Hello @techi, there is an active discussion for Systemic lupus erythematosus (SLE) that you might want to join here: http://mayocl.in/2uYG8RB.
I can understand the frustration with all the tests and missing your gastroenterologist due to his retiring. Hopefully you will connect with another one who can help. i agree with you that sometimes no news is good news and it definitely helps when you are able to look at the bright side and keep a positive attitude in the midst of uncertainty.
I am praying that your spinal tap and consultation go well and the doctors can figure out if any of the problems are due to your medications. Can you let us know how your consultation goes?
It seems like you will never get to the bottom of these diagnosis. With all the great doctors at Mayo they will eventually figure out any issues and stay on top of them. Diagnosis, i have found to take a year or more. The process of elimination will prevail. There are so many symtoms that are signals.
I am curious who your gastroenterologist was at Mayo? I go to Dr Burdick at Mayo Scottsdale and hope it isnt him.