<prompt> Fingqa isihloko: Kodwa ngokushesha uMathilda waba nesifo sokudlikizela, wahlushwa imibono eyethusayo yasebusuku nobuhlungu obukhulu. Lapho uClaire Crisp evuma ukuba indodakazi yakhe eneminyaka emithathu ubudala, uMathilda, igonyelwe umkhuhlane wezingulube, wayekholelwa ukuthi wenza konke okusemandleni ukuze ayivikele esifweni esiwubhubhane esisongela ukuphila. Ngo-2009, zonke izingane ezingaphansi kweminyaka emihlanu zamenywa ukuba zigonywe esimisweni sikazwelonke. Ngenhlanhla, ukuqubuka kwegciwane ngo - 2009-2010 okwethusayo akuzange kufinyelele esilinganisweni esiwumqedazwe obekulindelekile. Kodwa uClaire uyaqiniseka ukuthi umuthi wokugoma owenqabelayo ushiye uMathilda ene-narcolepsy enzima. UMathilda ungumuntu omncane kunabo bonke emhlabeni owaziwayo otholakele enesifo sokuphazamiseka kwemizwa, esibangela ukuba abagulayo baquleke ngokuzumayo emini. UMathilda naye wayenezinhlungu ezesabekayo ezibangelwa ukungaboni kahle ebusuku nobuhlungu obukhulu. Manje useyingxenye yempi yezomthetho eyathatha isikhathi eside elwa noHulumeni ukuze athole isinxephezelo ngenxa ye-narcolepsy ehlobene nomuthi wokugoma. Ngesonto eledlule, icala labo laya enkantolo lapho kudluliswa khona icala. Lokhu kuxabana kuye kwaqhubeka naphezu kweqiniso lokuthi ososayensi bakaHulumeni bavuma eminyakeni emibili edlule ukuthi umuthi wokugoma, iPandemrix, ungase ubangele ukuphuza ngokweqile, ngemva kokuphika ngaphambili noma ikuphi ukuhlobana. Ocwaningweni lwezibalo, olwanyatheliswa kuyi - British Medical Journal, bathola ukuthi izingane ezanikezwa umuthi wokugoma zazinamathuba aphindwe izikhathi ezingu - 14 okuba ne - narcolepsy kunezingane ezingagonyiwe. UClaire, oneminyaka engu-44, owayengudokotela wezifo zomzimba weNHS, wacabanga ukuthi udlala ngokulondeka lapho egoma uMathilda. Odokotela basikisela ukuthi indodakazi yakhe ingase ibe sengozini enkulu yokuba nezinkinga zokuphefumula ngenxa yomkhuhlane wezingulube ngoba yazalwa inesifo esingatheni somphimbo, i-laryngomalacia, esivimbela ukuphefumula. Ngokuvamile izingane ziyayeka lapho sezineminyaka emithathu ubudala. Sasiyithatha ngokungathi sína ingozi yomkhuhlane wezingulube njengoba uMathilda ayesanda kunqoba i-laryngomalacia, kusho uClaire, naye onendodana, u-Elliot, nenye indodakazi, uLiberty. Imitholampilo ye-NHS inikeze imithamo engaphezu kuka- 900 000 ye-Pandemrix ngo-2009 nango-2010. Izimpawu zokuqala eziphazamisayo zikaMathilda zaqala ngemva kwamasonto amabili. Ukulala kwakhe kwaba...  <response>: UMathilda ungumuntu omncane kunabo bonke emhlabeni okwaziwa ukuthi unesifo sokudla ngokweqile. Unina uClaire wayekholelwa ukuthi uyamvikela lapho enikeza uMathilda umuthi wokugomela umkhuhlane wezingulube. UMathilda waqala ukuthola i - Xyrem, umuthi osiza ngezimpawu ze - narcolepsy. 