought raw emotions of a long and hard championship battle to the surface.
"Though we generally cannot control certain actions on the track, the unfortunate reactions off the track Sunday did not live up to the professional standards in which Michael Waltrip Racing expects all of its representatives to live by. We commit to our sponsors, our manufacturer, our fans and NASCAR that we will do so in the future."


text:
The Better Business Bureau recognized 13 companies Tuesday for ethical behavior at its annual Torch Awards luncheon, but its awards drew a contrast between old and new ways of assessing business behavior.
The awards highlighted the growing gap between older institutions that recognize business performance and the less regulated world of online ratings. The BBB, a 91-year-old organization, is familiar to older consumers, but younger shoppers are more likely to search for companies online. In search engines like Yahoo, Google, and Bing, online ratings companies like Yelp or Google Shopping push BBB results to the bottom of a search results page, where they are less likely to be read. Yet both online results and the Torch awards are intended to accomplish the same goal: Identify good businesses for consumers.
"Consumers want to do business with ethical companies, and our Torch Awards is one way to identify companies that maintain a competitive advantage by adhering to BBB ethical standards," said Sheryl Bilbrey, San Diego BBB president and CEO.
The non-profit BBB named six companies winners for ethics, and named seven others finalists at its luncheon on Tuesday. Businesses entered themselves for the awards. Each one had to submit extensive documentation of high ethical practices, including portions of their employee handbook, customer feedback, and marketing materials. The companies also cannot have a grade worse than "B" with the Bureau itself. Grades are determined by customer complaints submitted to the organization, which they then investigate.
In contrast, online ratings companies rely on the almost entirely unfiltered, anonymous comments of consumers. Under most systems, customers assign a numerical grade to a company and then write out their satisfaction or dissatisfaction with the business.
Nowhere was the contrast between the two systems more evident than with J.W. Floor Covering, a floor installer based in Mira Mesa but with offices around the state.
The company has an A+ rating from the bureau, and it was the winner of a Torch Award on Tuesday among companies with 250 to 499 employees.
Online, the story changes. A Google search for J.W. Floor Covering turns up the company website first, followed by three separate Yelp results, followed by the BBB result. The Yelp results also show the star ratings for the company under each result. The company's San Diego location received an average of one star out of five , with five reviews, and it was excoriated in the comments for poor customer service.
Sometimes the results jibed: Pacific Safety Center, a non-profit that conducts workplace safety training, received 4 ½ stars on Yelp and won a Torch Award on Tuesday.
In addition to recognizing businesses, the BBB also awarded five scholarships to county high school students. The organization pored through 258 essays on about ethical business behavior.
1-4 employees
Winner : On-Site Tech Support , outsourced IT support for businesses, University City
5-10 employees
Winner : Dream Design Builders , Home remodeling, Rancho Bernardo
Finalist : Milholland Electric, Inc.
11-24 employees
Winner : Reilly Financial Advisors - Financial advice, La Mesa
Finalist: San Diego Law Firm
25-99 employees
Winner : Quality Controlled Manufacturing, Inc , precision machining, Santee
Finalists : Action Air Conditioning, Heating & Solar, Ideal Plumbing, Heating, Air & Electrical, ASI Heating and Air
100-249 employees
Coles Fine Flooring, Floor installation, San Diego
Finalists: Anderson Plumbing Heating and Air, Bill Howe Family of Companies
250-499 employees
Winner: JW Floor Covering , Floor installation, Mira Mesa.
Yelp Average: 1 star on five reviews
Winner : Pacific Safety Center , Workplace safety training, Mira Mesa
Torch Award Scholarships


text:
South of Mombasa, across Likoni Creek, lies a magnificent sweep of silver sand, sapphire sea and waving palms. The southerly part of Kenya's stunning Indian Ocean coastline, which runs 700 km between the Tanzanian and Somali borders, it is renowned for its silken white sandy beaches, coconut palms, sheltered lagoons, pellucid blue waters, remote islands, uncharted mangrove swamps and mysterious Arab and Swahili ruins, many of which date back to the 8th Century AD. Boasting an idyllic climate, which is cooled by the monsoon, the Swahili coast offers a daily average of 8 hours of sunshine, and the hot steamy climate is tempered by the monsoon winds: the south-easterly Kaskazi, which blows from April to October; and the north-easterly Kazi which blows from November to March.
The barrier reef Kenya's pristine and well-developed coral reef extends virtually without break from Shimoni in the south to Malindi in the north, some 230 Kms in total. The reef is broken only in a few places by river mouths and creeks; and of these the deepest and most sheltered safe channels through the reef are those that lie on either side of Mombasa Island.
The South Coast Beaches
Beaches extend from Mombasa to the Tanzanian border - but the best known is Diani Beach (25 kms south of Mombasa), which offers just about everything the visitor could wish for: restaurants, shops, golf course and night spots plus; the Colobus Trust, an area of indigenous forest that provides a sanctuary for the areas many colobus monkeys and the Kaya Kinondo, a cultural centre built around a sacred Kaya (grove) of the Digo people. The activities on offer include swimming, snorkelling, sea kayaking, diving, water sports, dhow trips, glass-bottom boat trips, nature trails, butterfly farms, places of historic interest, visits to the nearby Shimba Hills (a coastal national park with plentiful elephant) or to the world-famous Arabuko Sokoke Forest, one of the last of the rainforests.
The Wakuluzu Colobus Trust
Formed January 1997 to protect the Angolan black and white colobus (Colobus angolensis palliates ) whose numbers were severely threatened by the destruction of large areas of forest and the busy road traffic of the coastal strip, the Colobus Trust is based at Colobus Cottage, which also offers an information centre plus a nature trail and guided walk.
Location: 3.7km south of Diani. For opening times contact: Colobus Cottage tel +254 (0)127 3519 or email email@example.com
South of Diani
Funzi Island
A small island about 35km south of Diani, Funzi features mangrove-fringed shores, extensive areas of forest, crocodile spotting trips up the Ramisi River and dolphin tours around the bay.
Wasini Island
Wasini Island is just off the coast of the Shimoni Peninsula, and is totally undeveloped, unspoilt and untouched by civilisation, the perfect place to experience the Swahili culture. If offers Muslim ruins, coral gardens, wooded walks, snorkelling, dhow trips, limited accommodation and traditional Swahili cuisine.
The Shimoni Slave Caves
Shimoni means 'place of the hole' a reference to the 5 km of silted-up caves, which are thought to have been used for storing slaves prior to shipment to Zanzibar. Tours of the caves demonstrate the metal rings in the rocks to which the slaves are thought to have been shackled and the now silted-up passage, which once led to the slave ships.
The caves are open daily 8,30 to 10.30 am and 1.30 to 6.30 pm entry fees are payable.
Location: Shimoni is at the end of a small peninsula 76 km south of Likoni and not far from Tanzanian border.
Kisite Mpunguti Marine National Park
Considered by many to be one of the best marine parks in Kenya the 28sq km Kisite-Mpunguti Marine National Park lies to the south east of Wasini Island and offers excellent diving and snorkelling. The Kisite coral reefs, one of the most complex eco-systems on the planet, are around 3-4km long and include staghorn, brain, mushroom and pencil species. There are also 250 recorded species of fish including colourful butterfly, parrot, rockcod and angelfish as well as a broad selection of sea urchins, cowrie, starfish and crabs. Dolphin are also common as are large shoals of bonito and frigate mackerel. Nearby Shimoni is also home to many families of porpoise. Best time to dive and snorkel is between October and March; avoid June July and August because of rough seas silt and poor visibility.
The Park is open 6am to 6pm and entry is payable in Kenya Shillings or US dollars. Contact : The Warden, PO Box 55, Ukunda. Tel +254 (0)127 52027.


text:
A new dynamic take on the Tomb Raider star...
To insure your action figure collection, get in touch with our sponsor Collectibles Insurance.
For a great selection of video game action figures and collectibles, check out BigBadToyStore.com, ToyWiz.com, ToyDorks.com, and Sekaido.com.
For an amazing selection of original sculptures, statues, prints and DVDs be sure to check out ShiflettBrothers.com.
While Lara Croft is receiving a radical makeover for her next video game, Sideshow is sticking to her more traditional look for their upcoming Premium Format Figure. Pre-orders for this dynamic piece start Thursday, June 2nd.
The Exclusive Lara Croft Premium Format Figure, which will include a Fine Art Print by Adam Hughes, will be priced at $349.99, and have an Edition Size of 750 pieces worldwide. Additionally, a regular version, without the print will be available for Pre-Order and priced at $349.99. Both versions will be sold on a first come, first served basis, and will have the FLEXPay option available as a payment choice.


text:
Teacher Certification
Degrees are awarded by Southwestern University, while certification is awarded by the State of Texas. Therefore, a student may seek certification upon completion of an approved degree, the completion of a state-approved teacher certification program, and the receipt of a satisfactory score on the TExES examinations.
Teacher certification standards are established by the State Board for Educator Certification. Any change in these standards must be reflected in Southwestern's certification requirements; therefore, any modification in the state law affecting certification requirements takes precedence over statements provided here.
Students seeking certification major in Education or Music Education. Education majors certify for Elementary, Middle School, Secondary, or All Level. Music Education majors and students seeking certification in Generic Special Education, Art, Spanish, Health and Physical Education certify for All Level.
Students seeking elementary/middle school certification major in Education and choose either Elementary (early childhood (EC) –grade 6) or Middle School (grade 4-grade 8) level teacher certification. Students who major in Education and who are seeking the 4-8 certification must choose a content area from the following: language arts, math, science, math/science combination or social studies.
Students seeking secondary or all-level certification typically major in Education and in addition must complete at least 24 credit hours of study in a subject field (such as History, English, Mathematics, etc.). The exception to this is that Music Education students must major in Music Education rather than Education. Many Secondary and All Level students choose to complete enough additional subject credit hours (beyond the 24 hours) to receive a second major in their content area/teaching field. Specific information on courses required for elementary, intermediate, secondary and all-level certification programs is listed below.
In completing the requirements for their respective degree programs, students must meet the requirements necessary for Texas teacher certification as well as the requirements for the Southwestern degree. Exemption from a University graduation requirement may not satisfy state certification requirements.
Completion of a degree with teacher certification may require an extra semester of work. In fall of the senior year, placement in a field-based program will require students to return to Georgetown prior to the beginning of public school, which precedes the start of Southwestern University classes.
Existing certification programs include elementary/primary (EC-grade 6), elementary/intermediate (grades 4-8), secondary (grades 8-12) and all-level (art, health, music, physical education, Spanish, and generic special education). Students may obtain detailed descriptions of each certification program from the Education Department. Interested students are strongly encouraged to contact a member of the Education Department, even if they are assigned to another adviser. Doing so will allow them to receive current information on the new certification programs and guidance in selecting other courses which are aligned with state certification requirements.


text:
Fall JLU singles too...
For a great selection of superhero action figures and collectibles, check out fine sponsors BigBadToyStore.com, SuperHeroToys.com, BriansToys.com, ToyWiz.com, PastGenerationToys.com, SmallJoes.com, HobbyLinkJapan.com, and Sekaido.com.
For a great selection of pop culture t-shirts and apparel, check out TShirtGurus.com and 80sTees.com.
Mattel reveals today a first look at DC Universe Classics Wave 15. This series is coming late this summer, hitting Kmart first in late August/early September, then retailers everywhere in the fall.
Golden Pharaoh - Golden Pharaoh is armed with his Pyramid Power staff and rocks a transparent purple torso and collar.
Classic Starman - Traditional version of Starman is well equipped with his Cosmic Rod and a Stellar Energy Pistol.
Modern Starman - The updated version of Starman lands with his trusty Cosmic Rod and features contemporary translucent parts.
OMAC - Cyborg OMAC in his first outing as a DCUC action figure.
Martian Manhunter - Two versions will be released, standard figure and a hard-to-find chase version with Martian head and "weapon" hand.
Raven - Stunning and smart, the Fan's Choice winner comes to life as an action figure.
Sinestro Corps Batman - Commemorating his near-indoctrination into the dark side, our hero comes with a transparent Batarang ring construct.
Jemm The Son of Saturn gets ready to make his first-ever appearance as an action figure.
Collect-And-Connect Validus - Collect all 7 figures above to create this fearsome 9" Collect and Connect figure. Validus arrives with a crystal-clear head dome to reveal his heinously huge brain.
Mattel also provides a look at five JLU singles coming to a Target store near you later this year:
Future JLU Superman with Starro Spore - In a double dose of firsts, this release will mark the initial availability of an all-new figure, plus it includes fan-favorite Starro Spore as a never-before-offered accessory.
Barry Allan as The Flash with Lightning Bolt - First time offered.
Power Ring - Evil twins everywhere will rejoice when Power Ring joins their ranks for the first time as an action figure. Features a giant green hand construct.
Batman Beyond with Batarang - Available for the first time as a single.
Mr. Terrific - Also making his big debut as a single, the ever-present T-spheres have been completely redesigned.
Source: MattyCollector.com


text:
Topic: Xeloda (oral) Questions
So I am just starting my 2 of 6 cycles of oral xeloda. I take 1650mg twice a day for 14 days with a week off. I haven't had much in the way of nausea, not needing to take any meds. I haven't had any severe diarrhea, which is also good. I noticed that towards the end of my first cycle I got painful hand and feet. Not the red and cracking hands that some people get. I also have a lot of fatigue, much more with this than the gem/cis IV. Wondering if anybody has any tips to help with side effects. Thanks.


text:
Established in 1999, Incipio designs and manufactures cases, sleeves, and bags for use with smartphones, tablets, and laptops. Headquartered in Irvine, California, Incipio also has offices located in London, Hong Kong, and India. Incipio's team is composed of talented designers, engineers, and developers, globally recognized for their award-winning mobile device accessories. The company's goal is create functional and premium accessories that are sleek, comfortable, lightweight, and offer superior protection at an affordable price. With the ever-changing technologies in today's world, Incipio is keeping up by creating ingenious protective solutions for the mobile world.
No products match your selections. Try clearing your filters.


text:
The Krabby O'Mondays was a fast food restaurant once owned by the Blandy Franchising Company in the episode "Selling Out." Carl, who worked for Blandy, became the manager. It was discontinued one day because Howard Blandy and Mr. Krabs called a truce, and it was never seen again. The design is a parody of "T.G.I. Friday's" and other such establishments. This is a replica of the Krusty Krab.
When Mr. Krabs retired, Howard Blandy took over the restaurant. After Mr. Krabs saw how much he had changed the restaurant, Squidward being forced to be friendly (or get beaten by Carl's thug in Human Resources), synthetic patties made by machines instead of being made by hand and (much to his horror) an automated cash register. In a fit of rage, he destroys the computerized cash register and the restaurant equipment, and Carl called Howard Blandy. They made a truce and the customers got scared off by the fact that the patties were made by a substance made out of a gray sludge that was painted and shaped to look like Krabby Patties.
The franchise converted the old-fashioned Krusty Krab into a modern-looking factory. Automatic registers were used to handle money and were un-manned. There was a large TV with a sports channel. In the kitchen laid a conveyor belt used to disguise gray, sloppy material as food. In the same room, the sink was used to clean the dishes. Another room was built as an office for Human Resources.
|Howard Blandy and his associates
|Founders, proprietors
|Manager, supervisor
|SpongeBob SquarePants
|Fry Cook
|Squidward Tentacles
|Eugene H. Krabs
|Human Resources Guy
|Human Resources
The establishment seemed to express a "sincere" atmosphere to its customers but was revealed to be a very strict business. Employees would be forced to act friendly, or they would face Human Resources, which is a tough enforcer.
- "Sincere Service with a Smile!"
- The gray tar-like substance in the patties may be similar to Pink Slime, a real-life form of fake meat.
- It is unknown what was in the gray patties, but it could possibly be mechanically separated meat.
- Like the Kelpshake company, this restaurant and KelpShake stores are modern-based establishments. Both have an antagonistic behavior as they have strict policies and threatening security.
- It may be a parody of Applebees, as it has similar decorations to Applebees.
- Where Carl speaks with Squidward, he mentions human resources. This is a reference to real life human resources, though nearly every character in the series is a sea creature.


text:
Re: Unusual Cholangio Guy - Survivor Against the Odds
Who knows how I can add my photo to my signature? I promise to keep all impressive yoga photos out of it (for a while at least).
cholangiocarcinoma.org :: Cholangiocarcinoma Foundation Discussion Board
a resource for patients, friends, caregivers and loved ones.
You are not logged in. Please login or register.
|La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Join our new Mentoring Program
A new discussion board experience is coming this September!
After 10 years, we're upgrading our discussion board to a new modern system. The new forum will be easier to use, mobile-friendly and loaded with new features! We'll be taking all of the existing posts and users over to the new board, you won't have to do anything. If you have any questions, we've started a thread here to discuss.
Cholangiocarcinoma Foundation Discussion Board → General Discussion → Unusual Cholangio Guy - Survivor Against the Odds
Who knows how I can add my photo to my signature? I promise to keep all impressive yoga photos out of it (for a while at least).
Click on Profile in the green outline near the top of the page.
Click Avatar in the second green outline.
Upload photo file.
The maximum image size allowed is 60x60 pixels and 10,240 bytes (10 KB).
Who knows how I can add my photo to my signature? I promise to keep all impressive yoga photos out of it (for a while at least).
Thanks Eli
My 2 photos are 1.2 MB and 330 KB. Any idea on how to reduce them to acceptable size?
Hi Gavin,
I appreciate your liking my writing style and sense of humor; writing and humor are giving life depth of meaning and may even help save it. To be glum and shut-down would be further insult and likely deadly. Bad jokes seem somehow great in some other terms later on. Good jokes fade away more quickly having done their work at the time.
I have to admit the posts from the UK and related areas are extremely delightful. There is an appreciation of English language and other civilized things often absent here in the USA. For decades, I felt I belonged in Western Europe more than here. You should hear what our nutso pundits say about Western Europe! They decry it, you live it, and I love it. Hope to get there sooner than later.
PS Now I see why there are two pages; one follows the other. Nice to be growing again; here I thought my last growth spurt was at 16! Thanks for everyone for answering technical questions. I'll be sure to have more.
In Windows 7:
Right-click image file
Select Edit... to open Paint
Click Resize on the toolbar
Enter the desired size in pixels
Save as a new file
In Windows XP:
You will need image editing software. I like this one:
Picasa might work as well. I don't have it installed on this computer, so I can't check.
Mac... no idea. Not a Mac guy.
BTW, you can only use one image in your signature. If you want to share more than one, upload your images to a hosting server, such as Google Docs or Picasa Web Albums. Then put image links in your messages.
don't read, "And he's now in remission", or "He's fully recovered and playing hockey daily" or "He lost his battle and passed on two months ago."
Jeff, I just realized we didn't answer this query so I will try my best. We do have 3 Topics on our Home page where the Passing of someone can be posted. Honestly, I feel that after going through months to years of Caretaking that when a loved one passes the Caretaker is so spent that usually just a smaller notice takes place. So, many previous posts have been given on the patient that to go over and over the whole story just to give the message that their loved one has passed is very hard. We have many posts also stating how well others are doing. The biggest thing we have is HOPE and to belabor the Passing serves no purpose. We love words like surgery, chemo and trials as it means someone has been given HOPE. By the way we have a wonderful man, Bob who I believe is in his 14th year post surgery! It is also normal on our Board to see Caretakers withdraw for a while after traveling through this terrible journey. If you start reading some of the posts you will see we have many who update us on their marathons, like Maria in Sweden and most all do let us know how they are progressing or not.
Hi Liz
This is so ironic. I never encounter people of much substance on the Web and thought it was just stuffy, perfectionistic me. I don't use face book and disdain those glued to their screens all day. But this site has turned me around. I can barely cook dinner for want of seeing the next exciting post! How can such a good thing come from such a bad one? Sweet irony!
Mine was distal; I can't recall if that was a good or bad thing now that you bring that up. The 2 actual mets in the liver are worrisome. The dispute between experts is what I've come to expect around here. The having children thing does change how we approach this and there is a reason to stay around longer with growing kids. These days when I see a kid, I can't help think about how much time they have ahead. About this, there is the Temporal Forward Wall as I call it. Most of my life I thought of myself in the middle of time so to speak like I think of myself in the middle of space. Who enters a room and then clings to the wall on the right? We all kind of gravitate toward center. But now I feel like I'm in a time tunnel with the end of [this] time rather close up front, sort of like a windshield about to hit me on the nose. Kids never feel that way or think about the subject at all. We were all kids once.
Your coverage sounds great! I'm happy for you. If the MRI sees no mets, how do we know they are there? What is his CA 19-9?
To reply to the adage in green at bottom, I would offer: Some of us walk on water; I just plop in and start swimming.
To all: I am so inept with computers I have sort of lost my way around this site. I think I just posted something thrice asking how to post a facial photo. Sorry. So I don't have to scroll up and down like mad, I am copying the incoming messages to Word and then responding and then copying back over to the site. After the Whipple, I could not have found the right keys on the keyboard I was so scrambled.
Now, about the message from Randi earlier- There should be a room where we Whipplers meet, a condition all its own. Hope yours was OK (they can never be great). The dreams I had in the first week after? Wow. Name me a more invasive, destructive surgery. I have this diagram of it I got at Harvard Med. When I show it to someone, their eyes dance and spin and buzz they are so taken. It's actually fun to watch. Only for those with strong constitutions.
To Pam- thank you for your kind and sweet words. A distant friend was DX with brain cancer and began treatment. His wife says all he does is sleep. The docs are happy with his 'progress'. I'm confused. If he gets better, fine; if he stays in bed 100 years and then dies, what was good about this?
You know that scenario of: What if an asteroid were to hit Planet Earth in an hour or a day or 10 minutes, what would you do with the time you have left? We all live that anyway, but we ccer's really live it close up and personal. I'd do many of the things I do anyway but with a kind of full-out, nothing left to lose gusto, and that's what I do.
I guessed your daughter here is the cc and not you. That's a special condition all its own, a very tough one. It's devastating for parents to see their adult kids sick, goes against this feeling we are always their protectors and somehow should be doing more. If I die and meet god, believe me, I have plenty of questions. I don't need a written list; I'm thinking about them all the time.
Best to you,
Hi Lainy,
What a delightful post. It is truly a great group. A friend, a professional writing teacher and coach, says I AM a writer and a good one, but as one who never took a writing course, I don't call myself one, I just open the gates and try to be truthful and fearless. Sometimes it comes out surprisingly well. I wrote a few short stories mostly about my youth just to feel what it once felt like, and odd as it is, they are most enjoyed by writers! (those without bloated Hollywood egos, that is).
I cringe at the idea of a Whipple that needs redoing. My guy did those plus took rejected cases from Johns Hopkins, ones with things twisted round each other, etc. We all want top people helping us from dog walkers to accountants to caterers, but especially SURGEONS and most of all anyone doing a Whipple. Imagine a so-so Whipple. Ugh. Thanks for Teddy's full story where I get a sense of time- so helpful. 6 years is a good stretch and 78 is up there anyway. To die of something when old is inevitable; to have cc at 14 would be a real bummer. I see his golf as his meditation. Good for him. Realism balanced with optimism is exactly where I try to position myself. Email you? Here? Is there a separate address? Why do I often with computers feel like Grandpa struggling with a TV remote in 1959 only his grandkids could operate?
Best, Jeff
Jeff, you are doing fine on the computer! Let's see if I can do as well. If you go to user above and click and then go to the User sight and type in Lainy my user name my profile will appear and it will ask you if you want to go to my e mail.
Funny, you mentioned a Whipple gone bad, as Teddy had a Whipple that was aborted after 4 hours as the Surgeon needed to cut the head of the Pancreas and it had been destroyed by a leakage of dye from a test. So, he closed him up, sent him home for 3 weeks so the Pancreas could heal and then did the real deal with success and clean margins. We had been visiting our kids in Milwaukee and our 2 week visit turned in to 3 months. I think you said you flew home from Boston? Well Teddy had 2 external tubes in yet and we finally flew home to Phoenix. We were 45 minutes from PHX and both tubes blew out on the plane. What a mess! So there were 2 nurses on board who stripped him down and wrapped him in airplane blankets. I told them to call an ambulance and I would take him to the hospital to have tubes put back in. My daughter met us there and as Teddy came rolling through the doors on the gurney he said to her, "Did ya ever see the movie airplane?" Oh the stories we all can tell!
Hi Eli,
Your wife is the very first cc, Whipple, Extrahep, T3 so far! I thought I was alone. Not too many of us I bet. You are a hero in what you are doing for your wife. After the Whipple when I was weak, I could barely do or think anything. I was so diminished. My first shower took me 2.25 hours. It was a Manna, not a handstand, but a very minor point.
You sound very educated and thorough in your approach to your wife's situation. I am grateful I'm so much at an extreme and not in the thicket of decision-making forced upon you and your wife. It would be so hard to figure out what to do! You don't know if you've made a good choice before or after you make it. Throwing darts by contrast is great because you can see how well/poorly you did. Her being so fit really helps, but cc is so powerful that nothing can overcome it if it rears up to get us.
With a 13 year-old, as I wrote just a bit ago, it's different. Then, extension of time means a lot and I can see going thru a lot of agony to spend more time with a growing kid. Then, quantity does indeed more or less = quality.
I sure learned a lot from you about the Canadian medical system. Some good and some bad. I see why very rich Canadians are down here buying instant Whipples and so on. I have had MRI's, CATs, PETs, some with contrast, etc. It seems the PET with contrast is very valuable and I'm grateful that 12 minutes away from here is one place with all those machines and very nice people running them. Everything is good- except the price. One PET was billed at $13,900 and I'm still fighting my insurance company over it.
You are smart and I appreciate your technical advice. It's right on and easy to follow.
I will keep writing until I can't. This site is great.
Best regards to you and your wife,
Jeff, sorry to butt in here but...I had my own rare cancer and I was turned down for a PET and found there are places that do only PETs and they can run from 1,600.00 to 2,000. I was just going to make an appointment when my ONC went to bat for me and the Insurance company came through. Many times the ONC just has to fight a little and the Insurance will comply.
In our culture, we say, think and know so little about life, death, breathing, standing, sitting, walking, chewing, elimination, sex, thought, feeling, etc.- all the basics of life and things that matter. We know tons about what drug some idiot star is on or what shoes Miss So and So wore at the Moron Awards Show. It's all upside down. So-called 'primitive cultures' are the opposite, so who is really primitive? Here, progress looks more like lunacy.
Your words are invigorating and I thank you for them. Your husband is like many- it comes so quick, you barely have time to react. I'm no expert, but I believe many just die and never even know they had cc. Of those that find out, their doc calls in the family and they are told he has months to live and then he dies in weeks. Not many get early notice. Mine was one jellybean-shaped mass at 1.8 cm. (good to be under 2) at 2.3 cm. away from the pancreas (good to be over 2) on the outside of the common duct leaning into it. That's why I had fat malabsorption I mistook for food poisoning. The jellybean was resected by an expert who said that appeared to be all there was (the large vein and small nerve involvements came from subsequent pathology studies). I asked what if I were a rich guy travelling and in Bora Bora, Pago Pago and could take 45 or 60 days to get to him instead of when I did. He just shook his head. For me, it was I'm dead in 50 days or doomed to die soon without the Whipple right away.
Most of my life cancer was discovered at some point and took people down slowly. CC is a fast actor and often affords little time like your husband's experience. It's also rare and therefore unknown in large part. When Dr. Hong from Harvard and his team saw me, he spoke so well it was like a speech written by Winston Churchill. He said there's tons of info on bone, brain, breast cancers, lung and liver, everything but cc. He said there are so few cases and fewer still that last long that there's no real knowing what adjuvant treatment works or does what- it's all educated guessing. He wanted me on giant hits of gemcitabine and cis-platin with radio with folfiri at something like 80 sessions total. I was flabbergasted. Then I found it really was guessing and called him back. He conceded this is what he would do in my condition but that he could not say anything with the authority he could on almost everything else cancer. Cc is even more mysterious than it is deadly. I didn't want to spend my days, many or few, vomiting into a bucket at bedside and then finally dropping dead. I saw my father do that, and it sucked.
You know the old expression that cowboys die with their boots on? I'm going out in a handstand. My coffin will be upside down- that's the way I want it. CC may come back and kill my body (something has to eventually), but it won't kill my spirit.
I'm inhaling in the positives as fast as you can churn them out. Thanks,
Best, Jeff
I hope I wrote you back. I found a fragment with "Dear Peggy" and have no idea what it is.
Did I write you?
thanks. I'm probably tired. Can't make it work just yet.
Right-click image file
Select Edit... to open Paint
Click Resize on the toolbar
Enter the desired size in pixels
Save as a new file
Did all that but now the pic is a tiny square up in the corner of a huge white page and won't transfer over. I will try as if it doesn't work, I'm sure I can re-do it.
thanks. I'm probably tired. Can't make it work just yet.
Right-click image file
Select Edit... to open Paint
Click Resize on the toolbar
Enter the desired size in pixels
Save as a new file
Did all that but now the pic is a tiny square up in the corner of a huge white page and won't transfer over. I will try as if it doesn't work, I'm sure I can re-do it.
it's 34.2 KB and looks like an ant on a garage door. This can't be right. I'll try again tomorrow.
Why do these posts show as 3.20 and not 3.22, the real date which was 2 days later? I'm confused enough already.
I think you are looking at the date you registered for this site. The day you post is shown right above your post. Hope this helps.
To all:
This is part of an email exchange at my personal email address, but since it contains thoughts relevant to this string, I thought to include it with some edit-outs of personal info from the sender.
Well, I say shaking my head, it's nice that my very unconventional views are finally finding a welcome somewhere, albeit very late (if not too late) in life and only resulting from a medical event the equivalent of a firing squad. I'm very surprised I have such support for my approach and view anywhere and really seem to have it here. Oddly, I really haven't received much flak from anywhere; I guess those who don't like my way are staying mum or out of sight.
It surely is a bad cancer. No need to soften any words with me about anything. As for resources, I was lucky to have Dr. Carlos in Boston and his anesthesiologist; I am lucky to have my onco Dr. Hoffman here in LA. He understands my position and won't fight me on it. He told me (and those I always bring with me, my daughter and best friend as witnesses as I need to recall everything that was said where I might miss something were I alone) that his mom would do as I am and his dad would do everything to fight it with chemo, radio, surgery, etc. He is well-educated about all this, important as even the smartest on this don't know that much. On the other hand, Dr. Patty, radiation onco down the street, is insistent I undergo a series of blasts at her place. She is tops in her field and very sweet and the place is great. But it was she among 4 others who misidentified those liver blobs. Her machine rotates and would shield a lot of me from the positrons but would bake the upper part of my right kidney. I asked about the adrenal sitting atop that kidney and she said in all her practice she's never been asked about that at all. I ask what others don't. I don't just go along. I need that adrenal and her answers didn't assure me whatsoever. She keeps wanting me to "come down and chat" but really get pressured into her series of radiation. Best stats are they would only improve my chances 10% at best under the schema of I'm 60% dead anyway and this would reduce that to 50%. But I would be sick, tired, have a disabled kidney and baked adrenal, etc. and what if getting hit lowers my overall immunity so I'm now just weak enough where the cancer can jump over my now lowered fence like a Little Sheep of Death? I am hugely more willing to die (inevitable) than be sick (a choice for now). Now if this were breast cancer with tons of studies and facts and where adjuvant therapy increases one's chances around 70%, I'd be going for chemo, radio, whatever they said.
So I'm not really "fighting it" in a normal way of speaking. I take weird and unknown Chinese powders and pills, eat asparagus (heard about that one? It's the only cancer cure anyone needs! Look it up), avoid things that weaken me, don't let myself get too tired (I nap), stay busy and out of hospitals and lots else. I don't do as much or more than I do do. It's a ying-yang approach. Haven't got to Xi Gong yet but consider it important and it's on my list. The yoga at the Onco place I go in LA was far below my level and not my cup of tea; they offer Xi Gong there & I'll try theirs first.
Your husband's history with a lower tummy gone wrong is really long and must have been quite a trek for anyone involved. My old friend has had IBS and surgeries and all that stuff for 30 years and he was an nuclear submarine commander! How can you live underwater and have heavy responsibilities and your guts are on fire all the time? My hat's off to your husband and his kind, long-sufferers in a body region most just take for granted scratching our pizza-fed, pouchy bellies and never noticing much about much.
You are very sweet and it's nice to be understood as only we in the cc club can understand each other.
Thanks for writing
Pam- You're right about the date. Thanks for that info. Jeff
Good-Day, Jeff. First of all I have to LOVE your ONC as my maiden name was Hoffman! To chemo or not to chemo is probably our biggest debate on this site. After Teddy's Whipple we saw 4 different Docs (Oncs and Radmen) and all 4 said no to chemo. He had clear margins and they felt the chemo was just not going to do anything for him, but I am also going back 6 years ago. When we were given the final prognosis June of 2010 they suggested Palliative chemo and Teddy asked how much time it would buy him and when told about a month he opted for quality time.
It is such a personal decision and there is no right or wrong as we really don't have any answers. OMGOSH! I love asparagus! Especially roasted.
Hi Lainy
When I send, there's a sort of new page with little on it but what I sent and what I'm responding to. I like old-fashioned books where every page and tome is tangible and visible and I can hardly get lost. The multi-screen world is flummoxing to me. I recall when electronic devices had buttons where any button did just one thing. Now there are devices with 1000000 commands and three buttons. You hold down #1 (but not too hard), tap #2 while singing to #3 (and better be on key) and then…it drives me crazy.
I wanted to go home sooner but realized entering a pressurized container (airplane) might open the wound. Then what? They won't turn the plane around. I didn't want anyone fiddling with Dr. Carlos' brilliant work. So I stayed until all tubes were out and he cleared me for air travel. As for Teddy's story- yikes! That's exactly what I wanted to avoid. What if there were no nurses? What if the plane over or under pressurized?
By the way, after the Whipple for some while I smelled of pancreas (I think that's what the odor was) and I hated it. It permeated everything. It is so repellant, how do surgeons take it? My wound stunk, my breath, my belches, my skin- it seemed to be everywhere. I was so glad when it went away. Lesson #1 in med school my godson the great doc said was, "Don't f**k with the pancreas" meaning don't even touch it or get near it. Whipple guys (and my guy in particular) cut it, carve it, burn it, and know what they are doing. I sure respect their work, but had I become a doctor (which I once wanted to do), I was headed for dermatology, everything out in the open, visible, and except for melanoma and a few other baddies, hardly ever deadly.
Hi Lainy
Dr. Patty, while unrelenting in wanting to nuke me, spent hours on the phone talking to a pimple-faced teen at the insurance company to get scan approvals. This seems a horrible misuse of her skills. She's a doctor not a negotiator fer Chrissakes! Still, that one sort of full body scan was $13.9K and made my eyes fall out when I saw it on the bill.
Hi Lainy
Well, that's a good word for Hoffman's.
As for chemo, my dad had small cell epithelial bronchogenic carcinoma in 1973. He took 3 courses of methotrexate which wiped him out. Turns out survival is 6 months WITH OR WITHOUT TREATMENT more or less, so why the hell treat? My second stepdad Don was about to go on a cruise to Alaska with my mom and the day before some imaging showed something in his lung. A verbally aggressive surgeon convinced him to go under the knife and then follow up with chemo. First, I think you don't resect lung tumors often as that breaks the protective layering of things. He stayed alive but very ill until death. In retrospect all agree he should have boarded the boat, done the 6 weeks travelling and feeling good, then once home treated for recovery, cure, palliation or whatever. But what he did do was get cut on day one and then was miserable every day after. Only the medical community can't find a problem with this.
Today chemo is much lighter doses over more sessions and better, but I'm still deeply mistrustful. Docs tend to focus on the tumor and lose sight of the person. I don't want to live a tumor-centered life, I want to live a me-centered one with the human I am in the bulls-eye, not off to the side. Getting a straight or consistent answer about outcomes and side-effects can be near impossible, deepening my mistrust. In math, 2+2=4 all over the world, commie or capitalist, black or white, tall or short, etc. But other things are open to who said it, what they are getting out of it, who may be offended or pleased by it and lots of other polluting and confounding factors. To chemo or not is often very hard to decide and feel a good, solid decision was made. It should be much, much better than that.
Check out http://physicianswholisten.blogspot.com … ancer.html for this guy's argument that asparagus is THE answer. I find it rather convincing as it can't hurt and tastes good; who can say that about methotrexate?
The information expressed is not medical advice. The discussion boards are not intended to replace the services of a trained health professional or to be a substitute for the medical advice of physicians or other healthcare providers. Read the full disclaimer.


text:
The Inland Empire Chapter of the Barbershop Harmony Society will offer singing valentines on three days in February including Valentine's Day.
Arrangements can be made to deliver to a loved one a red rose and card together with two songs by chapter quartets on Feb. 10, 13 and 14.
The cost is $50, though a more extensive delivery can be arranged for an additional cost.
To make a reservation: Ed Tolman, 909-573-2125 or email firstname.lastname@example.com or Dennis Shearer at 909-982-2047.
Information: www.welovetosing.com