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- Folling disease
- Oligophrenia phenylpyruvica
- PAH deficiency
- Phenylalanine hydroxylase deficiency
News & Events
On this page
ORDR Co-Sponsored Conferences
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015
Location: Building 31, 6C, Room 6, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
American Society of Gene & Cell Therapy (ASGCT) 18th Annual Meeting, Wednesday, May 13, 2015 - Saturday, May 16, 2015
Location: New Orleans, LA
Description: From our plenary lectures, this year to be given by Drs. Steven Rosenberg and Anthony Atala, to our 19 scientific symposia featuring invited speakers from across our discipline, to our nightly abstract poster receptions, where the majority of the over 700 abstracts submitted to the Annual Meeting are presented, the ASGCT Annual Meeting is certain to be the premiere scientific meeting in our field.
NPKUA's 2014 National Conference: Making PKU History, Thursday, July 10, 2014 - Sunday, July 13, 2014
Location: Hilton Salt Lake City Center, Salt Lake City, UT
Description: Anticipated goals and use of results:. 1) To present and evaluate the latest medical advances and treatment options in PKU, including the NIH and ARHQ recent efforts in evaluating PKU gaps in treatment. 2) To offer a scientific platform for discussion between PKU researchers from around the national and the world, to share findings and interact during the Scientific Exchange. 3) To education clinical practitioners as well as affected individuals and their families. 4) To further opportunities for junior investigators and researchers to interact and develop their talents and to recruit young, creative individuals to the field of inherited metabolic diseases, especially PKU. 5) To create an atmosphere of support and networking between families and individuals with PKU across the nation and around the world. Acting on the results of evaluations, the Scientific Advisory Board will plan future meetings and share the result son the NPKUA website
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
Phenylketonuria Scientific Review Conference: State of the Science and Future Research Needs , Wednesday, February 22, 2012 - Thursday, February 23, 2012
Location: NIH Natcher Conference Center, Bethesda, MD
Description: Together, the PKU Scientific Conference and the Evidence-based Practice Center report will provide evidence on important issues, recommend future research, and provide guidance to patients, their families, and health care professionals.
Newborn Screening in the Genomic Era: Setting a Research Agenda, Monday, December 13, 2010 - Tuesday, December 14, 2010
Location: Rockville, MD
Description: This meeting allowed leaders in the fields of genomics and newborn screening to learn from each other and together explore new ways to advance research on new genomic technologies, potential health applications for newborn screening and beyond, and related ELSI issues.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
- Folling disease
- Oligophrenia phenylpyruvica
- PAH deficiency
- Phenylalanine hydroxylase deficiency


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Monthly Archives: October 2011
Switch Witch, Take It Away.
In years past, I haven't realized how much I hate candy… I mean, what it does to my son. Now that he's 3,View full post »
Look! We Took Her Out In Public And Documented It!
Leyna was born in the middle of winter; and while it was balmy, nearly warm the day we brought her home, within weeks, we wereView full post »
Kendall Is Ready For Game 7! #WorldSeries
I planned to write something sweet and/or witty here, but I'm still trying to recover from the HEART ATTACK that game gave me. AND IView full post »
Because Sometimes Kids Like to Sleep in Dad's Armpit
The latest addition to the Mommy Truths series (which I've been having so much fun with lately) is not a "mommy" truth atView full post »
Top 10 New Mom Essentials
Okay, it's been nearly a year since I had my 2nd baby, and I'm certainly not a "new mom" anymore, but I'veView full post »
You Can't Touch This
html .ra1-pw-popup,html .ra1-pw-popup a{ text-transform: noneView full post »
In A Word, Screwed.
These pictures are accompanied by the sound of my productivity plummeting. Because I can't get anything doneView full post »
That Time I Went To A Legend of Zelda Symphony And Forgot My Pointy Ears
Somewhere along the way on this blogging journey, someone at Nintendo thought I might make a good brand ambassador. I honestly don'tView full post »
You Might Be The 2nd Baby
If none of your toys have working batteries, you might be the 2nd baby. If you wear onesies that aren't new, but "cleanView full post »
A House Divided… And United
Kendall's really taken to the game of baseball this year. I think this can, largely, be attributed to all the softball gamesView full post »
Inner Smug 24 Year Old Weeps While Toddler Mayhem Ensues
I saw this ad come across my Facebook feed this morning, and it couldn't have been at a more appropriate time. Remember how I toldView full post »
Who Has Time To Wash Off a Pacifier With 2 Kids?
html .ra1-pw-popup,html .ra1-pw-popup a{ text-transform: noneView full post »
Ruffle Up A Hoodie
Just a quick post to show off this jacket I made for Leyna last week. And by "made" I mean I transformed it from a basic grayView full post »
Notes On Parenthood and Time
The moment you become a parent, time begins to whip by, increasing in speed with every passing day. The moment your baby starts screamingView full post »
There's Something About a Great Hand-Me-Down
There's something about unpacking them from the boxes of all the clothes special enough… clean enough to save. There'sView full post »
What Really Happens At Naptime
html .ra1-pw-popup,html .ra1-pw-popup a{ text-transform: noneView full post »
Because Nothing Says Welcome Back To Fertility Like Toilet Paper In Your Undies
People, this is your warning. This post is all about menstruation, in gory, graphic detail. Feel free to click away now… we'llView full post »
We Have Each Other, It's Enough, And I Wouldn't Change A Thing
5 years ago, I imagined we'd escape to a tropical island, or maybe Italy… or Greece, anywhere but the 'burbs of DallasView full post »
Because I'm In The Mood To Reminisce- Wedding Pictures
One of these days I'll print a wedding album. I'll pull it out every year on our wedding anniversary, and make my children sitView full post »
How I Met Your Father
I never thought I'd meet my future husband in a grocery store. I certainly never thought I'd meet him at a time when I had noView full post »
Poop Immunity
html .ra1-pw-popup,html .ra1-pw-popup a{ text-transform: noneView full post »
Strong Start Day- Supporting Postpartum Progress
"Only 15% of all women with perinatal mood and anxiety disorders ever receive professional treatment. This meansView full post »
Let's Get Ready to Party! #FuzziBunzElite
Today's the big day! I'm going to be on Twitter tonight (@BabyRabies), along with @FuzziBunz andView full post »
The Real Reason I Wear Workout Clothes To School Drop Off
html .ra1-pw-popup,html .ra1-pw-popup a{ text-transform: noneView full post »
Tonight, He Asked To Move Out For The First Time
Let it be known, tonight, at the tender age of 3 1/2ish years old, Kendall asked to move out of his parents' house for the first timeView full post »

subset: commoncrawl


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Black Diamond
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Compact, powerful and fully featured, the Gizmo Headlamp packs 60 lumens of lighting into a size normally reserved for emergency use.
* This product does not qualify for shipping to all countries.
- Two SinglePower LEDs offer compact, proximity lighting at 60 lumens (max. setting)
- Ultra-compact, batteries-in-the-front design uses two AAA batteries
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- Protected against splashing or sprayed water at any angle (IPX 4)
Gender: Unisex
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Review ProductId: 28283


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Tesla fires probed by US safety agency; investigation could lead to a recall of 13,000 cars
DETROIT - U.S. safety regulators are investigating fires in Tesla Model S electric cars.
The National Highway Traffic Administration says fires broke out in two of the cars' batteries after the undercarriage hit road debris. The debris damaged the batteries and caused a thermal reaction and fires. No one was hurt in the fires.
The probe affects more than 13,000 cars sold in the U.S. The agency says wants to examine risks from the undercarriage getting hit.
Tesla's batteries are located beneath the passenger compartment and protected by a quarter-inch-thick metal shield.
Tesla says it asked the government to investigate even though its cars catch fire at a far lower rate than gas-powered vehicles.
The investigation could lead to a recall, but no decision has been made.
Watch a video of a Tesla car fire below - mobile users: http://bit.ly/1bMfEVW (Warning: some graphic language):


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- Northern New York Newspapers
- Watertown
- Ogdensburg
- Massena-Potsdam
- Lowville
- Carthage
- Malone
- NNY Business
- NNY Living
- NNY Ads
The sale of the Newton Falls paper mill as an intact operation has failed and the assets will be liquidated in the latest turn of events surrounding the plant.
Scotia Investments Vice President Robert G. Patzelt wrote in an email that the special bid received at the end of an auction Thursday for the entirety of the mills equipment was terminated during finalization of the details.
The owners are disappointed with this development as they put tremendous time and effort into selling the entire mill which was seen to be in the best interest of all the stakeholders and especially the mill and the community, Mr. Patzelt wrote. Ideally, we wanted the mill to be sold as a going concern, or, in its current state of being ready to be reopened by another party.
Scotia will proceed with the disposition of the mills assets in an orderly manner, he wrote.
We have entered discussions with the successful bidders who participated in the auction last Thursday. It is our hope that as many as possible will purchase the assets bid upon, Mr. Patzelt wrote. All other assets will be sold to interested parties in due course.
Scotia Investments, Halifax, Nova Scotia, the parent company of Newton Falls Fine Paper, operated the mill from 2007 to 2010. Last summer, the owners changed their focus from finding an equity partner to restart the mill to one of finding a buyer.
For the past 27 months, the mill and its machinery has been preserved in a state of readiness and a core team of ten people has been employed on site managing the process, conducting tours with interested parties and ensuring the mill and site is secure, Mr. Patzelt wrote. Since December 2010, Scotia Newton Inc. has spent more than $10 million on Newton Falls Fine Paper operating costs plus additional sums on capital upgrades and debt service.
In addition, during the 27 months Scotia Newton has vigorously pursued any and all potential operators for the mill. This search was conducted on a global basis by a highly qualified liquidation firm, which undertook an intensive marketing program targeted at potential buyers.
In February,Scotia scheduled a liquidation auction. which took place Thursday in Syracuse.
At the conclusion of the auction during which the mills equipment and inventory were sold piecemeal auctioneer Continental Plants Group announced that a single bid of $2.1 million 10 percent higher than the total of the individual bids received during the day would take precedence and that the plant had the chance to reopen.
That was the latest deal that fell through, according to Mr. Patzelt.
He did not comment on whether Scotia had made the bid itself because it was dissatisfied with the prices it had received.
The owners of Scotia Newton Inc. are grateful to government and Industrial Development Agency partners, former employees and community members for their support; we have tried to find the best possible solution for the mill and for the community of Newton Falls, Mr. Patzelt wrote. Unfortunately, and after much effort and continued investment in trying to find a solution, we have concluded that we simply cannot continue on this unsustainable path.
Despite the announcement, IDA Executive Director Patrick J. Kelly said he was open to continued talks with Scotia.
We continue to follow the situation. Things seem to be happening fairly quickly and were still not sure what the situation is, Mr. Kelly said. Until we determine what role or ability there is for the IDA to assist, were going to wait and see.
Town of Fine Supervisor Mark C. Hall, a member of the IDA who attended part of the auction, said the news was disappointing.
Theres too many unanswered questions, he said. Its an emotional roller coaster thats really unfair. Everythings affected and we need jobs.
St. Lawrence County Legislator Frederick C. Morrill, D-DeKalb Junction, who also attended part of the auction, said the latest twist to the Newton Falls paper mill story was distressing.
Its unfortunate if it doesnt stay an operating concern, he said.
If the mills equipment is sold, the plant should not be abandoned, Mr. Morrill said.
Theyve got to clean up. We cant end up with another Jones and Laughlin, he said, referring to a 54-acre polluted industrial site in the Adirondack Park.
The state Department of Environmental Conservation has started to weigh in.
In a letter to the company, the DEC wrote earlier this year that when equipment is dismantled and removed, all fluids had to be properly collected and disposed of.
The plants waste water treatment plant also requires a closure plan, DEC spokeswoman Lori Severino wrote in an email.
Since Scotia took ownership, the mill has been run and maintained in environmental compliance, Mr. Patzelt wrote.
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On a recent day in the Rockaways, a neighborhood in Queens, N.Y., hazmat-suited volunteers far outnumber anyone else on the streets. They are "mucking and gutting" -- stripping homes to the studs to remove mold. Many residents are concerned about the health effects of mold exposure, according to community organizer Peter Corless. Mycologist Joan Bennett has been sampling fungi in homes damaged by Sandy to determine which species are present.


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|UPDATE: Beech Mountain Parkway Open After Fatality
|Written by Steve Frank
|Tuesday, 24 July 2012 10:14
Traffic on Beech Mountain Parkway is flowing as wreckage from a fatal traffic accident has been cleared. It was a truck wreck that has reportedly claimed one life. The wreck occurred at about 10:20 this morning at the intersection of the Beech Mountain Parkway
and Tumbling Brook Drive, Avery authorities saying that one was pronounced dead on the scene, but no other injuries have been reported. The wreck reportedly involved several vehicles, but a car carrier involved in the crash may account for much of that. There was also a power outage in the area, but it has been resolved and it was not immediately clear as to whether the wreck caused the outage. Avery authorities say it will be at later in the afternoon before the Beech Parkway can be fully reopened, and they asked for patience of drivers needing to get to or from Beech Mountain on the Banner Elk side as other routes require a long detour.
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LC Weekly
Parole chiave
General view of the floats and dolls lying in a large parking lot in... Foto di attualitàArte, Cultura e Spettacolo,Bambola,Brasile,Carnevale,Composizione orizzontale,Festività pubblica,Figura intera,Parcheggiare,Sambodromo,Sdraiato,Stadio,Veduta d'insiemePhotographer Cris Faga/CONCollection: LatinContent Editorial 2013 Cris FagaSAO PAULO, BRAZIL – FEBRUARY 19: General view of the floats and dolls lying in a large parking lot in front of the Sambadrome on February 19, 2013 in Sao Paulo, Brazil. Many floats are recycled, donated to samba schools or sold. During this transition of dismantling, recycling and donation that lasts on average 15 days after the end of the carnival, the parking lot with cars and allegories becomes a great samba cemetery. (Photo by Cris Faga/LatinContent/Getty Images)


text: Well, if I knew HTML commands I could help out. I know what you mean though, you need to tell the web server what to do then. Just like if you telnet into you mail server (smtp is port 25, POP3 is 110 IIRC BTW) ou need to tell the POP/IMAP server what to do (retrieve a message, mark a message as new/old, delete message...).


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Dexmedetomidine in Patients After Intracranial Surgery
- Full Text View
- Tabular View
- No Study Results Posted
- Disclaimer
- How to Read a Study Record
Dexmedetomidine is a highly selective a2-adrenoreceptor agonist that produces dose-dependent sedation and analgesia without respiratory depression. Dexmedetomidine has been used in critically ill medical, surgical, and pediatric patients. No study has been designed specifically to evaluate dexmedetomidine uses in the neurocritical care population. The primary objective is to evaluate the safety and efficacy of dexmedetomidine for prophylactic analgesia and sedation in patients after intracranial surgery.
Central Nervous System Diseases
Drug: Dexmedetomidine
Drug: Normal saline
Phase 4
|Study Type:
|Study Design:
|Allocation: Randomized
Endpoint Classification: Safety/Efficacy Study
Intervention Model: Parallel Assignment
Masking: Double Blind (Subject, Caregiver, Investigator, Outcomes Assessor)
Primary Purpose: Treatment
|Official Title:
|Use of Dexmedetomidine for Prophylactic Analgesia and Sedation in Patients After Intracranial Surgery (Prophylactic Analgesia and Sedation Trial, PASTrial)
- Mean percentage of hours of optimal sedation. [ Time Frame: 24 hours postoperative ] [ Designated as safety issue: No ]Optimal sedation is defined as SAS score 4.
- Percentage of patients with agitation and receiving additional sedatives. [ Time Frame: During the first 24 hours postoperatively ] [ Designated as safety issue: No ]Agitation is defined as SAS above 4. Patients are given midazolam as agitation.
- Percentage of patients with adverse events. [ Time Frame: During the first 24 hours postoperatively ] [ Designated as safety issue: Yes ]Adverse events include hypotension, bradycardia, airway obstruction, apnea, and consciousness disorders
|Study Start Date:
|October 2011
|Study Completion Date:
|February 2013
|Primary Completion Date:
|December 2012 (Final data collection date for primary outcome measure)
|Assigned Interventions
|Experimental: Dexmedetomidine group
Drug: Dexmedetomidine
Intravenous infusion at rate of 0.4μg/kg/h, during the first 24 hours postoperatively
|Placebo Comparator: Placebo group
Drug: Normal saline
as placebo
Detailed Description:
The PASTrial is a non-commercial, multi-center, randomized, placebo-controlled, double blinded clinical trial. The study compares dexmedetomidine versus normal saline (placebo) in patients after intracranial surgery with delayed extubation. In dexmedetomidine group, infusion (0.4μg/kg/h) is started when patients are admitted to neuro-intensive care unit for postoperative recovery. In control group, patients receive normal saline infusion at the same rate and volume in dexmedetomidine group. The patient's level of sedation is assessed by Sedation-Agitation Scale (SAS) per hour. Midazolam is administered in 0.3-0.5 mg bolus or continuous infusion as SAS above 4. The study is designed primarily to compare the percentage of patients with agitation and requiring midazolam infusion in the 2 study arms.
|Ages Eligible for Study:
|18 Years and older
|Genders Eligible for Study:
|Accepts Healthy Volunteers:
Inclusion Criteria:
- Adult patients after intracranial surgery with delayed extubation
Exclusion Criteria:
- emergency operation
- brain stem operation
- preoperative consciousness disorders or epilepsy
- bradycardia, hypotension, acute myocardial infarction, second- or third degree heart block, or need continuous infusions of vasopressor before the start of study drug infusion
- patients enrolled in another trial
Please refer to this study by its ClinicalTrials.gov identifier: NCT01445639
|China, Beijing
|Neuro-ICU, Beijing Tiantan Hospital, Capital Medical University
|Beijing, Beijing, China, 100050
|Study Chair:
|Jian-Xin Zhou, MD
|Neuro-ICU, Beijing Tiantan Hospital, Capital Medical University
No publications provided
|Responsible Party:
|Jian-Xin Zhou, Professor, Capital Medical University
|ClinicalTrials.gov Identifier:
|NCT01445639 History of Changes
|Other Study ID Numbers:
|Study First Received:
|September 30, 2011
|Last Updated:
|January 25, 2014
|Health Authority:
|China: Ministry of Health
Keywords provided by Capital Medical University:
postoperative care
Additional relevant MeSH terms:
Central Nervous System Diseases
Nervous System Diseases
Adrenergic Agents
Adrenergic Agonists
Adrenergic alpha-2 Receptor Agonists
Adrenergic alpha-Agonists
Analgesics, Non-Narcotic
Central Nervous System Agents
Central Nervous System Depressants
Hypnotics and Sedatives
Molecular Mechanisms of Pharmacological Action
Neurotransmitter Agents
Peripheral Nervous System Agents
Pharmacologic Actions
Physiological Effects of Drugs
Sensory System Agents
Therapeutic Uses
ClinicalTrials.gov processed this record on October 09, 2015


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TEAM USA Olympic Rings Key Fob
$19.95$9.97(You save $9.98)50% off
You and your keys stay secure, and patriotic, with the Team USA US Flag Key Fob. The red and blue key chain is made with about 6 feet of military grade paracord with an attached 1-inch ring. The stainless steel tag features the US flag and the Olympic rings so its clear youre ready to cheer us through the Olympics.
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Jordan 2011 © J.B. Russell
Patricia Kahn, MSF-USA's medical editor, recently visited MSF's surgical program in Amman, Jordan, which treats patients from throughout the Middle East.
Patients in the Amman program are civilians wounded by bombs, explosions, or gunshots in conflicts across the region. They have severe, complicated injuries that were not treated right away, or couldn't be treated properly in their home country. Injuries such as bones that aren't just broken, but shattered. Burns over much of the body. Many also have life-threatening bone infections, often with antibiotic-resistant bacteria.
This is a very neglected population, people who would otherwise never recover properly. Treating injuries like these often requires many surgeries over a long period of time, with intensive physiotherapy in between.
The program started in 2004 at the height of the violence in Iraq, when the security situation forced MSF and other NGO's out of Iraq. Rather than leave the region, MSF looked towards Iraq's neighbor, Jordan, which is politically stable and has an excellent medical infrastructure. We set up a special unit within the Red Crescent hospital in Amman, and it became a surgical referral hospital for Iraqi civilian victims of war. Patients were referred through a network of doctors in Iraq. Over time this network expanded, both inside Iraq and in surrounding countries. Patients have come from Yemen, Libya, Gaza, and now Syria. (Editor's note: up to 50 Syrian patients were being admitted each month over the summer).
When these doctors see a patient who might benefit from treatment in Amman, they send a dossier—examination notes, medical records, X-rays, and, increasingly, video—to the Amman team, which meets weekly to screen prospective patients. The team is looking for people with very little mobility, or very little use of the injured area, and they choose those they think can regain basic functionality with the proper assistance. After suitable patients are identified, it can still take several months to get the visas and make the travel arrangements to bring the person to Amman.
The program does a lot of maxillofacial surgeries for people with severe injuries and disfigurement of the face (which is why there are dentists in the networks of referring doctors). For patients with injured arms or legs, the team focuses on reconstructing limbs whenever possible, trying to avoid amputation. Many patients have a very hard time accepting the idea of amputation, especially if they've already lived with their injury for a long time. Also, reconstruction can be better at restoring certain types of mobility that are part of daily life for many people here; for example, kneeling to pray is almost impossible with a prosthetic leg. So is using an Eastern-style squat toilet. Being able to do these things independently is a basic part of living an independent life.
The team does some amazing surgeries, including bone transplants, to try to preserve limbs and get people able to function. But before ruling out amputation, the team has to make sure they can effectively treat any serious infections. About half the patients arrive with a chronic bone infection. Often that's because their injuries are months or years old and weren't treated promptly or optimally. Some patients had multiple surgeries in local hospitals where strict sterility measures couldn't be practiced. Some had inadequate antibiotic treatment. Many of these infections are already resistant to several antibiotics. Even if they haven't spread too far, patients may still need months of intensive treatment with a combination of antibiotics. The resistance to antibiotics was the main focus of my trip, and our office in New York also hosts a specialist who is working on this complex situation as well.
Between surgeries, the patients stay in a hotel that's part residence, part rehabilitation center. That's where they get physiotherapy—a crucial part of recovery. So is psychosocial care, which is given both at the hospital bedside and the hotel. There are quite a few children among the patients as well, and there's a small school at the hotel.
There are patients from all over the Middle East; the Amman program is a new kind of community for them. This is another unique element of this program, and something MSF is acutely aware of. People are far from home, so the program is more than just a hospital for them. For the duration of treatment, it's their world. We're aiming to help them return home eventually with the ability to function better in their world.


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Enrollment at Elizabethtown Independent Schools is up this year, and is sitting at one of the largest totals the district has seen recently, said Nate Huggins, assistant superintendent for student and district support services.
The mid-week total for the district, not including preschool students, is 2,413, which is the largest the district has seen in recent years, Huggins said.
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FLORIDA AT ISLANDERS, 2:05 pm; Fritz waivedTrevor in, Silli out…If I had a rumors blog
UPDATED 1:55 pm – The Mitchell Fritz experiment appears to be over. The Islanders have placed the 6-8 enforcer on waivers with the intention of sending him to Bridgeport when he clears.
Trent Hunter out with general body soreness, aka general BS. I think Teddy and I were the first to make that one up!
10:25 am – As they say, injuries lead to opportunities. Are you sitting down? We'll start with the good stuff and work our way down.
Trevor Smith will make his NHL debut today when the Islanders host the Panthers at 2:05 at the NVMC.
Yann Danis recalled from Bridgeport on an emergency basis. No word from the Islanders who Danis is sitting in for today, although our money is on Rick DiPietro.
Mike Sillinger has been placed on IR. What makes this extra-sad is this time it's a hip injury.
If Trent Hunter can't go (a likely scenario), expect Jon Sim in his place. You can probably also count on Sean Bergenheim's release from the doghouse and Mitch Fritz sitting this one out.
Who knows what lies ahead for Point Blank beyond this season, but one thing's for sure: I should have started a trade rumors blog.
And if I had a trade rumors blog, you could be sure it would be loaded with Islanders trade rumors. Why? Because the franchise may be, ya know, struggling, but the intensity of Islanders fans on the information superhighway is extraordinary. All you have to do is look at the Visit numbers on this little jeans-and-laptop operation to understand the ferocity of fans of the Orange and Blue.
If I had a trade rumors blog, I'd drudge up some Islanders crap at least once a week. I'd talk about the Islanders getting Cam Barker plus sweeteners for hipster Mike Comrie. (Can't believe Snow didn't push for the other Toews).
Then I'd follow it up with a beaut about the Los Angeles Kings trading Dustin Brown to the Islanders. The Islanders fans who still believed my creative writing would freak and link my story all over the place. The Kings fans might wonder why Dean Lombardi would trade their young captain, but it's all in good fun!
And for the holiday hat trick, I will pound home the rumor of the Islanders making the best offer to obtain Marian Gaborik. Oh man, the buzz will be off the charts.
Okay, you get my point. Here's the deal, friends. I spoke yesterday with impeccable front office sources in Uniondale and in Minnesota. The Islanders are not the front-runners to acquire Marian Gaborik.
How do I know this? Because both sources made it blunty clear there hasn't been a single discussion between Garth Snow and Doug Risebrough about Gaborik since an initial, brief fact-finding chat. The Islanders are not even a little bit interested in Gaborik at his and the Wild's pricetag, and the world-class sniper's injury history. The Wild are realistic enough to know the Islanders are not parting with Kyle Okposo, plus, plus. There is no offer from the Islanders. There never was an offer.
Just about everything over there is all fiction, folks. To some, it's very entertaining stuff. Enjoy it, but I'll ask one last time: please spare me.
As the Islanders get ready to face Caber and the Florida Panthers in today's matinee, and my kids get pumped to see all the Marvel Comics dudes, if there's any news on goalers, Trent Hunter or any other roster moves, I'll drop it in this space. Enjoy the game, and have fun and be safe tonight.


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NORTH TONAWANDA, NY -- An EMT who spent time helping in New York City after the 9/11 attacks is sharing his story through art.
"Ground Zero" a sculpture display by Matthew Tyree, opened tonight at the Project 308 Gallery on Oliver Street in North Tonawanda.
Most of his sculptures were inspired by his time in Lower Manhattan.
Tyree is a senior at Buffalo State College and the exhibit is part of his senior thesis show for his sculpture degree.
The show will be at Project 308 gallery in N.T. until April 10th.


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OW2 Brings Open Technologies To The Table At Cloud Plugfest
Registered Projects include: CloudStack - OpenNebula - CloudWatt - CompatibleOne - Itea2 ICARE - Contrail - ProActive - Sirocco
OW2 co-organizes this event in the framework of its participation in the OCEAN project. Recognizing the key role open source collaborative innovation is playing in shaping the cloud computing landscape, the Cloud Interoperability Week will be a great opportunity to experiment with prominent open cloud projects. Cloud Plugfests are interoperability oriented events aimed at stimulating cooperation and integration between open cloud collaborative projects. Cloud Plugfest main objectives include:
- increase awareness about the projects
- accelerate integration of their outcomes and foster cooperation between projects
- help them to increase market acceptance.
1- in Santa Clara, CA, 16-18 September 2013, during the SNIA Storage Developer Conference (SDC)
2- in Madrid, Spain, 18-20 September 2013, during the Open Grid Forum #39 and the European Grid Infrastructure Technical Forum To Register, click on the map or click here
Practical informationThe Cloud Interoperability Week will provide an insight into the current state of Cloud Standards implementations and use cases. It will evaluate the level of interoperability of different solutions and showcase how Cloud Standards work together. This event continues the series of Cloud Plugfests aimed at promoting interoperability efforts on cloud standards-based software, services, frameworks, products and projects. A workshop agenda and tutorials sessions will be provided in Madrid.
Why participate and register your project at the Cloud Plugfest?You are contributing to a cloud project, as leader, developer or user, working for a public or private company, a university, etc. Register now to join the Cloud Plugfest! Participants will be provided with a unique opportunity to meet cloud standards experts. In a nutshell, participating in the Cloud Plugfest will enable you to reach the following :
- Benefit from first-hand information on how Cloud standardization is progressing and how to implement Cloud standards
- Learn how to integrate open standards implementations into your software project, and grow your base of users and implementers
- Learn to use important industry standard testing tools
- Meet and discuss with standards implementers, SDO experts and testing experts
- Test your implementations together with experts and help ensure interoperability across multiple implementations and standards
What will be tested? What are the expected outcomes for you?You will be able to test, explore and extend the level of interoperability of your project with regards to existing standards, such as :
- OCCI: OGF Open Cloud Computing Interface
- CDMI: SNIA Cloud Data Management Interface
- OVF: DMTF Open Virtualization Format
- CIMI : DMTF Cloud Infrastructure Management Interface
- CAMP: OASIS Cloud Application Management for Platforms


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The Spoonflower Handbook is here!
I am a graphic designer/folk artist living in Canada. My passion for graphic design is frequently intertwined with my papier mache folk art and most recently with my love for textile design. My work can be found (occasionally) on Etsy and on my blog.
© 2008-2015 Spoonflower Inc


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|Hamilton, DeLeon Named Women's Track athletes of Week
|Written by Chandler Carver
|Wednesday, 30 January 2013 12:10
Appalachian State's Amanda Hamilton and Ana DeLeon have been named the Southern Conference's Women's Indoor Track and Field Athletes of the Week
for meets over the weekend. The selections are made by the league's track and field coaches. On the track, Hamilton paced the Black and Gold for distance runners as she placed sixth overall in the 3000m, crossing the line at 9:48.20 at the Rod McCravy Invitational at Kentucky. This performance leads the conference. In the field events, DeLeon threw 53' 1.75' in the weight throw at the Kentucky Rod McCravy Invitational. She is currently leading the conference.
Women's Indoor Track Athlete of the Week
Women's Indoor Field Athlete of the Week
Photo Courtesy: Amanda Hamilton, ASU Athletics
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Old Cats
2010. Chile. Sebastián Silva, Pedro Peirano. 89 min.
Thursday, August 22, 2013, 4:00 p.m.
Theater 2 (The Roy and Niuta Titus Theater 2), T2
Old Cats
2010. Chile. Directed by Sebastián Silva, Pedro Peirano. With Belgica Castro, Claudia Celedron, Alejandro Sievking. In Spanish; English subtitles. 89 min.
In the Film exhibition MoMA Presents: Sebastián Silva and Pedro Peirano's Old Cats
Ticketing policies for film screenings
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|North Wilkesboro Man Arrested for Vehicular Larcenies and Using Stolen Credit Cards
|Written by Adam Hicks
|Tuesday, 07 July 2009 11:31
The Boone Police Department arrested the man they believe has been responsible for eight vehicle break-ins over the past four months.
Investigator Glen Kornhauser of the Boon Police Department said 20-year-old James Aaron Davis, of North Wilkesboro, was arrested today.
Kornhauser said in many cases, Davis is believed to have used stolen credit cards and checks to make various purchases in the Boone area. Davis is believed to have used four stolen checks at the Kangaroo Express on Blowing Rock Road to purchase pre-paid Visa credit cards.
Davis faces eight felony charges of breaking and entering a motor vehicle, eight counts of misdemeanor larceny, two felony counts of financial card theft, and four felony counts of obtaining property by false pretense.
Investigator Kornhauser added that GoBlueRidge.net and the posted Crimestoppers reports were very helpful in the Boone Police Department's investigation into the incident. Kornhauser said Davis saw his picture on a previous Crimestoppers report and was monitoring GBR to see how close investigators were to solving the case.
Davis was given a court date of September 15 and was placed under a $24,000 bond.
(Photo courtesy of the Boone Police Department)
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Anyone looking for 1998 Norwood-Norfolk Central School graduate Philip DeLorenzo will find him these days in Portland, Ore., and in their local Redbox movie rental machine.
Mr. DeLorenzo composed the musical score and is one of the actors in a 2011 movie called Pathfinders: In the Company of Strangers, which was released on video in January and is available for rental via Redbox.
Its the true story of the American Pathfinders, the volunteer paratroopers whose deadly mission was to land 30 minutes before the Normandy invasion, locate and mark strategic drop zones and set up the top-secret navigation equipment needed to guide the main airborne assault on D-Day.
Mr. DeLorenzo, a 2002 graduate of SUNY Plattsburgh with a bachelors degree in theater who later joined the Army, plays a character named Francis in the film and is credited for its musical score. The independent film was the winner of Best Screenplay award at the Alaska International Film Festival.
After I left the military, I moved to Portland, Oregon. Thats where I responded to an audition to be an actor in a film here, Mr. DeLorenzo said in a telephone interview from his home in Portland.
There were a lot of people there. I got called back and went back and did a screen test. They just liked the way I look for the 1940s. I just look like a 1940s kind of guy. Ive gotten that a couple of times, he said.
It was an independent film. It was not a huge Hollywood production. The budget was probably around $100,000, he said.
The film uses a C-47 Boogie Baby plane which was operated by the nonprofit WWII Airborne Demonstration Team.
It uses actual planes and actual guys jumping out of a World War II plane, Mr. DeLorenzo said.
Mr. DeLorenzo said he initially auditioned for the role of Livingston, but that part went to Michael Conner Humphreys, who played the young Forrest Gump in the Tom Hanks movie Forrest Gump.
I moved up to a bigger role, he said.
Because the film recreates a night event, filming usually began at sundown, according to Mr. DeLorenzo. Filming, he said, took place from approximately May to October.
It did get kind of cold. What was really brutal was when we had to lie on the ground. The earth literally just sucks the heat right out of you. he said.
Mr. DeLorenzos role in the project went beyond acting.
One thing I did do was compose the music for entire film, he said. My dad is a musician. I learned music from my dad. I was introduced to music when I was very, very young. Piano and drums. I played pretty much anything. I even played spoons while I was a kid at church. I kind of have a natural music ability.
Mr. DeLorenzo said he had two years to compose the films music.
I built a computer specifically for it and installed everything I needed and learned everything I needed to compose. I also knew I had two years to do it, he said.
The composing was done without benefit of film footage.
I actually did mine blind. I literally just got emails and talked to Curt (Sindelar), the director on the phone. He would say, at 1 minute 17 seconds can you up the intensity, at 2 minutes 15 seconds I need a loud drum here. I was writing this information down and writing a melody around his requirements, he said.
A computer programmer, Mr. DeLorenzo has, but has started his own company.
Im actually making films on my own now. I have a feature film that I canned already. Im doing editing as well, he said.
Mr. DeLorenzo, who has an uncredited role in an episode of Leverage, said hes working on a new feature.
Were writing it now. Ive got a Web series Im also doing and a short film thats about to be released, he said.
Mr. DeLorenzos parents, Alexander and Francine DeLorenzo, reside in Norfolk, and the elder Mr. DeLorenzo said they were ecstatic to see a film with their son in the Redbox machine for rental.
I didnt know it was in Redbox until somebody called me and told me, he said.
He recalled his son acting in Arsenic and Old Lace at SUNY Plattsburgh.
He said he wasnt surprised to learn that his son was using his theatrical and music talents in the movie.
He can not only compose and act, but he is extremely talented on the guitar. I knew hed been in the studio playing guitar, he said. Im proud of him.
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Ahora Joomag en Español
The segment of Spanish speakers is very large and one of the fastest-growing one in the world. Joomag as a Customer – Centric service cannot simply ignore this fact. It is not a secret t
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Best of News
A victim of the first bombing, Karen Brassard from Epsom, N.H.,... News PhotoArrival,Bombing,Boston - Massachusetts,John Joseph Moakley United States Courthouse,Law,Massachusetts,Person in Education,USA,Vertical,VictimPhotographer Boston GlobeCollection: Boston Globe 2013 - The Boston GlobeBOSTON - JULY 10: A victim of the first bombing, Karen Brassard from Epsom, N.H., arrives with Robert Wheeler, a Framingham State University student. Wheeler, who ran the marathon, took off his t-shirt and used it as a tourniquet on Karen's husband Ron Brassard, who was also severely injured. Alleged Boston Marathon bomber Dzhokhar Tsarnaev appeared for an arraignment at the John Joseph Moakley United States Courthouse to face charges in the Boston Marathon bombings. (Photo by John Tlumacki/The Boston Globe via Getty Images)


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CATAWBA ISLAND, Ohio - ODNR, US Fish and Wildlife Service partner to bring lake trout back to Lake Erie.
Lake Erie is all about comeback stories and this is no different. Already a billion dollar sport fishery, Ohio's Great Lake is a World-class destination for anglers.
This week, the Ohio Division of Wildlife, through a partnership with the Allegheny National Fish Hatchery in Warren, PA, stocked lake trout, a native fish to Lake Erie, in two Ohio locations.
The 120,000 surplus fish are the first stocking of the salmonid in at least 30 years. Lake Erie once had enough lake trout to support a commercial fishery.
That was until pollution and devastation by the invasive sea lamprey wiped them out. Lampreys are in check and fisheries' biologists are hopeful the top-line predator will feast on some of the recent invasive fish species, like white perch.
WKYC Photojournalist Carl Bachtel joined fisheries biologists at Catawba Island and filed the following "Outdoors with Big Daddy" story.
The fish that were stocked this week should reach 14 to 15 inches in length in one year. In 3 to 4 years, the fish will be 25-28 inches and 6 to 8 pounds.


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Beloit, WI -- The Beloit College Women's Basketball team has run a gauntlet of nationally ranked teams in their last three games. The most recent was 27th-ranked Monmouth College, who gave the Bucs a 90-73 loss on Saturday afternoon in Flood Arena.
The Fighting Scots started fast and built a 15-3 lead in the first 4:30 of the contest. But the Buccaneers got back in it with a 7-0 two-minute run to trail by just five at the 13:05 mark. Beloit was within 25-21 with 7:30 before halftime when a 13-2 MC run opened the deficit back up. Again the Bucs fought back and closed the half on a 13-5 run to trail 43-36 at the break.
Monmouth put the game away in the first four minutes of the second half, coming out of the lockerroom with a 14-2 run that put Beloit down 57-38. The largest deficit was 26 at 76-50 with 8:28 remaining. The Buccaneers kept battling but never got closer than the final score.
Lauren McNanna led four Bucs in double figures with 24 while Lana Wieseman added 14 and Maddie Sychta 12. Kandace Fox finished with ten points, nine rebounds and five assists.
Beloit has a short wait to get back on the court, playing at Ripon College on Tuesday night. Tipoff is at 5:00 p.m.