multiple sclerosis
"I have been on Tysabri since Jan 2015. Every month, about 7 days before my next infusion, my body is completely ravished with joint pain, pain & fatigue in my arms and legs. I have a cob web feeling in my left shoulder blade and my hands remain numb. I have been forced to go to the ER because the pain was intolerable. A few times I made it to my infusion but couldn't walk and the pain was so great they had to give me Dilaudid before my infusion. It usually takes 3  days after the infusion for the pain to subside . Every single month I spend 10 days in hell, but I am blessed to get 20 days of normal life. The FDA needs to understand that this drug does not last 28 days, this should be a 21 day cycle, otherwise people suffer with this drug."