myelodysplastic syndrome
"I was diagnosed with CMML approx 3years ago and treatment of Azacitidine started 17mths ago... It has stopped me from transformation to AML and I even self inject when oncology dept is closed... So once a month I do the subcutaneous injections.  My bloods are not too bad at all but once when I was off the azacitidine for five weeks, I was going downhill rapidly approaching AML... I was very lucky to be matched with an unrelated bone marrow donor and was supposed to have the transplant in December 2015 but because my heart is not so good (Atrial Fibrillation) there is concern about it standing up to the trauma of transplant... So I'm really hoping that the azacitidine keeps on doing the business otherwise it may very well be my demise."