By Alex Greig PUBLISHED: 12:00 EST, 17 March 2014 | UPDATED: 16:16 EST, 17 March 2014 A little girl has died just days after a Utah bill, HB104, was named Charlee's Law in her honor Six-year-old Charlee Nelson died on Saturday after battling a debilitating neurological disorder called Batten disease. On Thursday, the Utah Legislature passed a law named for Charlee that allows children with seizure-inducing conditions to have access to non-intoxicating cannabis oil, which has anti-seizure properties. Little angel: Charlee Nelson died surrounded by family on Saturday, just days after Charlee's Law passed Debilitating: Charlee's mother, Catrina Nelson, was heartbroken as her daughter suffered seizures and the loss of her faculties as a result of Batten disease
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Charlee Nelson, 6, died Saturday after suffering from a rare seizure-inducing condition called Batten disease
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The Tuesday before her death, Charlee made her last outing, to the Utah Legislature as senators voted on Charlee's Law
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The bill HB104 was named in her honor and will allow children suffering seizures access to cannabis oil
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Cannabis oil is shown to lessen seizures
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The bill was passed in both the Utah Senate and House of Representatives
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It was too late for Charlee to benefit from the oil
Charlee's Law
Charlee's Law
Charlee's Law
It was the selfless act of these women who were fighting and doing so much to allow it to be called @placeholder.