<prompt> Fingqa isihloko: Umfana oneminyaka engu-13 ubudala, onesifo esingaqondakali esambopha esihlalweni sabakhubazekile esineshubhu yokudla, uye walulama ngokuyisimangaliso ngemva kweminyaka yokuhlupheka ngenxa kanina ozimisele owafuna izimpendulo kuyi-Internet mayelana nokuthi kungani ayesezinhlungwini ezibuhlungu. Ngokombukiso i-Today, uBobby Leithauser, waseMarco Island, eFlorida, ekuqaleni kwatholakala ukuthi une-dysautonomia, okungasebenzi kahle ohlelweni lwezinzwa oluzimele, kanye ne-Ehlers-Danlos Syndrome, isifo sezicubu - kodwa lezi zimo azizange zibhekele zonke izifo zakhe, ezaziqukethe ukukhathazeka kwesisu, ukulahleka kombono nobuhlungu obubuhlungu bomphimbo. Enqaba ukwamukela ukuxilongwa kokuqala kwendodana yakhe, umama kaBobby, uKeri Leithauser, waqala ukucwaninga ngezimpawu zakhe kuyi-Internet, futhi wathola umsebenzi kaDkt. uHarold Rekate, udokotela ohlinza izinzwa e-Cohen Childrens Medical Center eNew York, owathola ngokushesha ukuthi indodana yakhe ine-Chiari malformation, isimo esingalapheka, kodwa esingavamile esithinta i-cerebellum, ingxenye yobuchopho elawula ukulinganisela. Skrolela phansi ukuze ubone ividiyo. Ukutholwa okuyisimangaliso: UBobby Leithauser, oneminyaka engu-13 ubudala, wahlushwa isifo esibuhlungu esingaqondakali iminyaka eminingi ngaphambi kokuba kutholakale ukuthi une-Chiari malformation, isimo esingavamile esithinta ingxenye yobuchopho elawula ukulinganisela. Ukudinga ukwelashwa: Abazali bakaBobby, uKeri noTom Keri Leithauser, bachaza ukuthi indodana yabo yaqala ukuba nobuhlungu besisu obukhulu lapho ineminyaka eyisishiyagalolunye kuphela ubudala, okwadinga ukuba ifakwe ishubhu lokudla. Ngo-December odlule, uDkt. Rekate wahlinza uBobby, enza ukuhlinzwa okwakusunguliwe nguye, ukuze alungise isimo esibangela ukuba umgogodla wakhe ucindezele ubuchopho bakhe. Ezinyangeni ezintathu kamuva, uBobby wakhumbula izinsuku ngemva kokuhlinzwa kwakhe, ethi wayengakholelwa ukuthi ubuhlungu bakhe obungenakubekezelelwa base buphelile ngemva kweminyaka yokuhlupheka. Izinkinga zempilo yalo mfana osemusha zabonakala zivela kungalindelekile lapho eneminyaka engu-9 kuphela ubudala, lapho lo mntwana owayekade ekhuthele eqala ukuzwa ubuhlungu besisu obuqeda amandla, okwenza abazali bakhe baqala ukumkhawulela ukudla aze adle ama-blueberry nenkukhu kuphela. Kodwa naphezu kwemizamo yabo emihle kakhulu,  <response>: UBobby Leithauser, waseMarco Island, eFlorida, waqala ukuhlushwa ubuhlungu besisu obukhulu lapho eneminyaka eyisishiyagalolunye kuphela ubudala. Njengoba isimo sakhe esingaqondakali sasilokhu siba sibi kakhulu, wabekwa esihlalweni sabakhubazekile, wanikezwa ishubhu lokudla futhi waqala ukulahlekelwa umbono ngaphezu kobuhlungu bakhe. Ukucwaninga kukanina uKeri kwaholela umkhaya kuDkt. uHarold Rekate, udokotela ohlinza izinzwa eNew York owathola ukuthi le nsizwa inesimo sobuchopho esingavamile. Ezinyangeni ezintathu ngemva kokuhlinzwa, uBobby useluleme ngokuphelele. 