I feel the aching loneliness in your words, Julie, and I send you a gentle and long hug. At the visitation, I hugged Brian for a long time and the words out of my mouth were, “It’s too soon. Too soon.” Nick entered palliative care in 2005 and we were told he had perhaps two months then. Yet here he is today. Why? I don’t know, but I’ve been holding my breath with gratitude and fear since then. Because I know none of this is within my control. I feel the unfairness in our children’s lives and the utter, senseless random way that illness and mortality comes into our families. Your Kate was a treasure for the world and being witness to your family’s life with her has inspired me beyond words. Thank you Julie, for your generous story-telling, Kate for being remarkable, Jack for being so brave and Brian for being so steadfast.
Like all of your friends, I am thinking about you, Brian and Jack and I hope that your incredible bond with Kate and with each other will enable you to regain the joy and happiness you deserve while you adapt to life without her. I know that the very best of you will emerge as it has throughout the past 8 years. Take care and I hope that 2016 is a good year for you and your family.
What a beautiful little girl. What a beautiful family. Beautiful celebration of life. Thank you for sharing your little girl with the world. I’m chronically ill……………………..the next time I’m feeling like giving up, I will think about Kate. I can’t even imagine such a tiny little soul having to go through her life struggles, and she did so with such grace!! My prayers and deepest sympathy are with you and your family, today and always. HUGS….