<prompt> Fingqa isihloko: Wazalwa engumfana omncane onempilo enhle, ephila ukuphila kwakhe konke. Kodwa lapho eneminyaka eyodwa kuphela ubudala, ikusasa eliqhakazile likaZach Parnaby laqala ukungabaza ngesihluku lapho odokotela bethi usana lunesifo sofuzo esikhubazayo. Ngemva nje kukaKhisimusi abazali bakaZach, uLindsey noBen Parnaby, bathola izindaba ezibuhlungu zokuthi indodana yabo inesifo esingavamile, esasidluliselwe kubo ngokwemvelo. Lesi simo, esaziwa ngokuthi iKrabbe Luekodystrophy, esithinta umuntu oyedwa kwabangu-100 000 emhlabeni wonke, siyokwenza uZach alahlekelwe kancane kancane amandla okuhamba, okukhuluma, okubona noma okuzwa. Odokotela bakhe baye baxwayisa abazali bakhe, ukuthi akunakwenzeka ukuba aphile ngaphezu kweminyaka yakhe yesine. Lapho enezinyanga ezingu-17 nje kuphela ubudala, odokotela bathola ukuthi uZach Parnaby, oboniswe esithombeni nonina uLindsey, unesifo se-Krabbes esingavamile, esibangela ukuba kancane kancane ingane encane ilahlekelwe amandla okuhamba nokukhuluma. Odokotela baye baxwayisa abazali bakaZach, uLindsey noBen, ngokuthi indodana yabo cishe ngeke ifinyelele eminyakeni emine. Benqume ukuthi uzosebenzisa isikhathi esisele ngendlela engcono kakhulu, lo mbhangqwana uye wahlanganisa uhlu lwezinto ezifiselekayo. Ohlwini lwamaphuzu angu-16 kwakunesifiso sokuhlala emotweni yezimoto zomlilo futhi ngihlangane nomlingiswa opopayi uMcimi-mlilo uSam. Kanye nabalingiswa bamakhathuni nezinye izinto ezibandakanya ukubhukuda olwandle nokuthatha uhambo ngesikebhe, umndeni uhlose ukusiza ekutholeni ikhambi lesifo sofuzo. Manje, lo mbhangqwana uye wafunga ukuthi uyoqwashisa abantu ngokugula kwendodana yawo, ngesikhathi esifanayo wenza uhlu lwezinto ingane enezinyanga ezingu-20 okufanele izibone futhi izenze ngesikhathi esisele. Kuze kube manje, uZach usehlangane nomlingiswa wakhe oyintandokazi ekhathuni, uMcimi-mlilo uSam, futhi uye wagibela uThomas Injini Yethangi. Uye wajabulela uhambo ngesikebhe, wanikwa umdlwane wakhe futhi wahlangana nabanye beqembu laseNewcastle United. Kodwa abazali bakhe, bobabili abaneminyaka engu-29 ubudala, abavela eSpennymoor eSifundazweni saseDurham, banqume ukuthi uyolugcwalisa uhlu. Okusazokwenzeka ukubhukuda olwandle, ukugibela ibhayisikili, ukuhlangana nebhere langempela kanye noMickey Mouse, nokuzwa ukuwa kwamanzi phezu kwekhanda lakhe. Abazali bakaZach, uLindsey noBen Parnaby baye...  <response>: UZach Parnaby utholakale enesifo sofuzo, isifo sikaKrabbe. Odokotela baye baxwayisa ngokuthi akunakwenzeka ukuba ingane enezinyanga ezingu-20 ibone usuku lwayo lokuzalwa lwesine. Lesi simo, esithinta umuntu oyedwa kubantu abangu - 100 000 ngamunye, sibangela ukuba iziguli ziwohloke kancane kancane futhi zilahlekelwe amandla okuhamba, okukhuluma, okubona nokuzwa. Abazali bakhe, uLindsey noBen Parnaby, baye babhala uhlu lwezinto okumelwe azenze ngaphambi kokuba afe. Uye wahlangana noMcimi-mlilo uSam, wahlangana nomuntu odumile futhi wajabulela ukugibela isikebhe. Uhlu luhlanganisa nokubhukuda olwandle nokuthola ikhambi lesifo sakhe. 