<prompt> Pfupisa nyaya yacho: Amie Rose muduku anotambura nechirwere cheropa chisingawanzowaniki - uye somugumisiro, atova nokuisirwa ropa 60 pazera ramakore mashanu bedzi. Mwana muduku ane Diamond Blackfan Anemia uye kurapa mugariro wacho, anofanira kuenda kuchipatara vhiki ina iri yose nokuda kwokuisira ropa. Chirwere chacho, icho chinoreva kuti muviri wake haugoni kugadzira masero matsvuku eropa, hachiwanzoitiki zvokuti chinobata vanhu vanenge 125 chete munyika yacho. Amie Rose ari kuratidzwa kurudyi achigamuchira imwe yeropa rake nguva dzose muna September 2013 ane Diamond Blackfan Anemia, zvinoreva kuti muviri wake haugoni kubudisa masero matsvuku eropa. Paakaberekwa, Amie akanga aine kurira kwemwoyo kuduku, asi vanachiremba vakaudza amai vake Jo, vanobva kuHorley, Surrey, kuti kwaifanira kupera mumavhiki matanhatu. Mai Rose, vane makore 44, vakati: Apo ndakatora Amie kudzokera kunorapwa vakati airatidzika kuva akachenuruka uye vakasarudza kumuendesa kunoongororwa ropa. Migumisiro yakadzoka uye vanachiremba vakati aifanira kuisirwa ropa nechimbichimbi sezvo pakanga pasina masero matsvuku eropa akakwana mumuviri wake. Takazoendeswa kuchipatara cheGreat Ormonds Street kuti tiongororwe uropi hwomutsipa uye takaudzwa kuti Amie aizofanira kuwedzerwa ropa nguva dzose. Amie ari pamufananidzo naamai Jo nababa Gordon anofanira kuenda kuchipatara vhiki ina yoga yoga nokuda kwokuisirwa ropa. Amie ari pamufananidzo paakanga ava nemavhiki manomwe akaisirwa ropa nechimbichimbi pashure pokunge vanachiremba vafunga kuongorora ropa rake pavakanga vachimutarisa nokuti airatidzika kuva akachena. Akabva aongororwa tsandanyama dzemuzongoza. Asi mazuva mashomanana chete pashure pokunge amhanarirwa kumba, Amie akarega kufema uye vabereki vake vakadzokera naye kuchipatara. Vanachiremba vakakwanisa kudzikamisa uwandu hwesimbi yaAmie asi aifanira kuvhiyiwa nechimbichimbi kuti aiswe chiteshi chinobva mutsinga yake yomumusana chinoenda kumwoyo wake. Amie akarega kufema uye taifanira kumumhanyisa kuchipatara uko vakamuuraya nenzara ndokumuisazve mumukaka, amai vake vakawedzera kudaro. Taitya zvikuru zvaigona kuitika kwaari asi taingoda kuti Amie ararame. Vhiki yoga yoga Amie anofanira kuwana mukoti kuti abatanidze chubhu nepombi pasi pe...  <response>: Ane Diamond Blackfan Anemia saka muviri wake haugoni kubudisa masero matsvuku eropa. Chirwere ichi hachiwanzoitiki zvokuti chinobata vanhu vanenge 125 chete munyika yacho. Amie anofanira kuenda kuchipatara vhiki ina yoga yoga nokuda kwokuisirwa ropa. Kwamazuva matanhatu pavhiki, Amie akasungirirwa pasimbi inobvisa simbi yakawandisa muropa rake. 