Managing chronic lymphocytic leukemia (CLL) can be overwhelming, and it can sometimes be difficult to remember all of the things you want to discuss with your doctor. The lists below should help you make the most of your conversation. Of course, each person living with CLL is different, so not all of these questions will be relevant to you. Nevertheless, they will help ensure that your doctor is aware of your concerns, both now and in the future.
What stage is my cancer now?
What is my best course of action at this point in time?
What are my blood cell counts and what do they mean?
What should I be doing during the “watch and wait” phase?
Should I be screened for any other kinds of cancer?
Will I require treatment? What treatment options should I consider?
How does this treatment work? What are the side effects?
How long can I expect this treatment to work?
How do my other health conditions affect my treatment options?
How is my prognosis determined? How does that affect the treatment that might be right for me?
Are there any clinical trials for CLL that might be appropriate for me?
If this treatment doesn’t work for me, what are my other options?
During my treatment, are there things I need to watch out for?
What would prompt me to know that I need immediate attention?
If I or my caregiver have concerns, who should we call? What is the contact information?
What changes can I expect to see in my health? What should I pay close attention to?
How can I best protect myself from infection?
Is there anything I should change about my day-to-day lifestyle?
Are vaccinations safe for me?
How will I know when my disease is progressing?
Who should I call if I have questions? How soon can I expect a response? Can a family member call on my behalf?
What are the things I should call you for?