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Girl, born 2002
FAS (fetal alcohol syndrome), probable secondary CP
Julia has such happy, giant brown eyes and a smile that lights up a room!
UPDATE FOR NOVEMBER 2015: "Julia is a very enthusiastic girl. I don't know how else I should put it in words. Meeting Julia is an experience. She is one blast of fun and energy and happiness. When I met Julia I called her my little monkey, because as soon as your within reach, she will grab you (whereever she can) and she will climb on you. And she will hold on so tight that you don't even have to hold her. She won't fall. She is really strong. She loves to be hold This spring Julia got operated on her feet. Before her feet were shaped like how ballerinas hold their feet while dancing. This summer she was wearing casts and one of our last days the casts were taken off and her feet are straight. Even with the casts she was already walking on her own, without the casts she did the same. Walking was very hard for her before the operation. She could amaze me sometimes by getting up and walking a couple steps to reach something she really wanted, but now she was really capable of walking, not just a couple steps. She is still in a wheelchair most of the time though. Julia is potty trained and will tell if she has to use it. She can dress (or at least undress) herself. She can play accurate with toys, like dolls, or pretend play with kitchen tools. She also tries to brush hair and put a band in it. She is really careful when she does that. She can drink from a cup and eat by herself. Julia can say some words, she doesn't speak in sentences. She understands what is being said to her. Julia is pretty social if you compare her to many of the other children in her group. She is willing to share toys sometimes. She likes to show you around and show you beautiful things, like flowers. She has a hard time sharing personal attention though. She just wants someone for her own. Someone that she doesn't have to share. She wants someone who has time for her, sees her, likes her. And it's not hard to like her. With her big smile, her beaming eyes and her loving hugs it's easy to fall in love with this girl. Last year we think she was sedated many days that we were there. She would hardly respond to anything. She would only hold my hand, but she wouldn't even try to hold it when I walked away. We expect that they sedated her because she is such an energetic girl and there was a lack of staff last year. This year we didn't see that anymore. Things are better in her facility than last year. She will most likely also get some kind of physical therapy now that her casts are taken off. I've seen some selfharming behaviours in Julia. Sometimes she bites herself or pinches herself. She can do this so badly that she starts to bleed. She can also bite and pinch others when she is upset. This is not regular behaviour for her, but I've seen it happen. Julia is a loving girl who desperately needs a family. She has a sweet character with a lot of fire in her spirit as well. She needs someone to get her out there, before she loses the fire in her eyes."
From a volunteer who visited with her in July 2014: "I know Julia as a big Drama Queen. She loves attention and she'll do anything to draw your attention. But not this year. I don't know if she was on heavier seditives or that she lost her strength to fight for attention. The only thing she'd do was take my hand as I walked by. Normally she'd wheel after me and try to climb on me, but it seeme like there was no strength left. I missed my Julia as I know her, my little monkey. I want her to find back her energy to get out of life what's in there. She's an amazing girl and she deserves a loving family. She Always has a big smile on her face and she's really caring. She takes care of dolls as if they are real babies. She feeds them, changes their diapers. She loves to play with my hair and she actually tries to put the band in it. She is amazing! She would be such a good daughter! "
From a family who met her in December 2013: "I have to shout for this precious girl for a moment…we are here now and we see her everyday at the orphanage. The pictures don't do this dear one justice at all; she is gorgeous and so very sweet!!! She can't walk on her own (she can if she is assisted!) but she is still quick! She comes over to me everyday and wants in my lap, to shake my hand, or give me a hug. She has SO much potential and I can just see the hunger for love and a Mothers touch in her eyes. She has been overlooked long enough!!! She is darling….truly!! "
From someone who met her: Julia is a girl that I know as the girl with the big smile. Somehow she just seem to smile almost always. She's a little monkey. Whenever somebody enters her group she would crawl up to that person and just start to climb on him/her. She doesn't even need you to give her a hand, she'll just climb up without any help and then she hangs on your neck, looking around, proud, as if she wants to say 'Did you see that? Do you see where I am?'
Her favorite toy is a doll. She plays with it as if it is a baby. Keeping the doll up straight, putting her down carefully. She feeds and clothes the doll. One of the nurses showed her how she should put a cotton diaper on the doll, she totally loved it. She even sings lullabies for the doll and she'll ask visitors to do the same. She also loves to play with long hair. She really tries to make ponytails or braids.
Julia is able to walk, but her legs are really crooked, and she needs help to keep standing or to walk. Julia is described as curious and enthusiastic.
Elinor, Devora, Isolde, Julia, Sullivan, Artemur, Duane, Abner and Irina may all be in the same region.
Boy, born Oct 2011 congenital
internal hydrocephalus operated; anemia; protein-energy deficiency
Ezra has had a shunt placed, and is doing better. His adoption may necessitate consultations with medical personnel, to safely transport him home.
From someone who met Ezra in 2013: Ezra is absolutely precious! He is sweet and adorable and oh so lovable! He laughs when his toes are tickled, or when someone around him laughs or talks or sings to him. He often smiles or laughs so hard his chubby cheekers make his eyes close. He ha s learned to blow spit bubbles and coo. It is hard for me to tell if he is able to use his limbs normally, but he is able to move from his back to his side with little or no assistance. He has not yet learned to play with toys, but he has a very strong grip and enjoys holding my finger. I was told he can see, but not very well. I observed his eyes moving rapidly from side to side, and sometimes appearing to be looking in two different directions. In spite of this there were other times in which he appeared to be quite focused and looking right at us. He has absolutely stolen my heart, and I hope that he will find a family that can help him meet his full potential!
These pictures are from May, 2013.
Caius and Anne are in the same orphanage with Ezra.
Large families welcome; married couples only.
BOY, Born August, 2005
Severe cognitive delay, HIV, congenital heart disease
Don't mind this pink shirt, Porter is a BOY. He is cognitively delayed as well, and has some paralysis on half of his body.
From his medical records: HIV stage 3, without immunosuppression, delay of psychomotor and speech development, bacillosis
Boy, born January 2002
DS, atrial septal defect, polydactyly of the left hand
From a volunteer who met him in November 2014: "Artemur really needs to get out. Artemur is probably the strongest and one of the biggest children in his group, eventhough he's only the size of a preschooler. The nurse who knew how to handle this group, an Artemur, isn't there anymore. Artemurs behavior has gone worse. He bullies other children and he hits them. He doesn't listen when nurses try to correct him. But as soon as he gets the positive attention of an adult he totally changes, he starts smiling and behaving very sweet. He is desperate for love and attention. They allowed us to take him (and some other stronger children) for a walk and that makes him so excited. He runs around and he want to explore everything there is to see. It's a very eager boy. He just needs someone to teach him how to interact with other children. I think he would do best in a family with no younger (or at least smaller) children. Artemur is potty trained. When the nurses ask him to help bring the toys inside or push a wheel chair he will help. He knows how to react on verbal instructions. He has some language, but his language isn't very clear. I have never seen him communicate about his needs with the nurses."
Artemur is a handsome boy who has already been waiting far too long for a family of his own!
Large families welcome, multiple children may be adopted together from the same orphanage. Elinor, Devora, Isolde, Julia, Sullivan, Artemur, Duane, Abner and Irina may all be in the same region.
From someone who met Artemur in 2012: Artemur is a ladies man 😉 He loves to greet visitors with a formal "Hello", a chair for the visitor to sit on, and for the ladies he'll kiss their hands and sometimes request a kiss by pointing to his cheek. He has ten toes and ten fingers, and appears healthy. He is one of the two highest functioning boys in his group and is a big helper. He is quite verbal, and he has good self-care skills, he is able to feed himself and ask to use the restroom. He likes to play with etch a sketches, toy phones, and bubbles. Artemur would probably do better in a family environment where he can be the youngest in the family.
Girl, born July 2003
Diagnosis: hydrocephaly, mental delays
She likes to play, tries to walk alone, but needs assistance. She doesn't speak, but understands much.
From someone who met her in 2012:
When I walked into the room packed with children, her smile and wave and joy stood out more than all the chaos and heartbreak and noise. She was a darling and I just know she would be amazing to have as a daughter.
Girl, born August 2009
After-effects of viral encephalitis in the form of microcephaly, movement disorders syndrome (cerebral palsy syndrome), epileptic syndrome of residual genesis, secondary hypothalamic syndrome, loop of thermal control
Brinli has pretty eyes, and such lovely long fingers. She desperately needs a family to save her from a life spent lying in a crib.
Large families welcome, married couples only. Travel required.
Boy, born December 2002
Down syndrome
Robert is a handsome young man. His general development is delayed. He has good gross motor skills, and his fine motor skills need a bit of assistance; he likes to color. He enjoys listening to music, and dancing. He vocalizes, but his expressive speech is not developed yet.
Robert currently is a student in the fourth grade of a Special School. He has a good orientation in the academic environment and points at objects in the classroom. He understands instructions, but does not always follow them. He knows his name and reacts with a smile when called by name. He takes part in the educational activities with interest but he would soon lose his concentration. He shows positive attitude toward children and adults. He often takes part in organized events. The boy performs simple chores – when assisted and stimulated he cleans his work place and the classroom.
Additional information available from the agency. Recent pictures and videos available, too!
Diagnosis: Down syndrome
Ryan is 12 years old. He has been in an institutionHis gross motor skills are well developed. He walks, runs, climbs and prefers physical activities. He exhibits some stereotypical movements. He plays with toys and attempts to manipulate them correctly. He requires 1:1 assistance for academic tasks. He is currently being instructed in how to trace letters, though he still requires assistance with this task. He tries to fit shapes into puzzles. He can arrange blocks and builds towers with them. He likes to arrange the chairs in stacks. He eats independently, though he's still working on hygiene in related to table skills. He does put away his own dishes once he's done eating. He can dress himself, but he does not undress himself independently. His personal hygiene skills are not built up at this time. During art class, he requires assistance with coloring and art projects. He can glue items onto paper if the items are pre-cut for him. His emotions and attention are unstable. He is hyperactive and doesn't always follow the rules. He exhibits difficult behaviors when he doesn't get his way or doesn't want to do something. He is sometimes aggressive with objects and with his peers. He enjoys dancing and prefers to participate in activities and play that involve a ball and interacting with children who are more physical.
Additional information: Ryan has been visited by an experienced adoptive family and members from an adoption team well experienced in observing children with special needs. During the visits, he exhibited aggression toward the adults and staff members from the institution. He had difficulty following basic instructions from the staff and often didn't respond to his name. He did seem to enjoy interacting in small amounts with the adults, though he wanted those interactions on his terms. He did not respond well to restrictions or being made to do things that he did not want to do. He will need a family willing to provide a lot of structure, routine and consistency in behavior management.
Additional photos and videos of Ryan from October 2012 are available.
Boy, born November 2000
Down syndrome, neurodystrophy, psychological and motor development disorder, alalia
So glad to have a new photo of Duane! He's making silly faces for you.
From a volunteer who visited with him in July 2014: " Duane is a wonderful boy, but he doesn't get the attention he deserves. It is getting harder to interact with him. He responds less and less when you try to interact with him. Even when you are interacting with him, he loses interest and he will lay on the floor again.
He is best friends with Isolde, but she has been put in a different group now. Nobody ever puts them together, so that's what we did this summer. The nurses first wouldn't let us, but we explained that they are best friends and then it was okay. They hugged for minutes, until he was getting weaker (his legs aren't really strong) and he lay down on the floor again. Isolde tried to get him to hug some more or to play a game through the bars from the playpen, but he didn't react anymore. I'm afraid that next year he'll be worse again. He needs to get out. Duane has some language, but is mainly non-verbal. He shows no aggressive behaviors, but as said, he is getting weaker, he is showing less and less behaviors at all. Someone needs to go and get him out of there."
From someone who met Duane in 2012: Sweet little Duane is the huggiest boy I've ever met! He is a determined, strong willed little guy and is up walking and chasing after balls despite some mild CP on his left side that causes his left knee to extend backwards in a painful looking manner. He has an amazing laugh, though it is sometimes a mischievous laugh. He sometimes feels the need to push boundaries, such as throwing balls at the other children, but he is a boy with a lot of love to give, both to the adults and the other kids in his group. He also sometimes gives massages. I feel he would especially thrive in a house where he is the youngest, or at least the smallest child in the home.
Significant features of FAS, shared as a cautionary disclosure for families considering his needs.
Duane's best friend is Isolde; they could be adopted together. Elinor, Devora, Isolde, Julia, Sullivan, Artemur, Duane, Abner and Irina may all be in the same region.
Boy, born July 2007
Ectodermal dysplasia (anhidrotic)
Boy, Born December 2001
Down syndrome
Handsome Gabriel! 13 years old and really needs a loving, experienced family to give him the life he deserves. He probably has a bit of ADHD, possibly ASD. He is considered relatively low functioning (compared to other children with Down syndrome). But he is active, able, and deserving of a better life than he's got!
Gabriel will do best in an environment without younger children. He is a big boy and can be assertive at times. He has tremendous potential and I can't wait to see him blossom in his new family! Older parents and larger families welcome!
Down syndrome
Nikolajs is 12 years old and waiting for his family to find him. His name means "Victory of the People". Walks free, is active in the environment which is known to him. Is not able to talk but understands what others are saying, uses gestures when communicates. Expresses emotions by making different sounds and by imitating gestures, likes to imitate different activities, likes dancing or talking by the toy cell phone. Nikolajs also likes playing, has interest in books and magazines. He is calm and he likes to play with his toys alone. Makes role plays – cooperates with other children when wants to. Likes leafing books. Nikolajs knows his digits from 1 to 5 on his fingers. Also points to correct letters when asked. Takes part in sports and culture events at the orphanage.
Full medical and social history available!
Boy, Born April 2001
Down syndrome
Brady is a young man who is 14 years old. He has blue eyes and light brown hair. Brady by nature is calm, kind and he likes tactile communication with an adult.
Brady needs a loving, experienced family of his own. He has heart and pulmonary conditions that desperately need to be addressed. These impact his physical and cognitive abilities, and keep him from achieving his full potential. Full medical and social history available.
Older parents, large families, and single moms are welcome.
Boy, Born May 2004
Down syndrome
Christian has positive reactions towards the adults with whom he is familiar. Has interest about what surrounds him, though not very big and also not very sustainable. Makes unarticulated sounds. He sleeps well, but has difficulties to fall asleep.
Christian attends school and gets good references from his teachers, he is starting to express his opinion – murmurs when tries to answer. Active and joyful and as most boys – he likes cars and playing with them. Is able to move up and down the stairs, eats self-dependently, though has self-care difficulties (still working on toileting), likes long walks in fresh air but is able to do them only with holding on one's hand.
Christian has amazing potential….what a joy to get to watch him grow and thrive in a forever family!
Older parents, large families, and single moms welcome. Great program!
Boy, Born November 2001
Diagnosis: Severe mental retardation, significant behavioral changes that require looking after or treatment (F72.1). Down Syndrome. Atrophy of optic nerve. Thrombocytopenia. VCC – atrial septal defect.
Jordan is 13 years old. He has light brown hair and brown eyes. Instead of playing soccer and other games, Jordan clings to a walker because he has vision problems, and it makes him feel so uncertain about the world around him. Jordan has tremendous potential in a loving, experienced adoptive family.
Older parents, large families and single moms welcome. A family where Jordan can be the youngest, with older siblings, would be ideal for his learning and attachment. He has missed out on so much in life WE'VE HAD MULTIPLE SUCCESSFUL OLDER CHILD ADOPTIONS IN THIS PROGRAM!!
Girl, Born November 2001
Down syndrome
Crystal is so pretty! Dark hair and brown eyes. She does have Down syndrome, but also has many facial features of FAS (fetal alcohol syndrome) as well. Crystal has tremendous potential. She has been significantly impacted by very poor vision and hearing, and that has resulted in lower cognition and physical abilities. Imagine how her world could open up with medical treatment, glasses, and hearing aids!
Crystal can be assertive sometimes, so a family with older children is recommended. Full medical and behavioral info available. Older parents, large families, and single moms welcome.
Girl, Born January 2002
Down syndrome
Jill is a beautiful young lady who needs a loving, experienced family. She is considered profoundly delayed. She does attend a school for children with special needs, and she does recv therapy and specialized care in her orphanage. She is growing well (size-wise), but she needs full care. She tries to walk but gets tired easily. She has some autistic/institutional behaviors, and craves sensory input.
Full medical and social history available. Wonderful program with a great agency partner. Older parents, large families, and single moms welcome. Families should be experienced with international adoption and the challenges of older children with special needs. Photos available.
Boy, Born November 2003
Down syndrome
Hi Thomas! Thomas is 11 years old and waiting for his forever family. He is in 2nd grade now in his school and doing well. He is very active and friendly, smart and helpful! He does have a heart condition that will need attention.
Thomas likes to listen music, fairytales and poems. He tries to recognize letters and digits from 1 to 10 now. Is able to count along if one also is counting together with him, can show the digit, which is needed on his palm, when asked. He also is trying to learn to group shapes and to recognize colors. Thomas likes working with playdough. He gladly participates in sports activities and he likes aerobic exercises. Thomas is good in acquiring and comprehending everything what is new to him.
Self care skills – is able to dress and undress his clothing, but needs some help to button and unbutton his clothes, puts on his boots. Eats and drinks slowly but self-dependently. Toilet-trained during the day, still needs help at night. Thomas is learning how to wash his hands without getting wet and also tries to brush his teeth. Willing to participate in different house-works, he watches how it is done by others and then imitates it.
Thomas walks and runs. Likes going outside. He pronounces simple words and his own name in his special 'language'. Responds to his name and is active. Understands simple instructions. Repeats words and always wants to do something – playing, imitating sounds and actions. Especially boy likes to improvise dancing. He likes playing alone, then he puts pyramids, draws lines with pencil. He observes other children around him and then imitates what he has seen. Thomas always will find what to do in his spare time. Likes music lessons and he often dances by the music. Learns to put in order toys after he had played with them.
Diagnose: Severe mental retardation, significant behavioral changes that require a looking after or treatment (F72.1). Down's Syndrome. Compensated hypothyroidism. Celiac disease. Gastritis, duodenitis-helicobacter pylori positive, congenital heart disease, defect of septum of auricle of the heart, cardiovascular incompetence I-II (CVI I-II).
Boy, Born June 2001
Down syndrome
Handsome Fritz is already 13 years old. He has blonde hair and hazel eyes. Fritz is blessed to live in a nice orphanage, but he needs a family of his own. He is considered lower functioning, and really needs a family who is experienced with adopting older children.
Fritz may struggle with some sensory or ASD challenges….he is very responsive but needs a lot of self-help and guidance from parents/caregivers. He would probably do best in a family where he can get lots of attention from his parents and older typical siblings….be the focus of the family!
Wonderful program, outstanding agency partner…older parents, large families, and single moms welcome. More photos and medical info available.
Girl, born August 2007
Nervous system disorders, mental delays
Jolina is a darling girl, waiting for her forever family! She has some features of FAS (fetal alcohol syndrome). This is a cautionary disclosure, not a diagnosis.
Update from April 2014 : Jolina is a beautiful girl and she is very sweet! Her eyes are mesmerizing and full of hope and excitement. She is attentive to her nannies and seems to follow their instructions well. Jolina longs for attention and it is obvious that she has a desire for a family. She immediately wanted to call me "mama" and she patted the bench to let us know she wanted us to sit down near her. She seemed a little unsteady on her feet but she was walking around the room and she pulled a chair over to sit right in front of us. Jolina didn't say much while we were in the room, so its hard to say how much she talks. Her orphanage was lovely and we would adopt from there again if given the choice. Jolina's photo does not do her justice and sadly she seems very overlooked! We can't wait to see Jolina with her forever family!
Girl, born August 2009
Spina bifida – Congenital malformation of the central nervous system, myeloradiculomeningocele with rachischisis of lumbar spine; internal hydrocephalus, low paraplegia
Lovely Lanora needs a mama to let her beautiful hair grow out!
Large families welcome, married couples only.
Boy, born April 2009
Cerebral palsy – Spastic diplegic cerebral palsy
Moderate mental delays; Divergent strabismus; Planovalgus (foot) deformity; malnutrition
Macarius speaks, plays toys and has a positive personality, smiles often. He is a very good boy!
Macarius doesn't walk, the boy needs a surgery and even with surgery there can be only hopes for his future ability to walk. The doctor in the orphanage says he has good prognoses for the future and his development.
Additional pictures available. Large families welcome, travel required.
Girl, born, March 2010
Cerebral palsy, optic atrophy, developmental delays
Ohh, I love her little pouf of hair, what a lovely little girl.
Not sure how much vision she has.
From a family who met her in early 2014:
She needs out! She is skeletal and looks to be in very poor condition. Neveah just cries and cries if you get near her. Also, she appeared to be heavily sedated. She had a toy tied to her wrist/hand, and her hands were bound to not scratch herself. So, so sad.
Boy, born March 2006
Cerebral Palsy, significant mental delays
Not a great picture, but Liam is a cutie! Even though he has CP, it's nice to see him in a place that has him up and about.
Large families welcome, married couples only.
From a family who met him in 2014: This little guy tried for 5 minutes to get my attention before I could come over to him. Although he is mostly nonverbal, his receptive language is good, and he was able to follow instructions and respond to our conversation. I asked what he could do physically, and he immediately began pushing the cover back and trying to flip over, to show me he could roll, and pull up on the side of the bed. He is very sweet, and so very much wants OUT of the bed and to be up walking, but without proper medical intervention and regular therapy, he won't be able to. His outgoing, sunny personality is absolutely wonderful! His biological mother died 4 years ago, and he entered the orphanage then, so he had that solid foundation of a loving mom during the important years. From a CP perspective- all four limbs are involved, and he has high tone in his torso that makes it difficult for him to sit up, because when he gets excited, his tone kicks in and it flattens him back out. He also has significant spasticity in his legs, particularly in his heel cords and hamstrings. That is something that in the USA might be treated with a medicine like Baclofen, which would allow him more flexibility. He's very affectionate and easygoing, and constantly tries to get up and move around like the other kids. He just really needs a family to help him reach his potential!
Girl, born January 2005
Anophthalmos (absence of eyes)
What a sweet little girl! She is walking independently.
Married couples only, large families welcome!
Update June 2013:
Don't let Cambria's pictures fool you. She is happy and full of life. Usually, she is stuck in bed for her own safety, as the nannies are afraid she could fall or run into something and hurt herself. When I took her out, she was able to walk, run, and dance to the music playing on the TV in the room. She loves dancing! She started laughing when I clapped my hands in front of her face and when I sneezed. She is an absolutely angelic little girl. While I do believe she has some institutional autism, she would be a joy in any family, and with love and proper care will thrive.
Update March 2014:
Although she mostly lays around because she cannot see, she walks and dances; she loves music. She is extremely gentle, and sensitive to noises. She loves to be swung around and rocked gently, and that also makes her giggle.
Girl, born November 2007
Congenital cytomegalovirus infection, Profound mental delays, Other paralytic syndromes (CP), epilepsy, Microcephaly, Coloboma of optic disc
Sweet love needs a family, or she's destined to a life lying in a crib. She has a host of needs; a family will need to be well prepared — but she deserves the chance to bloom!
Girl, born 2006
After-effects of early organic affection of the central nervous system in the form of intelligence deficiency, atactic syndrome (epilepsy).
She does not talk, only makes sounds; fulfills simple tasks.
CP and Tetralogy of Fallot (heart condition)
Sweet Jenny is waiting for you! She is almost 3 years old, with brown hair and brown eyes. She was born with cerebral palsy and a heart condition, for which she has already had surgery. She is not able to sit on her own, and will greatly benefit from a loving family, medical care and therapy! If she is not adopted, she will remain bedridden for life.
More photos available. Married couples only. Large families and older parents welcome.
Tyler has waited 10 years for the opportunity to have a family and he is now FINALLY registered for adoption. He needs a family that will look past his age and see all that this little boy can be under the guidance of a loving family.
Tyler has experienced many transitions in his young life. He was placed in an orphanage after birth, sent to a horrific mental institution at age 4, removed from those conditions and placed in a different orphanage at age 6 and then finally moved into a group home family style orphanage at age 7, where he still lives today. In the group home, he is learning daily living skills, basic academics and self-help skills. He eats from a spoon and is learning to feed himself proficiently. He loves water and enjoys playing in the bath tub. He likes to watch TV and to sit on the back patio and watch the dogs walking down the street and the cars passing by. He will call out to the dogs when he sees them. He also enjoys going for walks in the community. He enjoys playing with musical books and toys. He follows verbal directions and says a few one and two syllable words. He knows the difference between familiar people and strangers and enjoys receiving individualized attention from adults. A teacher comes to the group home to work with him and other children on educational goals.
This joyful 11-y.o. boy wi is still waiting for his adoptive parents.
He is a radiant and sociable child who loves interacting with adults. He also has preferred adults which is a significant indicator that the child is capable of forming a relationship of attachment.
Girl, born May 2008
Microcephaly; Coloboma of optic disc; Hypoplasia and dysplasia of lung; Ventricular septal defect; Convergent concomitant strabismus; Mixed specific developmental disorders
VIDEO: https://youtu.be/TZQ2XMjcfZk "Kellen" has been renamed — this is actually a GIRL! Let's find this little love a family Kellsey is in a region that typically waives the 10 day wait after court. Updated picture on left from summer 2013 – she looks great!
*** This child has significant facial features of FAS (fetal alcohol syndrome). This is a cautionary disclosure to better prepare our potential adoptive families. Families considering this child should research the challenges that can come with this condition. You can learn more about FAS here: http://en.wikipedia.org/wiki/Fetal_alcohol_syndrome and post to our Facebook group to ask other adoptive parents about the challenges and blessings of children with FAS. ***
Boy, born March 2005
Congenital hydrocephalus; Coloboma of optic disc; Other paralytic syndromes (CP); Disorder of brain, unspecified; Dislocation of shoulder joint; Atrioventricular block, first degree
Quinn is 7 years old — let's help him find his family. Every child deserves a loving family to call their own.
Boy, born August 2011
inflammatory diseases of central nervous system; Congenital hydrocephalus; Other disorders of optic [2nd] nerve and visual pathways; Carrier of viral hepatitis B
What a sweet baby Elias is!
Elias is in a fast region that often waives the 10 day wait. Married couples only, travel required.
Additional photos available.
Boy, born June 2009
Dandy-Walker syndrome; hydrocephalus; Hypoplasia and dysplasia of lung; Atrial septal defect; Congenital subluxation of hip; chronic viral hepatitis B without delta-agent; Convergent concomitant strabismus; Bilateral inguinal hernia; Tetraplegia, unspecified
This little boy has a laundry list of issues, but I'm confident there is a family out there who will be able to look at this picture and see a child, their son.
Large families welcome, travel required.
Boy, born December 2007
Congenital hydrocephalus; epilepsy; cerebral palsy; Convergent concomitant strabismus; Optic atrophy
Vijay means "Victory" and we are all hoping he will find a family where he can thrive. That would be a victory, indeed! Please help save him from a lifetime in a crib.
Large families welcome, travel required.
Girl, born December 2007
Microcephaly; Other congenital valgus deformities of feet (duck toed); Coloboma of optic disc; Severe mental delays; strabismus; paralytic syndromes (cerebral palsy?)
What a cutie! And what a world of different a head of hair would make for her, she needs to be in pigtails!
Update March 2014:
Very sweet and energetic little girl, eager to play and interact. She definitely has cognitive delays, and does not speak but functions within the preschool type setting classroom of her groupa. She communicates by pointing and making sounds. She appears to have something like hemiplegia CP affecting the right side of her body, causing a big of a drag in her leg as she walks, and causing her arm to be stiff on that side as well. She's a happy little girl and very cute.
Girl, born January 2007
Mixed developmental disorders; congenital malformations of ribs; Coloboma of optic disc; strabismus; Mild protein-energy malnutrition
Cecily should be getting ready for kindergarten, not an institution!
She has some facial features of possible FAS, but this is not documented and is only a cautionary disclosure.
Update March 2014:
I LOVE this girl!!!! She is so poised and smart and sweet and totally impressed me when I would interact with her. She's very formal and polite when she meets new people, but as soon as she would go back into her classroom, she would be playing and laughing and giggling with her friends. She and Cara are friends and play together often. She's a very typical kid, and often took a leadership role when playing with the other kids. One day, she was playing with my daughter, doing some kind of pretend play, and it was quite fun to watch! She's in a groupa that does a lot of preschool type work, and and is set up like a classroom so the kids come home with more age- appropriate skills. Our just-turned-3 year old daughter knows how to work puzzles, hold a crayon/pencil properly to write (and is showing pre-writing skills already), understands the concept of counting, etc- not the "norm" for orphanage life! So, kids from this groupa will likely come home knowing how to play appropriately with toys but also prepared to learn in a school-type setting as well.
Down syndrome
UPDATE December 2015: Emmalyn is a beauty, with her shy smile! Emmalyn likes having her picture taken and is a friendly and happy young lady!
Emmalyn (along with Kinley) are in a facility for older disabled children.
Such a gift to be able to advocate for these older girls. Large families welcome!
Down syndrome
UPDATE December 2015: "This is Kinley. She is a great girl who loves attention. She tries everything the other girls are doing. She is nonverbal and makes her needs known by gestures. She understands staff. Kinley is inquisitive and very interested in what is going on around her. She is affectionate and a real cutie pie!! "
FINALLY! A better picture of Kinley! She is running out of time! Sweet Kinley, she's never has really had her picture taken before, but she's trying! It's apparent she's in need of dental work, and either glasses or surgery to help her vision. Kinley could be adopted with Emmalyn. She's already waited so long, let's find Kinley her mama!
Boy, born October 2004
HIV-infection, IV clinical stage, no signs of AIDS, biochemistry test is good; congenital hydrocephaly (shunting); myatonia disorders; disco-visual nerve subatrophy; myelinic cone fibers; hypertrophy of palatine tonsils; two anomalous chords of ventricle; biliary dyskinesia; slight mental delay with minimal behavioral disorders, night enuresis, organic emotional instable disorders. Probable FAS.
He is said to be very careful and orderly, so he is probably a kid who does very well with routines and structure. He is also described as very helpful.
Oh what a miracle, to have an updated photo of Katrina!!! And there is the light I knew had to be there! She doesn't realize it, but now that she has a profile here on Reece's Rainbow, Katrina has a CHANCE…a chance for a new life, a family of her own, to get out of these four walls and to have something to smile about.
From her medical records: Down syndrome, significant cognitive delay (coupled with FAS), flatfoot, partial atrophy of optic nerves, esotropia, secondary cardiomyopathy.
From a missionary who visited in August 2014: "Katrina is such a clever little munchkin. She mimics lots of different things, massage therapy, diapers changes, hammering in nails. Pulling faces the whole time, she is hilarious! She loves cuddles and once she has you she doesn't want to let go. She still drinks from a bottle. She can walk. She cannot talk (yet). She can be a bit rough at times (scratching / hitting / pushing) so would be better in a family with bigger kids. She just wants to be loved. "
From a missionary who visited with her in March 2012: Oh my heart…I so wanted to bring her home! She is a giggly soft hearted darling…she needs a mama!
From a family who met her, summer 2014:
Katrina was sitting in a stroller both times we saw her but I know she can walk. She seemed very happy to sit and listen to music during a concert for the orphanage, and she looked over at us with curiosity a few times. Her eyes are gorgeous. She was super cute and smiley, also calm and entertained when we saw her.
She was one of the girls selected for the group home, and the individual attention and instruction should really help her transition into a family! Even though she is getting better care right now, she would make even more progress in a real home. She needs a family!
Katrina and Tania can be adopted together if a family is approved and interested. 10 day wait often waived here. Married couples only, larger families welcome.
Boy, born Dec 2008
Eric is a smiley little fellow who likes to feel his caretaker's heartbeat or pulse, because it comforts him. He would be a wonderful little brother in a household of older children.
Eric has arthrogryposis and compensated hydrocephalus. He has had a surgical repair of spina bifada. Overall, he is healthy and would do well in a family without smaller children. His upper body is quite strong and he has full use of his hands, fingers and arms, but he has little control or movement in his lower limbs and they are significantly smaller than his upper body. He can squeeze very tightly with his hands, and reach a full arm's length with no problems even though his resting position is the one you see in the pictures. He does not talk, according to the caretakers but does make sounds to communicate. Cognitively, he has significant delays due to his history of spina bifida and hydrocephalus. He is very much still an infant in many ways.
The picture in the orange shirt was taken at age 18 months, and the second picture was taken at 3 years old. He may have a sister a few years older in a different region who possibly could also be available for adoption or he could be adopted separately. She also has special needs.
Boy, Born May 2011
Sweet baby James! Healthy besides his Down syndrome, and waiting for his forever family. Full medical and social history available.
- Single heterosexual parents may adopt
- No family size restrictions
- Both parents must travel to the country and stay until completion of adoption — approx 5-7 weeks (one parent may leave after a week or two)
- Estimated total cost $21,000-24,500
- Multiple unrelated children may be adopted together
Boy, Born July, 2010
Blind and cleft palate
This resilient little boy was very small and weak at intake and was diagnosed with cleft lip and palate and blindness when he came into care at approximately 2 months old. The orphanage decided to move him to a therapeutic care facility in a different city to receive more specialized treatment. Once there he gained weight quickly and after just one month his overall health and development improved.
Warren is now able to sit in a baby seat, hold his head up for several minutes, and turn over without help. He smiles when played with or his name is called, and he can hold a toy and grab a hand. He likes to kick often too, and his arm and leg development is reported to be good. He is now an excellent eater and is not picky with food. His caregivers are hoping to schedule him for cleft lip and / or palate repair surgery soon. Further assessment on his vision impairment is needed. This child needs a family that has experience with vision issues, access to appropriate resources for vision impaired children and cleft lip and palate services and resources, and understands the social impact of blindness.
Diagnosis: Down syndrome, asthma
2014 UPDATE: Kade was moved out of an institution and into a group home in 2014. He is described as sensitive, with alert look, inquisitive, willful, contact and adaptive to the group. He is oriented in his immediate social environment and in the scheme of his own body. The fine motor skills are developed and all main motion skills have been mastered. He understands and carries out all commands and makes attempts to pronounce some words. He is very energetic with great desire for all kinds of motion games, and is well coordinated and purposeful. Kade feeds himself, dresses himself, and is completely toilet trained. His favorite activity is to listen to music and dance and he shows off on all festivities. His expressive and impressive speech is poor and he has limited vocabulary but he pronounces conscious syllables and words. He imitates objects from everyday life when they are mentioned. He likes to help to take care of the other children in the institution. He is interactive with the other children from the group. He can start playing with any toy. He draws by imitation within the limits of the paper. He likes to play with stuffed, musical and mechanic toys and he uses them according to their purpose. He can play for a long time with them.
Photos and videos from December 2014 are available through the agency.
Kade is currently living in a mental institution but is doing very well. He is attending school in the local village. His gross and fine motor skills are well developed. He colors inside the lines, feeds and dresses himself and is toilet trained. His expressive and receptive language is developed. He answers to his name, follows directions and repeats the names of objects. He participates in games and seeks out contact with other children. He enjoys playing with stuffed animals, musical toys and mechanical toys.
His play is appropriate. He is impulsive and will get upset if he doesn't get his way. However, he is not aggressive toward himself nor toward other people. He has a short attention span and will often give up easily when an activity is too hard and ask to do something else instead. Kade is described as calm, inquisitive, headstrong, sensitive and communicative.
Update from Feb 2013: Kade is toilet trained, feeds and dresses himself, says some words, follows directions, and is not aggressive. He attends special education classes taught by teachers who come to the institution for instructional time. He is active and enjoys playing outside and staying busy. He enjoys the attention from the staff and will act silly to get them to pay attention to him. We have several current photos and a video of him. In the video, he is playing on playground equipment, following directions, joking around with staff and making funny faces at the camera and you can hear him say a few words too. He is living in a mental institution, but he is well cared for and doing quite well.
Madden is doing very well! He is physically healthy and has never had any medical concerns. Like most children with Down syndrome, he's physically small for his age. He weighed 34 pounds on his 7th birthday.
Developmentally, Madden is delayed. He can walk and has good gross motor skills. He is talking and can say words and use simple sentences. He knows and pronounces his name and the names of the other children and care givers in his group. His articulation is not always clear. He is receiving speech therapy.
Madden is described has having difficult with focus and attention. He follows directions and is very compliant with the teachers and staff when given encouragement and positive feedback. He is learning a variety of life skills, including dressing himself, brushing his teeth and making his bed. He enjoys playing with toy blocks and trucks. In September 2011, he began attending a daycare center to assist him in learning appropriate social skills and to help integrate him into the local community.
More photos available.
Andrue was raised by his birth family until he was 9 months old. At that time, he was hospitalized for genetic testing and when the diagnosis of Down syndrome was confirmed, he was left at the hospital. He was then transferred to an orphanage and later on, to an institution for children with mental disabilities, which is his current home. He walks, climbs and catches a ball. He likes to play with stuffed animals and has one favorite stuffed animal that he carries around with him. He reacts to his name and follows simple directions. He pronounces some syllables and attempts to communicate, but his speech is not yet developed. He smiles when spoken to and enjoys cuddling with familiar adults.
Diagnosis: Down syndrome, Chronic pyelonephritis, hydronephrosis first degree to the left kidney
She is said to be independent and active, and she especially loves to swing. She is shy with other children, and seeks attention from adults, cuddling up when hugs and affection are available.
From her medical records: Down syndrome, esotropia, flatfoot, secondary cardiomyopathy.
From a missionary who visited in August 2014: " she is full of energy, she'll keep you on your toes. She eats very well and can feed herself. She can walk, run and jump. She doesn't talk but she makes sounds. She is very boisterous and on the go, she needs big brothers in her life! "
From a missionary who visited with her in March 2012: One time the care giver made her sit with other children she was so desperate for me all to herself shecried! she really didnt want to share me. This is seriously one child who wants a Mama! She seemed so bright, there is so much potential here being wasted. She whacked the other children to keep them away from me but I could tell she was not an aggressive child. Tania is fiesty and able and just desperate for love! I loved her!!! I wanted to bring her and Katarina home. Tania is always active and she loves playing with her swing set, unlike the other kids who rather just play with their toys. The child is a bit shy around the children of her age. However, she is very brave and courageous when dealing with new visitors. The girl suffers from a lack of motherly care and gentleness, so she is attracted to everyone who is nice and kind to her. She hides her lonely soul behind the wall of her active and independent lifestyle. But as soon as she receives a warm hug and a little love, the mischievous girl suddenly becomes docile and calm.
Larger families, older parents welcome. This region does often waive the 10-day waiting period!
From a family who met her, summer 2014:
Tania is such a tiny little cutie! I can't believe she is still waiting! She was also a good friend of one of our boys. Every time he sees her picture he will call out her name.We saw her with the other kids from her home at a concert at the orphanage. She was watching everything and danced to a few of the songs. She was the size of a petite five year old, but proportionally small, not too skinny. Her hair is just starting to grow out and is so pretty. She waved and smiled at us a couple times while we were there with our sons. When everyone walked back to the homes after the concert, she got mixed in with our group as her caregivers were pushing wheelchairs and going more slowly. When our group pointed back to where her group was, she turned and walked back very agreeably. She had no trouble walking the fifteen minutes in each direction. We didn't hear her talk, but she did seem to understand what the caregivers were saying.
She would do so well in a family. The home she is in now is more of a family setting with fewer children and more individual attention, but it is not the same as a real family and they can't stay there forever. It will give her a great head start to transitioning to a family though!
Girl, born March 2007
URGENT: FACING IMMINENT TRANSFER to the INSTITUTION
Harriet has a cleft hard and soft palate. She has many facial features of fetal alcohol syndrome, please research this condition as a preparation for her needs. There are several children in this orphanage who could be adopted together!
From an adoptive family who visited with her in Jan 2012:
Boy, born January 2005
Cerebral palsy and spastic tetraparesis
Jordan does NOT have Down syndrome. He seems very tiny for his age. This sweet boy could really thrive in a family!
Updated picture (left): March 2014
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
Boy, born May 2009
This beautiful boy has hydrocephalus. He's already three years old, and would obviously benefit from excellent medical care.
Update March 2014:
Harold is very responsive and would copy my facial expressions. If I smiled, he smiled back…he would stick out his tongue when I did too. He would grasp my hand….so very sweet.
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
mild mental delays
Troy has been transferred to the local Internat. He is listed as having a mild mental delay. (His eyes look odd here because of the red eye reduction used on the photograph.)
Troy does not speak, but understands speech addressed to him.
From a family who met him in 2012:
The profile says he is non-verbal and that is true, he did not talk at all while I was there. However he was extremely gentle, kind, and had a very sweet demeanor. I took bubbles one day and all the kids mobbed me wanting to play, Troy just stood there patiently smiling at me and waiting his turn. I don't think I ever saw him without a smile on his face. He would sit next to me at the table and would stare very sweetly at me and when I would make eye contact he would put his arms out to give me a hug. I do not know about his cognitive ability because I just did not get to spend enough time with him but he did understand the instructions he was given by his teacher and care taker at the boarding school with no problems, obeying them and following all their instructions (with a smile on his face). Physically he had no problems. I do not know if his lack of speech is due to trauma or an actual inability to form words. I will absolutely never forget how gentle and loving he was, he lives to be hugged and he loved what little one-on-one attention I was able to give him. He was so patient and kind to the other kids. A family would be blessed to have this precious boy as their son!
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
URGENT: FACING IMMINENT TRANSFER to the INSTITUTION
Russ's profile says "goloproentsephaliy" which is unclear, other than there's some condition with his brain. It's unclear if it's a physical or mental condition.
It has been suggested that his 'goloproentsephaliy' may actually be holoprosencephaly like Catherine 9HA, but it would be a milder form than hers i.e. lobar or semi-lobar holoprosencephaly, rather than alobar.
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
This handsome fellow has a mild mental delay. Can't you just imagine him in a family with a bunch of siblings to chase around outside?
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
URGENT: FACING IMMINENT TRANSFER to the INSTITUTION
This little cutie does not look happy about posing for the camera!
Arnold is said to have "lower paraparesis" – which may be anything from CP affecting his lower limbs to paralysis.
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
Boy, born November 2006
Travis is listed as having congenital defects of the Central Nervous System (CNS). We don't have additional information yet on how that affects him overall.
From a family who met him in 2012:
When I saw Travis my heart completely broke. I remembered his picture where he was sitting up, and it was obvious that in the time since that picture was taken his health and any ability he once had had deteriorated. He laid nearly lifeless, covered with blankets (mind you it is very hot in the room). I only have the one picture of him because his position never changed. He rarely moved and seemed to be asleep all the time. The only time I ever saw him move he just rocking his head from side to side very slowly as he grinded his teeth…and grinded…and grinded. My instant feeling was that Travis had given up on life, and it breaks my heart.
Every time I saw him there was vomit on the blanket next to his mouth. I suspect it is due to improper feeding. Like Janna, Travis is living at the orphanage on borrowed time.
Please friends, let's not let Travis give up on life. I don't know what his future ability would be in a family but even if it never changed isn't he deserving of the love of a family? Please…someone…rescue Travis.
Update March 2014:
He is not doing well. He appeared very drugged. He just rocked his head back and forth and ground his teeth. He occasionally would moan and he was salivating a lot and drooling on himself. He did not respond to me when I approached at all, he just kept rocking his head back and forth…which is why the picture is a little blurry…he never stopped.
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
Boy, born August 2003
Ross looks a little forlorn, but he's really chewing a chocolate treat!
His file says he has a seizure disorder, an possibly other mental disorders and brain damage — it is unclear if that all refers back to his seizure disorder. It does not state that he has a mental delay, but it is possible.
It also appears that he has either a lazy eye or vision issues, from the pictures.
More pictures available.
Alan has a cleft palate and hydrocephalus, as well as mild mental retardation. This little boy does not have a mustache, the children were eating a snack just before their pictures were taken However, he does show strong facial features of Fetal Alcohol Syndrome, and the cleft palate and hydrocehalus are common conditions associated with this syndrome. Be sure to research FAS thoroughly so you are prepared for the challenges that come with this special need.
More pictures available.
Charles is a sweet little guy, who looks like he's in need of a Momma to scoop him up!
He is also listed as having barrel chest, which is common in children with Down syndrome. He has no listed heart condition or other health issues.
Charles can be adopted with Megan or any of the other children in this orphanage!
Boy, Born December 2006
From his caregivers: good results of blood tests; gets anti-retroviral therapy.
Character: hyperactive, restless, jumpy, sometimes disruptive behaved
Update Nov 2011:
Louis is a very active and communicative boy. He likes attention, he really needs a family. Just look at his smile. He is very sweet.
Louis may be available with Priscilla.
Poor sweet Marla …she was born with severe CP. She has a loving personality, but is completely immobile on her own. She is facing transfer soon and will remain bedridden the rest of her life if she is not adopted :((
From her medical records: Congenital malformation of the CNS: microcephaly, spastic tetraparesis. Can not walk. Does not speak.
Married couples only, older parents and large families welcome, travel required. More photos available.
Howell is a sweet blonde haired boy who was born with CP. He is cognitively and physically delayed, and will really benefit from therapy and a loving family.
More photos available.
From his medical records: spastic paraparesis with the dysfunction of the function of the pelvc organs. Deep mental delay, hypoplasia of the right testicle.
Howell is able to control his bowels, but not his urine.
May be available with Thomas.
From his medical records: Perinatal hypoxic–ischemic damage of the CNS. Atrophy of the cerebral cortex. Cord was wrapped around his neck at birth, Jake has CP as a result.
Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.
Boy, Born March 2008
Significant mental delays
What a CUTIE! Presley is a sweet boy with blonde hair and bright blue eyes. He is a very happy and affectionate child.
From his medical records: leukemia, delay of psychological and motor development, skull deformation (almost flat on the back), congenital isotropy of both eyes (crossed eyes)
Presley will benefit so greatly from having a loving family! More photos available.
Updated Nov 2013:
He is a very sweet child. Seemed to listen to instructions well. Participated in group activities (like dance and singing). Longing for attention, affection, and stimulation. He does not currently have leukemia; but he has mental delays, and his head is very flat.
Presley may be available with Chase, Darina, and Haven.
Poor Haven……sweet little girl. Such a pretty girl burdened with such medical and cognitive difficulties….and no mama to love her through them.
From her medical records: celiac disease, CP, toxic Hepatitis, hypotrophy of III stage
From our team who visited there: Haven is afraid of strangers and would not interact with us.
Haven may be available with Darina, Presley and Chase.
Chase is a handsome Roma boy with dark hair, olive skin and giant brown eyes. He needs a loving family of his own to bring him out of his shell and to finally feel comfortable and safe.
From his medical records: obvious mental delay, poor understanding, almost does not speak, nervous, not even-tempered.
Chase may be available with Darina, Presley and Haven.
Oh, Noel! ;( Noel was born with hydrocephaly and severe CP. She has had surgery and has a shunt for her hydrocephalus, but she is still just "existing" for right now. She is blessed to still be at the baby house….the director can't bear to send her on.
There is no way to know her potential until she is out of an orphanage and in her own family setting. She will likely require 24 hour care. But she deserves a family of her own!
Because of her severe special needs, any family considering a commitment for Noel should have experience caring for a child with these significant needs.
Daphne was born with CP. She is not able to walk and is significantly cognitively delayed. She is described as an affectionate and responsive child, and she would so benefit from having a loving family of her own.
She is facing transfer very soon, and will remain bedridden if she is not adopted.
More photos available
From her medical records: symptomatic early myoclonic encephalopathy, spastic tetraparesis, severe delay of psychospeech development, perceptive hearing loss
Gabrielle really needs a family of her own! She will remain bedridden for the rest of her short life if she is not adopted, and is facing the institution very soon.
May be available with Wesley.
NEW PHOTO! And what a blessing, too! Look how handsome he is!
Brandon is a sweet little boy who was born with CP. Brandon is socially and emotionally delayed. Whether his delays are simply from institutionalization or have a congenital basis is unknown. Only when he is a wanted part of a loving family and given access to proper medical and educational interventions can his true potential be revealed.
He is also said to have significant speech delays. He has crossed eyes and astigmatism.
Brandon is blessed to still be at the baby house. He is facing the institution. More photos available.
Miss Leila is so pretty! Dark hair and giant brown eyes, she is waiting for her forever family. Leila does not have a specific diagnosis for her cognitive and physical delays. Her speech is severely delayed and she is not able to walk her own. She does have strabismus and an astigmatism.
Leila is blessed to still be at the baby house, but needs a family quickly.
BOY, Born July 5, 2006
Cerebral palsy
After-effects of inflammatory diseases of the central nervous system; optic nerve atrophy; conductive and neurosensorial hearing loss; atopic dermatitis; cryptorchism; severe mental delay
Preston will be institutionalized and remain bedridden for life…he needs a family! He has been waiting far too long!
Preston may be adoptable with Kyle and Eric.
Girl, Born August 2001
Down syndrome
Amelia was born with a Congenital cardiac malformation – Fallot's tetralogy. Surgery was performed in 2005 and her heart condition was completely corrected. Amelia is currently living in a mental institution. She is delayed in all aspects of her development but does receive therapy. She also participates in the granny/grandchild program at the institution. She walks with support. Her speech is developing. She is making sounds and can say "no" and attempts to say the word for granny. She responds to her name, follows basic directions, and plays with toys. She drinks from a cup and eats independently. She enjoys affection, responds well to being cuddled, and is a very happy child.
Photo and medical report were updated in 2014.
Girl, Born February 2002
Down syndrome
From her medical records: The child is in a very good general condition. Elementary thinking processes are observed. She can't speak but pronounces sounds and combinations of sounds: ba-ba, etc. that are completely random. She knows her name and reacts when called. She carries out elementary orders. She is not oriented for place and time. Her attention is unstable, her memory is mechanic.
In emotional aspect the child is calm, merry and playful. She enjoys the attention that she is paid and actively seeks it. She easily enters into interaction with the children and the adults in the orphanage. She has friends among the children and prefers to play with them. She reacts actively in musical classes – makes rhythmical movements, but almost doesn't play with toys and prefers to put them in her mouth or toss them.
The child walks independently and carries out the orders of the physical therapist – crouches, stands up. She already eats by herself. She doesn't signal about her physiological needs and is taken care of entirely by the personnel of the orphanage.
The child is being taught to put her clothes on and take them off on her own. The training for gaining life skills continues.
Single moms and large families welcome, easy travel!
Girl, born 2001
Down syndrome
Update May 2012:
Dawn lived in an orphanage until she was three, when they moved her to an institution.
She just started walking a couple of months ago. She enjoys interacting with adults and playing with toys. Her favorite activities and toys revolve around music. She understands what is said to her but does not have any meaningful speech at this time. She reacts very positively to attention, smiles and cheers when adults interact with her. She attends a class at the institution, but does not go to school outside of the institution. She has not had the opportunity to experience many of the ordinary activities that other children her age are naturally exposed to due to the length of time she's been institutionalized. She doesn't have any medical or behavioral concerns. She just needs a family willing to look past her age to see her potential!
Boy, Born October 15, 2001
Devon was previously listed as "Brian" — but it's the same boy! He's so handsome, and still waiting for a family.
Boy, Born May 2007
From his medical records: symptomatic epilepsy G40.1 Other disorders of psychological development. F88.0; Tuberous sclerosis. Q85.1 Other ill-defined heart diseases. I51.8 Iron deficiency anaemia, unspecified D50.9 Hypermetropia H52.0 Convergent concomitant strabismus H50.0 Cytomegaloviral disease, unspecified. B25.9
Emerson finally available again! He's waited SO long. *** He can be adopted with Jessica and/or Kristopher if a family is interested and approved in their home study. ***
Emerson is growing up so fast! He is so tall now! He is a sweet, blonde haired, blue eyed boy waiting for his forever family. He is quite self sufficient and a happy child.
Girl, Born November 8, 2003
SIGNIFICANT RISK, PLEASE ADOPT ME SOON!! Valerie has been transferred.
Isn't Valerie cute?? She is diagnosed with hypothyroidism. She also has strabismus (crossed/lazy eyes). She is diagnosed with developmental delay, and shows many of the facial characteristics of a child with FAS (Fetal Alcohol syndrome). But she is a darling girl, very active, loving and affectionate! She is facing the institution soon. I hope a family is out there waiting just for her!
If you are unfamiliar with FAS, please spend some time researching this condition. Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively. This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much. There is no way to know this ahead of time.
Donations will be accepted for this child when further information is received.
Gretchen is a sweet little girl with giant blue eyes! She is officially diagnosed with FAS (fetal alcohol syndrome), and was *previously* a carrier of her mother's Hep C antibodies. She is testing negative now. She does have strabismus as well. She is able to stand on her own, but is not quite walking yet. She is cognitively delayed, but is affectionate.
Gretchen is a beautiful little girl who deserves a family of her own. She was recently cleared for adoption in February, 2013, when she turned 5 years old.
Girl, Born April 2006
Cerebral palsy / TBI
SIGNIFICANT RISK, PLEASE ADOPT ME SOON!! Eugene is really a GIRL! After all this time, we have learned he is a SHE. Dark brown hair and blue-green eyes. She has severe CP, but has recently started walking! Jewell is the victim of parental physical abuse, and suffers from post-traumatic brain injury, which has further complicated her delays and struggles.
Updated medical and pictures 8/2015:
She has after-effects of severe brain injury (brain bones fracture), subarachnoidal influence in the form of irreversable damage, hemiplegia with microcephaly.
Dark brown hair and blue-green eyes. She has severe CP, but has recently started walking!
Jewell is the victim of parental physical abuse, and suffers from post-traumatic brain injury, which has further complicated her delays and struggles.
She does have a sister with mild delays whom she can be adopted with or by herself
BOY, born November 9, 2006
Nicholas is officially diagnosed with FAS (fetal alcohol syndrome). His delay is considered significant. He needs a loving family to help him achieve all he can be. He does not appear to have any additional medical complications from his FAS. This picture makes him seem to have vision problems, but I think it's just a bad picture.
If you are unfamiliar with FAS, please spend some time researching this condition. Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively. This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much. There is no way to know this ahead of time.
Noah is a sweet boy with light brown hair and big blue eyes. He was born with CP and is significantly cognitively delayed. He is not able to walk at this time, but loves to be held and loves attention and affection. His possibilities are endless!
Boy, Born November 27, 2006
Photo dated Feb 2010. Kenneth is a blonde haired, blue eyed cutie who was born with FAS. Kenneth does have some spasticity on his left side, and will greatly benefit from therapy and a loving family to encourage him! He is diagnosed with hydrocephaly, but this is a result of the FAS. He is not in need of a shunt to correct (the doctors say).
As you can see from this updated picture, Kenneth is doing GREAT! He wants a mama and papa of his own.
If you are unfamiliar with FAS, please spend some time researching this condition. Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively. This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much. There is no way to know this ahead of time.
Boy, Born August 2004
Main diagnosis: Down Syndrome. Asthma with prevailing allergic component. Lagging behind in his neuro-psychical development. Abnormally low weight; full medical records available
Boy, Born April 10, 2003
HELP! I have been transferred to a remote institution, with no hope of finding my family without you!
Jason spends his time either in a crib or in a stroller, sitting outside.
He needs a lot of love and attention … He is a good, sweet child, but he has a lot of self-injuring behaviors. Unfortunately, he is often restrained because he hits himself really hard.
Update Nov 2012: Jason is learning to walk with support!
From a family who visited with him in June 2013: I saw Jason this morning. I got to take him for a walk in the stroller, play with him, feed him (twice!), and get him ready for his nap. He is wonderful. He loved it when I made my hand crawl up his belly and tickle him under the chin. I was rewarded with loud laughing and a huge smile. He liked to have me rub his feet, and whenever I would stop he would stick his little foot up for more. He makes noises but he does not talk. He can walk if he holds both of your hands, but he prefers to crawl as he can go faster. He is the king of the bouncy seat. He sits in it whenever he can, and he shooed away another child who came too close. 😉 He is about the size of a four year old and is in a 4/5 shirt. He's heavier than I thought he would be, but I can carry him easily. I'm totally in love.
10 day wait often waived here. Married couples only, larger families welcome.
Boy, Born August 28, 2004
Matvey is such a cute little boy, with blonde curls! He is cognitively delayed, but does not seem to have any official diagnosis other than that. He has amazing potential!! He was transferred to another region in 2010.
$310.80 has been donated towards the cost of my adoption!
This child is in a region that is currently not open to adoptions. We are no longer able to accept new donations for this child. The current grant funds will remain with this child until the unrest is resolved or the children become permanently unavailable for adoption.
BOY, Born August 28, 2004
Samson is also blessed to still be at the baby house. He was born with CP and strugges with epilepsy. He has optic nerve subatrophy, and will do great in a family who has experience with vision impairments! The caregivers say he has a great personality! Samson has so much potential!
Sealey needs a family….he has severe CP, and is diagnosed with congenital brain malformation; anencephalea (no cerebral cortex).
He is not able to walk and needs full care. It will be so wonderful to see him blossom in a loving family. He is facing the institution very soon. MORE PHOTOS AVAILABLE
Boy, Born August 23, 2001
Diagnosis: Down Syndrome, Severe lagging behind in his development, Alopetio areata
Brett was born premature at home and taken to an open field, where he was abandoned. He was there for 6 hours before being rescued and taken to a local hospital, where he was treated for shock, hypothermia, bug bites all over his body and difficulty breathing. Once released from the hospital, he was placed in an orphanage and later transferred to a mental institution, where he lives today. From a physical standpoint, he suffered several bouts of bronchitis and other sicknesses as a young child. He does have alopecia (hair loss), but does not have any other health problems at this time. Based on one of the video clips, it appears that Brett is able to pop his hip out of socket, as his can turn his leg at an unnatural angle. He can walk and move freely around in his environment.
Brett suffers from many delays as a result of spending over 10 years in an institutionalized setting. He walks, plays with toys, communicates using gestures and interact with adults at will. He is NOT aggressive. The staff cares for all his basic needs and he is not receiving any academic instruction or any noted therapies at this time.
Several photos and videos of Brett from December 2012 are available.
Boy, Born August 2001
Down Syndrome, Inborn cardiac malformation – persisting arterial channel, Lung hypertonia, Severe lagging behind in his development.
Marlowe was born in 2001. At the birth the child was with atresia of the esophagus and tracheoesophageal fistula due to which a surgery was performed on the third day after the birth. There was clinical data for Down Syndrome. Congenital cardiac malformation – persistent arterial canal and pulmonary hypertension. Persistent ductus arteriosus; Eisenmenger Syndrome. Infantile cerebral palsy – spastic quadric paresis, moderately expressed; Hypotrophy; Hypothyroidism; Cryptorchidism; Severe mental delay.
Marlowe walks with the help of an adult and makes several steps on his own. His physical development doesn't correspond to his age. He doesn't speak. Marlowe would hold a toy given to him for a short time; he demonstrates interest in the objects and studies them; he makes eye contact and follows an adult if he is appropriately stimulated. He would look at his reflection in the mirror for a long time and makes attempts to touch it. He is entirely served by an adult. He eats mashed food and is fed by an adult. He is a student in the special education school.
He is calm and doesn't demonstrate aggression or auto-aggression. He clearly expresses when he's happy. The child doesn't speak but he reacts when called by his name. He pronounces some combinations of sounds and irrational syllables. He wouldn't play with peers and prefers the company of adults. The child demonstrates initiative for interaction with adults and children.
Down syndrome, autistic traits
YAY!!!!!! A new photo of Adam!
Adam has lived in a mental institution since shortly after his 4th birthday. Visitors to the institution have described it as very nice and more like a nice hotel than a mental institution. The children are well cared for and have many opportunities to experience things. Yet Adam is still missing the love and attention that comes with having a family of his own.
Adam is 10 years old. He walks and his gross motor skills are well developed. He does not talk at this time but does follow verbal directions. He feeds himself with a spoon but still requires some assistance with dressing. He plays with toys and enjoys music time, but prefers to play alone instead of with the other children. He is not aggressive toward himself nor others and is described as "a calm child". He does the stereotypical rocking back and forth when sitting, which is a common "orphanage behavior". He attends school in the local village. He's in a special education class. He is not interested in most school activities, though he does enjoy music time.
Adam is currently living in a group home. He walks independently and goes up and down stairs, but is very careful and always seeks support before acting. He electively carries out orders and doesn't react to his name. He plays for a short time and doesn't seek contact with the children from the group. He has preferences for certain toys but doesn't use them according to their purpose. He is apt to seclusion and avoids group activities. He is a calm child, reacts to emotional stimuli and differentiates different tones of the voice. During celebrations and musical activities he moves away to play on his own. He requires assistance for tasks such as dressing and toileting.
Photos and videos from December 2014 are available through the agency.
Boy, born April 2001
Down syndrome
(was previously listed under a different name)
Chad was born in 2001, he started looking at objects at the age of 6-7 months old; he started reacting to sounds at the age of 4-5 months old; he started sitting independently at the age of 1 year and 8 months and he walks with support since he's been 2 years and 6 months. Chad has Down Syndrome; Delays in the neuro-psychical development; Moderate mental delay.
The child considerably lags behind for his age in his physical development. His motions are uncoordinated. The fine motor skills are not mastered. The child walks independently and climbs up stairs with support. His attention is difficult to attract and to keep. His memory is with limited volume and the memorization is primarily mechanic, with accumulation. The child reacts with increased anxiety and cry to unfamiliar environments. He participates in group activities with the other children and actively contacts them. He cheers up when contacted by an adult and reacts by uttering sounds of cheer and watching the adult in the eyes. Chad is oriented in the space in the different parts of the day. He demonstrates bond, cheer, anxiety, and guilt. He calmly observes the children playing. He would play with them and is happy from their contacts. He carries out elementary instructions: "come", "sit down", "give me your hand". The child doesn't have developed skills for self-help and needs constant support. He can eat independently. He can't dress or undress but cooperates when changed. He reacts to his name. He is oriented in the daily routine
He understands the speech of the others when it is simple. He pronounces single sounds by imitation. He is interactive, seeks contact, and demonstrates selectivity and preferences in his interactions with the other children and the personnel. He has expressive facial mimics that he shows his emotions with. He likes to listen to songs, laughs out loud and claps with his hands. He moves in tune with the music and is very mobile and energetic. He attracts the attention of the adults by pulling them or patting them with his hands because he can't speak. He pronounces separate syllables – "ma", "ba", "da", as well as words with repetitive syllables – "mama", "baba".
Boy, Born March 2001
Down syndrome
From his medical records: Elementary thinking processes are observed. He can't speak but pronounces separate sounds and some syllables. He knows his name and reacts when called. He carries out very elementary orders come here, give me your hand, and lie down. He distinguishes praise and reprimand. He is not oriented for a place and time. His attention is unstable, his memory is mechanic. He gives his hand for a greeting. He walks independently and has good general motorics. The fine motorics are limited. In emotional aspect the child is calm and quiet. He rejoices at the attention he is paid but prefers to play alone. He likes to play with toys by turning them from all sides. He looks at his hands with a great deal of interest and entertains himself by making different movements with them. The child is taken care of entirely by the personnel. The child is included in the project Granny and grandchild and learns how to eat independently. A speech therapist works with the child in order to develop his speech skills. The training how to eat on himself continues.
Born December 31, 2000
Down syndrome
UPDATE NOVEMBER 2014! From one of our adoptive families who visited with him: "The institution he is living in has undergone a lot of changes in the last year after a new director was appointed. The building has been remodeled so that the children now live in family style groups with multiple bedrooms for two children each, a living room, small kitchen, dining room, two bathrooms, laundry room and a visiting area. During free time the children move around between the rooms as they please and we have seen the children in Andruis' group helping with some of the daily living tasks – clearing dishes, vacuuming, assisting children who cannot feed themselves and so on. Andruis is in a group with seven other children of varying ages and special needs. He is a very quiet, peaceful, gentle boy. He prefers to play with dolls and stuffed animals and he generally keeps his distance from the loudest and most active children. We watched him sit with a much smaller, weaker child who crawled on Andruis and stroked his hair for a solid half an hour and Andruis was not at all defensive or rough with the littler boy. His caregivers say that he does not speak, but hears and understands what is said to him. He can dress and use the bathroom with minimal assistance. He has had trouble with his teeth since being transferred to the institution and eats only soft foods, but he feeds himself neatly and clears his own dishes when he is finished. He is shy and new people in his environment cause him to withdraw a bit, but I saw him snuggle up to and smile at a familiar caregiver and he interacts appropriately with the other children in the group. He attends a nearby school for children with special needs and participates in many therapies and activities. If he is not adopted he will remain at the same institution for the rest of his life, moving from the children's to the adult's wing when he turns 21. The director is very interested in seeing children adopted, but a bit incredulous that anyone would want them. Our daughter is the first child ever to be adopted, domestically or internationally, from this institution. It would be wonderful if Andruis could be the second!"
Thank God for a new photo and updated info about Andruis! He is a New Year's Eve baby, so he brings the promise of great things in every new year! Andruis has some hearing loss and wears hearing aids. He continuously receives speech and music therapy. As you can see from his photo, he is doing well, but desperately needs a family as he has been living at the institution since 2007. Andruis attends the 5th grade at the special needs school. He is able to walk/run and is active. He smiles and is affectionate, but shy around people he doesn't know. He does not have much speech at all, but so much of this is due to his poor hearing. Imagine how is world could open up with improved hearing aids! His entire world, everything he processes, is delayed due to hearing impairment….signing may be the key to opening his whole world. He is able to eat on his own. He needs help with self-care/hygiene. Andruis has SO much potential in a loving family. He's been waiting SO long and has lost so much time when he should have been at home!
From his medical records: born premature at 35 weeks, 4th pregnancy. Down syndrome, cognitively delayed, cochlear neuritis – hearing impairment. Atopic dermatitis. Hypermetropia on both eyes. FULL MEDICAL RECORDS available upfront.
This is a GREAT country program, with excellent health and social care, and full medical records available upfront. Andruis has been listed with us for many years, it's his turn to find a family! Interested families should be home study approved (or close to it) to adopt an older institutionalized child and should not have very young children in the home.
Experienced adoptive families may be the best fit for Andruis. Please inquire! He is running out of time.
- Married couples only (married at least 2 1/2 years)
- Parents must be 18 years older than child; no more than 50 years old
- Two unrelated children can be adopted together
- Two trips are required
Down syndrome
Mikale has been transferred to a mental institution. He attends a specialized school. He interacts well with other children and does not have any behavior issues. He's non-verbal, but he understands what is said to him and follows directions that are given to him. He plays appropriately with toys and enjoys blocks most of all. He feeds himself and assists with setting the table and also with cleaning up the toys. He seeks out adults and other people to interact with. He is physically healthy, with no past or current health concerns.
Additional photos and videos from January 2013 are available for interested families.
Boy, born June 2002
Down syndrome
Marty is described as a quiet and even-tempered child who has adapted quickly to the routine and daily schedule at the institution. He is able to walk independently. He assists with dressing and undressing himself and is learning to feed himself as well. He goes to the toilet when reminded to do so by the staff. He is not yet speaking but demonstrates understanding and follows basic requests.
He plays with other children and interacts well with adults. He responds to his name and loves attention from the caregivers. He has a special bond with one specific care giver. He loves to play with toys and shows a preference for stuffed animals.
Marty has already been transferred to an institution.
UPDATE March 2014:
He is a calm and quiet boy; good general condition; walks independently; eats, dresses/undresses and puts his shoes on independently; a 5th-grade student at an auxiliary school; vocalizes; understands what he is told; scribbles; establishes contact with other children and staff members; loves getting attention and being caressed; follows simple instructions; has formed a relationship of emotional attachment with one of the staff members; loves listening to music.
Down syndrome, deafness, strabismus
Tanner was transferred to a group home in 2014. He is very small for his age and has delays in all aspects of his development. While he has an official diagnosis of deafness, he does respond to some sounds, so it is thought that he has some degree of hearing loss, but that he is not completely deaf. He does not have any speech, but he does respond to some basic commands and also to hand gestures. It is possible that many of his delays could be compensated for once his hearing issues are addressed.
Tanner attends a school for children with special needs. He doesn't have problems following the rules in class and at school. He is calm and usually smiling. He is the favorite of the children at school. He is not aggressive and doesn't get irritated by the other children. His expressive speech is not developed. He carries out simple commands – "stop", "sit down", "give me", and "take". He knows his place in the classroom – he has a favorite spot in each classroom. He is oriented in the rooms and partially in the school building. He opens and closes the closets. He can lock and unlock the doors of the closets if the key is put in. He tries to put in the key (rarely manages) and is happy if he succeeds. He likes to look at books with pictures. He has a favorite book in each classroom, picks it up and manipulates with it. He observes the other children while they work. He shows interest in pictures of animals. He works with desire in the classes for physical education.
Photos and videos from December 2014 are available through the agency.
Diagnosis: Down syndrome, Hypothyroidism, Language delay, Moderate mental delay
Michael says "HI MOM, do you see me? I'm waiting for you!" Michael is a handsome, happy, and active little boy! He has been blessed to be very loved and well taken care of! But here he is waving to his new mama, wherever she may be! FULL MEDICAL and SOCIAL RECORDS available. Michael is described as very loving and affectionate. He is well adjusted and attached to his caregivers. He is very active and physically capable…a typical boy! He receives therapy regularly and continues to work on his speech. Please consider Michael! His adoption will open doors for so many more children in this wonderful, but small, program!
From his caregivers: Michael attends a school for children with special needs. He has been in the orphanage since he was 2 1/2 years old. Michael is very affectionate and has achieved a certain level of independence. He demonstrates an ability to adapt quickly in various situations and has great capacity to give and receive affection. He is working on improving his pronunciation.
Update Feb 2012: (further records available on development)
He is a child with fast adaptation to new situations, however when he gets confidence and trust to somebody, he has demanding and resistant behavior when somebody don't do what he wants. The lack of an appropriate way to express his ideas, emotions and thoughts, generates emotions like sadness and frustration; this usually can be manifested in situations who are demanding.
Michael is a happy child, likes to show his affection, affectionate and with big desires of attention. His social development corresponds to mild retardation. In self-reliance activities his performance is independent, for which he only requires slight supervision. In activities which involve expressive and written language he still requires support.
Michael's country is *beautiful* to visit, and is rich in culture and history. Amazing trip no matter what time of year!
Girl, Born November, 2005
Girl, Born October 2007
Oh Darina, how she has regressed :((( We had such a darling photo of her from two years ago, and to see her like this now breaks my heart. She could have come so far and been spared this ;(
Darina struggles with CP. She has compensated internal hydrocephaly as well. She is not able to walk on her own. From her medical records: congenital brain abnormality, atopic-astenic syndrome, delay of mental and motor development, microcephaly, hip dysplasia, congenital isotropy of both eyes, koch valga to the left (foot position)
Darina is facing the institution soon and will remain bedridden for life if she is not adopted.
Darina may be available with Chase, Presley and Haven.
If you are unfamiliar with FAS, please spend some time researching this condition. Just as with Down syndrome, FAS and FAE have a wide variation of effects on each child, both medically, physically, and cognitively. This is typically dependent on how long during the pregnancy the mother consumed alcohol, and of course, how much. There is no way to know this ahead of time.
Janie may be available with Nate and Jared.
Girl, Born August 25, 2004
Cerebral Palsy
What a beautiful little girl! Wispy blonde hair and bright blue eyes! Miranda is healthy and developing well out side of her CP. She is an orphanage favorite. Waiting for more info on her ability to walk/speak, etc.
She has two younger siblings, their status is not known.
She was transferred from her baby home, and still waits for her family. She has been listed for SO long!!
Girl, Born January 22, 2007
Nana is a precious little girl with sunshine blonde hair and blue eyes. Her medical records indicate prenatal alcohol abuse, resulting in severe CP and hydrocephaly.
More photos available, please inquire.
Sergey needs a loving family who can help him achieve his full potential. He is destined to be bedridden for his very short life if he is not adopted. he is able to sit on his own and does his best to get around. He is significantly delayed and really needs a family! Sergey is facing imminent transfer to the institution.
From his medical records: congenital brain anomaly, spastic tetraparesis, simptomatic epilepsy, generalized tonic clonic seizures, cryptorchidism, adenoid vegetation, bending-movable contractures of the hip joints, deficiency anemia, mental delay
Nate is a handsome young man! He was born with CP, and has some vision problems as a result of CMV (cytomegalovirus). He has brown hair and big brown eyes. He is not able to walk on his own, but he will truly blossom in a loving family, who can provide the therapy and encouragement he needs. We are hoping to learn if he is being treated for the CMV, but he is asymptomatic at this time.
Nate may be available with Janie and Jared.
BOY, born May 1, 2007
This handsome young man, with dark hair and dark eyes, was born with a rare genetic condition called Stickler Syndrome. His medical records also indicate microcephaly, a common symptom of SS.
Individuals with Stickler syndrome experience a range of signs and symptoms. Some people have no signs and symptoms; others have some or all of the features described below. In addition, each feature of this syndrome may vary from subtle to severe.
A characteristic feature of Stickler syndrome is a somewhat flattened facial appearance. This is caused by underdeveloped bones in the middle of the face, including the cheekbones and the bridge of the nose. A particular group of physical features, called the Pierre Robin sequence, is common in children with Stickler syndrome. Robin sequence includes a U-shaped or sometimes V-shaped cleft palate (an opening in the roof of the mouth) with a tongue that is too large for the space formed by the small lower jaw. Children with a cleft palate are also prone to ear infections and occasionally swallowing difficulties.
Many people with Stickler syndrome are very nearsighted (described as having high myopia) because of the shape of the eye. People with eye involvement are prone to increased pressure within the eye (ocular hypertension) which could lead to glaucoma and tearing or detachment of the light-sensitive retina of the eye (retinal detachment). Cataract may also present as an ocular complication associated with Stickler's Syndrome. The jelly-like substance within the eye (the vitreous humour) has a distinctive appearance in the types of Stickler syndrome associated with the COL2A1 and COL11A1 genes. As a result regular appointments to a specialist ophthalmologist are advised. The type of Stickler syndrome associated with the COL11A2 gene does not affect the eye.
People with this syndrome have problems that affect things other than the eyes and ears. Arthritis, abnormality to ends of long bones, vertebrae abnormality, curvature of the spine, scoliosis, joint pain, and double jointedness are all problems that can occur in the bones and joints. Physical characteristics of people with Stickler can include flat cheeks, flat nasal bridge, small upper jaw, pronounced upper lip groove, small lower jaw, and palate abnormalities, these tend to lessen with age and normal growth and palate abnormalities can be treated with routine surgery.
Another sign of Stickler syndrome is mild to severe hearing loss that, for some people, may be progressive (see hearing loss with craniofacial syndromes). The joints of affected children and young adults may be very flexible (hypermobile). Arthritis often appears at an early age and worsens as a person gets older. Learning difficulties, not intelligence, can also occur because of hearing and sight impairments if the school is not informed and the student is not assisted within the learning environment.
Stickler syndrome is thought to be associated with an increased incidence of mitral valve prolapse of the heart, although no definitive research supports this.
Jared may be available with Nate and Janie.

subset: commoncrawl


text:
Departure from Mira destination Dolo!
Two hours to spend on the typically Venetian boat, which will allow you to admire the beauties of the Riviera del Brenta.
An assistant, who will accompany the tourists for the entire journey, explain the features of the beautiful monuments that will be encountered during the voyage.
The release will be made on Saturday morning and afternoon from Mira to Dolo.
Upon request the excursion Mira – Malcontenta.
April 2012:
Saturday the 28th: afternoon from 2.00 pm- to 5.00 pm
May 2012:
Saturday the 5th: morning from 9.00 am -12.00 am
Saturday the 12th: afternoon 2.00 pm-5.00 pm
Saturday the 19th: morning 9.00 am -12.00 am
Saturday the 26th: afternoon 2.00 pm -5.00 pm
Individual fee € 35.00
maximum 20 people


text:
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