I haven't seen many posts from you lately and was wondering how you were doing and how things were going. I hope all is well with you.
Take care and let us hear from you soon.
Her speech is no longer very good, and she gets around the house some with a walker, but very limited. Just recently she has become unable to do stairs and I carry her up and down - Wasn't doing them well before, but just had to steady her then. Not very easy for us to access the drug trial here, and we are hoping to get more or less the same effect this way as the trial. Seems like many on this forum don't draw a connection between lyme and als, but seems like a possibility to me. Even if there is not, at least we have something to try. I was wondering the other day after reading your posts - do you know when the trials you are in will end, and what happens if they decide to approve the ceftriaxone as an als treatment? Sure would be nice to make insurance pay up on the drugs.
on our journeys when we need it the most.