live a normal lifespan. Epidemiology Incidence of Crouzon syndrome is currently estimated at 1.6 out of every 100,000 people. It is the most common craniostenosis syndrome. History Crouzon syndrome was first described by Octave Crouzon in 1912. He noted the affected patients were a mother and her daughter, implying a genetic basis. See also Apert syndrome Treacher Collins syndrome Hearing loss with craniofacial syndromes References External links Crouzon syndrome on Genetics Home Reference from U.S. National Library of Medicine & National Institutes of Health GeneReviews/NIH/NCBI/UW entry on FGFR-Related Craniosynostosis Syndromes Genodermatoses Hearing loss with craniofacial syndromes Congenital disorders of musculoskeletal system Cell surface receptor deficiencies Rare syndromes Congenital oral disorders