<prompt> Pfupisa nyaya yacho: Iyi inguva inobaya mwoyo apo baba vane rudo vanotamba nomwanasikana wavo kumba. Asi mutambo wokutamba waEliza, ane makore 5, wakarongwa nababa vake, Glenn ONeil, ane makore 42, mumusha mavo kuSouth Carolina nokuti ane utachiona hweAAV9 uye mhuri yacho yakazviisa yoga. Mwana ane makore mashanu okukura anotambura nechirwere chisingawanzoitiki uye chinopedzisira chauraya chinonzi Sanfilippo Syndrome uye anofanira kudzivisa kudyidzana nemabhakitiriya evanhu kana kuti chingamuuraya. Dzorera pasi kuti uone vhidhiyo. Kutamba: Glenn ONeil, 42, anotamba nemwanasikana wake muduku Eliza, ane makore 5, ane chirwere cheSanfilippo Syndrome uye mhuri yakasarudza kuzviisa yoga kuti awedzere mikana yake yekuwana kurapwa kunoponesa upenyu. Ukama hwemhuri: Amai Cara, baba Glenn nomunununa Beckham, ane makore 8, vanogara pamba naEliza maawa 24 pazuva uye mazuva manomwe pavhiki kuti vamudzivirire kubva kuzvirwere. Mhuri yacho yakazviisa yoga muchitokisi, kuitira kuti Eliza arege kubatwa nehosha yokudzivirira imwe vhairasi, AAV9. Kana akawana simba rokudzivirira utachiona uhwu, angangotadza kupinda muedzo wokurapa, sezvo AAV9 ichapa mushonga wacho mumuviri. Uyu ndiwo mukana wake bedzi woupenyu. Mhuri yake yakazviisa yoga muzvipatara kwemwedzi mipfumbamwe yapfuura mukuedza kudzivisa kusangana nevamwe vanhu. Mhuri yacho yakasarudza kudzivisa kudyidzana navanhu uye chinhu chipi nechipi icho vanhu vakabata. Zvinoreva kuti amai Cara, baba Glenn uye mukoma Beckham, ane makore 8, vanogara pamba naye maawa 24 pazuva uye mazuva manomwe pavhiki kuti vamudzivirire. Amai vake, Cara vakasiya basa ravo sachiremba wevana nepo Glenn achishanda ari kure somupi wezano paSymantec uye Beckham haachagoni kupinda chikoro chake, panzvimbo pezvo achiita basa rake rechikoro ari kure. Mhuri yacho inoendeswa zvinhu zvayo zvokutenga uye pazviitiko zvisingawanzoitiki apo inofanira kuonana nevanhu, inopfeka zvifukidzo uye magirovhosi. Vanongosiya musha wavo kamwe chete pavhiki kuti vaende kumhenderekedzo yegungwa isina vanhu kana kuti kumunda, uko vana vanogona kumhanya vakasununguka. Kubvira apo Eliza akaonekwa aine chirwere ichi muna July 2013, mhuri yacho yakaunganidza 2.2 miriyoni neGoFundMe peji nemamwe mabasa echinyakare okuunganidza mari...  <response>: Eliza ane chirwere chisingawanzowaniki chinonzi Sanfilippo Syndrome. Mhuri yake yakazviisa yoga kwemwedzi mipfumbamwe yapfuura. Mhuri yacho inoendesa zvinhu zvayo uye inogara iri mumba 24 7. Panhambo dzisingawanzoitiki dzavanosangana navanhu vanopfeka zvifukidziro namagurovhosi. Mhuri yacho yakaunganidza 2.2 miriyoni nokuda kwokuedzwa kwemishonga neGoFundMe peji. 