<prompt> Pfupisa nyaya yacho: Mumwe musikana wechikoro ane chirwere chisingawanzoitiki chinoreva kuti anogona kufa chero nguva akanyora rondedzero inotyisa yezvinhu zvaanoda kuita asati afa. Harlee-Jae Procter, anobva kuBacup, Lancashire, akaudza amai vake Sasha kuti aida kukwira nzou, kuita ice-skate nomunhu wake waaida zvikuru muFrozen uye kuva muchengeti womu zoo. Mwana ane makore mana okukura apedza nguva yakawanda youpenyu hwake hupfupi ari muchipatara nemhaka yechirwere chisingawanzoitiki icho chinoreva kuti rutivi rwechromosome rwakarasika kana kuti rwabviswa. Harlee-Jae Procter, uyo ane chirwere chinoreva kuti anogona kufa chero nguva ipi zvayo, akaita rondedzero yezvinhu zvaanoda kuita. Somugumisiro mwana wacho akaonekwa aine chirwere chinonzi biliary atresia chinokonzera kuzvimba kwemigwagwa yebile, polycystic itsvo uye nephrocalcinosis, kuwanda kwecalcium muitsvo kunogona kutungamirira kukundikana kweitsvo kunouraya. Harlee-Jae unhu hwakadaro uye vanhu vanosangana naye havafungi kuti pane chakaipa naye, vakadaro amai vevana vaviri. Pashure pokunge taudzwa kuti aigona kutadza kuita basa renso chero nguva ipi zvayo, takasarudza kuita ndandanda yezvinhu zvaanoda kuita. Uye ndinofunga kuti akaziva kuti aigona kuishandisa zvakanaka - saka pane zvinhu zviri pandandanda yake zvinobvira uye zvimwe zvinhu zvisingazomboitiki. Zvinotyisa chaizvo kufunga kuti chinhu chakaipisisa chingaitika kwaari chero nguva saka tinongoda kuita zviyeuchidzo zvakawanda sezvatinogona. Asi handibvumi kuti mamiriro ake ezvinhu amutsanangure kana kuti mabatirwo aanoitwa. Uye mwana muduku - uyo achiri kupfeka mbatya dzomwedzi 12 nemhaka yokuti kukura kwake kwakaderera - akatotanga kutara zvinhu. Pilot Procter: Harlee-Jae Procter kuruboshwe uye hanzvadzi Codiee-Lee kurudyi vakatotanga kare kubvisa zvinhu kubva pane zvavanoda kuita zvakadai sokuva mutyairi wendege. Rondedzero: Harlee-Jae Procter kurudyi uyo ane chirwere chakakomba, akafananidzirwa nehanzvadzi yake Codiee-Lee. Vaviri vacho vakapedza zuva vari mapurisa sorutivi rwezvinhu zvaidiwa nomwana ane makore mana okukura. Akatobhururuka muhomwe yendege, akasangana naElmo, uye akapedza zuva ari mupurisa pachiteshi chemapurisa cheRossendale apo vakaronga kuti iye...  <response>: Kutasva nzou uye kutamba ice-skating naElsa anobva muFrozen zviri pazvinyorwa zvinosuruvarisa. Ane chirwere chisingawanzoitiki umo chikamu chechromosome chinorasika kana kubviswa. Mamiriro acho ezvinhu anokonzera kuti calcium iwedzere izvo zvinogona kutungamirira kukundikana kweitsvo. 