text:
Jacquelyne Sofa
- Overview
Handwoven from wicker with generous roll arms, this sofa is an inviting place to relax. The woven fiber creates a beautiful texture, with two rows of braiding around the base accenting its dense basket weave.
- 83.5" wide x 39" deep x 34.5" high
- Wicker is expertly handwoven over a solid wood frame.
- Seat cushion and back pillow covers made of dyed pure Panama fabric; zipper closure.
- View our Furniture Brochure.
- Dimensions & Care
- Frame made from kiln-dried red mahogany.
- Adjustable levelers add stability on uneven floors.
- Overall: 83.5" wide x 39" deep x 34.5" high
- Seat: 72" wide x 26" deep
- Seat Height: 18" with cushion, 13" without cushion
- Seat Cushion: 72" wide x 26.5" deep x 5" thick
- Backrest: 73.5" wide x 24.5" high
- Back Cushion (2): 36" wide x 23" high x 12" thick
- Armrest Length From Backrest: 39"
- Armrest Height From Floor: 24.5"
- Legs: 3" square, 4" high
- Distance Between Legs: 75" side to side; 29" front to back
- Clearance Under Seat Edge: 4.5"
- Maximum Weight Capacity: 400 pounds
- Weight: 108 pounds
- Shipping Info
This is an oversized item.
View our Shipping Information
Customer Service - Shipping Information
Return Policy
At Pottery Barn, we take great pride in the quality and craftsmanship of our products. Attention to design, materials, safety and construction is our priority. We carefully inspect your order prior to shipment. Upon receipt, please inspect your purchase and notify us of any damage; we will arrange for a prompt replacement. If, within 7 days for Quick Ship upholstery and 30 days for all other products, you are dissatisfied for any reason, you may return your purchase for a refund of the merchandise value. Mattresses are final sale and may not be returned or exchanged.
We cannot accept returns on monogrammed, personalized, special-order items, or on items damaged through normal wear and tear. We also cannot accept returns of final-sale items which are identified by a price which ends in .99.
For returns of items purchased from your Pottery Barn registry, we will gladly provide a refund or exchange for the merchandise within 90 days of your event or within 90 days of purchase, whichever date is later.
You may return merchandise through the mail for a refund or replacement. For detailed procedures for returning items through the mail, please contact Customer Service at 1.888.779.5176, 7 days a week, 5:00am - 9:00pm (PT).


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The direct ignition cassette can fail causing the engine to die while driving, and/or it will crank but start. Diagnosis may also discover trouble codes for random misfires.
Problems for specific Saab 9-3 years:
Car problem reports
Problem with your car? See what our experts say or submit your own.
Newest reported 1999 Saab 9-3 problems
Engine Dies while Driving Or Will Crank but not Start
The direct ignition cassette can fail causing the engine to die while driving, and/or it will crank but start. The engine may also have a rough idle and run roughly. Diagnosis may discover trouble codes for random misfires.
Engine Coolant Loss and no Leak Noted
2.0L engines may become low on engine coolant with no cause found for the coolant loss. Our technicians tell us than in some cases the engine block may require replacement due to porosity.
Stiff AC Controls or No Control of HVAC System
The air blend system in the heating, ventilation and AC (HVAC) system can have problems, which can cause the AC controls to be stiff, or a lack of HVAC control.
Noise and Overheating Due to Water Pump Failure
The water pump can fail causing noise on the left side of the engine and overheating. Other symptoms include coolant loss and leakage at the front/left area of the engine.
Noise from Serpentine Belt Idler Pulley
The idler pulley for the serpentine belt can fail causing noise from the belt area. Our technicians report the pulley has been known to fail completely which can cause the belt to break or be thrown off.
Head Gasket Leakage
The head gasket may leak oil externally. The oil will be visible around the cylinder head and block area.
AC Compressor Fails to Engage or Disengage
The thermo contact in the AC compressor can fail, which means the compressor may fail to engage or disengage.
Excessive Exhaust Noise From Flex Pipe Failure
The exhaust flex pipe can fail causing excessive exhaust noise from the front/center area of the vehicle. The flex pipe is a flexible joint in the exhaust that allows for engine movement.
Check Engine Light due to Electronic Throttle Body Failure
The Check Engine Light may come on because the electronic throttle body has failed. Other symptoms include loss of acceleration, a high idle or failure to return to idle, and difficulty starting.
Poor Cooling from the Air Conditioning and Loss of Refrigerant
The AC evaporator can leak causing poor cooling of the air conditioning. The loss of refrigerant may be hard to diagnose.
Poor, or No Cooling from the Air Condioning due to Expansion Valve Failure
The air conditioning expansion valve can fail causing poor, or no cooling from the AC system.
Oil Leaks caused by Excessive Crankcase Pressure
Oil leaks from the timing cover, valve cover, and/or rear main seal may be due to excessive crankcase pressure. An updated PCV (Positive Crankcase Ventilation) kit was released to fix this concern.
Extended Cranking to Start Engine
The fuel pump check valve may have failed if the engine requires more cranking before it starts. The check valve is a one way valve that maintains the pressure in the fuel lines so the engine is easier to start after it has sat a while.
Crank but No Start Condition and No Fuel Pressure
If the engine will crank but not start, it may be the fuel pump has failed. Diagnosis may find no fuel pressure when attempting to start the engine.

subset: commoncrawl


text:
Vans Authentic Checkerboard Shoes
Item # 229012
Buy1 Get1 Free
Stash Points: 3,497
What is this?This is the number of points you get in The Zumiez Stash for purchasing this item. Stash points are redeemable for exclusive rewards only available to Zumiez Stash members. To redeem your points check out the rewards catalog on thestash.zumiez.com.
This low top skate show is a classic inspired style with the checkerboard print canvas upper, while the vulcanized outsole offers added board feel for improved control.
|More Details
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Main Content
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This item ships within one business day.
Order as many items as you like with our $4.99 flat rate shipping.
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Bring some Broncos pride to the backyard the next time you and your four-legged friend play catch! No need to worry about your spiral here, this tennis ball dog toy will bring you a Denver touchdown every time. This fun toy features a tennis ball attached to a Broncos-spirited lanyard with woven team graphics. Your pooch will absolutely love shagging your throws with this toy!
- 9" Lanyard attached to tennis ball
- Imported
- Officially licensed NFL product
- Team logo and colors
- Woven graphics
Broncos Customers also liked:
Special event items are produced by manufacturers only after the outcome of a game or event. These are advanced sale items and will ship immediately after they are received in our warehouse.
Manufacturer direct items are shipped directly from the manufacturer. These items are not available for international or expedited shipping.
Customized items can be personalized with options such as your name, your favorite number, and/or designs. Some options may be limited by league rules.


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That's the best way to describe the country town of Lake Cargelligo. About 580k's due West of Sydney, nearly 700k's North of Melbourne, 130k's from Griffith and 95k's from Condobolin it boasts a population of 1300, and can truly be described as 'the middle of nowhere'. I've been twice, each time staying at the Lake Cargelligo Caravan Park, and have nothing but good things to say about it. Camping is charged from around $10/night, and Cabins for $55/night for 2 people. A small fee is charged for each extra person, and the cabins can sleep 4 people comfortably (3 bunks, one double bed). The toilets and shower facilities are awesome, when we first got there I could not believe how clean they were, having only stayed at maybe two caravan parks in my life, this one certainly changed my opinion of them. And again, to my surprise, the park has a very nice cover of green grass, considering the area is in a pretty much permanent drought. There's also free electric BBQ's and eating areas provided and the owner's a very friendly and helpful bloke.
The whole area consists of mostly wheat farms, with a few sheep and cattle thrown in for good mix. It's a beautiful place to visit, almost dead flat yet the scenery is stunning, and it doesn't get a huge amount of tourists so you don't have to worry about it getting crowded. However there is the possibility of seasonal workers likely to pop up around harvest time so it might pay to book your accommodation ahead of time just in case. In addition to the caravan park there are also two pubs with accommodation and top tucker too. And an hour's drive away in Condobolin there's another park and a couple of basic hotels.
For those of you running LPG at last check there was none available in Lake Cargelligo, however there is at least one at Condobolin, and at Griffith, which is the nearest 'major' town, similar in size and makeup to Orange or Bathurst. Just one other thing to keep in mind is that most of the servos in these areas shut at night, so if you're travelling through the night make sure you're prepared or you'll find yourself rolling out the swag next to the bowsers.
It's also home to Murrin Bridge Vineyard, the first Indigenous wine produced in Australia. Visitations need to be arranged beforehand.
Contact Craig Cromelin: phone/fax 02 6898 2264, 0428695079. email@example.com.
P.O box 199, Lake Cargelligo, NSW, 2672.
For more information about the area contact the Lake Cargelligo Visitor Information Centre,
1 Foster Street, Lake Cargelligo
Phone: 02 6898 1501.
Hours: 10am – 4pm 7 days.
That's enough rambling from me, here are the pics:
The two times i've been, it's rained atleast a bit. Just 'lucky' I guess. Makes for some beautiful skies, but its a pain waking up with a wet swag So I had to set up the tarp. And if you do happen to go there after or during a heavy rain, be carefull on the dirt roads. They can get very slippery and if you stop in the wrong spot your bogged, in the middle of nowhere, with no phone reception. Just gotta wait till a farmer comes past and helps
-Not an un-common site on the side of the road, near condobolin.
- Tullibegeal - What it might have looked like in the early 1900's
The Caravan Park:
The Lake:
- Its a little wierd seeing a car towing a Ski boat on a red dust road
Expect to see ALOT of this on the way there, actually, this would probalby be considered a large hill . Mostly its a fair bit flatter
- Give's you an idea of distance eh?
- Condobolin, and some of its, err, artwork
Some natives:
This is how I got the nickname "Steve (Irwin)" Cooking in a King Gee shirt with a jerry can and a hunting knife


text:
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Advanced (Native)
Date: 2012-08-08 00:00:00
Can understand with ease virtually everything heard or read.
Can summarise information from different spoken and written sources, reconstructing arguments and accounts in a coherent presentation.
Can express him/herself spontaneously, very fluently and precisely, differentiating finer shades of meaning even in the most complex situations.
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The finest organic apple juice naturally fermented with 'mother' of vinegar, a quality indicator appearing as cloudiness in the final product. Raw and unpasteurized, patiently aged in cedar wood vats. A traditional healthy food used for centuries in hundreds of ways. One like this is rare. 5 percent acidity. Amber glass bottled.
Kosher. Gluten Free.
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AboutA web log for all fans of Walt Disney, The Disney Company, and its many products. Using the theories behind Walt Disney's family oriented entertainment and education, this blog is intended to be a safe read for the whole family. Proud to be a part of Quality Will Out Omnimedia. The Disney Blog is not affiliated with The Walt Disney Company in any way. All Disney parks, attractions, lands, shows, event names, etc. are registered trademarks of The Walt Disney Company. The Disney Blog is affiliated with LaughingPlace.com, the number one Disney Fan site on the internet. Please see creative commons license at the bottom of this page for copyright information. All content on this website is my own and does not necessarily represent the views of my employer or anyone else on the planet. The Disney Blog is supported by advertising and some of the links on this site and in product reviews are revenue share affiliate ads. I also do accept product for review and to give away as prizes. However, I compose all my editorial separate from any decision regarding advertising or affiliate links. YMMV.
Tag Archives: disney cruise line crew member
Local Newspaper interviews lost Disney Cruise Line crew members family
The UK's Chester Chronicle interviewed the family of the crew member missing from the Disney Wonder ship. I won't reveal the name here, but you can get that information if you want to click through. The interview reveals the missing … Continue reading
Posted in Disney Cruise Tagged cast member, cast safety, dcl, disney crew, Disney Cruise, disney cruise line, disney cruise line crew member, los angeles, Lost, missing, missing crew, overboard, safety 6 Comments


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A publicly traded company (NYSE:JE and TSX:JE) established in 1997, we are proud to serve over 2 million customers across the continent. Our green energy products and energy efficient programs provide a real and convenient solution for our consumers to reduce the environmental impact associated with their everyday energy use.
Just Energy has a clearly defined vision and core pillars that guide the way we do business with our customers, employees and shareholders.Read More
Just Energy currently serves 20 markets across North America, including 14 states and 6 provinces.Read More
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INHABITAT: How does the term Colorfast describe your latest show?
R Nelson Parrish: The term Colorfast originally is a textile industry term derived at the beginning of the last century. It defines how a color cannot fade, wash out, or be diluted over time, and ultimately the color stays the same. Whether it be in a t-shirt, a dish towel, or even a house paint — the color remains true.
Color/Fast, as a title, came about for two reasons. The first is because the work deals with the language of color and speed. Second, my work is proposing that both the art experience and the athletic experience are the same emotion. Like the definition of colorfast, the work couples and invokes feelings that can withstand the test of time.
Plus, RGBUltraspeed and Speedscapes lacked that certain Je ne sais quoi.
INHABITAT: Tell us a little about the process of creating your works?
R Nelson Parrish: That is a lengthily lecture that I will not bore you with. I will say, in short, the process is long, tedious, arduous, demanding and expensive. I wouldn't wish it on anyone. Each piece represents a minimum of 100 hours in fabrication, along with a buckets of blood, sweat and tears. However, like climbing Everest, the end result is 100% worth it. After 6 months of working a minimum 14 hour days, 7 days a week, I would do it again in a heartbeat.
INHABITAT: What materials do you use?
R Nelson Parrish: R Nelson Parrish: Color, wood, fiberglass, and bio-resin. I also do a lot of research that requires heavy documentation. I implement a lot of photography and video as source material.
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Yuka YonedaWINDOWHOP It's easy to get depressed when your work schedule has you getting less sun than Edward Cullen (you've got the sickly pallor to match and it's not nearly as sexy on you). If you're lucky enough to at least have a window in your workspace, openREAD MORE >
Diane PhamCutting back on your energy usage is one of the best ways to bring down your electricity bill. But did you know that making simple changes to not just your wattage consumption but the way your home retains and expels air can dramatically transform the wayREAD MORE >
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text:
Please note that as of October 24, 2014, the Nokia Developer Wiki will no longer be accepting user contributions, including new entries, edits and comments, as we begin transitioning to our new home, in the Windows Phone Development Wiki. We plan to move over the majority of the existing entries. Thanks for all your past and future contributions.
HomeScreen Usability
Homescreen is the most prime real estate/ important view of the mobile device and gets more page views than any other page/application view. User always navigates to other applications from the homescreen. Homescreen's impact on a user is much more than all the other applications put together. Homescreen is the first thing the user sees after powering on the device.
Hence it is very important to be very careful while making use of the homescreen. The sensitivity and importance of the homescreen can be gauged from the fact that Nokia has guarded the sanctity of the active idle/homescreen zealously until now. 3rd party developers had very limited control/access to the homescreen space. Only through partnering/valid business case evaluation could one get access to the active idle.
See limitations from:-
Restrictions in developing customised Active Idle plug-ins (Known Issue)
Active idle theme cannot be changed by 3rd party applications (Known Issue)
Going forward from N97 onwards, Nokia has provided the Homescreen Publishing API, using which 3rd party developers can place their widgets on the homescreen.
With earlier versions the user can always do direct screen drawing to draw their content on the homescreen, as detailed on the link How to display ticker on active idle .
Homescreen usability guidelines are
Allow user choice to place/remove application from homescreen
Since the homescreen is the main view of the mobile, it is very important to take due consideration in deciding whether you really want to use up that space for your application usage. The user should have a choice to decide whether they want to see the application on the homescreen or not.
Do not hamper existing functionalities
Make sure that if you are modifying the homescreen, or using that space to display your content, you do not hamper any of the existing functionalities. The navigation bar which allows faster access to applications, ability to use the center key pad etc, should work as expected. The user should be able to navigate to the menu/default applications with the same ease/consistency as they were earlier when you had not modified something on the homescreen.
Honor events/interrupts
It is imperative that high priority events like incoming call/message etc are handled the same way as they were without your application on the homescreen. The user should be able to accept/reject the incoming call etc. Do not hamper the existing navigation mechanism or jump views between your application main view and homescreen repeatedly as this could confuse the user.
Avoid flickering/sluggish UI response time
In case of placing the content on the homescreen it is imperative to make sure that the homescreen response time doesn't get affected because of your application using that space. You should make sure that while drawing the content or on updates to your application widget, there should not be any flickering and the user should not see any inconsistencies from an overall look and feel point of view.
Additional Resources
Mobile Design Pattern: Home Screen
Sensor based interactions with home screen Web Runtime widgets
Using the ScShortCuts Engine Wrapper API, 3rd party developers can make changes to the soft key on the active idle to display shortcuts to their applications instead of the native applications.
Details can be had from:-
ScShortcuts Engine Wrapper API
Shortcuts Engine API not available in S60 3rd Edition FP2 (Known Issue)
--- Added by Mayank on 26/06/2009 ---


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the only movies i've seen in 3D was the first spy kids movie and silent hill revelation lolol
436 days ago.
Silent Hill Revelation 3D was echt een mooie horror, er zaten alleen wel veel schrikmomenten in
438 days ago.
Just watched Silent Hill: Revelation 3D. The revelation is that it ever got made in the first place. Hoo boy
454 days ago.
Silent Hill: Revelation 3D was awesome to watch with the lil sis :)
473 days ago.
Lord Stark and Jon Snow having terrible American accents was basically the only thing that made Silent Hill 3D Revelation watchable
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Red Bean Dumplings (红豆汤圆)
I have a good news to share about my Chinese recipes cookbook!!
The recipes development, cooking, food styling and photography are pretty much done, and I am almost ready for recipes testing involving you—my loyal readers and fans. I will be needing your help and will announce it on Rasa Malaysia in the next few weeks, including a sneak preview of the food photography (they are very different from what you see here and all shot with my professional camera, Canon 5D Mark II)! I am very excited and I hope you are, too.
Anyway, I have been cooking up a storm and working very hard on the cookbook since April. It has been fun, challenging, and a great learning process. As a result of the recipes development, I have accumulated a lot of random ingredients in my refrigerator—leftover items used in the recipes, which I have to get rid of. One of them is a can of red bean paste that had been sitting in the dark corner of my refrigerator for over a month! It kept well so I didn't want to just toss it away. I decided to clear the space finally and made it into red bean dumplings. I have to say that it was a great way to use up leftover red bean paste, for something sweet and pleasing…
Red bean dumpling (红豆汤圆) is a common dessert in Chinese cuisine (the other is black sesame dumplings). The red bean paste is encased in sticky rice balls, boiled, and then served in ginger syrup. It's a wonderfully refreshing dessert that anyone can make at home. Traditionally, red bean paste is made from scratch, but the canned version is as good as it gets. You can find it at Chinese, Japanese, or Asian stores. If you like dumplings, do try out this red bean dumplings recipe!
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40 comments... read them below or add one
I love this red bean dumplings very much. Always get it from tong sui stalls. Seems very easy to make!
Looking forward to your recipe testing. This red bean dumplings look great. :)
That's soothing! I used to eat cakes and biscuits, but sometimes need to be back to this kind of less-sweetened Asian sweets to keep my mouth sane :)
These are fantastic -chewy and delightfully moreish. How unfortunate that I haven't eaten them in so very long…thanks for the reminder!
Your recipe seems easy enough although I must say, I have that undercurrent feeling that I would somehow have trouble with keeping the red bean paste inside (that would be due to my own lack of cooking skills). Still, shall try :)
Oh and congrats for the further development of your cookbook; I've been waiting for awhile now so any news is darn good to me! I'll be peeking, waiting around the corner to be a recipe tester.
happy to hear that your cookbook progress is going so well! I have the same "coconut" bowl too, bought it at Bangkok but haven't use it yet. Your 红豆汤圆 is really pretty, I want a bite :P
yummm i love tang yuan! but i do prefer black sesame ones over red bean ones :) cant wait to hear more abt your cook book!
Hi.. Where can I buy this red bean paste? Does 99 ranch market have this? Thanks..
This looks amazing! I love red bean desserts. Just sweet enough, but not overpowering.
Looking forward to the cookbook!
I just love red bean paste…stuffed wonton and deep fried …also good on rice cake ( we call tikoy in the Phil.) cut into finger lengths and topped with jackfruit and wrapped in lumpia wrapper and deep fried for a quick snack.
Bee, I did some recipe testing for Jaden's cookbook so if you're looking for testers, I'd love to do this for you too. I'll be reviewing a Bento cookbook later this year and I'll be honored to do this for you as well. Can't wait for your cookbook!
Oh you're making me crave for tang yuan now.. I'll have to make some tonight. :) Love the bowl!
Yum, this looks absolutely delicious! Haven't tried making any Chinese dessert before, so this will be my first. Looking forward to your cookbook!
So happy for you that you are almost done with your cookbook! :D
红豆 also quite good for you…eat more, heh heh…
Tried making them… only kinda worked out. First, I'm fairly horrible in the kitchen so it probably had a lot to do with me. Second, the recipe's flour to water ratio didn't work at all so I just added more flour until I could make the balls. I had a lot of trouble making the balls small enough to keep a good dough to paste ratio and still be able to make the dumplings fold and seal, but the final product tasted like the real thing (even if they were a tiny bit doughy and pretty unattractive). Any tricks? Just found this website and I'm so excited to keep trying new recipes! (and hopefully with time, my abilities will improve…)
I love these little desserts!!! I sometimes even drink the broth because there inevitably will be one or two that breaks or stick on the bottom and all the delicious filling bursts out into the broth. I usually get the frozen ones but would love to make my own. I like sesame paste filling also.
These look so good, I've been looking all over for a recipe for these, but what if we can't find red bean paste? How can I make it at home?
I just returned from my second trip to China. I was staying on an island off the coast Fujian with nearly every meal (besides the delicious veggies and seafood) were nan gua bing 南瓜饼 – a type of dough mixed with pumpkin and filled with a sweet red bean paste. They are fried and served hot. Does this sound familiar? Can I pan fry these dumplings instead of boiling them?
My grandma taught me mix the flour with the 'warm' water. The 汤圆 more chewy…Q! try it
WOW these look amazing. Definitley going to try it. I wonder if these could be dusted with a rice flour or corn starch and frozen? Would be nice to make extra for a rainy day….
I love red bean. I can't wait to try this recipe. I once bought a quart of red bean ice cream which I finished very promptly. Bless you for posting this.
I love them! It is one of my favorite things!
Yeah, so this recipe didn't work at all. It isn't the right ratio of water to flour at all, not to mention (At least the brand I bought) of red bean isn't thick enough to be rolled into balls. How do you even flatten the sticky rice flour balls into patties? It sticks to floured hands, oiled hands AND the parchment paper. Grr.
This recipe wasn't as easy as it sounded, but with a little more sticky rice flour it wasn't so bad and when they're cooked they're good. It made more than 10 too, maybe i made them too small
Your website and your recipes are awesome! I am looking for fresh corn juice recipe because I am craving for it. I have tried some fresh corn juice in Shanghai. I am not sure is it every restaurants in Shanghai would serve fresh corn juice. However, the corn juice in every restaurants are different and not all of them taste good. There was only one restaurant that I have visited made good corn juice. I am guessing there is milk or evaporated milk added to the corn juice.
Happy new year!
Reading your blog just makes my mouth water.Red Bean Dumplings, I made them for Raya celebration. Instead of serving the dumplings in ginger syrup entirely,i used soya milk and i added a dash of ginger syrup. Red Bean Dumplings was and ultimate dessert.I'm planning to make it again today, was thinking of using peanuts. Let's see how it turns out.Happy Malaysia Independence Day.


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Home • Mobile Accessories • Headphones/Headsets • Part Number 5002-102BL
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JVC Gumy Plus Inner-Ear EarbudsThese blue JVC Gumy Plus Inner-ear Headphones feature a rubber body for a comfortable fit and good noise isolation, which ensures a better listening experience. To tailor the fit of each user, silicone earpieces in small, medium and large are included. They come in an assortment of cool iPod-matching colors and have a 3.3-foot (1 meter) cord with a gold-plated 3.5mm iPhone compatible plug. This pair comes in blue.
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A resource for reliable information about significant people, places, events, and things in Minnesota history.
Aerial view of Mankato State University Highland Campus, 1980.
This aerial view shows The Parade after the Minneapolis Sculpture Garden was expanded and the softball field was moved (foreground) to replace the demolished stadium.
Parade Stadium is ready for its first full season of football, 1952. Photographer: Schreiber-Hager.
Aerial view of Reserve Mining Company's taconite processing plant, Silver Bay, 1956.
Aerial view of Waconia, c.1945.
Aerial View of Carver, 1969. Photograph by Vincent H. Mart.
Aerial View of Chanhassen, 1981. Photograph by Vincent H. Mart.
Aerial View of Chaska, 1988. Photograph by Vincent H. Mart.
Aerial view of Clarks Grove, 1972. Photograph by Vincent H. Mart. Clarks Grove became a village because of the business that the creamery attracted.
An aerial shot of the flour mill, 1962. Photograph by Mart, Vincent H.
Made possible by the Arts and Cultural Heritage Fund through the vote of Minnesotans on November 4, 2008. Administered by the Minnesota Historical Society.
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Endocrine Dysfunction and Growth Hormone Deficiency in Children With Optic Nerve Hypoplasia
- Full Text View
- Tabular View
- No Study Results Posted
- Disclaimer
- How to Read a Study Record
- The prevalence of endocrinopathies, and growth hormone (GH) deficiency in particular, among young children diagnosed with optic nerve hypoplasia (ONH) is higher than is commonly thought.
- Early treatment of children with ONH and GH-deficiency can prevent adverse outcomes.
- Determine the prevalence and types of endocrinopathies in children diagnosed with ONH.
- Correlate endocrine outcome with radiographic, ocular, and developmental findings in children with ONH.
- Examine the effect of GH treatment on growth and obesity in children with ONH, GH-deficiency, and either subnormal or normal growth compared to children with ONH that are not GH-deficient.
- Compare growth outcomes between children with isolated GH-deficiency and those with multiple hormone deficiencies.
Growth Hormone Deficiency
Septo-Optic Dysplasia
Drug: Nutropin AQ
Phase 4
|Study Type:
|Study Design:
|Allocation: Randomized
Endpoint Classification: Efficacy Study
Intervention Model: Parallel Assignment
Masking: Open Label
Primary Purpose: Treatment
|Official Title:
|Endocrine Dysfunction and Growth Hormone Deficiency in Children With Optic Nerve Hypoplasia
- Prevalence and type of endocrinopathies at baseline; growth and obesity at two years [ Time Frame: Study completion ] [ Designated as safety issue: No ]
- Endocrine outcomes as correlated with radiographic, ocular, and developmental findings [ Time Frame: Study completion ] [ Designated as safety issue: No ]
|Study Start Date:
|December 2004
|Study Completion Date:
|February 2014
|Primary Completion Date:
|February 2014 (Final data collection date for primary outcome measure)
Drug: Nutropin AQ
Subjects for this study will be recruited from active and newly enrolled subjects in our larger ONH study. The study duration is two years and we anticipate 38 subjects will enroll. Subjects will be recruited for this study if they present with either growth deceleration or at least one subnormal result for IGF-1 or IGFBP-3.
Baseline information collected includes: height, weight, head circumference, examinations by an endocrinologist and ophthalmologist, endocrine laboratory testing, fundus photography, electrophysiology testing, head MRI, and a developmental assessment. A glucagon stimulation test will be performed and subjects who are deemed GH-deficient and who have delayed growth will be assigned to GH treatment, in line with standard clinical practice. Those with normal growth but determined to be GH-deficient by a glucagon stimulation test will be randomized to treatment with GH vs observation only.
Subjects randomized to treatment with GH will be provided with GH for the duration of their participation in the study. Enrolled subjects will return every four months to monitor progress. Subjects will undergo a physical examination at each visit, including height, weight, head circumference, and body fat. In addition, subjects randomized to growth hormone will have laboratory testing of thyroid, IGF-1 and IGFBP-3 hormones, and fasting lipid levels.
|Ages Eligible for Study:
|up to 5 Years
|Genders Eligible for Study:
|Accepts Healthy Volunteers:
Inclusion Criteria:
- New subjects diagnosed with ONH less than or equal to 2 years of age and subjects actively enrolled (in currently approved prospective ONH study) will be eligible for enrollment.
Please refer to this study by its ClinicalTrials.gov identifier: NCT00140413
|United States, California
|Childrens Hospital Los Angeles
|Los Angeles, California, United States, 90027
|Principal Investigator:
|Mark Borchert, MD
|Childrens Hospital Los Angeles; University of Southern California
|Principal Investigator:
|Mitchell Geffner, MD
|Children's Hospital Los Angeles
Additional Information:
No publications provided
|Responsible Party:
|Mark Borchert, M.D., Pediatric Neuro-Ophthalmologist, Children's Hospital Los Angeles
|ClinicalTrials.gov Identifier:
|NCT00140413 History of Changes
|Other Study ID Numbers:
|Study First Received:
|August 31, 2005
|Last Updated:
|May 27, 2014
|Health Authority:
|United States: Institutional Review Board
Keywords provided by Children's Hospital Los Angeles:
Optic Nerve Hypoplasia
Additional relevant MeSH terms:
Dwarfism, Pituitary
Endocrine System Diseases
Septo-Optic Dysplasia
Bone Diseases
Bone Diseases, Developmental
Bone Diseases, Endocrine
Brain Diseases
Central Nervous System Diseases
Congenital Abnormalities
Hypothalamic Diseases
Musculoskeletal Diseases
Nervous System Diseases
Nervous System Malformations
Pituitary Diseases
ClinicalTrials.gov processed this record on March 30, 2015


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Using Advanced FEMLAB Features for SHA-FEM CouplingKildishev, A., Chettiar, U.
School of Electrical and Computer Engineering, Purdue University
Spatial Optical Analysis (SHA) of electromagnetic fields is a useful tool in analytical and numerical analysis of complex electromagnetic sources. A mathematical background for setting the Dirichlet boundary condition in the Finite Element Method (FEM) is shown.
- Kildishev.pdf - 0.15MB


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Losing My Virginity
Richard Branson
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Losing My Virginity
Richard Branson
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Shimmering Stars Save the Date Postcards These cards are beautiful. Made with high quality materials. I am so thankful to magnet street for helping to add these beautiful works of art to my wedding day!


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Kiss Announce New 'LA Kiss' Football Franchise
Monday, August 19, 2013
Gene Simmons and Paul Stanley are among the owners of the new Arena Football League expansion team, the L.A. Kiss. The Kiss co-founders appeared at a press conference on Thursday (August 15th) announcing the team-up, which will find the newly endorsed team play at Anaheim's Honda Center starting next March. The L.A. Kiss will be Southern California's first AFL team since April 2009 when the L.A. Avengers called it a day after eight seasons at the Staples Center. The Associated Press reported that "season tickets will be available for $99 and inaugural season seat holders will be invited to a free Kiss concert at Honda Center next year." The L.A. Kiss, which has the Kiss logo on its helmets, opened its season on Saturday (August 17th) with a game against the Philadelphia Soul -- which was originally partially owned by Jon Bon Jovi and Ritchie Sambora.
Gene Simmons promised that an L.A. Kiss game would be similar to catching Kiss in concert: "As a fast-paced, high-action band this partnership with the AFL was an obvious fit for us. With Arena Football, you are much closer to the action -- sitting in the front row is like putting a folding chair on the hash mark of an NFL game -- and it's one of the only sports where you can experience this level of intensity. Attending an L.A. Kiss game in 2014 will be similar to a live Kiss show, with thrilling, heart pounding action. . . . There's nothing like AFL and that's what we're going to promote. This is about taking AFL to heights it's never been before."
Paul Stanley is proud that the games are affordable for the entire family: "L.A. is dying for a football team. What we want to see happen is to take the excitement that is AFL football and bring entertainment to it. We don't put our name on something unless we believe in it. This is something that really resonates with us. . . Season tickets are now on sale for what we know will be some of the most action-packed games ever played at the Honda Center. Arena Football is played at a fast and furious pace and making season tickets available now for the budget-friendly price of $99 gives a whole new meaning to bang for the buck."
Gene Simmons told us that when he and Paul Stanley planned the band's original reunion tour with Ace Frehley and Peter Criss back in 1996, they were definitely only thinking ahead a few years: "We really only had a five-year plan -- 'Hey, let's do it five years, thank you very much, there's nothing left to prove to anybody else.' And after the five years were over, y'know, all of a sudden -- Kiss cafes are starting to open up all over the world, Kiss comic books, Kiss ad infinitum. 'Kisstianity,' if you will. Just when you think it's over, it's just beginning."
Kiss wrapped its North American dates on Sunday (August 18th) in Hollywood, Florida. The band will kick off its four-night mini-tour of Japan on October 19th in Tokyo.
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Subscribe to our Living With Cancer e-newsletter to stay up to date on cancer topics.
We've talked about advanced cancer before, but metastatic cancer is a subject I'd like to discuss this week. Metastatic cancer is when cancer spreads to another part of the body. Metastatic cancer is the same cancer type as your original.
This means if your original cancer was breast cancer, but now has spread to the lungs or brain, it's still breast cancer and will be treated with strategies for breast cancer. Living with metastatic cancer can have unique challenges. Maybe you were originally diagnosed and treated months or years ago and had a period of time when you were considered cancer-free.
If cancer has returned, it might bring up feelings and emotions that are very difficult to get through. You might feel a sense of loss, failure, or shame. Research done with cancer survivors has found more than 40 percent of people diagnosed with metastatic disease have these feelings. It may also be hard to talk with others about this as you work through the physical and emotional aspects of having treatment again.
Here are a few things to help you focus on what is right for you ...
I'm including a few suggestions for sites that have online support groups that might be helpful (Breast Cancer — AdvancedBC.org, The Wellness Community, and The MetaCancer Foundation). Reach out to each other through this blog and share your support, experiences and resources.
Sheryl M. Ness, R.N.
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I would like to know women with metastatic breast to pleural sac. I have had for at least 4 years and chemo did not work.
Breast cancer, pain,
Avastine blocks the checmial signals used to make new blood vessels for tumor growth, not oxygen. It's looking grim for avastin for met. bc July 20, 2010 Avastin is not helpful in the treatment of metastatic breast cancer, and the drug's approval for this use should be withdrawn.That's the verdict of an FDA advisory panel, whose 12-1 vote urges the FDA to remove breast cancer from the list of approved uses of the Genentech drug. The vote is specific to breast cancer and does not affect Avastin's approval for the treatment of colon, lung, brain, or kidney cancer.Against the advice of a previous advisory committee, the FDA in 2008 gave Avastin accelerated approval for the treatment of spreading breast cancer, in combination with chemotherapy. As a condition of that approval, Genentech agreed to conduct two new clinical trials.Those trials showed no evidence that Avastin offered an overall benefit to breast cancer patients. In contrast, the drug added significantly to the side effects of chemotherapy.Avastin is a man-made antibody that blocks the checmial signals that tumors use to grow new blood vessels. By preventing the growth of new blood vessels, the drug starves tumors.But clinical trials showed little evidence that breast cancer patients benefit by adding Avastin to chemotherapy. The drug increased the rate at which these patients experienced serious side effects.Briefing documents prepared for the panel by FDA staff painted a dim picture, suggesting Avastin's risks o
I had my prostate out in Aug 2010. My PSA is starting to go up again, now at .07. My doctor is proposing a six month hormone therapy as a potential "cure". I have never heard that hormone deprivation can kill cancer cells only that it supresses growth for a period of months or years. I have mostly Gleason 4 but some Gleason 5 in my biopsy. Has anyone at Mayo made such a claim or experimented with hormone therapy only as a cure for recurrent prostate cancer?
I am fighting with metastatic colonrectal cancer and am looking for a Doctor at the Mayo clinic, can anybody refer me to a new Doctor, I have been fighting this since 2008. Please help me
In November 2011 my mom was diagnosed with metastatic colon cancer, she got colon resection, followed with PET scan, which showed one positive lymph node on liver, she is 84 years old had many previous surgeries.
The plan is for new PET scan for comparison, and if positive for mets, to do biopsy.
My mom has some concerns, and I am not sure if she should have biopsy concidering her situation, it is very hard to sugest what would be the best for her.
My question to all of you is, if anybody got through biopsy followed with chemotherapy, and what were the side effects, pain, weaknes, etc.
Does anybody have a sugestion about natural, vitamins, or etc what I can buy for her to give her more energy, she is still recovering from her very long and extensive colon resection surgery, and is weak. She has a great desire to live, and I am, her primary caregiver want to help her.
On December 12th 2011 we were told my wife had pancreatic cancer and it had already spread to the liver. My wife has chosen not to ask questions about survival, or long term issues such as pain etc and I respect her desire to fight this cancer one on one and she doesn't care about systistics and things like that. I actually think and believe this is a good staragey for her but what should I do as her primary care giver? Is it important for me to know or will it only complecate things for me? I like to know where we are going even if it is a hard road but maybe this time it's better not to know. Help me this is the first time in my life I am a true caregiver and never have I been around anyone with cancer
In June of 2009 I was diagnosed with Metastic Colon Cancer. I had at least 10 mets in my liver spread thruout both lobes. Originally the plan was to do chemotherapy, then when and if I had good results I would get the colon resection. At least that is what I understood from the GI doctor and surgeon. My Oncologist was more about taking it one step at a time. After 4 rounds of chemo I had a PET scan that showed shrinkage and disappearance of the tumors. 4 more rounds of chemo and the next PET showed "No Evidence of disease". I asked about the pending surgery and was told by my Oncologist that he would not recommend it. He said the risks involved in the procedure were not worth it. He said there was no research that supported the idea that the resection would in anyway extend my life. This was in "my case" of course. Without any visible mets in my liver, there was nothing to operate on there. That was Jan.2010. I had 2 more rounds of full chemo, then started on maintenance. I get an infusion of Avastin every 2 weeks. I also get a PET scan evvery 4 months. My last one was in early Nov. 2011. I am still living with NED. My doctor tells me I have responded remarkably to the chemo treatments. I believe I owe that to God and all the prayers said on my behalf by my family and friends.
Every time I have a Pet scan coming up I get really scared. I have not asked my doctor for a prognosis and he has not volunteered that information. I get down...then I tell myself, I
A year and a half ago I was told I was terminal. I'm still here. (I responded well to some palliatative radiation therapy). I had a reoccurence a few months later. More radiation. Now a possible reoccurence again. I also had to have surgery for a benign rectal mass this year separate from my lymphoma. My oncologist has stated that I have slightly less than a 100% chance of a reoccurence in two years. Not good eh! I'd be lying if I didn't admit it is often on my mind. However, I really am enjoying life and feel pretty good right now. The lesson that most of us learn over time is to enjoy each day as much as we can and live in the moment. It is all that anyone really has. We (healthy or unhealthy) can focus on the negative or make the choice to focus positively. I say this acknowledging that it is good to let our fears and anxieties out and accept them. We need to work through them. However, being thankful, appreciative, and letting other's we care for be in our lives can make the difference for all of us.
I had stage 3 colon cancer. I went through chemo treatements and has come back in a couple of lymph nodes. I will be discussing treatment options with doctor. I just want to make sure to let everyone know there is always
hope and keep a good attitude, and laugh life
is to short. Trust in God Always and remember that you are always an example to somebody else and can be an encouragement to them. Pray
often read your Bible and concentrate on the
Blessing everyday. Know that you are be lifted up in Prayer everyday.
I have ongoing recurrances of breast cancer, so only on my chest wall. During 3 years of treatments I have never really felt cancer free. It makes me sad to know that so many people feel responsible for their stage 4 cancer. You say they feel guilt or shame. I strongly feel that if the work of getting through phases of treatment and phases of cancer was not something that a person accomplished by their strength or fight, perhaps they would not have to feel guilt when the cancer returns. I am not, never have been and never will be a cancer survivor. I am a person living with cancer and it is not my fault. And Kim, what ever else you do now, tell your mother that you love her and that you will miss her when she's gone. Don't wait until it is too late. Say it now and say it often. Best wishes to you and your Mom.
Mom has stage 4 colon cancer, mets 30 percent to liver. Had colon resection, one set of chemotherapy, lungs and body multiple blood clots, to weak to do any more treatments, no appetite. What now?
I had endometrial cancer surgery June 24 and was ask to start chemo and radiation due to the 7 cancerous lymph nodes found outside the uterus wall. I turned down the chemo & radiation and opted for nutritional therapy and exercise. I started with Lorraine Day, an orthopedic surgeon who cured herself without chemo and radiation or surgery, you can google her or Mike Anderson Healing Cancer or Ty Bolinger, Healing Cancer Outside the Box. All have wonderful inspiring stories and used alternative methods. Also John Hopkins has come out with an article on alternative methods for treating cancer. My last five months have been healthy with lots of energy and good quality of life, thanks to the research for other alternative methods to cancer treatment. Blessing to all
my wife had breast cancer 1999-2000.surgery,chemo,radiation,then she got colon cacer in 2006-DEC.31,2008,she was being treater for colon cancer,when the oncologist at the 11 hour said it may have been breast cancer.can't help feeling she may have been mi-diagnosed
What helps me is this reasoning: I have been dealt a difficult hand of card, I must not add to this anxiety, sleeplessness, negative emotions, fear,selfpity, discouragement, depression.
So what I do is to be kind to myself, talk nicely to myself and move towards good feelings, distraction and sleep. I have not told my friends nor my original family about my disease, because I do not want to be reminded of it by their questions when maybe I am not thinking about it at all. Try it!My good thoughts are with you.God bless
Big warm hugs to Laura, Joyce and everyone else!! We're all in this together even though each one is an individual....For now, I'm feeling good and very thankful for every day that I'm alive! I've been reading a very interesting book that my sister-in-law, an RN, gave me to read....It's "Love, Medicine and Miracles" by Bernie S. Siegel, MD. The book has been encouraging to me and I think you would enjoy it,too. It gives hope, which we all need! Wishing each of you courage, hope and love as we are coming into the Christmas season...God loves us all even though we don't understand why some things happen as they do.
So glad to find this site about when cancer returns. My colon cancer was found in 2009 of Aug, and I like most of you had the surgery ending with a colostomy then 6 months of chemo. I have been NED until two weeks ago when a tumor was discovered in the mesentery. I am now waiting to go for a biopsy and then the results. I am very upset, mad, hurting, and all that goes with the return of cancer. Also my biggest concern is I am alone almost all the time although I live with my son and his wife. Any suggestions to meeting people who would like to stop in and visit me in case I get too sick to help myself? God Bless All of You and my Prayers go out to all Joyce
So sorry Laura - hugs and warm thoughts are flying your way. I also sometimes put off calling the Dr. because I am afraid of what will happen - usually there is something positive that they can do to help. There have been a number of times when I thought I was near the end, but with further treatment my health stabilized. I hope that happens for you. I will think of you on Friday and send healing thoughts your way.
Happy Thanksgiving all. Hoping for some feedback and reassurance. I was diagnosised wit 2 types of breast cancer a year and a half ago. Invasive lobular her2pos and invasive ductile in other breast. Double mast and chemo etc.. then have been doing cat scans every4 months-alllear! Yeah! But about 2 months ago started dropping weight fast, chalked it up to stress and fatigue. Now I'm down 36+- pound and a 5'11" ft skeleton. Besides looking really ugly am scared cancer is back and eating me from the inside out. Finally called doctor (I know should have sooner) and have upper endoscopy this friday. Any hugs out there?
Thank you all for sharing your stories and concerns. It really helps to know that others care. To Pat - I have had carcinoid of the small intestine for 27 years. It had initially spread to some lymph nodes. I was 33 when I was diagnosed and am now 61. It has been in my liver and many other places for about 15 years, and I too have the symptoms of carcinoid crisis. There is so much hope with this type of cancer because it can be quiet at times, then flare up. I too live with a fear that few can understand, but also with much hope and thanks for what I do have in my life. Dr.'s are often unlikely to say how long a patient has to live, because each situation is so different and then there are cases like mine. My thoughts are with all of you.
Hi, I am so glad I found this Metastatic living with Cancer. I have been in an anxious state(although I have been trying to be positive about it) for the sake of my husband and children. I was diagnosed with a Gallbladder Cancer, stage 11 in Oct. 2010, after gallbladder was removed. Severe infection set in after surgery secondary to a fistula or hole incurred in surgery. I had to undergo life threatening treatments including 6 consecutive days of surgery to remove the infection(Necrotizing Fasciitis. I was told I almost lost my life. It took me a long time to recuperate but in God's goodness and my GI surgeon I recovered. It was not until May 2011 that I received combination chemo/radiation therapy for the cancer. Seventeen days of treatment went on without any severe side-effects. My Oncologist and Radiologist thought I had received enough treatment, so for 5 months, I was without treatments. On my follow-up Pet SCan and biopsy, it was found that the cancer had recurred in the gallbladder fossa(same area where the gallbladder was located and adjacent areas including in the margins of the liver. Received chemotherapy(Gemcitabine and cisplatin - resulted in very low blood count, increase liver test incl.bilirubin.I was given 2 Units of blood which made me feel stronger and able to do light house work.I was not told of how many months or years I have to live but I have been worried about this. Your posts have given me hope. Thank you. God bless you all.
I've never seen this before! I was diagnosed in Jan.,'07 with breast cancer and lymph node involvement (19/23)did all the treatments for almost that whole year and was cancer-free! Last summer (June,'10)I found out at Mayo Clinic/Rochester that the cancer had come back in my abdomen--actually called peritoneal cancer and now I am doing chemo again (am on Xeloda now)and am doing quite well. My future is totally unknown...but I have terrific support from family and friends and I'm feeling good at this time and my tumor markers are going down....but it still hangs over me that I can not be cured, only treated. My life is in my doctors' and Gods' control! I'm thankful every day that I'm alive and that I feel good and I'm enjoying life even though I know this probably won't always be this way....I don't dwell on it...I don't have to think negative thoughts, but postive as much as I can. Best wishes to all of you....
I have carcinoid cancer and had a tumor removed from my small bowel in July 2010--I have not met or talked to any one else with the same diagnosis--I would like to hear from from others with this cancer--I am doing well but it is in my liver and I have the "syndrome" symptons at times
I have metastatic colon to liver and was given3 months to two years. Am now on 3 and 3/4 years and give thanks for every day - looking forward to five years1
Bless you all.
Believe me it does not get any easer fighting the return of Prostate cancer as it was, when I started 6 years ago. I'm In a test trial and # (PSA) has dropped from 16 to 1.04 in 1 (LONG) year.
For Tom - I googled Stephen Jay Gould's essay and found it in its entirety in a very user friendly PDF file. Thank you for the suggestion. I will share with my oncologist. (Who by the way is young, hopeful, and believes that assigning staging and/or timeline predictions is old school...) My best to you and yours. (I'm into my 2nd year of metastatic cancer and have outlived the stats quoted by my FORMER oncologist by at least 18 months!)
Over 5 years ago I was disgnosed with lung cancer and subsequent surgery having my left lung removed. A year ago the cancer reappeared (stage 4, metastic). I've had radiation treatment and chemo this entire year with some needed breaks. (all treatment at VA Hosp). I often feel like I'm out on a limb by myself. I get little feedback as to my chances for surviving a period of time - 6 mo. 1 yr, or multible yrs, which I experience anxiety/depression about often. LOST IN SPACE abou
Thanks for addressing this issue. Those of us with metastatic cancer are often ignored. While I still have hope, I am triple negative and have Inflammatory Breast Cancer, so my prognosis is pretty grim. In the meantime, I have found a great group of friends and supporters online and at home, and these women are the only ones who really "get" my situation.
I echo the suggestion to join a support group. Doing so has improved the quality of my life immensely. I have a wonderful and supportive husband, family and friends, but having people with whom I can discuss anything at all, without hesitating or worrying about being judged is incredibly important to me. I urge anyone reading this to look until you find a group of friends who are experiencing what you are.
I am reading your comments with appreciation and gratitude. I have stage 3 triple neg. breast cancer. I had chemo, then surgery with 6/30 positive nodes, so I am on more chemo, then rads. My doctor said I have close to 100% recurrence within 2 years. For me is it not if, but when this cancer will spread, so although I am not in your group yet, looking at how quickly this cancer has spread means I probably will be. I am not fatalistic, just realistic, and live each minute with as much joy as I can muster. I have not been able to share these thoughts of recurrence with anyone before, and Thanksgiving seems a good time to do it because I am so very grateful for the treatments we have now, and the groups such as yours. Thank you.
Soon it will be 10 years that I have been living with Stage IV metastatic breast cancer to liver and bones. (Breast cancer was originally diagnosed 18 years ago at Mayo Rochester.) I am so very grateful this Thanksgiving Day for every day of these 10 and 18 years. There have been ups and downs over the years, but even now many doctors say that I do not look like a person with cancer.
Nevertheless, my local oncologist tells me that I have now had all the 'big guns' of chemotherapy, and the last three have not helped. So I am eagerly looking for some other way to combat the cancer within me. I would greatly welcome any suggestions! Thank you -- and I hope you are having a meaningful Thanksgiving Day.
A good article thank you. Please address a cancer treatment side affect Radiation Induced
fibrosis lung and Rt side of heart. Thank you, Dallas
At age 48, I was diagnosed with stage 2, lymph node involvement. Treatment went well, and was considered "cured". Summer of 2010 found enlarged lymph nodes in the neck which ultimately led to diagnosis of metastatic breast cancer in the liver. A second round of treatments, and feeling good all throughout. I am now just living life the best I can, trying to stay optomistic and upbeat. As I am estrogen receptor positive, my Oncologist has me on an anti-estrogen Rx. I am paying a little more attention now to my diet, and vitamins, etc. and hope to have good results on Monday when I have my next CT scan. Results so far have shown shrinkage of tumor/lesion but I of course would like to receive the news that it is no longer visible.
Wish me luck!!
When I clicked on the message I never expected that the topic being discussed was metastatic cancer so is this fate or what? I'm awaiting results of my last mammogram. It appears as though another lump was found in the same breast previously operated on. I don't know how to feel, I have been high spirited all along through the chemo,radiation and medication. However, I thank God for permiting me to see another day. Happy thanksgiving to all.
In 2006 I was diagnosed with stage II colon cancer. I was considered to be "cancer free" until February 2011 when a tumor was found on my liver (metastatic colon cancer). I had liver resection surgery in June and so far so good. All of the feelings described in the article are so true. It was much more difficult to deal with the cancer for a second time. Thank you for recognizing this issue.
fortunately i was able to find a treatment on my own that i suggested to my doctor ! i have malignant melanoma stage 4 that metastaticized
5 years after having a breast tumor and my lymph nodes removed . i was tested and found to have the BRAf V600 mutant melanoma gene , and was able to aquire a drug called VEMURAFENIB (ZELBORAF) which was offerred to the public after the FDA stopped phase 3 clinical trials on AUGUST 17 2011 and approved it's use for patients such as myself with the mutant gene! it seems to be shrinking the tumors and i really have a lot to be thankful for ,this THANKSGIVING DAY! so keep doing your homework and never give up!
I'm 46, and almost one year into life with metastatic ocular melanoma. Being metastatic makes you not only different from the rest of the population (no surprise), but different even from other cancer survivors. I am already where they hope to never be.
Before I was metastatic, I was not fond of the "hope" messages surrounding cancer -- hope for a cure, hope for life, etc. It all seemed rather trite. Now I have a very distinct personal definition of hope. It's not a grand, sweeping horizon of wonderfulness, but rather a teeny sliver, a door cracked ever so slightly. With about a 5% chance of living another 5 years, hope for me is a rather simple, not terribly emotional "yeah, maybe..."
I encourage everyone, the patient, the spouse, the survivor, to read the brilliant essay "The Median Isn't the Message" by Stephen Jay Gould. It is a brilliant piece from a writer facing his own dismal statistics.
Meanwhile, the Russian proverb says it all: "Pray to God, but row for shore."
Keep rowing.
Thank you for a most helpful column.Your suggestions for handling metastatic cancer are ones which I have found to be successful for the most part.I was first diagnosed in 2004 with breast cancer, had a mastectomy and was told "we got all the cancer". Five weeks later I was told that an error had been made and that I never had cancer to begin with! I was devastated but always on guard after that not quite knowing who to believe. In 2007 after 6 months of complaining of a stomach pain, I was diagnosed with metastatic breast cancer to the stomach lining.I certainly experienced the feelings of loss you speak of but also of anger. It was quite the journey to work through all of this.I once read an article of a group that formed to deal with their lung cancer. They all took the same medication faithfully, of course, and met once a week for coffee always marveling that they were all there every week. I too find that this is a day by day, week to week life. I do not plan ahead much but extract every bit I can from each day.Luckily I feel well so far and I give thanks at each day's end that I have lived my life with those close to me.I wish that for anyone else in this position.Happy Thanksgiving to all of you celebrating in the U.S.
Good luck Lucie and happy Thanksgiving. I have prostate cancer and am looking for an online support group. Jon
The email lists on ACOR.org: http://acor.org/ are the best... I am on the esophageal cancer list, and it has been hugely helpful to me.
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Exeter Hospital: State's request for patient records violates N.H. law
Thursday, October 4, 2012
An attorney representing the hospital speaking at a press conference Wednesday said he was "astonished" by the Attorney General's accusation they were obstructing the investigation by seeking guidance.
The hospital filed a petition in Merrimack Superior Court on Aug. 29 asking a judge to grant a protective order shielding the medical records of its patients from state health officials.
The state is still trying to determine the scope of the outbreak, which surfaced in May, and has led to infections in at least 32 Exeter Hospital patients.


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