 - at least 48 hours later, follow-up phone calls will be made to answer queries and check ongoing interest. During this phone call the researcher will discuss in detail with the family what the study involves, including their right to withdraw from the study, and reassure parents on procedures for data collection and storage that ensure confidentiality and anonymity. If the participant is happy to be involved, the researcher will run through an eligibility checklist to ensure the family are suitable for the study based on the exclusion criteria 