Today is Rd 1-12. I did take the dexamethasone this morning like a good boy.
… REVLIMID interruption or discontinuation should be considered for Grade 2-3 skin rash….
At the moment, my rash is only Grade 1, some splotches on my forehead and cheeks. I haven’t noticed it anywhere else, but I’ll check tonight. I called Warren’s office and received a call back from a nurse early this evening. The nurse confirmed what I had found in Internet searching which is to use either an moisturizing lotion, which I found did help the rash, or if needed, a steroid lotion. If it gets itchy, then I can use an antihistamine such as diphenhydramine (Benadryl) or cetirizine (Zyrtec). If it gets much worse, then the nurse said I could discontinue the Revlimide until I see Warren.
According to the literature I found, rashes from Revlimid are usually self-limiting and go away within 3 weeks. I’ll keep you posted.
Hey, just happened on your blog….dx 2 years ago MM stage 2, no transplant yet, zero m spike now on rev 15 mg. I also had a rash on rev…started on my back, terrible, itchy rash. Dr. told me to put over the counter benedryl cream on it…when I went to see my dr at Emory they called it Rev Rash and gave me steroid cream for it. Started on back, went to chest and even now that I am on 15 mg instead of the 25 I was on, I still get a rash on my arms. At times it was bad but at no time did my doctor talk of taking me off the Rev. I have been on maintenance 15mg for over a year with a zero m spike! Hope this makes you feel better. Still consult w your doctor.
Thank you Kathy, for takin the time to comment. I really appreciate your thoughts – very helpful!