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Hamilton Beach 4-Quart 6-Speed Brushed Stainless Steel Classic Stand/Hand Mixer
Item#: YYD1-64650 | Model#: 64650- List Price:
- $50.99
- Instant Savings:
- - $8.50 (17%)
- Price:
- $42.49
- Shipping:
- Usually Ships within 48 Hours (Details)
Stand/Hand Mixer Product Details
- Top of unit separates to double as a hand mixer
- 290 watts peak power makes mixing easy
- Shift & Stir bowl
- Versatile attachment set offers solution for beating, whisking and hooks for dough
- 6 speeds and QuickBurst button varies mixing needs
- Bowl Rest mixer stabilizer
- Includes 4 qt. stainless steel bowl, traditional beaters, whisk and dough hook
Manufactured by: Hamilton Beach
Warranty provided by: Hamilton Beach
Mfg Part No: 64650
UPC No: 040094646500
Box Size: ( Length:10, Width:12, Depth:16)
Shipping Weight: 7.7500 pound(s)
Dimensional Weight: 9pounds
What is Dimensional weight?
Click here for full warranty and support information - Limited Warranty: A full text version of the limited warranty
may be obtained by mailing a self addressed, stamped envelope to the
address below and requesting the warranty for item number: YYD1-64650
Warranty Information
7795 W. Flagler St. Suite 35
Miami, FL. 33144 - Hamilton Beach logos are registered trademarks of Hamilton Beach. All others trademarks and copyrights mentioned herein are the property of their respective owners.

subset: commoncrawl


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4280 Tennyson St.
Denver, CO
- Neighborhood: Berkeley
- Cost: $ (average entree under $10)
- Cuisine: Contemporary
Endearingly coined "a book shop for wine lovers, a wine bar for book shoppers." Sample a variety of house-made hors d'oeuvres or a Corvus Coffee hops-brewed beverage at this cozy nook of an eatery.
Mon-Sat 10 a.m.-10 p.m.; Sun 10 a.m.-4 p.m.
Special Features:
- Handicap Accessible
- Free parking
- Vegetarian
- Kid friendly
- Outdoor seating


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This new comedy concerns four lost New Englanders enrolled in a community drama class. As previously announced, the cast will include Obie Award winner Reed Birney, Tracee Chimo, Tony Award nominee Peter Friedman, Obie Award winner Deirdre O'Connell, and Obie Award winner Heidi Schreck.
The production will feature scenic and costume design by David Zinn, lighting design by Mark Barton, and sound design by Leah Gelpe.
For more information, visit www.playwrightshorizons.org.


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I'm enjoying ordering from MJM MAGIC. I live in Israel and I get my items very fast!! They're the first magic store that I choose and I don't need...Read More ->
The service is super perfect and contacting also is very very good that why i always order from this great site i love it and special thanks for all...Read More ->


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I ordered only one item just to try them out. But the the service they was gave looks as though I had a huge purchase. Brandi and Jeff are really...Read More ->
Hey guys! I've just received the package I ordered. The speed of delivery was incredible! Btw, I live in Malaysia. Thanks MJM!Read More ->


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I need help. i have no idea whats going on its starting a new shoot, but the tip looks like its dying. This is a DeRoose Alata |
Follow-Up Postings:
- Posted by hunterkiller03 9 (My Page) on Wed, Oct 9, 13 at 0:53
Well, to have a better idea for people to help you. You have to say if you repotted it or still growing in the same pot when your purchased your plant. For how long you have your plant? If repotted, what soil you are using? What water you are using to water your plant, like distilled, rain-water, R/O water, tap water. And how often. It depends also where your plant is located. It affects how much light its getting. Or is hit by the draft of air vents. Such detail are crucial to have better idea what's wrong with your plant. It could also be it is in shock after your received it, a change of climate from the nursery to your home will have detrimental affect to your plant. |
I received it June 10th. It is in a peat perlite mix. Has sphagnum moss top dressing. Have not repotted. Still in 4 inch pot. Use rain water exclusively. Temp and humidity is same inside and out. It comes in at dusk as it has for over a month. For supplemental lighting. It had a bagworm eat a lid off one pitcher my flytrap ate it. It is drenched every 2-3 days. It has today sprouted yet another offshoot and one that looks like it is climbing the vine also. All the other leaves look as they did when the sprouted. Still growing new pitchers. Produces A LOT of sap to the point it drips on the floor. Everything seems fine except the last leaf and the new one. The last leaf hasn't even unrolled and the new one has already aborted it pitcher and started turning black. Anything else you might need to know just let me know. This is my first nepenthes but not first cp. Thank you for any help in advance. |
Bottom left pitcher in last pic is the one with no lid btw |
Check for insects? That's the only thing I can think of right now. sounds like you're doing every thing else right. |
It only had the one issue with bagworms and the flytrap took care of it. There is a colony of ants that love it during the day. Could it be a change in the temps and the cold rain we got. After the rain it dipped into the 60s after being in the mid 80s now its in the 70s. What do I need to do about the last two leaves. Could that be caused by buying a trimmed older plant? I don't know if that happened but it is possible. And can the new leaves be a sign of it dying? I have everything else down to a fine art with it and even thinking of getting a cape sundew and nepenthes rafflenasia giant form next February. I don't want another though if this is the easiest and it is dying. Also later will show pics of babies growing or what I think are babies and to see if it is one growing on the original vine. And thank you again for all the help. |
Hmm just did a figure here and it says zone 6 always send it in 7b before sorry if that makes a difference |
For now just keep an eye on it. I'd wait a while. These can not be allowed to get too cold so if it's outside keep and eye on the temps. i wouldn't say it's dying just yet! |
Been keeping an eye on it and it has never been under 65 I have a thermometer and hygrometer right next to it in the house where it stays and the humidity gets down to 68 and usually its just shy of 80. The temp in the house because I have it hanging it stays about a constant 70-75. It has been in this shape for a week just thought the second to newest leaf was deformed or something but then when this last leaf came out prematurely I have been keeping an eye on it. And only 12 hours after the last leaf came out the pitcher looked like it does in pic 1. But it is not aborting previous pitchers still forming. And from what I gather as long as your leaves look good and its pitchering its happy. But something is definitely not right. |
Been keeping an eye on it and it has never been under 65 I have a thermometer and hygrometer right next to it in the house where it stays and the humidity gets down to 68 and usually its just shy of 80. The temp in the house because I have it hanging it stays about a constant 70-75. It has been in this shape for a week just thought the second to newest leaf was deformed or something but then when this last leaf came out prematurely I have been keeping an eye on it. And only 12 hours after the last leaf came out the pitcher looked like it does in pic 1. But it is not aborting previous pitchers still forming. And from what I gather as long as your leaves look good and its pitchering its happy. But something is definitely not right. |
- Posted by hunterkiller03 9 (My Page) on Fri, Oct 11, 13 at 3:27
There is something I have experienced tree times already, twice from a complex hybrid called N alata var. Elongata & once with N. rafflesiana forms. The tip dies for some reason, but there is a new tip growing from the base. It has left me scratching my head what the devil happened. |
Well mine I've come to the conclusion has to be a DeRoose Alata due to it being sold as 'Alata' which has been confusing for many for a while. How long did it take the tip to die? This one is putting out a new leaf today and the leaves are becoming smaller and smaller. So far the pitcher look healthy as could be. Even have one that's dripping nectar right now. Thinking about just leaving it in the house at this point. And how long had your babies made it or still going strong? |
- Posted by hunterkiller03 9 (My Page) on Fri, Oct 11, 13 at 22:26
I'm familiar with that particular cultivar, used to have it several years ago. My cat ate it (stupid cat!). Here's something if you don't know about this particular plants: The same confusion happens with N. x ventrata, it is often sold & confused with N. ventricosa. I've bought plants that are being sold as ventricosa & to my disappointment turns out to be N. x ventrata. So most people thinking they have a ventricosa, are more likely to have a N ventricosa x burkei hybrid. |
Yea that's what happened to me paid $20 for an alata got to reading and research hung and found it to be DeRoose a late but oh well I'm still happy other than this crazy stuff happening. Update on new leaf bright green edge but still looks like the last two. |
- Posted by hunterkiller03 9 (My Page) on Sun, Oct 13, 13 at 3:35
One more thing. I made a mistake on my last comment. regarding ventricosa. Most ventricosa sold to the public is a hybrid between N ventricosa & N burkei. I goofed during editing my comment. Still your plant is beautiful, it makes intense red pitchers. |
Yea one of the peristones is almost black it even gets red blotches on the inside of the pitcher. Haven't figured out how to get a pic of it yet. Part of the reason I'm trying to keep the poor thing going. Looks like I have a total of 3 basal shoots and they are showing no signs of slowing. How do they fair in windowsill during the 0-20 that's putting a harsh winter in there. Is there anything I could do to maybe get it to snap out of this bad spot? Newest leaf coming out is taking longer than usual, but actually has some nice bright green on it now. They seem to be getting slightly better and better. But it was in a lot of sunlight spread throughout the day so it never burned. How can I acclimate that? |
I would just give it bright, indirect Sun. A foot or so away from the window. Early morning or late afternoon Sun is O.K. |
K thanx |
Well thank everyone I'm up to five basal shoots and three stem shoots near the growth tip so I'm guessing all is good though no new pitchers have formed and two are now half dead but I'll leave them until they're completely gone unless it accelerates the death of the pitcher. |
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On The Go Tours offer an exciting range of guided group tours, fun family adventures and private tours in Egypt. In addition to city breaks, day tours and opportunities to witness exciting events such as the Abu Simbel Sun Festival. If you have something special in mind, we are also specialists in planning holidays which are 100% tailored to individual requirements.
We believe the best way to experience a country is through the eyes of the local people and therefore all our tours are lead by English speaking Egyptian Tour Guides, who are also degree qualified Egyptologists.
Our team of well travelled staff have planned tours based on years of research and experience and ensure that all our tour hotels and support services are regularly inspected. Simply put, when it comes to travel in Egypt, we know our stuff!
As an AITO, ABTA and ATOL bonded operator, we ensure that our standards of service are high and that payment for your holiday is adequately protected.
For your peace of mind, rest assured that as members of ABTA and ATOL its safe to book your holiday with us. The air holiday packages featured on this website are ATOL protected by the Civil Aviation Authority. Our ATOL number is ATOL 6109. ATOL protection does not apply to all holiday and travel services. The remainder are protected by the Association of British Travel Agents (ABTA). Our ABTA number is W4479.
Furthermore, On The Go Tours is a member of the Association of Independent Tour Operators. The Association represents Britain's leading independent tour operators and encourages high standards of quality and service. We abide by the Association's Code of Conduct and adhere to the AITO Quality Charter which can be viewed on aito.co.uk. Visit the website to find out more about the Association or call (UK) ++ 0208 744 9280.
We are also a member of the Australian Travel Compensation Fund (TCF).
This short and sweet tour of ancient Egypt is perfect for families travelling with teenagers, taking in the legendary of...
See full tour itinerary


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Darkness Plot New LP, The Horrors Return + More
May 25, 2011
After announcing their reunion in March, The Darkness are set to record a new album for 2012 and embark on a world tour. "There will probably be a Darkness album, but somehow we'll get new music out before then," frontman Justin Hawkins told Q Magazine (via NME). …
Read on


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Wed, Mar 11, 09 at 21:59
I have Arrowleaf Elephant Ears, Xanthosoma sagittifolium
Can grow 10-12 feet tall Likes shade To zone 7 I have several plants. Please see my trade list, email me |
Follow-Up Postings:
- Posted by cntrygrlathrt 5-6 (My Page) on Sat, Mar 14, 09 at 0:41
would like to trade, if you are interested. I have amaryllis, the hardy or "surprise lily" as its is sometimes called. please e-mail - Billie |
- Posted by onlychange 7b NC (My Page) on Sun, Apr 5, 09 at 20:46
xantho isnt hardy to 7. xantho is a 9 |
- Posted by joeboxer1983 5a (My Page) on Wed, May 19, 10 at 1:40
hello I am interested in this plant, I have a couple kinds of colocasia, and flower bulbs ferns and woodland plants |
- Posted by victoria3333 z9atx (My Page) on Tue, Jun 15, 10 at 21:07
I know this is a very old post but was wondering if you still would like to trade for some very large pink Amaryllis |
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text:
Physician Ownership Notice
As part of its continued commitment to providing patients with accurate and relevant information so that they may make informed decisions regarding their care, Community Hospital wants you to be aware that:
Community Hospital is a limited liability company in which physicians possess ownership/investment interests. Therefore, Community Hospital meets the Federal definition of a physician-owned hospital as specified in 42 C.F.R. § 489.3. We have provided a list of Community Hospital physician-owners/investors to download below.
If you have any other questions, please contact: Community Hospital at 405.602.8100.


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Job Description: Stitchers in the Costume Studio perform the majority of the construction, sorting, cleaning, mending, and altering work for costumes of mainstage productions. Stitchers also work as Wardrobe Crew Chiefs, a paid position on mainstage productions. Minimum of 3 hrs/week scheduled time (plus additional hours when serving as Wardrobe Crew Chief).
Preferred Skills/Attributes: Experience in sewing, common alterations, and other theatrical costuming techniques; time management skills; attention to detail; qualification on all Costume Studio equipment (provided by the department upon hiring); First Aid and Adult CPR certification (provided by the department upon hiring).
Preferred Experience in the Department: Some experience working with department faculty and staff members in coursework (especially Theatre 115: Introduction to Stagecraft) and/or productions.
Availability: This position is a one-semester or one-year position, extendable for a second year upon successful reapplication. It is open to students who have completed at least one semester at Grinnell College. Students in this position may study abroad and then return to the position afterward (upon successful reapplication). Extended nighttime and weekend hours required when serving as Wardrobe Crew Chief.


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Olga Kurylenko and Tom Cruise star in "Oblivion."
"Oblivion" features Morgan Freeman (left) as Beech.
Tom Cruise, who plays one of the last men on Earth in "Oblivion," has been playing maverick action heroes for half his life.
If you've never seen "Total Recall," "Minority Report," "Wall-E," "Prometheus," "Vanilla Sky," "2001: A Space Odyssey," "Moon," "War of the Worlds," "Blade Runner," "District 9," "Predator," any of the "Star Wars" or "Matrix" movies or "Independence Day," you'll exit "Oblivion" convinced you've experienced the greatest …


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It's not all smooth sailing
The latest recruits of the South Gippsland Yacht Club are learning that sailing involves a lot more than just sitting in a boat and enjoying the ride. This week the students, aged between 7 and 12 years old, have been in and out of the water learning the technical and physical skills of controlling a sail boat.
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One of the instructors for the lessons, Katie Russell, says for first time sailors manning a boat can be intimidating.
Katie is speaking from experience, she recalls sailing into large waves breaking on a sandbar as a young tacker, the mast of her boat snapped and she was flung from the boat.
"That was me not knowing the surroundings but had I known, I wouldn't have done it. I've learnt from it, you always learn from your mistakes in sailing," Katie says.
Instructors tackle the fear of first time sailing by taking everything in small stages so students don't become overwhelmed by the boat or the conditions, she says.
Vincent Trease, a 10 year old from Kardella, had sailed once before he started training with the South Gippsland Yacht Club.
He tried his hand at steering a sail boat for the first time, as it was towed behind one of the clubs motorised boats.
"It's really fun but when [the boats] make big waves it really scary sometimes," Vincent says.
Ivan Abbott has been sailing for over 20 years and coordinates the sailing program.
He says many people aren't aware of the amount of physical and mental effort that goes into learning to sail.
"I've got to the point where I still don't know what I'm doing but I can still get out there and have a sail," Ivan says.
"When you look at it, it looks simple but there is a lot of nitty gritty in it and it's a lot harder than it looks," instructor Katie agrees.
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- Rains hit Gippsland dairy pastures
- Farmer Wayne Cunningham from Gippsland has stopped selling raw milk.
- Gippsland farmers Lionel Rose and Bill Bullmer question co-existence between mining and agriculture. Mine proponent Rob Bishop says it's possible.
- Wayne Bridges conducts heritage tours from the Port of Sale on The Rubeena, a Sydney style ferry
- Cattle grazing trial in Alpine National Park scrapped by new Labor Government


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Cinema in Bahia!
This photo was shot on film. Taken by fabioduarte77 with a Canon EOS 300 loaded with Kodak T-Max 400 film in Salvador, Brazil. These tags describe this photo: p&b and brazil. Date: 2004. Time: Afternoon. This photo can also be found in the album Cinema in Bahia!.Please login to get more out of this site
You are currently not logged in, do so now to add comments, like articles as well as photos, submit to competitions, translate articles and gain access to unlimited photo upload! If you are not registered yet, go here to find out more about Lomography and join now! If you just want a limited account for now you can use Twitter or Facebook. We would love to have you as a member here!
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Liking photos helps us to present the best ones to you and others. 18 people like this photo. 18 people like this photo: bravopires, atzipinki, druid, chippo, tsingtao, blurry, why-yu, red_constructor, atria007, lauralaula, gatokinetik-o, welliamancio, mafiosa, dj3555, talking_head, rewd, gengorou, and jsmcbride.


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Sparkman Park
Primary tabs
Year Established:
(1 vote)
In busy city park, some open and some wooded, stream in play on 4 holes. Watch for pedestrians. #16, 17, and 18 behind fields to the north of parking lot.
Course Details
# Holes: 18
Target Type: Mach V
Tee Type: Concrete
Course Length: 5,130ft
Alternate Length: 6,000ft
Hole Length: Under 300ft: 9 | 300 - 400ft: 7 | Over 400ft: 2
I-65; exit 325 (Thompson Rd.0. West on Thompson Rd 1 mile then north on Hwy 31 to a left at 1st light (Hayes St.) to the park on right. Follow big curve to right (Adams St.) then left and park in big lot.
Parking Lot:
(-86.936292,34.427116 )
Email: Marla Lenox
Contact Phone #1: 256-498-5095
Course Map
This course has no maps.
Course Photos
This course has no photos.
No Course Reviews
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- Univ. of Ala. Huntsville (UAH), Huntsville AL US
- Sportsplex, Athens AL US


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I've always loved stuffed mushrooms since I was a kid. Earthy, salty and cheesey, most of the time you can pop the entire thing in your mouth before your mom notices you are spoiling your appetite.
The filling is flavorful and the mushroom is cooked perfectly, making it the perfect vessel to hold all that stuff.
They are a fancy addition to any cocktail party and can also serve as a great side dish.
They are best served 10 minutes out of the oven, but taste just as good room temperature.
What did you think of this review?
Use Trust Points to see how much you can rely on this review.
1 lb large white mushrooms
1/2 bread crumbs
2 cloves garlic minced
½ or 1 small white onion finely chopped
1/2 cup Pecorino Romano cheese, grated
2 tablespoons parsley, plus more for a garnish
1 tablespoon fresh chopped oregano
Salt and pepper
Olive oil
Preheat oven to 400 degrees.
Clean off mushrooms and remove stems, reserve. Drizzle a baking sheet with olive oil and arange mushrooms caps on it.
Chop up mushroom stems. Heat a large skillet with olive oil, sauté stems for 5 minutes. Add onion and garlic, salt and pepper, for about 5 more minutes. Let cool slightly.
Mix in bowl mushroom mixture, breadcrumbs and pecorino Romano. Spoon into mushroom caps, patting down gently to compact stuffing.
Bake at 400 for 25 minutes. Let sit for five, so the juices in the mushroom become reabsorbed and it doesn't scorch your mouth.


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Former candidates issue double endorsement of Atwell, Dorfman
Date: March 26, 2013
by: Roger Drouin | City Editor
Two weeks after the March 12 election, community activist Linda Holland and Pastor Kelvin Lumpkin issued a dual endorsement today for Suzanne Atwell and Richard Dorfman, two of the three candidates in the City Commission at-large run-off.
Atwell, Dorfman, and Susan Chapman are vying for the May 14 run-off.
The duel endorsement shows an effort to fuel voter support for both Atwell and Dorfman, who are facing off against neighborhood leader and slow-growth advocate Chapman.
In a press release sent Tuesday, March 26, both Holland and Lumpkin said they believed a dual endorsement — combined with a get-out-the-vote effort — would make a difference in the election.
"One of the things I've learned in my 30 years of civic engagement is the value of teamwork," Holland said. "And Suzanne Atwell is an experienced and essential team player.
Holland added, "After debating our way through 12 public forums I've grown to admire Richard Dorfman's 'can do' attitude and robust perspective on the issues."
Lumpkin said he is ready to pitch in with the campaign effort of both Atwell and Dorfman.
"Their combined experience and positive outlook will serve our city well," Lumpkin said. "I'm rested and ready to throw my support behind the two candidates I feel are best suited to lead Sarasota: Suzanne Atwell and Richard Dorfman."
Atwell supporters pointed out that the double endorsement was an unusual display of bi-partisan unity for Holland, a Democrat, and Lumpkin, a Republican. "While city elections are non-partisan, party politics can play a role in the process at times," read the press release sent Tuesday.
Currently 6 Responses
- 1.
- Dorfman team names pinch hitter. This is a bad move for Suzanne Atwell that may put her in danger of losing her seat to her new team leader. However, I still like the ladies best and will stick with them both. 5:20_3.31
- 2.
- Dorfman Team names pinch hitter to replace Lumpkin – I'm afraid Atwell is in grave danger now and doesn't realize the mistake she has made. I'll stick with the two ladies, thank you.
- 3.
- A "duel" endorsement? Wow, with pistols? I want to see that.
Oh, wait... maybe its just a dual endorsement.
- 4.
- I can't tell you how surprised I am over this! I mean, what are the chances - those two endorsing these two?
- 5.
- Wow -- all those backed by the black hats (to one degree or another) united against one little feisty lady! High Noon hits Sarasota... gotta know that not only must she have lots of guts, but she must really frighten those who think they can stomp her by closing ranks. This should be historic in proportions.
- 6.
- Very wise endorsements. May those two win in the runoff.
- Jan
29 SILL Global Issues Lecture
10:30 am - 12:00 pm - Jan
29 SILL Global Issues Seminar
2:00 pm - 4:30 pm - Jan
29 3rd annual Fashionistas for a Cause Bartending Fundraiser
6:00 pm - Jan
30 AJC's 2015 Winter Lunch & Learn
11:30 am - 1:30 pm
Making headlines
Did you notice a familiar name in the February issue of Southern Living magazine? -
Packing on team spirit
No one can accuse of Diane Chechik of not representing her team, the Green Bay Packers. -
Sarasota on the social map
… Well, we already knew that, right? Now apparently all of New York knows how wonderful our slice of paradise is, too.


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by Shankar Bhumkar
Developer Notes
3D Calendar Live Wallpaper is a great utility live wallpaper. This uses the OpenGL graphics for better rendering.
One of the best feature is all objects of this live wallpaper are the customizable.
Control of the visibility, speed and animation of the objects.
Packed with .JPG & .png file...


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Average Gatsby
Web Content Specialist
Greetings summoners! The IGN Pro League continues to turn out high-quality content covering the most exciting moments of competitive League of Legends play. If you havent caught one of their livestreams or YouTube videos yet, youll have new chances this week to see what youve been missing. The IGN Pro League streams their Killing Spree feature every Thursday evening at 5:00 p.m. Pacific Time. Killing Spree features full-length match ups between top-caliber teams. Commentators like HatPerson and TheRedBaron cover every moment of the action on the field, with guest commentary from League of Legends pros like Dan Dinh from Epik and Chauster from Counter Logic Gaming. As if weekly throwdowns werent enough, the IGN Pro League is also streaming the online qualifiers that determine which teams will join Dignitas, Epik, TSM and CLG.na at IPL 4 LAN event in Las Vegas, NV. Coverage includes the Round of 8, the Semifinal matches, and the Grand Finale on Sunday. Coverage begins at 9:00 a.m. Pacific Time (17:00 UK Time) on both Saturday, February 25th and Sunday, February 26th. The IGN Pro League also contains coverage of past Killing Sprees and player interviews as well as other awesome videos for League of Legends fans. Check out some of their recent highlights below: Chauster Interview: Counter to Everything Top Five Plays: Episode One Learn 2 Play: Episode Two featuring Elementz Dan Dinh Interview: Family DINHisty Stay tuned for more info on the IGN Pro League and dont forget to tune in!
Bonzai Casanova
Senior Member
Let's see what'll happen
Doom Machine
I dont normally watch streams but this I can get into
I like how they kind of pick the brains of the pro guest shoutcasters.
Lol counter everything, Here's what he'll say :https://docs.google.com/spreadsheet/...any=true#gid=0
I'm cheering for Mono eSports this Thursday / Saturday :]
The links of this in euw fforums are broken !
who will win ?
is ipl4 actually this weekend? i thought this was just the qualifiers :| ?


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The Trial Period for Android Apps Should Be Extended
The fact that the Android market offers a trial period at all is great, but that said, 24 hours simply isn't enough time to get a feel
for certain types of apps and I suggest that we make a united effort to get the trial period for apps extended. Despite the often relatively low cost of apps many users report that they simply aren't willing to pay for something that they cannot adequately try out.
Ideally developers should be able to set the trial period themselves possibly simply a varying trial period based on the category that the app falls into. For games clearly the current 24 hour period is probably more than enough, but other categories may warrant a several day trial to see how they fit into your device usage.
This change should benefit both the users and developers. The users should have a pretty solid impression of any app within a few days usage and I believe developers would see increased sales as a result as buyers would stop returning apps purely out of uncertainty.
If you agree that the trial period needs to be changed please sign on below and we'll see if we can get Google to make the Market that much better for everyone.
Recent signatures
Pete Storli, United States
2 years ago Comments: developers should be allowed to specify how long a trial they need. Also it would be nice if instead of a subscription, the user would be allowed to do a one time payment, if they didn't cancel, at the end of the trial period.
social bookmarks, Ukraine
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Full titles read: "THE RED CROSS 'OVER THERE'"
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NTSB: Pilot advised against take-off prior to crash
ANGEL FIRE, NM — Federal investigators have released a preliminary report abouit a plane crash that killed four people in Northern New Mexico. It happened earlier this month in Angel Fire. The pilot, 33 year-old John Verhalen, his girlfriend, 26 year-old Jennifer Woodward, his sister 41 year-old Sara Verhalen, and her daughter, 13 year old Chloe Jameson all died in the crash. The National Transportation Safety Board now says Verhalen was warned against taking off in the 55 mile per hour winds. The plane crashed moments after take-off.


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For lovers of Swiss Deluxe Hotels
This quiet, centrally located hotel enjoys a beautiful south-facing location just minutes from the Gstaad Promenade. Now that it has been renovated, it exudes an atmosphere of Alpine luxury. Excellent eclectic cuisine in four restaurants, 1000m2 spa and wellness complex with indoor saltwater pool, various sports activities and a range of boutiques. Dreams become reality in the exclusive "My Gstaad Chalet" with its butler and private spa. There are also attractions such as ice skating, scavenger hunts for children, etc.
Gstaad has long been a renowned sport and holiday destination where numerous celebrities have felt at home. By the same token, Gstaad has always understood how to retain that special charm of a Berner Oberland village and still has some of Switzerland's most beautiful chalets. Gstaad, encircled by the Bernese Alps, is famous for its spectacular scenery and its international events like the Menuhin Festival, the Allianz Suisse Open tennis tournament, the FIVB Beach Volley tournament and the Hublot Polo Gold Cup. North: Zurich or Basel to Bern, Highway A6 Bern, Spiez, exit Wimmis, Zweisimmen, Saanen, Gstaad. East: Luzern, Brünigpass, Highway A8 Interlaken, Spiez, Highway A6 exit Wimmis, Zweisimmen, Saanen, Gstaad. South: Highway A9 Sierre, Lausanne, exit Aigle, Col du Pillon, Gsteig, Gstaad. West: Highway A9/A12 Lausanne, Montreux, exit Aigle, Col du Pillon, Gsteig, Gstaad.


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Light the Way
Broken streetlight, Georgetown, DC. You wouldn't think you'd need a snow route, in DC in October, but I was there three days, and it snowed. In October.
This photo was shot on film. Taken by bridgetj with a Lomography Diana F+ (available in our Online Shop) loaded with Fuji Pro 400H film in Georgetown, D.C., United States. These tags describe this photo: light leaks, dianaf, colour, 120, fat roll, outdoors, urban, street, and city. Date: 2011-10-29. Time: Afternoon. This photo can also be found in the albums Diana R(obin): August - November 2011Georgetown, D.C., October 28-30, 2011.Please login to get more out of this site
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The discussion paper issued by the House Energy and Commerce Committee on January 27 contains a number of ideas on how to advance the development of new medical therapies. A few provisions apply specifically to rare diseases, including adding six months to the patent life of orphan drugs. The Committee and its staff deserve praise for its effort in bringing these ideas together. NORD was pleased to have submitted a number of position papers for the Committee to consider.
NORD's Advocacy Committee will now conduct an evaluation of the discussion paper. Once that process is completed, we will share our position with the Committee. We will continue to work closely with the Committee and members of the House and Senate as legislation moves forward.
Nothing is more important to the rare disease community than providing an environment conducive to the development of new therapies and access to them. We look forward to working with other like-minded advocates on these issues.
WASHINGTON, D.C., January 9, 2015—The National Organization for Rare Disorders (NORD), a leading independent, non-profit organization committed to the identification, treatment, and cure of rare disorders, has announced six new research grants to advance safe, new treatment options for rare disease patients and their families.
With the new grants, NORD upholds its time-honored tradition of funding basic and translational research in rare diseases. By providing oversight of ongoing research projects as well as the generation of seed grants for new research projects, NORD is a leader in promoting life sciences research in rare diseases. Throughout its 26-year history, NORD's research grant program has administered more than 150 grants.
Grants are made possible by allies of the rare diseases community, including those mentioned below, that have generously supported research in rare diseases by donating to a NORD research fund. As the funds mature, NORD issues research requests for research proposals and disseminates information about the opportunity.
Researchers who are interested in applying for funding submit proposals in a competitive process in which they are independently reviewed by NORD's Medical Advisory Committee. See NORD's website (https://www.rarediseases.org/medical-professionals/research-grants) for a complete description of policies and procedures for NORD research grants.
Research grants awarded for 2014 requests for proposals include:
For the study of Alveolar Capillary Dysplasia with Misalignment of Pulmonary Veins (ACDMPV), with funding raised in coordination with the Alveolar Capillary Dysplasia Association and The David Ashwell Foundation, grants awarded to:
For the study of Autoimmune Polyglandular Syndrome Type 1 (APS Type 1), with funding raised in coordination with the patient organization, the APS Type 1 Foundation, grant awarded to:
For the study of Primary Orthostatic Tremor, made possible by donations from the OT Resource patient community and a grant from Lundbeck, Inc., and its Raise Your Hand to Fight Rare Diseases campaign, grant awarded to:
For the study of Pseudomyxoma peritonei (PMP), with funding by the PMP Research Foundation, grants awarded to:
Rare diseases present a significant health care concern: nearly 7,000 rare diseases affect 30 million Americans (1 in 10 nationwide)—the majority of whom are children—yet less than 500 FDA-approved medical treatments are available.
]]>Before an audience of 500 people, Representative Henry Waxman (CA) hailed Abbey Meyers and other patient advocates for their leadership and vision in promoting federal incentives to encourage the development of treatments for people with rare diseases. Rep. Waxman, the author and chief sponsor of the Orphan Drug Act, was one of the honorees for the event, which was a highlight of NORD's year-long 30th Anniversary observance.
On an evening that many are describing as "magical", three young representatives of the next generation of rare disease patient advocates also spoke. Megan Barron, a recent Duke University graduate; 11-year-old Brooke Foster; and 8-year-old Ian Brown talked about the rare diseases of particular concern to them – epidermolysis bullosa, mastocytosis, and Langerhans cell histiocytosis – and thanked the rare disease heroes for the work they have done on behalf of patients and their families.
In addition, by three patients and the parent of a patient -- Kathryn Bundy, Christian Jacobs, Reina Weiner, and MaryBeth Krummenacker – presented awards to senior officials from four companies for innovative products approved by the Food and Drug Administration in 2012.
U.S. Deputy Surgeon General Boris Lushniak, MD, served as guest emcee, assisted by longtime NORD adviser and board member Frank Sasinowski. Entertainment was provided by the Howard University Jazz Ensemble and American Idol finalist Siobhan Magnus.
NORD organized the meeting so that Dr. Hamburg could share with the patient advocates her vision for FDA and hear directly from them their hopes, needs, and concerns.
"I come today to ask for your help, your guidance, and your support at this critical moment for FDA," Dr. Hamburg told the patient leaders. "We welcome and depend upon input from organizations like yours."
NORD President and CEO Peter L. Saltonstall assured the Commissioner that the patient community is eager to be involved and supportive of efforts to modernize and streamline the development of safe, effective treatments.
Dr. Hamburg said there are three areas she considers essential to position FDA for today's needs and those of the future:
"Many of the products we regulate today come from outside the country," she said. "Of the active pharmaceutical ingredients in medical products Americans use, 80 percent come from outside the U.S."
Dr. Hamburg emphasized the importance of engaging internationally to share scientific data, harmonize the regulation process, and assure that critical needs of patients and families are being met.
Questions from the patient advocates covered a broad range of topics, including how FDA determines the risk/benefit ratio when considering new products and how it communicates its expectations to those developing new products.
Dr. Hamburg assured the patient representatives that their voices are heard at FDA. She encouraged them to remain active participants in the regulatory process.
"Never underestimate the impact you bring to these issues," she said.
]]>The letters are a follow-up to meetings the patient advocates had with senior FDA officials over the past few months. They include specific proposals for enhanced communication between the patient community and FDA to ensure that the voices of patients with chronic and rare diseases are heard in risk-benefit determinations and related policy decisions.
"Patients need to have opportunities to communicate with FDA medical reviewers on the risks they are willing to run in exchange for a potential though unproven benefit," said Peter L. Saltonstall, president and CEO of NORD. "For example, a patient with a serious disease and no approved therapy may have a perception of risk that is very different from that of someone who has treatment alternatives. We believe that FDA can make more informed decisions about investigational products and about which products to approve if they hear directly from patients."
The letters were sent to Dr. Theresa Mullin, Director of FDA's Department of Planning & Informatics, and Dr. Jeffrey Shuren, Director of FDA's Center for Devices and Radiological Health (CDRH). Copies were sent to Health and Human Services Secretary Kathleen Sebelius, FDA Commissioner Dr. Margaret Hamburg, and Dr. Janet Woodcock, Director of FDA's Center for Drug Evaluation and Research (CDER).
The patient advocates note that, when they met with the FDA officials in April and May of this year, the officials asked them to follow up with a proposal outlining specifics for more frequent and regular communication between the patient community and FDA on benefit-risk determinations. While mechanisms currently exist for patient input on this topic, they add, the opportunity to provide such input doesn't necessarily occur at the time that critical issues are being deliberated and may not represent a broad spectrum of patient views.
"We have had discussions at length within the patient community as to what the most appropriate milestones should be for patient contribution," the letters note. They go on to say that the rare disease patient advocates have concluded that the two milestones should be:
1) When the IND (Investigational New Drug Application) or IDE (Investigational Device Exemption) is filed and
2) Any point at which the agency (FDA) decides, based on issues related to risk, that it must disapprove or delay commencement of a clinical trial or impose an unscheduled suspension on an existing clinical trial.
In addition to laying out specific suggestions as to how and when patient input might be submitted, the letters propose that FDA create a portal on its website, www.fda.gov, where it can post specific requests for patient contributions to certain issues.
"The patient groups who have signed this letter represent a broad spectrum of diseases, some rare and some more common. But all patients with chronic or rare diseases know that the benefit-risk ratio for any new drug or device is an important consideration," said Diane Dorman, NORD's vice president of public policy. "We are pleased that the patient community has been able to band together to bring these proposals to the FDA, and that senior FDA officials have been so receptive."
NORD is an umbrella organization providing advocacy on behalf of the 30 million Americans with rare diseases, working with its member organizations, which represent patients with specific rare diseases, and other advocacy partners.
]]>Released at Major Conference, Study Catalogues Flexibility in Orphan Drugs Approved Since 1983
Washington DC, October 11, 2011 – The National Organization for Rare Disorders (NORD) today released a landmark report documenting flexibility in the Food and Drug Administration (FDA) review of potential treatments for patients with rare diseases.
Released at the U.S. Conference on Rare Diseases and Orphan Products, the report examined the basis for FDA's approval of 135 non-cancer "orphan drugs" – those for rare diseases – since the Orphan Drug Act was enacted in 1983 to provide incentives to encourage development of treatments for rare diseases.
This is the first study of its kind ever conducted and the first time that there has been a systematic examination of the basis for approval for any category of drug products extending over such a long period of time. The study demonstrates a decades-long pattern of flexibility in FDA review of orphan drugs.
Frank J. Sasinowski, chairman of the NORD board of directors and author of the report, said: "We wanted to determine whether FDA requires that orphan drug applications provide the conventional effectiveness data that are ordinarily expected for most drugs for more prevalent diseases, or whether the agency has over the years exercised flexibility in approving drugs for patients with rare diseases. This issue is critical to the patients and families NORD serves because the patient population available for testing of orphan drugs is, by definition, more limited than for drugs for more prevalent diseases."
NORD President and CEO Peter L. Saltonstall said: "We are gratified that this extensive study, spearheaded by NORD on behalf of the entire rare disease community, found that there is supportable evidence to document flexibility by FDA medical reviewers. This study should provide an extra level of confidence for investigators, companies and investors who are considering developing new drugs for rare diseases."
While any disease affecting fewer than 200,000 Americans is defined by law as "rare," many rare diseases affect only a few hundred or a few dozen people. Conducting the clinical studies required to develop treatments for these diseases poses special challenges to medical researchers, the report pointed out.
The NORD study looked at all drugs for diseases other than cancer approved as orphans since 1983 to identify when flexibility was employed in the review process. The evaluation process distinguishes between flexibility applied as a result of a previously described FDA system, such as the accelerated approval program, or on a case-by-case basis.
For each of the non-cancer drugs approved as orphans since 1983, NORD sought to access the FDA approval letter, the labeling at the time of approval, the decision memoranda of the FDA officials who approved the products, and the reviews of the medical and statistical officers. While such documents were retrievable in most cases, only subsets of those documents were recoverable for some drugs, especially for some of the earliest approved orphan therapies.
The drugs were then divided into three categories: those that, in NORD's judgment, would have met the traditional data requirements for effectiveness; those whose approval was based on flexibility applied as a result of some documented FDA system for flexibility; and those whose approval appeared to reflect case-by-case flexibility.
Of the 135 drug approvals studied, NORD concluded that 45 would have met traditional data requirements, 32 reflected "administrative flexibility" based on a previously documented FDA system, and 58 reflected flexibility applied on a case-by-case basis.
"This review of FDA actions concludes that two of every three orphan drugs approved show FDA's historic flexibility in its review of effectiveness data on orphan drug therapies, " Sasinowski said. "Therefore, FDA has demonstrated in its actions on orphan products that it recognizes the importance of therapies for persons with rare disorders. It would be helpful for such flexibility and importance to be recognized in a formal FDA policy, and for FDA officials to incorporate and recognize that flexibility in a systematic way in their evaluations of each new therapy in development and under FDA review for Americans with any rare disease."
Saltonstall added that NORD undertook this study because, of the nearly 7,000 known rare diseases, only about 200 have FDA-approved treatments. "Better understanding the regulatory process and the pathways most likely to lead to increased study of rare diseases and safe, effective treatments for patients is very important to us," he said.
The report was released October 11 in Washington DC during the U.S. Conference on Rare Diseases and Orphan Products sponsored by NORD and the Drug Information Association (DIA), in collaboration with the FDA, EURORDIS (the European Rare Disease Organization), the National Institutes of Health, and Duke University Medical Center. More than 350 people concerned with rare diseases and orphan products attended the conference.
DIA Worldwide Executive Director Paul Pomerantz said the report was released at the conference because "this conference brings together all stakeholders — government, industry, medical professionals, patient organizations, and the investment community. DIA is pleased to work with NORD to bring thought leaders to the table to discuss these important issues related to the development of much-needed treatments and ensuring that patients have access to them," he said.
Established in 1983 by patient organization leaders providing advocacy for the Orphan Drug Act, NORD (www.rarediseases.org) is a nonprofit organization representing the nearly 30 million Americans who have rare diseases, their families and the patient organizations assisting them. With offices in Washington DC and Danbury, Connecticut, it provides programs of advocacy, education and research, as well as patient assistance programs to help patients obtain needed therapies.
DIA is a neutral, global, professional, member-driven association of nearly 18,000 professionals involved in the discovery, development, and life cycle management of pharmaceuticals, biotechnology, medical devices and related health care products. Through our international educational offerings and myriad networking opportunities, DIA provides a global forum for knowledge exchange that fosters the innovation of products, technologies and services to improve health and well being worldwide. Headquarters are in Horsham, Pa., USA, with offices in Basel, Switzerland, Tokyo, Japan, Mumbai, India and Beijing, China.
Mary Dunkle
Vice President of Communications, NORD
Office: (203) 744-0100
Cell: (203) 482-9934
]]>The National Organization for Rare Disorders (NORD) honored members of the U.S. Congress, patient advocates, medical researchers, and companies that have brought new therapies to market on Tuesday, May 15, at Union Station in Washington, DC.
This took place at NORD's annual "Partners in Progress Celebration", an event that focuses on the ways in which stakeholders in the rare disease community work together toward their shared goal of improving the lives of patients.
"This is NORD's opportunity to celebrate excellence and to say thank you on behalf of the patient community to those who have advanced the cause during the previous year," said Peter L. Saltonstall, NORD president and CEO. "We look forward to this event each year, and we truly appreciate the accomplishments it honors."
Actress Patricia Richardson of TV's Home Improvement, Strong Medicine and The West Wing emceed the event. All members of the rare disease community were invited. View the 2012 Celebration Journal.
The 2012 Partners in Progress Honorees were:
These awards honor leadership in public policy to improve the lives of patients and families affected by rare diseases.
This award honors individuals and/or organizations for initiatives undertaken voluntarily on behalf of the rare disease patient community.
Established in honor of NORD's founding president, this award honors a NORD Member Organization for strong and effective leadership on behalf of its members.
These awards honor companies that have brought important and innovative treatments to market within the previous year.
This award honors patient/researcher partnerships driving progress through collaboration.
The Honorable Kay Hagan, U.S. Senator (NC) accepting the National Health Leadership Award |
U.S. Representatives Ed Towns (NY-10) and Cliff Stearns (FL-6) with emcees Patricia Richardson and Michael Scott |
Blair Van Brunt of the Shwachman-Diamond Syndrome Foundation and Sarah MacDonald of the Massachusetts Biotechnology Council accept the Power of Partnership Award |
Representatives of the Cystic Fibrosis Foundation and Vertex Pharmaceuticals, Inc. accept the Partners in Progress Award |
Rino Aldrighetti (center) accepted the Abbey S. Meyers Leadership Award on behalf of the Pulmonary Hypertension Association |
Dr. Stephen Groft of NIH ORDR, Michele Manion of CPAG and Dr. Alan Percy of the RDCRN Steering Committee accepted Partners in Progress awards |
Alexion Pharmaceuticals, Inc., was honored for Soliris to treat patients with atypical Hemolytic Uremic Syndrome (aHUS) |
James Hassard accepted award on behalf of Amgen, Inc. |
Dr. Paul Brunetta accepted award on behalf of Genentech |
Dr. Mace Rothenberg accepted award on behalf of Pfizer |
Jude McNally of Rare Disease Therapeutics with the Bray family |
This year the Capitol Steps performed at the celebration |
The Honorable Edolphus (Ed) Towns, U.S. Representative (NY-10) accepting the National Health Leadership Award |
The Honorable Clifford Stearns, U.S. Representative (FL-6) accepting the National Health Leadership Award |
An overview of the reception |
May 24, 2012, WASHINGTON, DC--- The National Organization for Rare Disorders (NORD) applauds legislation passed today by the U.S. Senate -- S 3187, the Food and Drug Administration Safety & Innovation Act of 2012 (FDASIA) -- and says it contains the most comprehensive improvements to public policy for rare disease therapies since the landmark Orphan Drug Act of 1983.
"NORD has been working very hard over the past two years to ensure that the interests of the rare disease patient community are well represented in this important legislation," said NORD President and CEO Peter L. Saltonstall. "We are thrilled that our nation's leaders in Congress are working together and making substantive policy improvements to bring new therapies to patients who desperately need them.
"When this process began over two years ago," he added, "our focus was on obtaining a commitment by the FDA to further incorporate the exceptional nature of rare diseases in the review of promising new therapies and medical devices. What we've been able to achieve since then, with our members and advocacy partners in the rare disease community, is nothing short of astonishing. Our sincerest thanks go to all who have helped to make this day possible."
The bill contains numerous provisions that will enhance the regulatory process at FDA, incentivize further investment by innovators into rare disease therapies, and expand the scientific armamentarium needed to bring the most cutting-edge therapies to patients as quickly as possible.
Specific commitments by the FDA include:
Legislative provisions in the bill include:
The US House of Representatives is working on companion legislation (HR 5651 – the Food & Drug Administration Reform Act of 2012) that has already been unanimously approved by the Committee on Energy & Commerce in a similar bipartisan fashion. Adoption of that measure is expected when the House resumes its session at the beginning of June.
Both the House and Senate bills are the culmination of a process conducted every five years to reauthorize the Prescription Drug User Fee Act (PDUFA) and related legislation that provides critical funding to allow FDA to review potential new therapies in a timely manner. As the voice of rare disease patients and their families in the U.S. since 1983, NORD has served as the primary representative of the rare disease patient community over the past two years as needs were prioritized and the legislation now being voted upon by the House and Senate was drafted.
In particular, NORD would like to recognize the following, who worked closely with us on provisions of importance to rare disease patients and their families:
Leadership of the Senate HELP (Health, Education, Labor and Pensions) and House Energy & Commerce Committees:
HELP Committee Chairman: Sen. Tom Harkin (D-IA)
Ranking Member: Sen. Mike Enzi (R-WY)
Energy & Commerce Committee: Rep. Fred Upton (R-MI)
Ranking Member: Henry Waxman (D-CA)
For Leadership Related to Drug Approval and Patient Access Provisions
Enhancement of Accelerated Patient Access to New Medical Treatments
Breakthrough Therapies
Consultation with External Experts on Rare Diseases, Targeted Therapies and Genetic Targeting of Treatments
Rare Disease Pediatric Disease Priority Review Voucher Incentive Program
For Leadership Related to Medical Device Regulatory Improvements
Humanitarian Device Exemptions
For Leadership Related to Other Provisions
Conflict of Interest
Stephanie Foster (center) with (from left) Stefanie Putkowski, RN, Father Daniel Sinibaldi, and her parents, Laurie and Stephen Foster.
DANBURY, CT (Aug. 27, 2012)-----A young New Hampshire woman has shown what courage and spunk are all about.
Stephanie Foster, 23, of Rochester, has been struggling for 10 years with a rare, progressive neuro-degenerative disorder. Despite being seen by specialists at several top-notch medical institutions, she still has no diagnosis.
But instead of feeling sorry for herself, this plucky young woman decided to organize a fundraiser on behalf of all people with undiagnosed rare diseases. And she decided to donate the proceeds to the National Organization for Rare Disorders (NORD), a nonprofit organization that represents all Americans who have rare diseases.
"At NORD, we hear daily from people seeking a diagnosis," says Stefanie Putkowski, RN, of the NORD staff. "It's not unusual for it to take five years or longer. And some people never get a diagnosis. But Stephanie decided to use this terribly sad situation as a way to show concern for others. She chose to do a fundraiser for ALL people with rare diseases, and her family, church and community showed incredible support for her project."
Stephanie found NORD's website (www.rarediseases.org), and read about the organization's programs of advocacy, education, research and patient services. Her mother, Laurie, contacted NORD and obtained brochures, fact sheets, lanyards, and Rare Disease Day bracelets to distribute to those supporting the event.
Stephanie mentioned her plan to the family's parish priest, Father Daniel Sinibaldi ("Father Dan"), of St. Mary's Church. His immediate response was, "Use our parish hall – it's yours!" A spaghetti dinner was planned, which would also include music from CDs that Stephanie compiled, over 30 donated raffle items, and a silent auction.
With help from her mom, Stephanie composed a letter, hoping to spread the word about her planned fundraiser. Her dad, Stephen, younger sister Lauren, older brother Eric and grandmother delivered copies of the letter to various businesses in town. As word of the fundraising event spread, offers of assistance started pouring in.
Timothy Jackson, a neighbor and professional chef, donated all the food and his cooking expertise. Stephanie helped make the meatballs.
On Saturday, June 23rd, Stephanie's fundraiser, "A Rare Night," took place before a sold-out crowd at St. Mary's parish hall. People had to be turned away because the church's parish hall only holds 120.
Looking beautiful in a deep pink gown, Stephanie read a message to her supporters. "I have been sick a lot for the past ten years, but this last year I have been getting progressively worse. My doctors are still testing to find out which rare disease I have. Each rare disease they test for takes months to diagnose or rule out."
Stephanie received a standing ovation after reading her message, and raised $4,300 that night!
A few weeks later, Putkowski visited the family's home and Stephanie was able to present the check to her in person. Additional donations have come to NORD in honor of Stephanie since then.
Laurie Foster says her daughter's medical issues began in infancy, with growth and developmental delays from no obvious cause. Stephanie received physical and occupational therapy, and was able to attend her local elementary school.
At around age 11, medical issues began surfacing, including recurrent bladder and kidney problems.
Shortly after graduating from high school, Stephanie developed trouble walking. She also developed a rare condition called postural orthostatic tachycardia syndrome (POTS), a rare disorder of autonomic dysfunction that causes light-headedness and, sometimes, fainting upon standing up, accompanied by a rapid heartbeat.
By April 2011, Stephanie had become wheelchair-bound, and in January 2012, she needed a feeding tube due to an inability to swallow food. Her muscle weakness continues to increase.
Stephanie's condition has stumped all of her doctors. She is currently waiting for the results of recent testing by a neuro-geneticist from Mass General Hospital.
Meanwhile, all donations made to NORD in Stephanie's honor will support educational and awareness programs to help medical professionals and the public better understand rare diseases and the challenge of living with an undiagnosed disease. There are nearly 7,000 diseases considered rare, affecting almost 30 million Americans.
"At NORD, we meet incredibly inspiring people living in very difficult circumstances," said Putkowski. "Each one is unique to us. And our staff finds inspiration and renewed dedication to our work through getting to know people like Stephanie and the entire Foster family."
Stephanie's advice to others going through the diagnostic journey is: "Ask yourself, what do you want -- and what do you want to do to help others? Then do it!"
(Photos by Rebecca & Taryn, Rochester, NH)
WASHINGTON DC, Oct. 3, 2012----Can our society afford to provide costly medical care for patients with rare diseases, or would that money better be spent on treatments for more common conditions affecting larger numbers of people?
That was the question raised in a recent publication of the Hastings Center, a research institution dedicated to bioethics and the public interest.
Now a medical adviser to the National Organization for Rare Disorders (NORD) has responded to the report, writing that viewing rare diseases as "peripheral and unimportant" to the healthcare system would be a major mistake on several levels.
"Not only does it seem to justify abandoning millions of people but it also can undermine the integrity of the entire research enterprise," notes Doris T. Zallen, PhD, professor of science and technology in society at Virginia Tech and a long-time adviser to NORD. "It can reduce the chance of finding successful treatments for ALL diseases -- common and rare alike."
A rare disease is defined in the U.S. as one affecting fewer than 200,000 Americans. There are approximately 7,000 such diseases affecting nearly 30 million Americans, two-thirds of them children. Only a few hundred of these diseases have medical treatments, and only a small number are being studied by researchers to develop treatments.
The current investment in research on rare diseases is small, Dr. Zallen writes, and further reducing research on rare diseases by deciding that our society can't afford the cost of providing treatment would "harm the broad scientific enterprise" by discouraging young scientists from choosing that career path.
Because rare diseases often have a singular genetic basis, she writes, "the study of rare diseases has already provided fundamental understandings of genetic systems, biochemical pathways, and DNA-repair mechanisms that have helped elucidate the basis of, and improve treatments for, common diseases. The blockbuster drugs Botox and Viagra were originally developed to treat benign essential blepharospasm and pulmonary hypertension, two rare disorders."
Since there is little research funding for rare diseases, many patient groups try to raise money themselves, conducting car washes, bake sales and garage sales. Often, it takes many years for these small patient groups to raise enough money to fund a study.
At a recent meeting of NORD's medical advisers, Dr. Zallen writes, "we struggled to decide which of two excellent research grant submissions should receive the modest available funding. Even with all its hard work, the patient group providing the funding had raised only enough money for one seed grant."
People with rare diseases are not asking for "preference" when it comes to allocation of resources but only a "fair shake", Dr. Zallen adds. "The tax dollars used for government research programs come out of their pockets too, and society has an ethical duty not to punish minorities because of their small size. Not only they, but the wider community as well, would benefit -- since such research is essential to the health of the overall medical science enterprise."
Dr. Zallen has received numerous awards and honors for her teaching, research and outreach activities. An expert on topics related to bioethics, she helped write the federal guidelines to protect human subjects in gene therapy experiments and is the author of the book, Does It Run in the Family? A Consumer's Guide to DNA Testing for Genetic Disorders.
View the full text of Dr. Zallen's response and a link to the original article.
]]>"In 10 key points, NORD, EURORDIS, and CORD recognize that Rare Disease Patient Registries constitute key instruments for increasing knowledge on rare diseases, supporting fundamental clinical and epidemiological research, and post-marketing surveillance of orphan drugs and treatments used off-label," explains Anna Kole, Associate Director at NORD. "Furthermore, and of great importance for patients and their families, they can be instrumental in supporting health and social services planning. Rare Disease Patient Registries are powerful, cost-effective instruments to improve the overall quality of care, quality of life, and survival of patients."
NORD, EURORDIS, and CORD recognize that patient involvement is a key element in the successful establishment and long-term maintenance of RAre Disease Patient Registries and that many patient groups are already very active and capable in this role.
The document is significant in that it represents a common reflection and standpoint, on a significant global topic, from three of the most influential rare disease patient organizatons on both sides of the Atlantic.
"It is expected that these common reflections and principles will serve as a reference for global stakeholders when shaping policies and taking actions in the field of Rare Disease Patient Registries. NORD is particularly motivated to reflect these principles in its Rare Diseae Patient Registry Program," says Peter L. Saltonstall, NORD President and CEO.
Read more about Rare Disease Patient Registries.
]]>Washington DC, Dec. 3, 2012-----Senators Amy Klobuchar and Al Franken joined Food and Drug Commissioner Margaret Hamburg, MD, NORD President Peter L. Saltonstall and others today in a Capitol Hill event to announce the launch of a new public-private partnership aimed at promoting the development of innovative medical devices for patients.
The founding members of the new partnership, which will be called the Medical Device Innovation Consortium (MDIC), are LifeScience Alley, a biomedical science trade association; several companies involved in developing medical devices; and NORD (the National Organization for Rare Disorders), in partnership with the U.S. Food and Drug Administration (FDA).
"We at NORD are especially honored to be the first and only patient organization to be invited to be a founding member of the consortium," Saltonstall said in his remarks at the launch today. "Over the past several years, we have sought to forge a productive relationship with the FDA and the medical devices industry because we believe that progress can be made only if all segments of the medical system work together. We hope this public-private partnership will serve as a model for additional collaboration."
The mission of MDIC will be to foster innovation, increase the tools available to evaluate new medical devices to assure that they are safe and effective, and ensure that innovative devices get to patients as quickly as possible while still protecting public health.
Speakers at this morning's Capitol Hill announcement, in addition to Saltonstall, included:
In his remarks, Saltonstall said that NORD's role would be to provide the patient perspective in the new partnership. Noting that only about 250 of the nearly 7,000 rare diseases have treatments, he said that NORD's "highest priority is to help create and encourage an environment in which new treatments can be developed and made available to patients.
"We hope and expect that this new consortium will make an important contribution in addressing some of the strategic needs of the medical devices industry," Saltonstall added. "A robust industry and an efficient and transparent FDA are absolutely essential to the development of innovative new treatments."
MDIC will draw together experts from FDA, the medical device industry, academia and related organizations to improve health through the application of shared knowledge. Specific goals include:
Read FDA's press release about the new partnership.
Read full text of NORD president's remarks.
Read about MDIC.
]]>Washington DC, Dec. 6, 2012-----Peter L. Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), today praised Social Security Commissioner Michael Astrue and his staff for proactively establishing and expanding a program that "demonstrates true compassion for Americans with seriously disabling rare diseases."
Saltonstall made his remarks at a Capitol Hill event at which Commissioner Astrue announced the addition of 35 diagnoses, several of which are rare, to the Compassionate Allowances Program. This is a program established by the Commissioner and his staff to quickly identify diseases that meet Social Security disability standards so that patients with devastating diseases may receive their benefit decision within days rather than months or years.
The program is especially important for people with rare diseases that are not well known or widely understood, Saltonstall said.
"As the president of NORD, I represent the 30 million Americans with rare diseases, as well as their families and caregivers," he noted. "Rare diseases tend to be severe and chronic, and many people affected by these diseases struggle with overwhelming medical and financial challenges."
He told the story of a young wife and mother whose 33-year-old husband died earlier this year of frontotemporal dementia, a progressive neurological disease, and said it illustrated the plight of many families affected by rare diseases.
"She wrote to us about her experiences in caring for her 5-year-old son while also managing her husband's medical needs and the family finances," Saltonstall said. "She described how she had to quit her job and let the family's three-bedroom house go into foreclosure."
The Compassionate Allowances Program made it possible for her to focus on the things that mattered most to her family during a very difficult period, he said, adding that she wrote to NORD: "When a loved one is dying, everything else takes a back seat. But, being able to take care of the necessities was a weight off my shoulders, and I am thankful for that reprieve."
Today's event marked the milestone of reaching a total of 200 diseases on the Compassionate Allowances list, many of which are rare diseases. The 35 diseases added to the list today, along with a description of the program, are posted on the Social Security Administration website.
NORD Vice President of Public Policy Diane Dorman was honored at the event. Mr. Astrue presented her with a Commissioner Appreciation Award to recognize her support for the Compassionate Allowances initiative and helping SSA "improve the service we provide to Americans with disabilities".
The Compassionate Allowances Program was established by Commissioner Astrue and his staff in 2008 with an initial list of 50 diseases identified by medical experts as ones that routinely meet SSA's criteria for disability benefits. The list has been expanded several times since then.
NORD and other patient advocacy organizations, as well as medical experts from the National Institutes of Health (NIH), and elsewhere, have provided input in this process. Commissioner Astrue originally announced the establishment of the program at a NORD patient/family conference.
The program doesn't guarantee approval for disability benefits but rather an expedited review so that individuals with diagnoses on the list receive fast-track review and are notified of the final decision within days rather than months or years.
Saltonstall said the program is a good reminder -- at a time when some Americans feel cynical about government's ability to be responsive to their needs -- "that government can and does care and that government employees can and do deliver compassionate assistance to those in special need."
Information about the Compassionate Allowances Program, and the list of diseases approved to day including the 35 new ones, is posted on the Social Security Administration website.


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New Bill Would Make Leasing Of Alabama Lodging, Golf Possible
A Senate committee has sent a bill to the floor that could allow private operators to lease lodging facilities and golf courses within 12 state parks.
The Senate Finance and Taxation-General Fund Committee approved the bill 8-2 Wednesday.
It would allow the Department of Conservation to generate and control the leases. State parks are supported by visitor fees. While some parks pay for themselves, others lose millions of dollars each year. Supporters say the bill could turn those numbers around.
Director of Alabama State Parks Greg Lein questioned the impact on the 600 park employees. Under the proposed legislation, Lein's department would be able to request proposals, surety bonds and other terms from potential vendors. That could cover employees.
Democratic Sens. Billy Beasley and Bobby Singleton opposed the measure.


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She said yes! The hip hop couple have wedding plans in their future.
It was only a matter of time. Lovebirds Wiz Khalifa and Amber Rose, who have been gushing over one another since they hooked up in late 2010, announced their engagement today (March 1) via Twitter.
"She said yes!!!" Wiz tweeted sometime around 11 a.m., with a link to an Instagram photo of Amber Rose's hand adorned with pink stiletto nails and a very conspicuous addition — a diamond ring.
Rose tweeted the photo as well with the message, "He has made me the Happiest Woman in the World!!!"
Since confirming their relationship in January 2011, Amber and Wiz have been going strong, showing their love at any and every opportunity. So much so that fans didn't blink at rumors late last year claiming the couple had eloped after photos of Amber in a white dress and Wiz in a black suit circulated the Internet. After all, the couple is already bonded for life through their matching tattoos. As previously reported, Rose tweeted a photo of a tattoo of the name "Cam" in cursive on her index finger, which matched a tatt Wiz (whose real name is Cameron Thomaz) had on his thumb which reads "Amb."
Before Wiz, Rose was involved in a relationship with superstar rapper Kanye West, whom she says mistreated her and cheated on her with reality television star Kim Kardashian. Although West has since made a public apology for the mistreatment — he apologized and dedicated a song to her at a Watch the Throne tour stop in Philadelphia — he has yet to make any public statement on Amber Rose's impending nuptials.
(Photo: Larry Busacca/Getty Images)
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Law touched our hearts : a generation remembers Brown v. Board of Education. Nashville: Vanderbilt University Press; 2009.
"This book contains forty personal accounts from across the country by those who attended public school in the wake of Brown (vs. Board of Education) and saw the course of their lives and their society change."


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Spicy Tofu Recipes
Coconut Tofu Recipe
Eating vegan foods doesn't necessarily mean they have to be bland. My goal to jazz up a Japanese eggplant and broccoli tofu dish was to add extra richness to the taste with coconut cream. The vegetables cooked fairly quickly, so I focused more on seasoning the sauce, using soy sauce, chile black bean sauce, palm sugar and coconut.
This coconut tofu is a great way for our family (baby Aria and I are the only ones not on a vegetarian diet) to share the same meal without missing meat. The tofu was flavorful with crispy texture and the added spiciness. With a dish like this one, you won't have naysayers claiming the tofu dish is too plain!
Full Recipe...
Mushroom Tofu Stir Fry Recipe
My husband Lulu's niece and nephew spent the afternoon with us. It was so nice having so many children in the house. Of course, our daughter Aria was the center of attention and she loved it! While they were playing with the baby, I prepared dinner. I cooked some brown rice (Lulu's request since the beginning of the new year) and made mushroom tofu stir fry.
The stir fry is composed of combined shiitake mushrooms, oyster mushrooms and enoki mushrooms, Japanese eggplant, sugar snap peas and tofu, of course!
Full Recipe...
Spicy Eggplant Tofu Recipe
Japanese eggplants cook fairly quickly and this stir fry sauce consists of basic ingredients such as soy sauce, chile black bean sauce, palm sugar and fresh ginger. The ginger and black bean sauce enhances the bland eggplant and tofu. All that's left is to steam a few leafy greens and have jasmine rice ready in the rice cooker. It's as easy as 1-2-3!
I barely have time for anything these days, and when I have very little time to cook, my go-to dish is a tofu stir fry. It's nutritious and it allows me to make use of whatever I have on hand. Learn the basics and you'll be able to dazzle your family with creative stir fry dishes.
Full Recipe...
Vegetarian Nihari (Spicy Tofu Recipe)
One of my most favorite Indian dishes is nihari. It's a goat (or any other meat) stew dish. It's spicy, flavorful and the meat is extremely tender. I love dipping naans (flat Indian bread) in the sauce. But I always end up feeling so bad when I see my husband Lulu, who is a vegetarian, staring at me. So this time, I also made a tofu version using the same gravy sauce.
I chose medium-firm tofu and Japanese eggplants and deep-fried them. The texture is perfect once they are soaked in the spicy sauce. I also added broccoli for a balanced meal. The advantage of the veggie version is it's just as tasty, much healthier (I omitted the bhaghar, a typical final layer of red oil in a lot of Indian dishes) and it cooks a lot faster than the meat version.
Full Recipe...
Green Jackfruit with Tofu
Mít & tàu hũ kho tương is a fairly common vegetarian dish in the Buddhist community. Mít ("jackfruit" in Vietnamese) is picked when it's still green. First, the young fruit is boiled to soften it. Then it's braised in soy sauce and used as a vegetable to accompany tofu. Like tofu, unseasoned green jackfruit is fairly bland but acts as a sponge and absorbs the flavors of the sauce.
The cooking procedure helps to give the jackfruit a soft texture that resembles the pork fat in thịt kho (braised meat), and the stringy texture of the jackfruit simulates the stringy texture of the meat. The result is quite pleasant and surprising. Next time you're in an Asian market, look for fresh young jackfruit; it's delicious!
Full Recipe...


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ESSENCE Music Festival®, QuintEvents Finalize Travel/Experience Packages For Blockbuster July Happening Featuring Aretha Franklin, Mary J. Blige, Steve Harvey And More
NEW ORLEANS, April 26, 2012 /PRNewswire-USNewswire/ -- The ESSENCE Music Festival®, presented by Coca-Cola®, and QuintEvents will bring fans closer than ever to the energy of the event this summer with a total of 11 travel/hotel/ticket packages providing a once-in-a-lifetime experience. The famed African American music and culture happening, celebrating its 18th year, is set for July 6-8 in New Orleans.
Packages ranging in price from $699 to $5,349 are detailed at www.ESSENCEVIPEvents.com and feature on-site parties, insider access, large group seating and convenient ground transportation to all events. The concert performances, featuring Aretha Franklin, Mary J. Blige, Charlie Wilson, Fantasia and more, will take place at the Louisiana Superdome July 6-8. The Ernest N. Morial Convention Center will host trade shows and the ESSENCE® Empowerment Experience, featuring Rev. Al Sharpton, Congressman Maxine Waters, Vanessa Williams, Fred Hammond and Steve Harvey among more than 25 speakers and panelists.
Www.ESSENCEVIPEvents.com was created to provide fans with a peek into the unique experience at the 2012 event with tickets and amenities available only from ESSENCE, which owns and operates the world-renowned event. The program provides fans with the opportunity to buy directly from the official source, eliminating the uncertainties of purchasing on the broker and secondary market. QuintEvents provides similar services to the National Football League, the National Basketball Assoc. and the Kentucky Derby. ESSENCE VIP Events is also designed to bring festival-goers into New Orleans earlier in the week, thereby increasing the event's economic impact on greater New Orleans. The top-tier package ($5,349) includes four days and three nights at the Westin or the Ritz-Carlton hotels and floor seating in the first 10 rows for all the concert performances. In-stadium parties with complementary food and beverage plus ground transportation and other VIP benefits are part of the arrangement. Insider, credentialed access to ESSENCE ® Empowerment Experience and trade shows at the convention center activities is also included. Packages are customizable to include just Friday and Saturday or just Saturday and Sunday with or without hotel and all purchases are guaranteed by ESSENCE®. Accommodations are also available at other New Orleans hotels located just a few blocks from the Louisiana Superdome and the Ernest N. Morial Convention Center, including the Westin New Orleans, The InterContinental, Hilton – Riverside and Springhill Suites. CONTACT: Steve Griffith, Vizion Group Public Relations, 484/433‐7757, firstname.lastname@example.com Out Our Best Services for Investors
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Iconfactory : Home : What color depth should I use when making icons? The Iconfactory Contact About Us Preferences Search: Home Freeware Software Stock Icons Design Services Newsroom Contact Us About Us RSS Feeds News Archive Support 5 items in cart - View Cart Support Home Support Item What color depth should I use when making icons? This really depends on what platform and specific OS you will be creating your icons for. Older versions of the Mac and Windows operating system however are quite limited, and you should select the appropriate 8-bit or 4-bit palette when needed. Search for similar items Can't Find It? We've tried to anticipate most questions you might have. However, if you can't find the answer you're looking for here, send us your query and we'll answer it personally. Send to:
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We are utterly thrilled when readers want to hang out and talk – whether it's amongst themselves or in response to pieces we've posted. We want Eatocracy to be a cozy, spirited online home for those who find their way here. Consider the daily Coffee Klatsch post as your VIP lounge – the primary comments thread for readers who'd like to chat about topics not related to the articles we're running. That way, everyone knows where to find each other, and each post's comments section remains on topic.
Sometimes all it takes to turn a good day into bad is one person. That is all.
Who wants pie with ice cream ?
Sounds yummy, what kind of pie? I've got ice cream in the freezer, belgium chocolate.
You have to ask? :)) Hint–it ain't APPLE...
An apple a day keeps the doctor away if your aim is good and you throw hard.
How about chocolate cream pie?
I'm with Mary, definitely chocolate cream...
Chocolate cream goes straight to my hips..
Did someone say cream pie?
I know what you mean Gurlfriend..
I'd do just about anything for an Dutch apple crumb pie. Mmmmm.
Who is ruining your day, Milady. Needs must I sequester them in yon dungeon and run them thru mine wringer?
Just the visual was enough to bring a smile to my face, thank thee muchly.
Twas mine pleasure entirely, Milady.
But then, you probably already knew that. ~_~
Howdy ho on a beautiful MLK/Inauguration Day!
Ma'am, that almost qualifies as politicizing a food blog. Watch that or you'll have to spend time in the dungeon with Peewee.
Is Pee Wee a fellow "prisoner" or the Warden.....?
Mwah-ha-ha-ha. You & PeeWee will be taking turns on the rack!! If you're lucky, Sir Biddle & Jdizz will commandeer it and you'll be set free. (That will sorely disappoint PeeWee ... and that's part of my plan!) Mwah-ha-ha-ha.
Love those pics you posted on FB, did you take them or just like them?
I LOVE Geology and found the pics and think they are fabulous! Thanks!
Political spin sock puppets....Blah,Blah,Blah
The Witty One thinks to himself that if this is what was meant by a full service hotel...
Commented...moderated....oh well. Have a great day, everyone!
Morning everyone. Chilly day here, they're saying this week will be the coldest yet this season. Snow expected this afternoon, evening and again on Friday.
Congrats to JDizz' 49'ers and to the Ravens as well. I'm not particularly a Ravens fan, mostly cause I don't care for a certain player who obstructed justice in a murder investigation, and then came back to make buckets of NFL money, but that's just me. However, the Patriots seem to feel entitled to a yearly win, just like the Yankees, and that's just not fair.
Have a great week, everyone!
Good morning all from an unseasonably warm Denver. Interesting turnout in the football playoffs this weekend. JDizz must be one happy Klatcher...
Dang scrizzle.
Yawnnnnn.......What's all this political BS doing on my TV ? A National Holiday for a Great Man gets ruined by Politics. Sigh.....I'm glad this is a Food Blog where No One gets Political. Tom Brady is a Liberal Stooge. That is all.....
"You better not spill coffee on my costume, Mister," she said with an evil glint in her eye. "Otherwise you'll have to clean it up."
Wow. *looking around* Someone had a party in the lounge over the weekend. It looks like someone Bedazzled the coffee pot, too. Probably Jerv bringing back conquests after a nite at DDD's. *looking thru the Klatch Kloset* Yep. Sure enough, one of Sir Bid's dresses is missing! Well, if the coffee making process melts off the Bedazzle gems they'll have to figure out something else to decorate.
Sigh. Now what did he do with the rubber gloves? He couldn't have used ALL of them, could he?
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Storytelling meets visual arts in the style of Jacob Lawrence, African American artist and storyteller.
Jacob Lawrence was an African American artist whose work was known for its emphasis on storytelling. Born in Atlantic City, New Jersey in 1917, Lawrence spent portions of his life in both Easton (the home of Crayola®) and Philadelphia, Pennsylvania, before moving to Harlem in New York. Jacob's work focuses on the history of African Americans in the United States. He includes scenes of everyday life, historical events, and the lives of African American heroes and heroines in his work.
Invite students to conduct further research into the life work of Jacob Lawrence. Organize a variety of text and electronic resources for students to use. Once research is complete, invite students to create their own storytelling artwork.
Students begin by thinking of a significant historical event that has occurred during their lives, or to their ethnic group, or that has influenced their family heritage. Students compose a story about this event with Crayola Erasable Colored Pencils. Encourage them to include details such as important names, dates, and circumstances.
Use Crayola Crayons on heavy paper to draw a portrait of the person, or people, featured in their stories. Surround the main portrait with other story images, using bold colors and firm strokes. Fill in drawings with color.
Students cover their work areas with recycled newspaper. Use Crayola Watercolors to fill in the background of drawings. Dip brushes into water; then collect a small amount of paint on a wet brush. Apply diluted wet paint to the background for a wash effect.
Provide a time for students to share their artwork with classmates. Ask them to discuss how they each wove their learning about Jacob Lawrence into their artwork.
Let's learn!
This powerful diorama pays tribute to Dr. Martin Luther King, Jr. Celebrate his historic civil rights speech on the step
Add To Favorites Processsing...Processsing...
Focus on historic achievements and positive role models with this collaborative monument making project.
Feed teens' appetite for popular music with this lesson inspired by songs that reflect the times in which they were writ
Open the golden door of Ellis Island and explore the history of immigration in the United States.
Explore cultures through clothing, using a variety of Crayola Colored Pencils and construction paper to make 3-D models
Delve into the history and culture of China! Research geography, inventions, or other aspects, then sculpt a symbolic di
Update an ancient craft with contemporary designs and art materials. These holiday ornaments are light and unbreakable,
Learn about Japan---its geography, culture, sports, and industries? Decorate a fan with symbols of the country, past or


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13 Accommodations in Oliver
Small, family orientated motel offering standard rooms, room with kitchenettes or kitchens and 2 bedroom units. Rooms offer air-conditioning, cable TV and in-room coffee/tea.
Lounge in our seasonal outdoor pool and enjoy a meal outside in our guest BBQ area with picnic tables. Finish your evening off with s'mores at the firepit.
Close to wineries, hiking, fishing, birding, golf and beaches.
Six Tuscan-style guest suites situated high above the vineyard with fabulous views of the valley below. Each unit has a spacious bathroom with soaker tub and walk-in shower. Five deluxe suites boast a private patio, fireplace, flat screen TV, high-speed internet, king beds, bar fridge, sink and microwave. One executive VIP suite offers a one bedroom with Queen size bed, living area with double pull out couch, larger kitchen area, 2 flat screen TV's, fireplace, and 2 private patios. A fresh, locally inspired gourmet breakfast is included with your stay. 2 night minimum stay on weekends. Please visit our website for more information.
Located between Okanagan Falls & Oliver at south end of Vaseux Lake; very peaceful, quiet area; no motorboats allowed; canoe & rowboat available; bedroom has queen size bed, bedding, private patio; sofa bed in living area; bedding & towels included; complete well supplied kitchen; tub/shower; washer/dryer, great swimming, perfect beach for children; computer in room; WiFi.
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