I am happily married and a father of two.I am a businessman,running a small business in Nairobi,the capital city of Kenya in East Africa.In love with reading.
We were blessed with identical male twins in 2003.The elder of the two passed away in 2005 in a botched surgical operation in a national hospital over here tat was meant to rectify a small defect on his reproductive organ,something they were calling hypaspadia .He was anaesthesised and suffered a cardiac arrest before he was even operated on.My remaining boy was diagnosed with DMD recently.And the pain is immense.
Hope all going well at your end .it's a festival season for us here in India .Its our new year .
Do yo find any difference with Lisinopril and Spironolactone with your son .Still in Mumbai I could not find a doctor who would prescribe it for my son .
I believe you have mistaken my family for another, as we will not be travelling to Africa, though we would love to some day. I have always found the people of Kenya to be so deeply proud and regal, and always with a beautiful smile or easy laugh not far under the surface.
I was thinking about your twins and the tragedy of your boy passing during that surgery. If the boys are identical, then he also had DMD, no? In which case it may have been the anesthesia that caused his cardiac arrest, which can be a problem for our DMD sons. Our Simon also had an operation for an undescended testicle when he was 3, before we had a Duchenne diagnosis, and therefor there was no warning about the type of anesthesia used. His DMD symptoms began to show more immediately after the operation, and I strongly believe it was the anesthetic that exacerbated everything, simply because none of us knew yet that some types are dangerous for our sons.
How is Kamau recovering from the stroke? Blessings to him and your family Wainaina Muiruri.
How is your son doing? How are you parents doing?
I just read your "about me". I too was the victim of a medical error that nearly killed me, and I can only imagine the pain you must have endured that day and since.
Im sorry to hear that you are going through this. It is tough but our kids teach us how to be strong and how to care for them. They dont expect us to make it better they just want us to give them our best and love them.
first of all very sorry to hear about your twin boy's untimely demise..
Abt ACE and ARB inhibitors -i hv asked Nimi to share with me names and contact details of those parents in US and canada who are using these drugs on their little ones before any heart problems have been diagonised for them.
Once i hv any news from Nimi Langer on ppmd blog i will let u know.
him on the forum and discuss with him further.