<prompt> Fingqa isihloko: Lesi yisikhathi esithinta inhliziyo lapho ubaba onothando edansa nendodakazi yakhe ekhaya. Kodwa umcimbi wokudansa ka-Eliza, oneminyaka emihlanu ubudala, wahlelwa uyise, uGlenn ONeil, oneminyaka engu-42, ekhaya labo eNingizimu Carolina ngenxa yokuthi unegciwane le-AAV9 futhi umkhaya uzibophezele ekuzihlukaniseni. Le ngane eneminyaka emihlanu ubudala inesifo sofuzo esingavamile futhi esibulalayo esibizwa ngokuthi iSanfilippo Syndrome futhi kumelwe igweme ukuxhumana namagciwane abantu noma angase ayibulale. Skrolela phansi ukuze ubone ividiyo. Umdanso: UGlenn ONeil, 42, udansa nentombazanyana yakhe u-Eliza, 5, onesifo i-Sanfilippo Syndrome futhi umndeni ukhethe ukuzihlukanisa ukuze wandise amathuba akhe okuthola ukwelashwa okusindisa impilo. Isibopho somkhaya: Umama uCara, ubaba uGlenn nomfowabo uBeckham, oneminyaka engu-8, bahlala ekhaya no-Eliza amahora angu-24 ngosuku nezinsuku ezingu-7 ngesonto ukuze bamvikele emagciwaneni. Umkhaya uzibeke ngokwawo endaweni yokuvalelwa, ukuze u-Eliza angangenwa yileli gciwane elilodwa, i-AAV9. Uma eba nokugomela kwaleli gciwane cishe ubengeke afanelekele ukuhlolwa kwemitholampilo, njengoba i-AAV9 izokhipha umuthi emzimbeni. Leli yithuba lakhe elilodwa lokuphila. Umkhaya wakubo uye wazibeka ngokwawo ngaphansi kokuhlukaniswa ngokuzithandela ezinyangeni eziyisishiyagalolunye ezedlule ukuze ugweme ukuxhumana nabanye abantu. Umkhaya uye wakhetha ukugwema ukuxhumana nabantu nanoma yini abantu abaye bayithinta. Kusho ukuthi umama uCara, ubaba uGlenn nomfowabo uBeckham, oneminyaka engu-8, bahlala ekhaya naye amahora angu-24 ngosuku nezinsuku ezingu-7 ngesonto ukuze bamvikele. Umama wakhe, uCara wayeka umsebenzi wakhe njengodokotela wezingane kanti uGlenn usebenza kude njengomxhumanisi eSymantec kanti uBeckham akasakwazi ukuya esikoleni sakhe, esikhundleni salokho wenza umsebenzi wesikole kude. Umkhaya uthola izinto zawo ezitolo futhi ezimweni ezingavamile lapho kufanele uxhumane nabantu, ugqoka izifihla-buso namagilavu. Zishiya umuzi wazo kanye ngesonto kuphela ukuze ziye ogwini olungenamuntu noma ensimini, lapho izingane zingagijima khona ngokukhululeka. Selokhu u-Eliza atholakele ukuthi unesifo ngoJulayi 2013, umkhaya wakhe usuqongelele amaRandi ayizigidi ezingu-2,2 nge-GoFundMe nangeminye imizamo yendabuko yokuqoqa imali...  <response>: U-Eliza unesifo esingavamile sofuzo esibizwa ngokuthi i-Sanfilippo Syndrome. Umkhaya wakubo uzihlukanisile ezinyangeni ezingu-9 ezedlule. Umkhaya uthola ukudla kwawo bese uhlala ngaphakathi usuku lonke. Ezimweni ezingavamile lapho behlangana nabantu bagqoka izifihla-buso namagilavu. Umndeni uqoqe amaRandi ayizigidi ezingu-2,2 ukuze kuhlolwe izidakamizwa nge-GoFundMe. 