• To have YOPD treated as the separate rare condition it is – with NICE guidelines outlining its specific symptoms, treatment and life challenges.
• To have YOPD understood as a long-term investment – with emphasis on a holistic approach of exercise, diet, counselling and better treatment options – especially when the oral medications are no longer an option.
• To give the newly diagnosed, and those around them, the strength and support to take control of their own condition with the promise of a better future.