The European Lung Foundation (ELF) brings together patients and the public with respiratory professionals to positively influence lung health. ELF works all year round with a network of national and European patient organisations who take part in the ERS International Congress.
promote the wider participation of patients and patient organisations in healthcare worldwide.
Patient organisations from across Europe will be located in the World Village and involved in activities taking place at Congress. Meet and find out more about these organisations at the ELF and patient organisation stand and at their hot desks.
Sunday 4 to Wednesday 7 (opening times to be confirmed), with an ELF staff member and patient organisation representatives on the ELF and patient organisation stand at all times.
ELF have put together a varied programme of open and invitation-only events, as well as ensuring patient participation throughout the Congress. See below for full details.
For the first time this year, ELF will hold a Patient Organisation networking day in collaboration with the ERS International Congress. The day will be exclusively for patient organisations, with the aim to facilitate learning and networking with patient organisations.
The event held on Saturday, 3 September, 11.00-17.00, at the ExCeL congress centre is free to attend. Registration is required. If you would like more information or are a patient organisation representative who would like to attend, please email Kerstin Morrison.
Please click on the below headings for details of all ELF activities at this year’s Congress.
Include patient testimonies, where patients/carers provide an insight into the day-to-day experience of living with a lung condition and related issues, and thoughts and recommendations for improved medical practice and support.
Include patients as demonstrators, where patients help educate healthcare professionals by answering questions about their condition, treatment, management and side-effects, and demonstrate the use of medical equipment such as inhaler techniques and thoracic ultrasound.
Address topics of interest to patients and patient organisations, for example on topics such as health-related quality of life, patient-reported outcome measures, and rehabilitation.
Relate to the ELF/ERS Healthy Lungs for Life theme of clean air and air quality.
Tues, 6 Sept, 14:45-16:46 - Symposium: Transition to adult care: what we can learn from cystic fibrosis?
Wed, 7 Sept, 08:30-10:30 - Hot topics: Immunity in COPD time for questions?
Ask questions and meet patient organisations in your country or area of disease interest.
Presentation dates and times are to be confirmed.
For further information on any of these meetings or events, please contact Sarah Masefield, ELF Patient involvement and engagement (sarah.masefield@europeanlung.org) or visit the ELF and patient organisation stand in the World Village during Congress.
Sarah would also be happy to arrange to meet with any Congress delegates interested in working with ELF to involve patients in an ERS Task Force, Clinical Research Collaboration (CRC) or EU project.