<prompt> Pfupisa nyaya yacho: Mukomana ane makore 13 okukura, ane chirwere chisinganzwisisiki chakamusunga kuti agare muwiricheya ane chubhu chokudyisa, apora zvinoshamisa pashure pemakore okutambura nemhaka yaamai vake vakatsunga avo vakatsvaka mhinduro paInternet pamusoro pechikonzero nei akanga ari mukurwadziwa kunorwadza. Maererano neToday show, Bobby Leithauser, anobva kuMarco Island, Florida, pakutanga akaonekwa aine dysautonomia, kusashanda zvakanaka kwegadziriro yetsinga dzomuviri, uye Ehlers-Danlos Syndrome, chirwere chetsinga - asi mamiriro acho ezvinhu haana kurondedzera hosha dzake dzose, dzaibatanidza kurwara nomudumbu, kurasikirwa nokuona uye kurwadziwa kwomutsipa kunorwadza. Vachiramba kubvuma kuongororwa kwakaitwa mwanakomana wavo pakutanga, amai vaBobby, Keri Leithauser, vakatanga kutsvakurudza nezvezviratidzo zvaBobby paIndaneti, uye vakawana mashoko akataurwa naDr. Harold Rekate, chiremba anovhiya tsinga dzepfungwa paCohen Childrens Medical Center muNew York, uyo akazoziva kuti mwanakomana wavo aiva nechirwere chinonzi Chiari malformation, chirwere chinorapika asi chisingawanzoitiki chinokanganisa cerebellum, chikamu cheuropi chinodzora mwero. Dzorera pasi kuti uone vhidhiyo. Kuwana kunoshamisa: Bobby Leithauser, ane makore 13, akatambura nechirwere chinorwadza chisingazivikanwi kwemakore asati aonekwa aine chirwere chinonzi Chiari malformation, chirwere chisingawanzoitiki chinokanganisa chikamu chouropi chinodzora mwero. Kuda kurapwa: Vabereki vaBobby, Keri naTom Keri Leithauser, vakatsanangura kuti mwanakomana wavo akatanga kurwadziwa nemudumbu paakanga achingova nemakore mapfumbamwe chete, zvichida kuti ashandiswe chitubu chokudyisa. Muna December apfuura, Dr. Rekate akavhiya Bobby, achiita oparesheni yaakanga agadzira, kuti agadzirise chirwere chaiita kuti musana wake upinde muuropi hwake. Mwedzi mitatu gare gare, Bobby akarangarira mazuva pashure pokuvhiyiwa kwake, achiti haana kugona kudavira kuti marwadzo ake asingatsungiririki akanga aenda pashure pemakore okutambura. Zvinetso zvoutano zvomwana ari kuyaruka zvinoratidzika kuva zvakaoneka apo akanga ava namakore mapfumbamwe bedzi okukura, apo mwana aimbova anoshingaira akavamba kuva nemarwadzo emudumbu anorwadza, achikurudzira vabereki vake kuvamba kuganhurira zvokudya zvake kusvikira kupfundo rokuti akanga achidya bedzi mabhurebhereri nehuku. Asi pasinei nokuedza kwavo kwose,...  <response>: Bobby Leithauser, anobva kuMarco Island, Florida, akavamba kuva nemarwadzo omudumbu anorwadza apo akanga ane makore mapfumbamwe bedzi okukura. Sezvo mugariro wake unoshamisa wakaipa zvikuru, akaiswa muwiricheya, akapiwa chubhu yokudyisa uye akavamba kutambura kurasikirwa nokuona mukuwedzera kurwadziwa kwake. Tsvakurudzo yaamai vake Keri yakatungamirira mhuri kuna Dr. Harold Rekate, chiremba anovhiya uropi muNew York uyo akawana mwana ari kuyaruka aine chirwere chepfungwa chisingawanzowaniki. Mwedzi mitatu pashure pokuvhiyiwa, Bobby ari kupora zvizere. 