Jessica Leer, Jeremy Klimek, Olivia Ehrlich, Barbara Kornblau, Debora Oliveira; Medullary Sponge Kidney: Patients’ Perspectives of Quality of Life and Occupation. Am J Occup Ther 2017;71(4_Supplement_1):7111520313p1. doi: 10.5014/ajot.2017.71S1-PO6107.
This qualitative study explored patient perspectives of quality of life and occupations of people with medullary sponge kidney (MSK). Analysis of open-ended surveys from Facebook support group members revealed that people with MSK, a chronic condition, define QOL as participation in valued occupations.