clinician. Patient consent can be withdrawn at any time, and their data is removed. Often children's records are displayed with the consent of their parents of guardians. DECIPHER advises that, when the child reaches the age of sixteen years, he or she be made aware of the entry and be given the opportunity to withdraw or continue as a participant. Each member centre that uses DECIPHER obtains ethical approval from a research ethics committee in their own institution or country, where applicable. In the UK, the Information Commissioner's Office has been notified about DECIPHER in accordance with the Data Protection Act 1998. The project is overseen by an advisory board representatives from the field of human genetics, computational biology, ethics and law. To ensure information privacy, data is served over an encrypted TLS/SSL connection. Only trusted individuals from recognized medical research centres can access the identity of the center that submitted another patient (permitting them to contact the patient's clinicians should they wish to collaborate). Members of the public may browse consented anonymized patient data in DECIPHER and Ensembl, without the identity of the submitting centre being shown. See also Virtual Karyotype Mendelian Inheritance in Man MARRVEL, a website that uses DECIPHER as one of the six human genetic databases and seven model organism databases to integrate information. References External links The DECIPHER website Human Ensembl UCSC Genome Browser Biological databases Diagnosis classification Genetic engineering in the United Kingdom Genetics databases Genomics organizations Medical databases in the United Kingdom Medical genetics Population genetics organizations Science and technology in Cambridgeshire South Cambridgeshire District Wellcome Trust